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4001. 
4000!?! Woohoo!
Thanks Casey and Bogeyi - wow! I'm stunned that little old me started this mammoth thread LOL (((((Huge hugs))))) to all my MB friends :o)
soniat-d (153 
) 10:03
am,
2 Jul
4002. Wow
Just showed Chris he thought it was cool too. ((((((((((HUGS)))))))))) to you Sonia - you are a TM MB Legend! So glad you started this thread. Thanks xo
4003. 
OMG!!!! Congratulations
Sonia and everyone involved in this wonderful thread. You are all fantastic caring people and I am honoured to be a very small part of it. Wishing all a great day & sending strength & warm fuzzies to all!!!! All the best, Claire XXX
4004. what a wonderful day
the sun is shining birds are singing and I'm pain free today. my wish for you all is that you also have a great day.my darling man has cooked the traditional roast lunch and served it outside in the veranda in the sun.we have gone from -4 this morning to a beautiful sunny day so I'm off to sit outside and enjoy.
4005. Hi ladies and kids, I'm just off out for the after
noon, to drop my daughter off and then to visit a friend. Hope you're all having a fab day. Love and hugs all round...
4006. Hi everyone....
its taken me ages to catch up on 3 days postings! Hope Joshi is feeling better now Paula. Bigs hugs to all the kids out there going thru treatment at moment. Maewest hope you really enjoy your days off!!!! Don't know how you do it. Joystik hope you get your port in this week. Can't understand why they didn't do it before your first chemo especially when they knock you out. Yep I had my under local in morning and first chemo in afternoon and all was fine. Bit tender for couple of days. Glad chemo is going well for you. Sorry wasn't my gums sore but my tongue. I went to Dr though and he gave me some dental paste to use and cleared up the ulcers in under 24 hours. So ASK as I wished I hadn't put up with it for so long.
landylass (48 
) 1:38
pm,
2 Jul
4007. I had ice on Friday getting
back to Dunedin as it had rained the night before! At least it was sunny and I just took it careful. Had my treatment and debated if I would go shopping or head home to the annual grudge rugby match between the two high schools and that won out as it was a lovely sunny day. Road was a lot better going home as sun had got to most spots. So spent nearly 3 hours on road for 20 mins there! Both my kids were at the grudge match and it was great entertainment. Lots of hakas, and good humoured abuse thrown at opposing schools. Miss16 attends the girls high and all the 7 formers got to go to the match. Mr14 was there too. One of our employees from the opposing school scored a try right on full time and made it a 12 all draw. It was funny watching all the old timers who thought our school had it in the bag!
landylass (48 ) 1:45
pm,
2 Jul
4008. So are you slathering on the aqueous cream
Landylass? What shape is your treatment area out of interest? My first standard one was like an upside down archway (or oval with the top half chpped off). How are you finding it? Do you get the same staff every day?
soniat-d (153 ) 1:48
pm,
2 Jul
4009. I have done absolutely
nothing this weekend and loved every minute of it! Had a rash about Tuesday on radiation area but think it was shampoo that I used. Away back to Dunedin in morning but this week is a short one for me as no appointment Fri due to machine maintenance and an early one Thurs means a 4 day weekend. Snow is predicted on Tuesday but I won't be on the road that day. Have a good week everyone and hope all those with sickness and low blood counts, pick up. My two have both had sore throats for 2 weeks but nothing futher and novavirus has hit town and closed one rest home and caused a few cases out round town. Best I go back south quick!!!!
landylass (48 ) 1:49
pm,
2 Jul
4010. Different staff every day,
keeping up the cream. They are going in on an angle getting the inside edge of left boob, whole of right boob, and a small part of right armpit. The major aim are the lymph nodes deep in the middle of my chest. Going fine so far but early days yet. Couple of people went home after 4 weeks treatment from Cancer House last week. One lady had red looking burn but she said it wasn't sore. Just taking each day as it comes and see what develops! Getting a bit sick of driving on ice though!
landylass (48 ) 1:52
pm,
2 Jul
4011. Can anyone tell me if wee
Corrina is still hanging in? Her threads seemed to have disappeared yet again.
landylass (48 ) 1:54
pm,
2 Jul
4012. Hi Landylass, Corrina is a brave wee fighter
I just got this off her website - "Jul 2 2006 02:21 pm ***MESSAGE FROM CHRIS***Corrina had a pretty good night last night.She decided to get up at about 9pm and play with all her noisy toys, and play and play and play lol then when she was tired out she got her pain relief about midnight and went to bed.Today she is doing well to, she has her other grandma and grandad visiting her today.Hopefully she will have the rest of today happily playing to.Will do another update later when we see her.Thanks for your lovely messages.love and hugs chris xxx"
meridian1 (294 
) 2:04
pm,
2 Jul
4013. Hi what lovely wee girls
Lydia, Emily and Cassie. Lydia is your double Sonia they look so cute. Hope you all have a nice day it is sort of cold and cloudy here today feel like running off too the shop for apples for crumble might used tinned peaches instead.I am off to CH CH tomorrow for a few days to see my grands will miss you all so take care and god bless. Bet
4014. That's odd
Ive just noticed the Date and time on the message from Chris on Corrina's website. It doesn't add up, but I expect it was just a wee typo. Maybe she meant 12.21pm.
meridian1 (294 ) 2:18
pm,
2 Jul
4015. Hi what lovely wee girls
Lydia, Emily and Cassie. Lydia is your double Sonia they look so cute. Hope you all have a nice day it is sort of cold and cloudy here today feel like running off too the shop for apples for crumble might used tinned peaches instead.I am off to CH CH tomorrow for a few days to see my grands will miss you all so take care and god bless. here is my precious wee grandaughter she only loves her pj's. Lives on a farm and just loves her pig. http://images.trademe.co.nz/photoserver/16/23652816_full.jpg
4016. Karen here
Hey Sonia,Paula and Bogey.Found out 2 hours ago that my That my Nan is in hospital.She has had two strokes this week.So bit upset.Going to Wellington in a few days.Cam is good today.Bruising has come up alot more.Litte rats that did this.I talked to each of them today and gave them a rark up.Jesse is at her fathers today.I gave Jesse my wedding rings cause she wanted them when i through Aaron out.She wears them now on her right hand and Aaron hates it.LOL.
globalandworlds (4) 3:09 pm, 2 Jul
4017. landylass
hi how are you? good to see you are home and enjoying some resting up. was thinking about you during the week wondering how you where getting on.? we have had very up and down week in our house. he is getting excited about going away this week so i hope he remains stable while away. fingers crossed anyway. my kids have the bugs too so have had mr 13 home all week and gran has taken him away home to rest and recoup and spoil :) i bielive the wee angel corrina is still hanging in there. hope treatment is all going along ok for you all. And especially to the kids. keep warm :)
4018. hi everyone
we had an awesome day today I took the kids to butterfly creek, stayed for about 4 hours kids had a blast loved the petting zoo.Hope you all had a good day as well.
4019.
Thats cool bogeyi
We were there last weekend! Yep the girls loved the petting zoo best too ;o) Hi everyone, sorry only in here for a sec, gotta cook din dins now ;o) Have a nice evening :o)
soniat-d (153 ) 6:02
pm,
2 Jul
4020. LOL Jesse came home from her fathers in a poop
today.She just doesnt like him ay its so hard case but she has to tolerate him.Cam is quiet around him as well.Cams swelling has gone down alot.Boys are very apologetic.
globalandworlds (4) 6:02 pm, 2 Jul
4021.
Wow Global
That great that the boys are apologetic :o) Fingers crossed as goes OK on Monday. Glad the swelling going down - I'm still astounded that 12 year old boys could do that. They grow up so quickly these days :o/ !!!
soniat-d (153 ) 6:05
pm,
2 Jul
4022. 
Hi...
Lovely photo Boop. How cute in her jamas out there! Bogey & Sonia that Butterfly place sounds awesome. Glad you had a neat day too. Chris and I both thought about visiting Joystik today, but with her being Neutrapenic and Josh not 100% I would never forgive myself if we gave her something. Next time hopefully!!So instead I typed for about 3 hours on Josh's website updating his journal on our everyday bits since we were diagnosed only got as far as when we finally got home from Christchurch in November. Man it bought it all back just what hes been through. Glad I kept a journal. Cos you do forget so much! Will plug away at it again, when I can. Off to dish up the roast lamb. Have a good night everyone. Thinking of you
4023. WOW (wipes tears away)
Paula I have just read Joshs site, what a journey you guys have been on. Paula can I ask did the drug cause the hemmorage?one of those risks thats out of our hands.
