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3501. Hi Sonia
Your news sounds really positive, not long now and all this will be behind you, just your wonderful future to look forward to. Love and hugs.....Di
kelsall (222 
) 5:01
pm,
26 Jun
3502. Hi Jonte Lee
Push push push for that mammogram. I was having cervical smears for years and mammograms then the insidious little monster crept up on me and was diagnosed with Ovarian Cancer in Sept '04. Some specialists think I have had it since my hysterectomy nine years previous. My bits were never tested and I think it was there then but didn't raise its head until much later. Don't listen to the "you are too young, no family history stories" they fill you up with. Hugs and good wishes.
icarus1989 (468 ) 6:30
pm,
26 Jun
3503. Hi Sonia
Stick with the massages, yoga and pilates are also good for keeping the body fit and healthy. They help with the stress and we all know that makes us more ill especially when we are fragile. I walk my dog everyday and try to fit in an hour of yoga or pilates. You can get the DVD's at reasonable prices at the red shed (Warehouse). I bought mine on sale for a nominal amount. Don't overdo things with hubby away, the housework will wait and sometimes we need to let things go for awhile. Hugs and good wishes.
icarus1989 (468 ) 6:35
pm,
26 Jun
3504. Hi Sonia, so nice to come on here tonight and
see your news was Good. I'm so pleased for you and hope it continues to be all good news from here on in. I know you still have stuff to go through but hopefully from here on in, things will get better and better. I will be hoping and praying for all good thing for you from here on too..You will be a busy Mummy with Brent away for a few days. Glad he was here for the appointments though.
joystik (281 ) 8:06
pm,
26 Jun
3505. Hi Paual and Josh, thanks for thinking about me...
today. Spent 2 hours doing the Pre Op checks, and didn't even have bloods or xrays or anything exciting!! Its all the waiting to see the admission person, then the nurse, anaesthatist, house surgeon, IV Nurse. They seem to do all the pre op's on monday, so there were heaps of people around today. Have to go back for bloods on Wednesday, and if they are ok,go in at 11.30 friday morning and will have the Op in the afternoon. If the bloods aren't good on Wednesday, which they shouldnt be, then I have to go earlier on Friday and have bloods done again, and they will either go ahead or postpone, and put me on the acute list for the following friday. All very technical isnt it. The IV Nurse, Peter, showed me a port so now Iknow exactly what they look like and how and where they put them. Great thing I think. What sort of a day have you had?? Cold out there tonight again -2.6 now!! Lovely days though aren't they??
joystik (281 ) 8:23
pm,
26 Jun
3506. Hi bogeyi and Ryan, hope you've had a good
day today. Did Ryan have to have platelets today?? Or is there another week to wait yet. Its been such a beautiful winters day here today. By crikey its frosty in the morning, still -5.5 at 8.30 but went up 11 degs in 1.5 hours. It -2.6 deg out there now. Beautiful crisp and cool. Spent the day doing Pre Op's at the Hospital for my Port Op on Friday. Bit of a waste of a day to spend it in there....something you would know more about that me. Hope all is well at your place tonight.
joystik (281 ) 8:29
pm,
26 Jun
3507. Hi icarus, thanks for your message.....
you still have a bit coming up in the wy of surgery yet then dont you? This cancer thing has lot of ongoing stuff for years really doesn't it. There is always all those dreaded check-up and all the follow up traetment. Hope it all goes well for you too. Hugs to you and we will be thinking of you ....
joystik (281 ) 8:32
pm,
26 Jun
3508. Hello Maewest, that was terribly sad about your
boss dying suddenly like that?? One thing we never know, is that when something like that is going to happen to any one of us. So important to do what you want every day and live life to the fullest that you can. Sounds like you have been real busy too. Did you have your 3 days off?? Seemed to go quickly if you did. Hope you're not over doing things. Hugs to you and take care wont you...xxxxx
joystik (281 ) 8:38
pm,
26 Jun
3509. Hows things in Buller today Boop?? Hope all is...
going to plan for you with your unpacking and setting up your new home. Big job aye?? We moved 14 times in 22 years, so I know a bit about it too!! Not keen to move again for some time. Have you had lovely sunny days like us, up there in Buller?? Didn't you get frosts at Hector?? You would in Westport I guess.. Hugs to you and see you again soon.....
joystik (281 ) 8:55
pm,
26 Jun
3510. I just wanted to share my sad news with you all
My mum passed away on Tuesday morning from lung cancer. I feel like i am living a really bad nightmere and am waiting for someone to wake me up. I miss her so much. Life isn't fair
3511. 