4024. Hey Bogey
Yeah its a really tough one that one. Yes the drug did cause it. Took ages to realise what had happened. It is a risk. But one I would take again (not with that drug) because the alternative isnt great is it? They removed that one from the protocol hes on. I read your journal the other night and was talking to my hubby about it. You too have had a journey and a half!! Its still just one day at a time isnt it... xo
4025. Thats right Paula while one child may handle
some drugs, another may react differently.Hes such a brave wee man, I hope one day the boys can meet.
4026. Bogey
I was just thinking the same thing! Thanks. I hope they can too, cos that means we will as well.
4027. Oh Paula, I have spent ages crying my way
through Joshi's journel. It is so sad what that poor little bloke has been thru. It almost breaks my heart to read it all so I can only just imagine what it been like for you all as a family. Its a wonder the poor kid can smile at all at times. But of course you do and you keep on going, knowing that tomorrow is another day, and a better day and one day closer to being back to super health again. I just told a lady the other day, on this journey you have good days and better days! Dont even think about bad days. Thanks fo sharing that with us all, it certainly makes me think how lucky I am. Would have been lovely to see you all today, but probably health wise not the best timing as its turned out. We ended up ot going to our friends, just dropped Lauren off at cardmaking and came home. I made the famous vege soup for tea, and did very little else!! Love and hugs to you all
4028. Bogeyi, sounds like you had a lovely time at ....
Butterfly creek. Rather a beautiful plae by the look at their website. My Lauren would love that place, shes right into stuff like that. Glad Ryan is feeling ok at present too. Love and hugs to you all.
4029. Paula
what a strong little man you have. My heart is breaking thinking of all he has been through (and of course you Chris and Cass). What a darling she looks in her fairy costume! Aren't the tender moments shared between siblings soooooo special :-). My two are 5 (Lennon) and 10 (Phoebe). It makes me really proud to see them caring for each other. Hope Joshi he feeling better!
meridian1 (294 ) 9:54
pm, 2 Jul
4030. 
Hi All
I can't get into Joshi's site at the moment - says I overstayed the allowed time last time - must have forgotten to close the window. Will try again later. Sounds like a must-read, sorry to hear its been so awful Paula. I can barely imagine... We've had a rough time with the girls today, don't know what's wrong with Emily - a trial all day so guess we're off to the docs tomorrow. Lydia burst into tears out of the blue tonight as I was singing goodnight to her. She said she was "worried about my boobie getting worser" - its a tough one to navigate. Oh well, house is a bombsite, will do half-an-hours worth and lie down. Been a yucky day (weather was gorgeous though). Hopefully after a good sleep they'll be better tomorrow. ((((hugs)))) to you all.
soniat-d (153 ) 9:54
pm, 2 Jul
4031. Paula
Glad to hear you had a lovely day. I loved the photos of Ryan you linked earlier. I presume that was your other son in one of the photos. Very handsome boys!!!!
meridian1 (294 ) 9:57
pm, 2 Jul
4032.
Ryan is bogeyi's boy Meridian ;o)
Paula's Joshi is a stunner too :o) How are you this evening Meridian?
soniat-d (153 ) 10:02
pm, 2 Jul
4033. Sonia, your two girls are just beautiful, truely..
they are just like you, and you are beautiful too. Those pics of them in their ballet costumes are just lovely. No wonder you are such a proud mummy.. Glad you have had a super weekend. Love and hugs to you and yours Sonia....
joystik (281 ) 10:03
pm, 2 Jul
4034. Oh dear Paula
your poor little ballerinas. Isn't it horrible when they worry. I hope things are better tomorrow, and that Emily perks up. I think you are a fabulous Mummy. The photos of the girls are so cool! My ultrasound is tomorrow. I wish it was earlier - 4.30pm means I have to be anxious all day. Well, at least I will have the children here to distract me. Wish me well. (BTW - my name is Shirree).
meridian1 (294 ) 10:05
pm, 2 Jul
4035. meridian yes thats my youngest Tyler 5
peeking at the back, he is Ryans donor.
4036. Oops Paula - I knew that
but you are absolutely right ... Joshi IS a stunner, and so is Cass. The previous post was meant for bogeyi - silly me!
meridian1 (294 ) 10:07
pm, 2 Jul
4037. I'll be thinking of you then Shirree
Thanks for letting me know, I was wondering when it was... I'll send as many positive vibes as I can in your direction and hope for the best. Let us know how you get on. Be glad for the distraction of kids - at least they make the hours fly by!
soniat-d (153 ) 10:09
pm, 2 Jul
4038.
You keep calling me Paula too Meridian LOL
I'm flattered, as shes a real stunner ;o)
soniat-d (153 ) 10:10
pm, 2 Jul
4039. Sorry Sonia, you day wasn't as good as it started
out. We all have those days dont we, even little people. It must be hard for Lydia, and she obviously has some understanding about what is happening for you. Poor wee doll. Give her an extra long hug from me and wee Emily too.
joystik (281 ) 10:10
pm, 2 Jul
4040. Seems I have Paula on the brain
Sorry Sonia - every one's name is Paula in my head tonight ;-)
meridian1 (294 ) 10:12
pm, 2 Jul
4041. bogeyi (got it right this time) *grins*
Tyler - what cool names your boys have. Do you have another child? What a special gift Tyler has given his big bro! Like you said on your site - true blood brothers! You certainly have heaps to be proud of!
meridian1 (294 ) 10:16
pm, 2 Jul
4042. Landylass, you are so busy, driving up and down
those terrible icy roads, having treatment and being the fabulous mum and being there for your kids. YOU ROCK!! Glad to hear its all going really good. You must be half way through almost now?? Is Sonia still there?? Say hello from me. I'm fine and have Oncology clinic with Dr Perez on tuesday, and will find out then what they ar doing about this port. The reason it hadn't been done before the chemo started, was because no one had asked for it!! Now the timing is seriously out of kilter. They may well do it this friday if the bloods are right and then put the chemo in straight after. Hope so...fingers crossed. I have a sore tongue too, not my mouth, just the tongue. Hair is just starting to come out a few strands at a time. Quite resigned to it now but guess it will a bit sad when it all goes. Had to wear a wee hat in bed last night cos my head was so sore.
joystik (281 ) 10:18
pm, 2 Jul
4043. My last post was too long....but I was going on to
say, when the cat came in with a mouse for me at 12.32am,he looked at me an growled. He didnt like the hat either. I took it off for him and my head wasn't hurting so much. Funny little boy!! Hope you have a good week, been lovely to catch up again. Love and extra hugs to you, and please do be really careful on those roads wont you???
joystik (281 ) 10:21
pm, 2 Jul
4044. Meridian, I will be thinking of you tomorrow too..
hope it all goes well for you. Take care and try not to stress about it. Hugs and special thoughts for you....
joystik (281 ) 10:23
pm, 2 Jul
4045. Hi Boop, you wee grand-daughter is beautiful too
How old is she?? About 3? Does she live near Westport or over in Canterbury? Is she the only one or do you have others?? Kevin has 9 all together, although 6 of them are in Aussie, ohh...and 1 great grandchild as of last week!! Well I guess they are mine too, seeing as I am married to him!! Doesn't seen quite right at 44 though. Hope you have had a nice weekend anyway. The tamarillos are delicious....I have been trying to not eat too many at once cos they sting the spots on my tongue. Have a nice time with the grandies. Love and hugs to you too....
joystik (281 ) 10:27
pm, 2 Jul
4046. Hi global, glad Cam is feeling better today, and
I hope he is feeling even better tomorrow. Probably a good thing its school holidays at the moment so he doesn't have to be with those 'rat-finks' if he doesn't want to. Sorry about your Nan - hope she will be ok too. Thinking about you all, love and hugs......
joystik (281 ) 10:30
pm, 2 Jul
4047. Hi Sonia
been following this thread and sending lots of positive vibes out to all the lovely people contributing. Just a question I have, did any of you doing chemotherapy lose your sense of taste at all, and how long after treatment, radiation and chemo did it come back?
stormbaby (2263 
) 10:31
pm, 2 Jul
4048. Kiwikaz, lovely to see you again...I had been
thinking about you during the week and wondering how things were in your house. School holidays now so that means different routines again doesnt it. Are you going away for the holidays?? We arent, but Lauren has gone to stay with a friend in Invercargill, so she was really happy. Take care and hugs to you all.....
joystik (281 ) 10:33
pm, 2 Jul
4049. Meridian, at least you only get peoples kids mixed
up. I go up the street and leave stuff cooking on the stove, and have to SOS the neighbour to get it turned off before the house burns down!!
joystik (281 ) 10:35
pm, 2 Jul
4050. I'm off to bed now.....nite nite everyone, and....
especially to anyone I havent posted a special message too. I think about everyone and read all your lovely messages. This thread is so big now. Thanks so much Sonia for starting this for us so we can all chat together. See you all tomorrow....sweet dreams everyone....
joystik (281 ) 10:37
pm, 2 Jul
4051. Aww joystick
you are a sweetie with your kind wishes (and trying to make me feel better about my fopahs). I didn't get the children mixed up - I knew exactly who belonged to who - my fingers just kept typing Paula. You are definately not the only one who leaves pots on the stove etc. I found that after my surgery my brain just went kaput! It still hasn't come right.
meridian1 (294 ) 10:41
pm, 2 Jul
4052. globalandworlds
I'm so sorry to hear about your Nan ... and poor Cam (give him a hug from me). I hope the boys who hurt Cam are very ashamed! It hasn't been a great weekend for you has it?
meridian1 (294 ) 10:50
pm, 2 Jul
4053. Goodnight girls
and thanks for everything. I truley appreciate all your kind words and thoughts, and feel really priviledged to be speaking with a bunch of such awesome, beautiful people. I will let you all know how things go tomorrow. Ohh - Paula - sorry for lending your name to everyone. It is not unusual for me to muddle names - the 3 boys I care for are named Jace, Jak and Jason - they all get called each other's names. On that note - goodnight once again.
meridian1 (294 ) 11:04
pm, 2 Jul
4054.
Hi Stormbaby
I don't know if I lost my taste so much as lost my appetite. Maybe it was both? I can't remember! It came and went during chemo. Joystik would be best to answer that one, being in the middle of it. Are you going through it too Stormbaby?
soniat-d (153 ) 8:47
am, 3 Jul
4055.
Hey Meridian ;o)
No worries! I do that with my girls too! What's with that? LOL!
soniat-d (153 ) 8:54
am, 3 Jul
4056.
We slept in again this morning again!!!
Emilys still asleep so letting her sleep off whatever it was, checking her often. My iPAQ needed a complete reset which means all the appointments I made late last week are not in there or on my PC (hadn't syncronised for a few days) so spending this morning ringing up asking what times my appointments are LOL! Also calling DR Benji to try and shift to the Tuesday spot he offered me, hope its still open. Good luck with everything today Joystik, and Landylass, Meridian thinking of you this avo, Joshi hope the spots are fading, and to Ryan and everybody else I haven't mentioned by name I hope you all have a great day xoxoxox
soniat-d (153 ) 8:54
am, 3 Jul
4057. Goodmorning
Thanks for reading my journal. Sorry it made you cry.I did too just typing it re-living it. Onwards and upwards though, he is such a little trouper!! Best wishes to you if you have an appointment today. Joystik, hope your hair/head is feeling better. Sonia - Luck with getting that appointment changed. Shivers better go - joshi got blood tests in Gore. Gotta run. Love to you all xxoxoxoxxoxo Meridian - dont apologise, I felt quite famous. ;o)
4058. joystik
good morning to you hope your tounge is better today.Are you still managing to eat ok?my hubby went right off food when on chemo and was very distressing to me watching the weight fall off him. we ended up getting the meal replacements for days when he couldnt stomach food.( hope you getting a wee feed of fresh blue cod now and again :)) You will be missing your lauren? yes we are heading to north island this week to catch up on family. bit nervous has hes had more seizures last week. but we keeping fingers crossed as he is getting excited now. hugs to you all.
4059. Sonia
Just had to say this before I go. My heart was aching when I read your post about your darling girls. That must have been so hard! Thinking of you, hope Lydia and Emily are feeling better this morning. (((((HUGS)))))
4060. Hi Paula :o)
Emily woke up finally at 9.30 (!!!) and seems good, hopefully that'll do it, see how next hour goes... Lydia's fine this morning. I can't remember exactly what I said to her last night, something like "Don't worry about that, its not happening yet, I told you the lumps are shrinking, so thats good. I promise I'll tell you if things get worse, but you don't have to worry about that now." It was a bit more cuddly and explanatory than that, but that's the gist of it. Hope blood tests went OK - poor Joshi getting all these jabs too. How are his veins holding out?
soniat-d (153 ) 9:50
am, 3 Jul
4061. Morning all. Sonia that was a lovely way of......
easing poor little Lydia's mind. They are such awesome little girls and obviously very spontaneous with their thoughts and comments. Hope you can get your appointment moved too, then it will be tomorrow. Have a great day anyway. Lovely and sunny here now...
joystik (282 ) 10:08
am, 3 Jul
4062. Morning Paula and Joshi...hope all goes well with
the blood tests. Do just have to go to a Dr in Gore to have them done?? I think I can havemine done at the medical centre here in Otautau, but so far I have always been in town for other things so have just gone to the hospital. I have Oncology Clinic tomorrow so I suppose they will do bloods then too, ready for friday. Hope you all have an awesome day too. Is it lovely and sunny there too??
joystik (282 ) 10:11
am, 3 Jul
4063. Hi Stormbaby, I have only had one Chemo so far....
and have the next one either thursday or friday this week. I really only lost my appetite while I had the nausea for the first few days. But nothing much ever puts me off food anyway!! I dont think I have lost any weight since I started, thats for sure. Hope you have a good day too....
joystik (282 ) 10:14
am, 3 Jul
4064. Ta for that joystik
We are looking after Mum at the moment, she's just finished her chemo and radiation but has no sense of taste. She lost it at the first chemo. So everything tastes yuck. She has lost loads of weight and has a lot of pain from the chemo. I am sure once she gets her taste back things will look up. Just wanted to know if anyone had experienced something similar.
stormbaby (2267 ) 10:17
am, 3 Jul
4065. Hi kiwikaz, hope today is a god day for you and...
yours too. Yes, my tongue is better but I have 2 long cracks down the top of it now and the spots seem to have gone. Perhaps I better lay off the acidy stuff today!! ButI love tomatoes and oranges and tamarillos and kiwifruit!! Lots more hair coming out today, but not quite handfuls. Glad you are able to get away for a holiday while the kids are off school. Hope your hubby copes with it ok. Lauren always txt me lots of times a day when shes away, and sometimes it just says "love you Mummy" and thts really neat - shes nearly 15!! Have an awesome day kiwikaz....hugs to you all....
joystik (282 ) 10:18
am, 3 Jul
4066. Stormbaby, I had nothing except hot flushes from
the steroids, but only for a day or 2, and then this nausea which was much like morning sickness, except 24/7! The oncology nurse phoned me and when I told her, she said to take Maxolon 4 times a day to control it. I actually only took 1 maxolon and the nausea had gon within 10 minutes and never came back. Apart from that i have only had a sore head, but thats because my hair is about to come out. Take care and hugs to your Mum too...
joystik (282 ) 10:22
am, 3 Jul
4067. Hi Global, I hope you have a better day today than
you have had over the weekend. Hows Cam today?? Hope he's much better. What about your Nan? How is she? Hope you have a nice day planned. Take care and hugs to you all....
joystik (282 ) 10:25
am, 3 Jul
4068. Good morning Boop, I suppose you will be on the..
road by now on your way to Canterbury. Be really careful wont you, the roads can be so dangerous. Have a great time over there. I will be thinking about you..Take care and Hugs to you too....
joystik (282 ) 10:26
am, 3 Jul
4069. Thanks joystik
she is certainly getting her full quota of hugs. I think the taste loss has to do with where the cancer is (oesophagus sp) so we will cross our fingers. She is much better now she takes her pain and nausea meds. If it was me I would be taking everything that was given to me I kid you not. I think our parents are a lot tougher than us, trouble is we expect them to be there forever. Hugs to you all.
stormbaby (2267 ) 10:27
am, 3 Jul
4070. Hi Bogeyi, what are you and your family up to
today?? Did Ryan has hospital appointments today?? Hope all goes well if he has. Are you venturing off anywhere for the holidays?? I do miss Lauren when shes away,but she always keeps in touch by txt pretty often, so thats pretty nice too. Have an awesome day guys and hugs to you all....
joystik (282 ) 10:29
am, 3 Jul
4071. Thats probably true stormbaby.....mine is breast
cancer and my chemo is FEC, dont know if that means anything to you. I must admit, I wasn't too good at taking the meds either, because I kept thinking, this isn't too bad, so I'll not take anything just in case it gets worse!! But Oncology nurse said, No dont put up with anything like that, cos there is medication for most of the side effects, so you may as well use it. I agree with that now. Better have a shower and get dressed. The routine changes so quickly in the school holidays!! Take care...
joystik (282 ) 10:32
am, 3 Jul
4072. morning joystik
no hospital today we go back thurs, gorgeous day today not sure what we are up today....got all duvets airing out done vacuuming now sitting in the sun.