Tuiw3
That is very sad. Sorry for your loss. (((((HUGS))))) to you and your family
3512. Ohhh...tuiw3 that is very sad, and I'm so sorry...
for your loss. Mothers are very special people and I too, lost my Mum to cancer, 22 years ago when she was just 48 years old. She had really hardly lived, and it took me a long time to come to terms with her death. Like you say, just didn't seem fair at all, and still doesn't really. Cancer is a terrible thing that affects so many people every day in this country. We are all fighting this disease with all we can muster up and we will WIN!! Take care of yourself for now and thanks for sharing with us. Hugs to you......
joystik (281 ) 9:01
pm,
26 Jun
3513. Joystik
Hi, what a lot of organisation for your op.Seems like a lot of waiting around for you too, thats not easy! I hope your bloods are ok, so you can put this behind you. We had a good day thanks, Joshi went off to school, he is very tired. Too be expected though. Have been thinking of you. have a nice, restful evening. Love from us here xo
3514. My mum was also quite young
she was only 51. I think i am still in shock. Nothing has prepared me for this. I dont know how i am feeling. It seems so surreal, this past week is just a blur to me. One minute she was here and next im kissing her and saying goodbye. She was so scared of dying.
3515. tuiw3 im sorry for your loss ((((hugs))))
we had a back to front day went for bloods this morning and platelets were 17 (from 13) yahoo, so we could go home when he was eating luch he must of nicked his gum and it started bleeding, not badly but it wouldnt stop so after an hour we headed back to get platelets, bit of a bummer really as we wanted to see what the counts were on thurs in case of another increase.
3516. 
Hi all, just popping in briefly ;o)
Thanks for the kind wishes, sounds like you had a busy day Joystik - good luck with the bloods ;o) Take care of yourself till Wednesday, just to be on safe side (I always felt fantastic when my bloods were taken before chemo, and was often surprised when they weren't high enough, but that was me ;o) Sorry to hear about your Mum Tuiw3. I took my girls out to dinner tonight (save me some dishes LOL) and they've gone to bed like angels - yay! Have a few chores so will dispense with them now - want to get to bed early. Tomorrow morning is when I'll really miss Brent - he usually takes them both to School and Creche - will be a stretch for me to get them there in time! LOL! 'Nite everyone, best wishes for Tuesday ;o)
soniat-d (153 
) 9:31
pm,
26 Jun
3517. You will be fine Sonia and will be suprised at
how organised you can be on your own, so long as they both co-operate for you!!. Cold and frosty out side here now, almost -4deg already. It will get colder every night til it rains on thursday. Better get to bed myself....Love and hugs to you an the girls, and to you too Paula and family....See you all tomorrow ...sleep tight and sweet dreams....xxxxx
joystik (281 ) 9:43
pm,
26 Jun
3518. Hi Joystik,
I was lucky enough not to need chemotherapy, just had 25 radiotherapy treatments. I am reading your letters with interest, I did not know there was so much involved at the beginning (makes me thank my lucky stars all the more). I am following your progress with interest. Loving thoughts to you.
3519. such good news sonia
Have everything offered you. I love massages they make you feel so good. Try too rest a bit I worry about you being on the go all the time. Hugs to you and the girls.
3520. Hi joystick, paula, joshi, bogey, ryan &maewest
I am late on again so will make it brief. Glad you are all a bit better. Poor maewest your temp. have been so low. Joystick what is your op for? Hate too show my ignorance.Hugs for joshi, ryan and their mums. Beautiful weather in the Buller again.