4073. Bogeyi, you're way more organised than me then...
I'm still in my jamas...but I must get going and do something. Might wash the windows out side seeing as its not frosty for a few days. We are supposed to have heavy rain today and snow to 200m again. Didnt get it last time and doesn't look like we will this time either..
joystik (282 ) 10:45
am, 3 Jul
4074. Just bumping this back to the top before I go for
a bike ride. Its such a nice day, I hope you are all out enjoying it too...
4075. Hi everyone :o)
Em seems better today - still the odd tanty unfortunately. We had a fun morning - I took the girls up the Sky Tower for the first time which they thought was great and there was free face painting up there (they did an impressive job :o) Then took them in to Brent's work (nearby) so he could see their painted faces (and they, him ;o). Before that we popped into the hospital to try and catch Dr Benjamin as messages not returned. Missed him sadly but showed off my girls to the radiation team and they even took the girls in to show them the machine I was zapped under. Lydia was a bit taken aback by it! They liked the spiral stairs and indoor garden and made me walk through it with them - very cute :o) Anyway, only got playroon tidied last night so better go get a bit more done. School Holidays - arrrgh the mess!!
soniat-d (153 ) 2:10
pm, 3 Jul
4076.
OK managed to get through to right person for
Dr Benjamin - rescheduled to Tuesday at 6pm. I'm sure I won't forget it after what happened on Saturday, but if anyone feels like reminding me on here - cool :o) It was majorly foggy this morning here, fog still hanging in places at 10.45am! Cleared to beaut day (hence Sky Tower) but now its a bit grey and gloomy. OK off to sort things - have a nice day all :o)
soniat-d (153 ) 2:17
pm, 3 Jul
4077. YES IT DOES SUCK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
just walked outta Haematology/c***** ward (dont like the word) to be told that our worst fears are a reality yeah WHATEVER! - not even gonna hear that! meet a lovely guy in there next to my partner who had the same thing my heart goes out to you Gav! just know that we will find the answer mate! *rant over*
phredyme (167 ) 3:19
pm, 3 Jul
4078. 
That's no good phredyme
What was confirmed - can we ask? It sux when you hear it but there is lots the docs can do - its not automatically a death sentence ;o) Rant all you like - we all do in here from time to time (((((hugs)))))
soniat-d (153 ) 3:30
pm, 3 Jul
4079. Hi Sonia, sounds like you've had a good day......
your weather sounds much like ours here. We started off foggy too and then have had a fab day, and warm too...it got to 19.1 deg, but now it is clouding up quite quickly. I managed to get my bike ride in and stopped at the supermarket and got some lovely steak for tea, and heaps of green vegies. I'll get these bloods right yet!! It is supposd to snow tonight to 200m so thats not on the ground here, but at the moment I would be very doubtful that it will even happen. Hey, dont forget your appointment at 6pm Tuesday will you!!............
4080. Sorry phredyme to hear you got bad news too.....
That C word is awful when you hear it in relation to your self. I will never forget when I was told either, it was like being smacked in the face with something really solid! And yet, I was actually expecting the diagnosis I got. Its not all bad news though. There are lots of treatments now. Hugs to you....
4081. phredyme sorry you had bad news today.
well i got a ph call from radiation at about 9.30, Mrs Godfrey just ringing to confirm you received your appointment for tomorrow....ar NO....I didn't think so....bugger bugger bugger they had made it for 9.30am my Mum had booked tickets at IMAX for the kids to see superman. I know this is important but so was my kids day out so the lovely lady changed it to 2.30pm. Bloody hospitals dont know why they dont just ring the appointments through....
4082. 
me again
sonia sounds like you and the girld had fun, such a cold gloomy day this arvo. Joystik how was that bike ride? Paula and josh how are you guys today? I took hubby out today as he wants a new TV well spotted a 73" one he really likes but might have to settle for the 50" (poor baby) boy these new tvs are woth a small fortune, if only i knew someone in this business..lol
4083. Hi bogeyi
Brent's on the hunt for a new TV too - wants a 42" - sounds like he's selling himself short LOL We can't fit a bigger one in the space! The one he wants isn't available here yet, so patiently waiting for it to arrive! Girls a bit of a trial this afternoon again. #sigh# back to them...
soniat-d (153 ) 5:15
pm, 3 Jul
4084. sonia 72" would of been a squeeze
but 50" ok, we have a projector as well but it needed upgrading so we thought we would get a new one and watch TV through it, but sadly our lounge is north facing and we get heaps of sun so would be no good during the day, and in summer we dont close curtains (great having no close neighbours) out of curosity whats brent after, thought i will ask in case im missing out on something super de dooper...got to keep up with the joneses..lol
4085. Hi Sonia, bogeyi, paula, joystick etc etc ...
... and everyone else. I can officially celebrate. Seems I put myself through the wringer for nothing. The doctor who did the ultrasound is happy with how it all looks, and attibutes the lumpiness to scar tissue from the reconstruction. I'm not sure whether I would have had a reconstruction if I was faced with this now - knowing what I know.
meridian1 (294 ) 5:51
pm, 3 Jul
4086. Yay Meridian :o)
Thats so awesome :o) Just go for very regular ultrasounds/mammograms to be on the safe side. Each year clear your odds of recurrance drop, I'm pretty sure. Congratulations! Hope you're celebrating ;o)
soniat-d (153 ) 5:57
pm, 3 Jul
4087. Hi Sonia and everyone
Just wanted to pop in and say Hi to all you brave ladies and children in this thread. I posted early on the thread about my friend well after her year long chaemo and bone marrow etc we have just been told it that she has 3 to 6 months they cant do anymore. I havent yet been to see her as I am at a loss as what to say to her as she has looked so well lately. Anyway dont want to put a damper on you all youre all so brave and I read daily and pray for you all. Patra
4088. Ummm bogeyi
Its something like this one http://www.consumer.philips.com/consumer/catalog/catalog.jsp?fhquery=fh_secondid%3D42pf9830_69_ au_consumer%26fh_location%3D%2F%2Fconsumer%2Fen_AU%2Fcategories%3Ccatalog_au_consumer%2Fcategor ies%3Ctv_gr_au_consumer%2Ffh_att_tvscreensize%253DFH_TV_TVSIZE_LARGE%26&productId=42PF9830_69_A U_CONSUMER&activeCategory=TV_GR_AU_CONSUMER&fredhopperpage=detail.jsp&language=en&country=AU&ca talogType=CONSUMER&proxybuster=B2U0C2P0JWHDFJ0RMRCSHQFHKFSESI5P but I hope it not that actual one as its not a looker IMO! But this is the technology he's after - LCD with Pixel Plus 2 HD and Ambilight 2. Also the integrated speakers. Boys and their toys eh?!
soniat-d (153 ) 5:59
pm, 3 Jul
4089. I hope everyone has had a
wonderful day! I have a gorgeous little story. Lennon (my son) was watching a Lilo and Stitch movie this afternoon while I was pottering around. I heard a wee sob and turned around to see him heading to me for a cuddle in floods of tears. I looked at the TV and realised what was up. In the movie, Stitch had died, and Lilo was cradling him crying. My sensitive wee man's heart was breaking! I just hugged Lenny and said 'oh no, did Stitch die?' Being a cartoon, Stitch came back to life (which made Lenny feel much better). I told him that it is so good that he can show his feelings like that, and that it's okay to get upset - it shows me what a caring little boy he is. He is sooooooo adorable, and I'm so very proud of him (and his sister)!
meridian1 (294 ) 6:07
pm, 3 Jul
4090. OK that link doesn't work
THis is the actual one - happier with the look of this one! http://www.cheapelectricals.co.uk/acatalog/Philips_cineos_42PF9831d_42pf9831_42pf9831_42pf.html
soniat-d (153 ) 6:09
pm, 3 Jul
4091. Patra
Go see your friend. You don't have to say anything, just be there. I am soooooo sorry!
meridian1 (294 ) 6:13
pm, 3 Jul
4092. Thanks Sonia!
I am so relieved! I wont be celebrating as such tonight - but I might just have a glass of wine ;-)
meridian1 (294 ) 6:19
pm, 3 Jul
4093. Hey Sonia hows it going?
I've been away and have just caught up again on your blog.Glad you could change your appointment so the nanny could mind the kids, it would have been hard otherwise.Anyhow just letting you know I'm thinking of you ((hugs)) Wendy
winnie15 (107 ) 6:22
pm, 3 Jul
4094. Whoops Patra I missed your post sorry
I had the same thing back when I was 21 - found out my varsity friend was in his last months from leukemia (he'd never told us he had it, all through varsity - believe it or not!) Anyway I plucked up the courage (finally) and went, and at the time I hadn't a clue what to say (so said virtually nothing, and was too scared to ask what he was feeling), but even though it was a struggle, I'm sooooooooo glad I went! Really, really glad! Anyway, now That I'm in this situation, thinking ahead to being the one in that hospital bed, now that the possibility is so more real (but by no means sealed), hmmm.... I'd say (1) Just shake the fear and go! She'll really really appreciate it! It's worse being alone with no visitors, than having a visitor who doesn't know what to say... being there is everything
soniat-d (153 ) 6:42
pm, 3 Jul
4095.
Cont'd...
(2) Ask her if there's anything you can do for her, any research she'd like you to do for her (the docs aren't always right!) on alternative meds etc; any loose ends you can help her tie up etc. And just let her talk, and feed off her state of mind - is she still fighting, or resigned to the fate her docs have laid out for her? Remember we all die sometime, there is some benefit in knowing when that may be, being able to prepare. Any one of us my be involved in an accident on the way to the hospital etc etc with no warning at all. We're blessed for each day that we DO have. Sorry I'm rambling now aren't I - should I even post this???? Just my thoughts, what do others think?
soniat-d (153 ) 6:42
pm, 3 Jul
4096.
Hi Winnie - thanks :o)
Sorry gotta go finish dinner! More later ;o)
soniat-d (153 ) 6:43
pm, 3 Jul
4097. thanks
sonia
4098. Hello everyone
Wow this place has been busy again. I have been in town all day. Gore that is. Josh had a finger prick blood test today, they didnt have a kit to do the bloods through his port, and he doesnt need to go through the trauma of a arm(vein) one. These things are just too much some days, so that was good. Had to milk it out of his thumb though.Waiting for test results still.So Chris got a new exhaust thingy ma jiggy put on his baby (Holden SS V8) and now he is talking about looking for a wee run about for me.Will look in Invercargill on Wednesday. MMM TV shopping I wont mention that your men are looking or I might not get my shopping basket. lol. Hope you have had a nice day.
4099. Sonia
That probably answers your questions about his veins. Depends how well he is too, sometimes when they try to take blood they cant! Ports are great for that! Joystik - all the best for tomorrow. Hope it goes well, then Friday you can get your port sorted. Hey Bogey - How are you all today? Hope Ryan is good. Sorry about tomorrow for you!!Thats so not fair. Good luck for that though.
4100. x...
x
4101. Hi Paula
hows josh's rash??
4102. Hi Bogey
It looks a little less red. Some more funny spots are appearing?? I dunno, just one of those things, I hope. He does seem a little better. But being around other children today has really taken it out of him. He finds it hard to socialise. Poor lamb
4103. Hi Paula, glad the blood testing went ok. When
do you get the results?? Tomorrow sometime?? I have Oncology clinic with Dr Perez from Dunedin at Kew tomorrow morning at 10.30, so they will do bloods then ready for thursday now. Peter Boon the IV nurse (do you know him?? He's lovely) phoned about 4.30 to say that they had found a wee space for me on Wednesday morning now at 8.30!! So I will have to be nil by mouth from midnight, get up and shower, no hair products, no make up and no jewellery, and be there to be first in. That will only happen if nothing more acute arrives up in the meantime. So t doesn't pay to plan to far in advance does it cos things change in a minute...
4104. Good to hear your GOOD news meridian....
helped to make my day extra happy. I like hearing those happy endings on here. I was thinking about you and wondering how you were getting on. Hugs to you..
4105. 
Oh
Meridian!?! Why
aren't you celebrating?!
You've received excellent news - that could have been terrible news. I hope you celebrate SOON! :o)
soniat-d (153 ) 8:19
pm, 3 Jul
4106.
Hya Joystik ;o)
So, it's started eh?! I don't think mine ever fell out in clumps, just lots of strands of hair. But then I'm thinking back like 8 months or something - think I've forgotten heaps already! Anyway, wishing you well with the blood tests etc. Hope all goes as planned! ;o)
soniat-d (153 ) 8:21
pm, 3 Jul
4107. Joystik
Wednesday - Joshi will be in outpatients having his wee op too. Only if bloods ok of course. So we are both waiting. Maybe if you are up to it, we may meet??? We always end up back in the paediatric ward.
4108. Gee Sonia and Bogeyi, your men are really into
these flash large tele's aye?? Only 3 people live in out house and we have got 4 tele's but only little ones!! Some of those big tv's are about 8k arent they?? I dont really know anything about them whether its a plasma or an LCD. Its like Japanese to me. Glad you've had a good day up there. The weather here was fab but now it is raining like was promised..
4109. I know Sonia
It IS great news! I feel a little foolish for worrying so much - and I did down-play my feelings to everyone around me (which is why you guys have been so special to me). I am celebrating internally - if that makes sense.
meridian1 (294 ) 8:25
pm, 3 Jul
4110.
Hi Paula
Yes I can imagine his veins are scarred to the max! Best tip is to always drink a good amount of water beforehand, really helps speed up the extraction, once they've gotten the needle in ;o) Yikes out the finger?! Eeeek! Poor kid, what a trouper. Give him a big hug from me? xoxoxox
soniat-d (153 ) 8:26
pm, 3 Jul
4111.
Brent's into ALL the boys toys Joystick
Work hard play hard is the motto round here ;o) I'm not sure how much it is, he can get it for a trade price, which will help a bit. Its his 40th pressie, though whether it'll be in the country by his birthday is another question!?!
soniat-d (153 ) 8:29
pm, 3 Jul
4112.
Its perfectly normal to worry like that
Meridian
I just wish I got news like that too! Me I celebrate that the 12 cancerous lumps in me have shrunk a bit - gotta celebrate any good news LOL
soniat-d (153 ) 8:31
pm, 3 Jul
4113.
Thanks Sonia
I will go and give him a hug right now. Tell him its from you, he loves cuddles. He told me today hes never going to leave home. How cute!
4114. Thanks Joystick
I hope your bloods go well tomorrow so that things can go ahead as planned on Thursday. I'm sure they will - I will cross my fingers for you. Big hugs back to you!!!
meridian1 (294 ) 8:32
pm, 3 Jul
4115. Awww Paula Lydia says that too ;o)
Should record it so we can play it back to her when she's a teenager LOL
soniat-d (153 ) 8:34
pm, 3 Jul
4116.
Ok Sonia
Done and he said thank you sooooooooooooooooooooooooooooooooooooo much - xo
4117.
Oh BTW did I mention I'm starting
scrapbooking classes next week? I always thought scrapbooking was a supreme waste of time LOL but have decided I'm going to make a book for each of the girls, for them to keep when they're older. Quite excited about it :o) I love doing arty stuff so think I'll enjoy this new project ;o)
soniat-d (153 ) 8:36
pm, 3 Jul
4118.
That's cool Paula :o)
Glad he liked it! Feeling all warm and fuzzy here now :o) xoxoxox
soniat-d (153 ) 8:37
pm, 3 Jul
4119. Sonia
I wish you had got good news as well - you of all people deserve good news! I am pleased that they are shrinking. WHEN you have beat this horrible monster, I reakon you'd make a wonderful Cancer Society counsellor. Hows Em been today? I hope she's feeling better.
meridian1 (294 ) 8:37
pm, 3 Jul
4120.
Shux Meridian - thanks :o)
Got to put the girls down now - Em's OK now, think he body's been out of kilta - hopefully a good night tonight will put her back to normal ;o)
soniat-d (153 ) 8:46
pm, 3 Jul
4121. Well Paula, so long as the bloods are ok, we
could be seeing you on wednesday...how exciting!! I did a bit of asking around the other day when I was there, about where I might find Josh if he were there. What time does he go to Theatre? Do you have a time yet?? I'm first up at 9am or soon after! So I could be ready to go by lunchtime. They are going to leave a needle in for the chemo on thursday. They always get blood out easily from my arm but other places are much more challenging! Especially the feet!!!
4122. Sonia my hair is coming out lots of strands at
at time. If I run my hand through my hair I can get about 10 or 20 every time now. Funny thing though, at night my head is really sore but in the morning feels quite normal again.