3521. Looks
Like I might be the night owl tonight. Hi Boop, love to you too. Bogey - bumma, poor Ryan!Joystik - another cold one alright but like you said the days are glorious. Sonia - bet ya it all just falls into place in the morning, thinking of you all. Nanite sleep sweet dreams xo
paulaxx (76 
) 10:45
pm,
26 Jun
3522. 
Morning Sonia
Hope your night with the girls went well! Hear it's a bit chilly up your way today, keep rugged up. Have a great day!!!
3523. Sonia
Thinking about you this morning, hope the girls are off to school, creche and you can have some time for you. Hope you have a lovely day. Im off to Invercargill to see the orthapaedic surgeon re my shoulder. Its heaps better but thought I'd keep the appointment cos the waiting list is phenomonal(sp). Then the next thing to cross off my to do list is a mammogram ;o) love and hugs to you xoxoxoxox
paulaxx (76 ) 10:02
am, 27 Jun
3524. Bogeyi
Hope today you dont have to go to the hospital or anything??? Is the sun shining. Hope you are good? Think of you often. I am pleased Ryans platelets came up on their own Like you say wonder where they would have been by Thursday? Anyway enjoy your day, hi to Ryan. Oh and how is the puppy hunting stuff going???
paulaxx (76 ) 10:04
am, 27 Jun
3525. Joystik
Goodmorning, the school bus driver phoned me this morning to say she couldnt get into the bus it was all frozen. The door was iced shut. It was -5 here this morning - but man what a lovely day!!! Hope you are snuggly warm and enjoying the sunshine. Catch up later xo
paulaxx (76 ) 10:05
am, 27 Jun
3526. Hi ladies, beautiful day here in paradise again...
Yes Paula it was -5.6 at 7.30 here too but they had -11.6 in town they said on the radio. Thats rather chilly aye?? It just looks so beautiful as the sun is coming up, and the frost is all glistening in the trees and on the grass. The days are stunning to say the least. Very much warmer here than in Invercargill, by at least 5 deg I would think. It a warm 9.5 now!! Good luck for your appointment Paula. Its a good idea to keep those appointments because of the waiting lists. Glad Josh enjoyed his day at school yesterday. Nice for him to be able to be there with the other kids. Did yu get all the mud off you little Teddy?? What a mess! Better hang out more washing. See you later.
joystik (281 ) 10:33
am, 27 Jun
3527. Hi dize, thanks for your message. There is a
lot involved with the treatment. You were lucky not to have to have the Chemo. I was hoping I wouldn't need it either, but mine was to advanced at grade 3 and was quite involved in the lymph nodes as well. The chemo can be very involved too, especially with the higher doses, because if you don't watch carefully for signs and sympthoms of illness, it can kill you too. So you have to be on your guard with it. So far I have been fine. Hope you have a lovely day and hugs to you....
joystik (281 ) 10:36
am, 27 Jun
3528. Good morning Boop, hope all is well in Westport...
thanks for your address, I have put it in my little book of lovely people and will certainly make contact the next time we pass by your way. We usually make it up that way twice a year, and visit Ginas grave at the cemetery. My Op on friday is to have a Port-a-cath inserted in my chest. It just a little piece of plastic with a silicone top, and a small rubber tube which runs in to the main vein along side the heart. It is placed right under the skin and is done under a general anesthetic. It is put in primarily for transfusing medication and also for taking blood samples. My surgeon and the Oncologist though it would be very beneficial for me because one of my Chemo ingredients, it very abrasive on the veins, and after 1 treatment into a vein, that vein may be un-usable a second time. Because I had my lymph nodes removed as well on the left side, that arm is unavailable for any needles, blood pressure or anything. So my options are cut way down.