4123. Hey Paula and Sonia, Lauren is nearly 15 and she
told us a wee while ago that she loves us so much shes going to live at home until shes 29. A few days later she revised the age up to 40. I told her she would be very handy at feeding the cat when we go off cruising, but she thought that was most unfair and she would love to be coming too. They are so funny. With her, its not really wanting to move out of her wee comfort zone.
4124. joystik the 72" was $6300 he was
saying to the kids this would be great wont it, I said to hubby would also buy me a nice newer car, by now kids are saying buy it..there was a man near by cracking up when i mentioned my car and how i couldnt drive the tv, and when the kids were on dads side i kindly reminded them who cooks in the house..lol
4125. Oh yes men and their toys!! Thats why we have an
8m Cabin boat and a Ford F250 4wd up out drive I suppose!! Oh and I forgot a 10.5m Bus too, all on a 1/4 acre section. When I get my Real Estate ticket, I will get a smaller vehicle for me to run about it. I dont really need to go for groceries in a V8 pickup do I??? I will probably get a 4WD though but a smaller one...
4126. Bogey
Classic! LOL. Joystik - He usually oges up to surgery around 1pm. I think we might be there about 11ish that how it usually goes. Now im excited too. Fingers crossed eh?
4127. Bogeyi that would be right, a new BIG tv would
be far more appealing than a new car for Mummy. I hardly watch tv at all. Only really watch Coronation Street seriously and then usually as the music starts, the phone rings, so I often miss that too. Thats a pretty good price for a TV that size isnt it? Plasma or LCD??
4128. crickey im breeding a right one then
ryan is so into his gadgets its not funny, hes gets excited and runs to the tv when noel leemings or harvey norman are advertising saying ooh oooohhhhh i need one of those...lol
4129. Joystik
As soon as I know something I will post on here. Whats happening for Wednesday. I will email you my cell number - just in case xo
4130. Paula, I will know tomorrow afternoon if the blood
tests are favourable, and will post a message then. I have to be in Day Surgery up stairs at 8.30 so I will have to get up early. We try to allow an hour to get there, but it only takes about 40 minutes, unless you get stuck behind slow trucks etc.
4131. Ok Paula, I will email you my cell # as well...
then we can get this sorted properly. How long is Josh usually in for to have his proceedure done??
4132.
Thats so funny
Tonight Josh wanted to talk to me while I was in the bath. I just wanted to relax and think about my new car (not new new) and hes sitting there saying what do you want to talk about - I said well my new car, hope its got a cd player in it, he rolls his eyes and says can we talk about something other than your car please.... Well, really then we got on to his new hotwheel. Ha ha ha arent ehy priceless
4133. Joystik
We usually get to go home around 3ish depends how soon he comes out of anaesthetic. Thanks
4134. Thanks Sonia Meridian
Thanks for the advise just dont want to say anything to make it worse, I told her step mum about you guys and suggested we get her to check this thread out as you have researched and looked into lots on here. I have spent time with her in hospital when she was down during treatments etc but this girl well what can I say shes a fighter but from what I gather has gone into organisation mode which is as I expected as shes a single mum and wants to sort everything while she can. I will go see her as often as I can just am worried about what I can do thanks for your help as I have said you guys are great take care all Patra
4135. Big hugs to you Patra
xxxx
meridian1 (294 ) 9:31
pm, 3 Jul
4136. Nite Nite everyone.........
hope you all have restfull sleep and sweet dreams. See you all again tomorrow....hugs for everyone.....
joystik (282 ) 10:44
pm, 3 Jul
4137.
Good night Joystik
Goodnight everyone ;o)
soniat-d (153 ) 11:02
pm, 3 Jul
4138. Sonia
I think your posts 4094 & 4095 are right on the button when offering advice to Petra..I have seen people literally creeping indoors and peeping around the door while paying me a visit ( following my brush with leukaemia ) almost to scared to look ... But the sight was too much for my sense of humour and I had to reassure them I was alive and ...well... getting better!!
farmerlloyd (23 ) 11:05
pm, 3 Jul
4139. Sonia cont.
The thoughts you express about the chances of anyone suffering an untimely accidental death are bring home the rather tenuous hold we all have on life ... and as you say... every day we waken up to find ourselves enjoying another day above ground ... is enough reason to give thanks ... and I do not mind saying that I do this every day now ...Stay stong everyone ...Lloyd
farmerlloyd (23 ) 11:12
pm, 3 Jul
4140. Wow. What a lot has
gone on since I last looked!! I'm just home from work. Been a huge weekend there but now have 3 days off. Will try and catch up on all your postings tomorrow. What a shame I didn't know that Boop was coming over to Chch. I would have loved to catch with her. Joystik you don't have a contact number for her by any chance? And good luck for tomorrow. Hope everything goes to plan for you this week.Sonia, hope your girls are feeling better now. Meridian, so happy for you. Hope you have had at least on glass of wine by now!! Think I might have one myself!!
4141. How are those lovely boys
Paula and Bogey? They are always in my thoughts.Big (((HUGS))) from me. Good night everyone. I will catch up with you all tomorrow. Nitey nite XXX
4142. sleep tight
everyone and god bless you all XXXX
4143. good morning everyone
nice to see you maewest, hope you have a few relaxing days off. Ryans good we have our radiation appointment today where they measure and calculate everything. Tyler came up at 2am with a really bad cough, not what we need this close to transplant but seems better this morning.
4144. hello
ello ello
4145.
Hi bogeyi ;o)
Tell Ryan I wish him well with his markup this morning - we were just in there yesterday (I showed off my girls to the staff while trying to hunt down Dr Benjamin). The staff are lovely. Hope it all goes well xoxoxo Emily was up during night complaining of sore ear so off to docs this morning - must get a move on. Morning all ;o)
soniat-d (153 ) 8:44
am, 4 Jul
4146. Morning
Hey Bogey Bumma about Tyler coughing lets hope its nothing!!!!! B****y coughs! I am so tired. Josh coughed and coughed finally got to sleep around 11.30, woke up coughing again. I am wondering if they will do a GA with a cough like that?? Hope the radiation goes ok, will be thinking of you xo
4147.
Bumping
Cos I wanted too.
4148.
Maewest.
Thanks for thinking of us. Enjoy your days off. Hope the weather is nice for you (((((hugs)))))
4149. hiya paula
hows josh now??whats weather like?
4150. HI Bogey
Was just thinking about you. Weather off and on - snowed briefly this morning. Josh seems pretty happy. All on for hospital tomorrow. Hows Ryan are you back? Howd it go???
4151. Oh Sonia
Just popping in to say ... 6 Oclock tonight - all the best. We will be thinking of you xo
4152. appointment not till 2.30pm
kids went with nana at 9.30 to see superman so i have had some quiet time..
4153. Oh thats
good they got to go to the movies. Wow, quiet time. Are you enjoying it???? Or is that a silly question.
4154. loving it
my lounge floor has been clear of toys ans drawing stuff for over 2 hrs now..lol
4155. Cool.
Enjoy your time! Good luck with the appointment. Be thinking of ya
4156. Hi girls
Hope all goes well with Ryans radiation today bogeyi, and Joshi's op tomorrow Paula. Oh, don't forget your appointment this evening Sonia - Good luck with that as well. Hope your bloods were okay for tomorrow Joystick! Thanks for your kind words Maewest. I am going to take a break from the MB, but I will be lurking, and checking those websites out to see how you all are. HUGE BIG HUGS AND MEGA THANKS TO YOU ALL!!!!!! XXXXXXXXXX Bless you all :-)
meridian1 (294 ) 12:19
pm, 4 Jul
4157. Hi everyone, thanks for the reminders :o)
Don't think I'll forget now - have the nanny booked to cover me for the appointment ;o) Have a great vacation from the MB meridian LOL I always try to do that but never succeed! So the prospect on a new car in exciting Paula, much more useful than a TV IMO ;o) Good luck to Joshi, Ryan and Briyanna. Hugs to all you lovely ladies. Brents away agin now till midnight Thursday so I'll get in here when I can. Emily has an ear infection (as I deduced last night) when shes sick she's stroppy as, so if you don't hear from me I'll be cuddling her! Have a nice afternoon everyone :o)
soniat-d (153 ) 12:30
pm, 4 Jul
4158. Sonia
Thanks hun.All the best then, Poor Emily give her a cuddle from us too. Take care hear from you when you can ;o)
4159.