joystik (281 ) 10:43
am, 27 Jun
3529. So Boop, when I go to have a blood test, or to
have my chemotherapy, instead of them trying to locate a vein in my arm, hand or foot, they just have to locate the portacath under the skin, and then pop a needle straight into this wee device and transfuse it thru there. This week I have to have 2 lots of bloods and next week another lot plus the chemo. So by then there might not be any places left to get it successfully, and they dont want to delay or muck the chemo treatments about. Yes so thats what its all about. I have to go in at 11am and will ave the Op in the afternoon and they thought I would be out by 6 ish at night... You have a great day in the sun wont you...
joystik (281 ) 10:47
am, 27 Jun
3530. Ohhh Bogei that was such a shame about Ryan
yesterday. Just when everything was going along ok and then that had to happen. Hope today is going much better and you are having a good day too...Hugs to you all.....
joystik (281 ) 10:49
am, 27 Jun
3531. hi Sonia, hope all went to plan with getting the
young ladies off to their respective classes. Its not quite the same on you own is it. Sometimes I wonder how solo mothers cope with 4 children day in day out!! And then I watched that lady on TV1 last night with no arms and on her own. Very brave lady I think!! Hope you manage a bit of time for yourself today in your other plans. Take care and love to you and the girls.....
joystik (281 ) 10:52
am, 27 Jun
3532. Hi tuiw, hope today is better for you....I have...
been thinking about you since last night, and have been where you are now, so have empathy for you. It does get easier in time, but try to think of the good and happy times. I'm thinking of you...hugs...
joystik (281 ) 10:54
am, 27 Jun
3533. Hi maewest, hope all is well where you are.....
and not too many 12 hour shifts either. Thats a bit too busy isnt it. Thinking about you too and wishing you a happy, stress free day...with hugs...
joystik (281 ) 10:55
am, 27 Jun
3534. Hi twinkies and Briyanna,,,havent seen you about
for a while. Hope things are going along ok for you and your family. I've been thinking about you...and sending hugs every day....hope you've been getting them OK??
joystik (281 ) 10:57
am, 27 Jun
3535. Hi all, re "Non Hodgkins Lymphoma"
Just read that there is a new treatment for "Non Hodgkins Lymphoma", which increases the survival rates to 91%. Link is below. Just shows you how cancer treatments have improved in the last 10 years.http://www.skynews.com.au/health/story.asp?id=114376
kelsall (222 ) 11:01
am, 27 Jun
3536. Good morning everyone
Taking a break and sitting in the sun after a freezing start. 3 days off now, hopefully, but with the loss of our boss, anything could be on the cards.Hope all is well with you all...still trying to catch up on what I have missed. Sonia I hope you are having a nice relaxing day for a change! Joystik, interesting reading about the portacath. I didn't have one of those and by the end of treatments they were struggling to find veins. Still getting pins and needles in my hand. How is on the coast to day Boop?? I bet you are enjoying your nice new clean house. Must get back over there one of these days.
maewest (75 ) 11:33
am, 27 Jun
3537. Paula hope the treatment
for shoulder has made a difference. Nothing worse.Hugs for Joshi. And for Ryan too. Hope all is well with the boys today.And the Mums too of course. One of our drivers, who is also recovering from breast cancer (mastectomy 2 years ago)came in and sat with me at work for a couple of hours last night. A lovely lady. Was so good to meet her. So many lovely people, all affected. To me, this has been the positive side of all this...meeting so many new friends. Off to do some housework. Have a beautiful day everyone XOXO
maewest (75 ) 11:39
am, 27 Jun
3538. Hi everyone :o)
Yes the girls were a dream, the only change I noted this morning was not having to nagg Brent to (a) get out of bed and then (b) to get out of the shower LOL Taking the kids there myself was a novelty, and nice, we had to resort to Brent doing it every day as it was the only way Emily settled OK at creche. Today though she was fab. Routine all set - school hols about to blow it all asunder LOL Had a cruisy morning thanks, got the car washed (car wash!) and visited the local health shop (run by a TM member who recognised me a few months back from my other threads LOL She was a big help. Decided to start with off-the-shelf and save me $100 for now while I get my head around the Usana business - don't want to be locked in till I'm sure its worth it. Got good quality chaleted off-the-shelf, so hopefully will be of benefit. OK must get Em to bed now. Beautiful chilly day here - love it :o)
soniat-d (153 ) 12:44
pm, 27 Jun
3539. See Sonia...YOU ROCK!! Just a breeze to you and
would be the same with one hand tied behind your back. Glad you are having some time to your self. I've just been for a lovely walk in the sun and its beautiful too. Did a stupid thing though!! Put some chicken on to cook before I left, and was wandering merrily around the supermarket wonderingwhat to buy and thought..OH NO THE CHICKEN!! Listened to see if the fire siren was going and no it wasn't, thank goodness. Phoned the neighbour who was home from work having her lunch and asked if if she could see smoke?? NO! So she came over and turned it off for me. Thank goodness I live in the country and know my neighbour so well. All was well when I got home but what a mess all over the stove top!! Hope dopey of me. I think I shall blame the chemo, and have takeaways for the next 4 months!!
joystik (281 ) 2:47
pm, 27 Jun
3540. Nice to see you Maewest, and glad you are having
some time off in the sun too. Its just beautiful out side here and is actually 19.4 outside the front door. Mst get the washing in - its dry already courtesy of a wee breeze earlier, nothing now. Take care wont you...
joystik (281 ) 2:49
pm, 27 Jun
3541. oh what a beautiful day here.
Hi joystick this is a wee bit of heaven here too with all the lovely days. Glad your chicken was okay.As soon as I have finished this house will go for lots of walks.Thanks for explaining that , I didn't have a clue what it meant. Good luck with it. Hugs.
3542. Hi busy sonia
you are a wee marvel I knew you would cope alright, well done.One thing when the men are away you can chose what you want for tea. Hugs
3543. Hi paula and joshi
your frosts are just like we used to get in CHCH they are pretty mild here.Are you going too school every day joshi or a couple of times a week? Paula do you get that beautiful thick cream straight from the cows? I have never tasted anything like it. Yummy. Love to you, joshi and cassie.
3544. Hi bogey and ryan
hope you are okay ryan. What town do you guys live in? How are you bogey I hope you are feeling better. Cheers
3545. Hi maewest
From what my son tells me it is freezing over there.What a blow losing your boss like that. This thread is so warm and caring even though people are sick they are so thoughtful towards others.I know what you are saying. Hugs
3546. My sympathy too tuiw3
So sad about your mum , warm hugs to you. No matter how old you are losing your mum is so hard. I still miss mine after 16 years. I remember the morning of her funeral I spayed the plastic flowers with water and my nephew looked at me sideways thinking aunty you are a nut. It leaves you absolutely shattered.
3547. Ha ha boop2 thats so true ;o)
I decided we're having fish for the next two nights as I LOVE fish and Brent's all snobby and says its only good if you catch it yourself!? Too snobby for his own good lOL. Got me a flounder for tonight yummmmmy! Actually I'm going out to a friends after tea for a book-look evening. Nanna is looking after girls ;o)
soniat-d (153 ) 3:51
pm, 27 Jun
3548. Hi Joystik
Ooooh, re the chicken story - I know that feeling! Had lots of those with chemo brain - be prepared for a few more! LOL ;o) I was told to have a notebook in my bag with my pin numbers, house combinations etc in it. I did that, but actually never needed that! My probs were things like you, leaving something going and forgetting all about it, going to supermarket specifically to get 1 particular item, coming home still without it LOL etc etc. Oh the fun of it. Don't worry sweets, it'll all be over pretty soon ;o)
soniat-d (153 ) 3:54
pm, 27 Jun
3549. Hi Paula :o)
How's your shoulder? Hope you're having a good day. Thanks for your vote of confidence also! ;o) xoxo
soniat-d (153 ) 3:55
pm, 27 Jun
3550. Hi Maewest
Yep, been busy again I guess but in a cruisy way, if that makes sense?! Anyway, Em's calling me so better get back to my darlings. Have a nice afternoon everyone!