Thanks Paula - gave her big cuddles
She's out-for-the-count already. I'm feeling a bit tired again - this cold isn't major but sucks my energy (also up half night with Em didn't help!) so off for a lie down, then to get things sorted. Not a great day here - overcast and windy with brief showers every now and again.
soniat-d (153 ) 1:43
pm, 4 Jul
4160. Hi Paula...well its all go for me too....YAY!!
At last I am going to get this port in and then will have my secone chemo through the port in the afternoon. They are going to leave a needle in while I am under general for them to use in Oncology. So some where during the day i WILL get to see you and Josh...Can't wait actually, I'm really looking forward to it. I have to be at Day Surgery before 8.30, and will go to theatre around 9.00 - 9.15. The Op is only about 45 minutes, then 1/2 hour recovery then back to Day Surgery ward. I think Chemo transfusion is early afternoon at Oncology downstairs. I will have my phone so willlet you know.
4161. Sonia,poor wee Emily. Hope she will feel better
real soon. I had lots of earache when I was a child,and it probably accounts for the slight deafness I have in one ear now. We lived way out in the country, and so never went to the Dr unless we were half dead, and earache wasn't considered half dead!! Mum used to give us a disprin in a teaspoon of raspberry jam (yummy home made) and I think that was basicly the cure all for anything that was wrong. Hey dont forget your appointment at 6pm will you...I see you have had a few reminders today.
4162. Hi meridian, thanks for your kind wishes for me...
My bloods were really good today. The neutraphils were up to 2.9 so its all go for the Port Operation tomorrow, and then the chemo in the afternoon. Thats number 2 then there are only 4 left after that. I will miss seeing you on the message board, but will think of you just the same. Hope all continues to go well for you and take care, OK? Hugs to you too.....
4163. Hi bogeyi, hope all has gone well with the ....
mark up today. Nice you had a morning to your self this morning. Thats nice sometimes isn't it. I know even I enjoy it and I only have one child so it must be even better when there are more.. The Oncologist was rather astonded at how well I had coped with the chemo. He said he had expected that it would have 'flattened me' to a certain extent and thought he would be dropping the doseage this time, but instead he is keeping it at the same level, and will see me again in 3 weeks time. He has ordered a cardiac ultrasound because the Epirubicin can damage the heart muscle, and they need to see if there has been a change in that function. So overall her was really pleased with me. Hair is falling out quite a lot now. He reckoned 2 days after the next chemo it will be all gone. He said he was really sorry about that side of it. Rather nice of him to say so I thought....
4164. Hi Maewest, just picked up your message now....
I only have a home number for Boop and her address but not a mobile number. I think she was going to be over in Canterbury a few days, so if I can find it out I will get it too you somehow. You are so busy aren't you. Taxi's must be in great demand. Do you drive round the city or just anywhere someone wants to go?? You on days off again now?? Make sure you have a good rest if you are. My Oncology report was excellent today and so were the bloods, so its all go for the Op tomorrow now, and then the chemo straight after. Take care and hugs to you.....
4165. omg im sitting here looking at a huge box with
the 50" tv in it, hubbys almost drooling. Well ryans mark up went well, so many people in the waiting room (you just dont realise), its all a bit daunting really those machines are so big for such a wee fella.
4166.
Hi everyone, OK no time to read your posts now
sorry but just letting you know yes! I remembered I'm off there now - fingers crossed it goes OK ;o) Thanks for the reminders :o) Feel like a ditz needing reminders LOL!
soniat-d (153 ) 5:11
pm, 4 Jul
4167. good luck sonia
sending good vibes your way
4168. Joystik what a shame I
I didn't know Boop was coming over here. Would love to meet her. So pleased everything went well for you today. Big day for you tomorrow. One more step nearer the end of treatments!!! I don't dirve taxis any more. I did that for 8 years...gave it up about 18 months ago. I now supervise in the dispatch room. Have to make sure everything is running smoothly. A big job, but I enjoy it. I couldn't have continued driving taxis while undergoing all the treatments, but I was able to continue doing what I do now. It was good for the brain. Stopped it turning to mush altogether!!
4169. Bogey those machines
are daunting even for a big person. I'm pleased it all went ok today. When do Ryan's treatments start? (Sorry you have probably posted that already).A big for you and Joshi tomorrow Paula.My thoughts will be with you both. I'm too late to remind Sonia to go to her appointment. She is probably on her way there now. Had visitors all afternoon. Enjoying a bit of peace now until the next lot arrive tonight.Think I will be in bed fairly early though. Bed is looking good!
4170. Oh Sonia, I was meanig to say Good Luck for
your meeting tonight. I will be thinking of you and hope it all goes reall well for you. By now you will be left home and wont get his til after, but I'll be there with you...hugs to you....
4171. Hi Bogey
Poor Ryan sounds all a bit scary! Well done though! How did it all go?
4172.
Joystik - YAY
Cant wait. This is the happiest Ive been about going to hospital with Josh yet. I will have my phone on me too. Depending on how your feeling I dont want to bother you if your still coming back to after the anaesthetic. We will be in paediatrics dept, due there at 11.30. Theatre is not till 1pm so we will be cruising in his room for the time in between. We will keep in touch. YAY.
4173. Sonia
Thinking of you .... sending positive vibes from here too xo
4174.
Thanks Maewest
Hope you are enjoying your days off work.
4175.
Meridian
So pleased things are good with you. Thats awesome~~! Thanks to you too for thinking of Josh tomorrow, he is not phased by this in the least had that many of these now. I still hate it when he has this type of chemo. After his stroke we always notice such a huge change in him, its the chemo bathing the brain.:0/ Will let everyone know how it goes tomorrow. Hope he gets to sleep earlier tonight. Take care and thanks again
4176. Hi all just a quick post again sorry
Thanks for the kind wishes. Went fine. Benji was very happy with the lumpy area, says all shrinking down well, reckons the one that looks like it has grown a bit had grown after the last CT and is shrinking. Hmmmm... we'll see! He is concerned about the little whatever-it-is that has appeared in my liver. Says that will determine next course of action, so have to wait the now 7 weeks. He said go ahead with Vitamin C infusions now - will help healing. Go on holiday etc. I said surely if my CA153 is only 19 then the liver thing can't be cancer? He said not necessarily! Some cancers don't show up at all on the CA153. Excellent - thanks for that :o/!!! Oh well, won't worry till there's definately something to worry about. Glad he's happy with the local recurrence area :o) OK gotta down some tea and collect my girls. Have a good evening all ;o)
soniat-d (153 ) 6:39
pm, 4 Jul
4177. Sonia
Sounds all pretty good then!! YAY for you! Now you can settle into your scrapbooking, planning your holiday etc. Thats great. Hope Emilys ears clear up soon. Cass is just like that too, if shes coming down with something gets a bit snakey - actually me too! Anyway, hope you are all ok. Enjoy your night. Im hoping for an early one I dont want Joystik to think Im doing my best panda impersonation. ;o) xo
4178. sounds very postive today sonia...yahoo
Ryan will be going into hospital on the 24th July (to start preping for transplant) this is also the day he has radiation, he only has 1 dose will take about 30-40mins he can only have a 1/3 of the treatment that a leukemia patient would have. Nurse told me its completely different drugs this time and instead of the infusion happening on the 10th day it will be either day 5 or day 8.Now waiting paitently for the protocol.
4179. Sonia, that all sounds a lot more positive ......
and much better news all round. Now you can focus more on other things for a while until, you have your scan in 7 weeks time, and see that thing on your liver has GONE.. That scrapbooking looks like so much fun, but I would want to buy all those little bits and pieces, I wouldn't be able to chose. Actually I'm not really in to arty crafty things like that, but Lauren is. And the holiday too, just reminded me I was supposed to pick up 2 forms to renew our passports and forgot again - DRAT! Tomorrow looks a bit busy so it miught have to be next week. Hope Emily is feeling lots better tonight. Hugs to all you girls.....
4180. Bogey
That is the hard part the waiting - patiently... I just have to share this with you and anyone else that reads this and gets a giggle cos it was funny... Josh has a trundler bed which everynight I pull out, its become a routine, when he first got home from hosp it was like that cos he really couldnt walk properly, anyway tonight I went in to him, cos he coughing away and not feeling great. Then I somehow lose my balance trying to stay upright end up falling off the trundler bed backwards onto his desk and sit straight in his glass of water.Josh gave me a very good demo of how I looked. Must have made a bit of a noise as pup cam in to see what on earth it was and then saw me, cracking up over what Id just done & turned his back and laid down.It must have looked hilarious, Josh's version of events was priceless. LOL
4181. Joystik
I will pick up passport docs for you on way to hospital tomorrow as we pass a place that I know has them cos I saw them last week. How many do you need?