soniat-d (153 ) 3:56
pm, 27 Jun
3551. Hi all
Just popping in to wish you all the best for your treatments. Keep your chin up all of you. My latest news is that I have sold my house, subject to subdivision, all my boarders (5) are finding new places - one went yesterday. They have been great with me knowing about what I'm going thru. We haven't heard a peep about the stolen caravan!! but we are getting on with things - can't dwell on that. I have heaps to keep me occupied now - sorting out all the stuff I don't want into piles for selling, giving away or rubbish bin. OMG what a job ahead - 5 bedroom house and huge double garage full of it. Fortunately, sis is going to come up from Auck. to help as I can't lift too much yet. Did a stupid thing the other day and went out with loppers and pruned a few branches off the peach tree - whoops bit sore after that so I have't even been out to clean up the mess yet!! I guess we all try to the limit (and a little over LOL) Take care all and best wishes Cheers
cburton1 (60 ) 4:08
pm, 27 Jun
3552. Forgot
to tell you that I still haven't got an appointment to see the oncologist to see what is in store for me. Here's hoping - no news is good news (yeah right!)TTFN
cburton1 (60 ) 4:13
pm, 27 Jun
3553. Ladies, there is another thread just started on MB
called Important for all ladies to see - Please Bump. Its about Breast Cancer. I got the link up but it wouldn't stay going...its a video clip. Maybe someone else could try and see if they have any luck..YUMMY fish for tea Sonia. I love fish too ...my fav is Blue Cod and theres heaps of it down here....See you all later.
joystik (281 ) 4:22
pm, 27 Jun
3554. Hope all was well with you appointment Paula....
I was thinking about you.
joystik (281 ) 4:22
pm, 27 Jun
3555. Paula it was a gorgeous day today, ryan and I
went for yum cha with my mum and dad, the puppy hunting we are slowly researching need to drag it out so we look in hospital and he gets it when we come out, big insentive for him to fight.How are you guys hope josh is well, look a bit further down after my hellos and i have some exciting news about ryan, its a boy thing josh will think its fab.
3556.
Hi everyone
You are all so wonderful. Caring for me and my shoulder with all your going through - thanks!!!! Its actually really sore again now DARN IT!! Maybe its cos he had a play with it?? I've been nursing it along for the last 3 or so weeks. He showed me a couple of exercises to do and see how I go. Gave me a steroid injection into the shoulder. That was painless!!Said if its still sore to phone back for an ultrasound then they will perform keyhole surgery and grind back the bones that are rubbing onto each other and causing the pain. Joshi is ok, very tired to be back at school. They are having the mid year concert this Thursday so figure if he can make it to that he can stay home Friday and rest. Then its holidays.Chris is crumbing some duck schnitzel for our dinner but you made my mouth water with the Fish talk. Im so glad you had a good day Sonia.Bet the girls loved having mum being the chaffeur today.
3557. boop we are in west auckland, glen eden
we are doing well, Ryan has his first wiggly tooth (at 8) and hes sitting here wiggling it, its a novelty for him.I am just thinking of all the blood if he has low platelets...oh what fun.
3558. Sonia how you going
I knew you would have it all sussed in the morning that is why we are called MUMS.I hope you have a lovely evening tonight.
3559.
Joystik, Boop2, Maewest
Your all so lovely and caring!! Thanks so nice to come home and get on here and see your messages. I think of you all too. Its been such a gorejus (tee hee) day here, loved cruising off wih my favourite music playing, teddie beside me. A clean Teddie, Heather - mmmm. Had a bit of a job!!! Ok, better go my darlings feel like soup and toast tonight, so I will go and do that. Love to you all xoxoxoxoxo
3560. 
joystik hows the chicken
im not laughing at you im laughing with you, as you know laughter is the best medicene, I only have one problem what can i blame my forgetfullness on????Hope you had a good day to.
3561. Will the tooth
come out tonight Bogeyi???? OOOhh how cool, tooth fairy too. Gold shiny coins... ;o) the tooth fairy that comes here leaves gold footprints on the window sill by the bed. Shes magic because after a while those footprints disappear.have a lovely night, thinking of you, hope it doesnt bleed too much? Love and hugs
3562. Sonia
I hope you have a lovely night too. Enjoy your fish. xoox
3563. dosent look quite ready but who knows with
little fingers fiddling with it. When Ryan was back in hospital 10weeks ago really sick (when we knew something was wrong) he had his trusty xbox he played for hours on end, I said to him I was going to write a letter to microsoft and say I had the perfect person to trial games if they ever needed it.Well you should of seen his smile it was worth a thousand dollars but he said you wont do that, I promoised him I would and I did I also asked if the letter was ever received would they be able to send a letter back to prove that I did send it.....well yesterday I got an email from the Managing directors PA, a letter is coming from the director and they want to send him a game, well that thousand doolar smile turned into a million dollar smile.
3564. Thnaks everyone and hi briefly ;o)
Girls now down at nannas, gotta do a quick tidy up as she's bringing them up after tea, then make my tea and dash ;o) Have a good evening all - keep warm :o)
soniat-d (153 ) 5:39
pm, 27 Jun
3565. bogeyi
Wow. What an awesome mum you are. Great idea!!!!! That is just so cool. He deserves it. Tell him we think that is so cool.!!!!
3566. thanks paula hes pretty chuffed
and excited.
3567. Good on you Bogeyi
What a great idea. And getting a reply...fantastic. I can just vision Ryan's smile. Paula I don't like the sound of that 'grinding bones'stuff. Ouch. Have you tried an osteopath? I had neck probs for a number of years and an osteopath finally fixed it.We had a stunning day too Joystik, but I don't think it quite got up to 19. Looks like another cold one tonight.
3568. thanks maewest
to be honest i thought it would of been chucked in the bin, but i printed out the address and addressed it to the managering director so it look like business mail.
3569. Bogeyi, you are such a lovely mummy.........
so thoughtful and go out of your way to make things better for Ryan. Lots of people could follow your example and make the world a better place with mnay more smiley faces instead of sad ones!!
joystik (281 ) 8:17
pm, 27 Jun
3570.
Maewest
MMM, its a bit sore. But have taken some codeine so ohopefully that will help. I think its sore tonight because he worked on it???Or maybe the injection of steroid??? Anyway its nothing compared to what you all have to go through so its fine. I think about what Josh has had to contend with over the last 8 months - this is really nothing!! Thanks, if it doesnt get better it wont be a major op. xoxo
3571. Bogeyi
Was just telling Chris about what you did, he thinks thats awesome too. Wonder what sort of game it is, I am excited for Ryan xo
3572. thanks joystik......i was telling a friend
it is hard work having a sick child mentally, but its even harder work having the constant questions. I had the taxi driver laugh at me the other day said its been the most interesting drive hes had in a while, question after question it keeps on going and if we go in the car the questions triple. (dont get me wrong i am so pleased he asking and lively but my poor ears).Even my mum was cracking up today in the car.
3573. Sorry your shoulder is giving you gip Paula....
maybe it will be better in the morning. Its hard to imagine that exercising it will do much if there is bone getting in the way??Did you go to Mr Fosbender?? I've heard he's good. Pleased Josh is having a nice time at school. Hope the bus isn't frozen tomorrow!! Could well be though it pretty cold out there. Glad I don't live in Alexandra at -1 all day and freezing fog!! What have you plannd for the school holidays??
joystik (281 ) 8:45
pm, 27 Jun
3574. Hi Sonia
You go girl congrats on your managing with girls. Glad you are getting along OK. Pushed for time my friend's birthday today and we have been out for desert and coffee. Will catch up with you all tomorrow. Hugs and best wishes.
icarus1989 (468 ) 9:04
pm, 27 Jun
3575. hope everyones having a good night
think i will go to bed early, we have our radiation appointment tomorrow bit nervous about it..