4182. Ok...
Maybe the fall did some damage. I see you need two. I will pick them up for you in the morning xoxo
4183. 
that gave me a giggle paula glad your ok
I bet it made josh laugh, and just imagine at hospital tomorrow when he reanacts what his Mum did..lol
4184. Thanks Paula, that would be lovely. I'm really...
looking forward to seeing you guys tomorrow. I have to be there soon after 8am, so I will have to get to bed soon or I will never be there on time. Hope you enjoyed your little trip!! Sounds hilarious! Hope Teddy was impressed with your gymnastics as well. I think the chemo is early afternoon, so I will cruise by the childrens area and check it out as soon as they let me out!! I will have my phone too.. Hugs all round guys.
4185. Bogeyi, I might ask Josh what actually happened...
so I can hear his version of events!! Might be interesting from his point of view....
4186. Bogeyi, thats a big programme that Ryan has to go
through for his transplant isnt it?? How long is he in hospital for about?? Is Tyler the donor again?? How long is he in for?? My heart really goes out to you guys and I will be thinking about you all the time, all of you....this makes my treatment look like something very minor. Dont forget ever, that we are all here for you will you. Love and hugs to you all....
4187. I forgot to ask Bogeyi...hows the new TV going??
Are you all watching Coronation Street?? Bet its a big hit with the kids....
4188. Hi Meawest, I got in touch with my friend in CHCH
who is also a friend of Boop's and she is going to tell Boop, if she sees her, that you would love to meet up with her. She hasn't seen her as yet, but theres still time. Hope you enjoy your days off. So you do the dispatching? That would be pretty technical at times wouldnt? Make you pretty conversant with the streets etc. That would keep your brain pretty alert. Better clean this hair up....what a blimmin mess it is falling out everywhere. Wouldnt be so bad if I kept my hands out of it!! Hugs to you maewest...take care..
4189. Joystik Tv greats kids glued to it
joystik thanks for your thoughts all of you ladies are going through as much heart ache as ryan, yes tylers the donor.Last time we were in for 1 month and 2 days, he rocked through treatment, this time i have a feeling he is going to get really sick, the other boy that has FA has been in hospital for 11 months, so who knows i only hope its not to long.
4190. Oh Bogeyi, that is a very long time isnt it??
Hopefully he will breeze through it without too much trouble. I'll have all my fingers crossed for him, and I just hope and pray that he has no problems. I guess he has to keep as well as possible in the meantime and Tyler too. What a lovely thing for a little brother to do for his big brother.
4191.
Hi Joystik ;o)
Good luck with your port op tomorrow - Landylass made it sound like a doddle which I find hard hard to believe but I've had other women tell me the same thing! So did you see Paula's nice offer to collect passport apps for you on the way in tomorrow? How many do you need? ;o)
soniat-d (153 ) 9:48
pm, 4 Jul
4192.
Hi bogeyi ;o)
What are you up to tomorrow morning or Thursday or Friday? Would you like to meet up somewhere with the kids? Would be fun :o) I'm a slacker and haven't organised anything else as yet - gotta get organised! Sorry to hear that you think Ryan won't do well this time, we'll all send our positive vibes and hope for the best ;o)
soniat-d (153 ) 9:50
pm, 4 Jul
4193.
To all you lovely ladies
Even though I'd probably walk past you in the street LOL you are officially my new best friends! ;o) Thanks for all the support and reminding me of my appointment etc - none of my other friends bothered too! (((((Group hug))))) :o)
soniat-d (153 ) 9:52
pm, 4 Jul
4194. 
LOL at Panda impersonation Paula :o)
Awww its cool that you and Joystik get to meet up again, I'm jealous! Looking forward to the impending opportunity to do the same ;o) Best wishes to Joshi for tomorrow, I hope he has a better night tonight xoxoxox Em's OK, gone down to sleep well, although asked for Pamol so we'll see what the night brings...
soniat-d (153 ) 9:55
pm, 4 Jul
4195. Hi Maewest :o)
Nice to "see" you again ;o) Looks like I'm here on my lonesome tonight LOL so goodnight everyone - sweet dreams :o)
soniat-d (153 ) 9:56
pm, 4 Jul
4196. hellllllllllllloooooooooooooooo anyone here
i have loaded some new pics on ryans site want to know if you guys can view them????
4197. sonia love to meet up but this week is
pretty stretched, wed thurs hospital and meant to be going out fri..would love to meet you and your lovely girls may just take some juggling..
4198. hi bogeyi, how are
im good thanks how about yourself.
4199.
as you can see i have gone completely
crazy but this is for......
4200. paula,josh and joystik
good luck for tomorrow..
4201. 5000
.
4202.
sholly you jumped ahead of yourself
and good luck to me I have to take miss 10 to greenlane to be sedated to have her teeth done, she is so scared of docs,hospitals that she needs to be sedated, I think the fear comes from seeing what ryans been through.If you mention needles she almost faints.
4203.
I know
as soon as i pushed the blasted button I stuffed it. Hey and awesome thread. Totally inspiring. Makes you appreciate life.
4204. Good morning ladies.....just off to Kew now
to have the Port put in. See you later.....
4205. all the best joystik
will be thinking of you, good luck josh will be thinking of you to, hiya paula.
4206. Hey Bogey
Glad you got a giggle. Im quite the acrobat. Good luck with the hospital today. Sorry cant remember your daughters name. I hope it goes ok. Cass had a bad dream at 3.15am she was beside me telling about the Higgly Town Hero with pointed teeth. Got her settled and do you think I could get back to sleep - NOOOOOO!!! So I do look like a freaky panda, oh well. Thanks so much for your thoughts as usual. Hope today is ok for you????? Running off to check Ryans photos. OMG that poor other boy? with FA. 11 months. Thats so long. I just found out another wee boy died this week of Leukaemia and chicken pox related complications he was so sick, he lost his eyesight. Anyway the photos ........... (((((hugs)))))
4207. Bogey
Gorgeous photos, your children are beautiful. Have a good day xo
4208.
Morning Sonia
Im looking forward to meeting you too, we all are! Hope you have a nice day today, better run and find my concealer. Catch up later xo
4209. joystik
Thinking of you today and sending love. Will be watching to see your report about your day.
4210. Morning all :o)
Hi bogeyi, sorry can you post Ryan's website addy again - blowed if I can find it - trawled back to page 45 of this thread (!) and gave up LOL! Hey I realise how busy you are, the hols aren't over yet, it you see a window open up let me know ;o) Big hugs to Ryan for today and every day xoxox
soniat-d (153 ) 9:29
am, 5 Jul
4211. Hi Paula :o)
Sorry to hear Cassy had a bad night - Lydia has those too occasionally. Hope you get some recovery time somewhere today? Hugs to Joshi and Cassy, hope all goes well today xoxoxo Lydia and Emily both had a good night and are back to their normal selves this morning - yay here's hoping that continues! We got in late last night so all having a big shower together now. Good fun :o) Brent called me last night so that was nice ;o)
soniat-d (153 ) 9:32
am, 5 Jul
4212. Good luck for you today Joystik
Will be thinking of you and everyone else today. Sending positive vibes around the country ((((((hugs)))))) xoxoxoxoxoxoxo
soniat-d (153 ) 9:33
am, 5 Jul
4213.
Oh, hi Sholly
thanks for your post. Yep, the monster certainly puts the beauty and luck of life into perspective. Thanks everyone for keeping this thread alive. Anyone know what the record longest thread is? Hope TM don't pull it - PLEASE don't TM!?!?!??! OK, off for our shower now... wishing you all a good day. I have my first Vit C infusion at 3 - no, I won't forget (touch wood) ;o)
soniat-d (153 ) 9:36
am, 5 Jul
4214. A question, ladies.
I have to wear a pressure sleeve on my arm and a pressure glove on my hand, whenever I take a plane flight, as I imagine does everyone who has lost lymph nodes. I always wear them when I go to Australia, but am doing a plane trip next month from Hamilton to Christchurch. Do you think I need to wear it then, for a shorter trip? The physiotherapist who fitted them, has retired. Any thoughts? (It is surprising how few of these sleeves I see on other people on planes, now that I am aware of them).
4215. hi sonia
www.caringbridge.org/ak/ryan
4216.
Hi dize5
I wear mine on local flights - better safe than sorry ;o) I wear long sleeves and jeans to cover them so you wouldn't know ;o)
soniat-d (153 ) 1:14
pm, 5 Jul
4217. Thanks bogeyi ;o)
Added to favourites - will look later - Em's just started up - time for her nap.
soniat-d (153 ) 1:15
pm, 5 Jul
4218. bumping for joystik and josh
hope all is well.
4219.