3576. HI Tiuw3
So so sorry to hear about your mother. I am thinking of you. Will be back tomorrow. Try and get a good sleep.
icarus1989 (468 ) 9:30
pm, 27 Jun
3577. Oh well ladies I 'm off to bed, have to get going
early in the morning so If I don't get to bed I wont want to get up will I. Got Blood tests and then the looking good feeling better workshop. Ohhh...and shelly is going to trim the wig up ready for next week. Hope you all have a good restful sleep and a lovely day tomorrow. Love and warm hugs to you all, especially the kids.....Bye....xxxxxxx
joystik (281 ) 9:59
pm, 27 Jun
3578. Hi bogey
good for you you always make me smile. good luck for ryan tomorrow I guess he takes after his mum does he? I have never been too Auckland we will get to kerikeri soon I hope. Big huge for Ryan and Tyler
3579. Hi Paula , joystick, maewest,sonia and
last but not least Joshi,wishing you all the best for tomorrow with the various treatments. I am sagging at the knees now so off too bed.
3580. Bogey that means
big hugs just dopey me not checking
3581. Joystik
Will be interested in hearing how you found the Looking Good Feeling Better workshop tomorrow. The ladies I went with seemed to be enjoying it, but it made me feel depressed. The sight of all those lovely women there, many with no hair, or else very short hair, and all so cheerful, and all ages right up to 85, it just got to me and I felt so sad, it was all I could do not to cry. I felt guilty about it afterwards, as they made us look nice and gave us heaps of free makeup, but someone said that is not an unusual reaction.
3582. Hey all.
What a week! Have been up in Palmy for a few days enjoying Briyanna's good health :-) Realised I havn't posted for a while, thought I should come give you all a update...Briyanna went for her checkup prior to the Radiation treatment which is scheduled to start tomorrow. I was informed Briyanna's next round of chemotherapy (same drugs as last) would start tomorrow as well (had assumed that they wouldn't do chemo and radiation together). Chemo. will be reduced to 50%. The radiation treatment will continue to Thursday next week. We are not at all sure how badly the combination of therapies will knock Briyanna's system, but we expect it to be a bumpy couple of weeks - next week will most likely be worst as she hits her nadir seven or so days after starting the Chemo. AND is continuing to get Radiotherapy...thanks to those who signed the guestbook. It's refreshing to know you all care :-) Off to catch up with the rest of the thread, ta.
twinkies_pn (0) 12:35 am, 28 Jun
3583. !...
am just keen to get to the bottom of this thread! tried the old fashioned clicking the next group method but got bored!
mattsimm (8 
) 12:45
am, 28 Jun
3584. yehp,
It's a big thread! Could make a book!
twinkies_pn (0) 12:49 am, 28 Jun
3585.
Hi Twinkies
My heart goes out to you and Briyanna, oh what you are going through... ((((hugs)))) and sending positive vibes to Briyanna - hope she gets through this next phase and best as she possibly can xoxox
soniat-d (153 ) 7:56
am, 28 Jun
3586. Hi all
Had a lovely night out thanks. Girls are both down with colds, as am I, so staying home today. Will be busy. Will catch up with rest of thread when I can ;o) Morning all :o)
soniat-d (153 ) 7:59
am, 28 Jun
3587.
Hi Matsimm
Yep major thread allright! And still going strong (sadly perhaps) but nice we all have each other to talk too. Wonder how long it'll go for? LOL
soniat-d (153 ) 8:01
am, 28 Jun
3588. Good morning ladies, another nice crisp frosty one
and I'm off to town for Bloods, get the wig fittd and trimmed, and hen to Looking good feeling Better Workshop at Cancer Society. Should be a fun day. I will let you know later. Hope you all have a good day, and I will see you later....
joystik (281 ) 8:40
am, 28 Jun
3589. joystik sounds like you have a fun day ahead
of you, we have lovely blue sunny sky again today. Sonia hope you and the girls are feeling ok today. Paula and josh what are you guys up to today??. Twinkies nice to see you in here sounds like you had a nice couple of days. Hello to maewest,boop,landylass,and everyone else I have forgotten.
3590. Oooh Joystik the LGFB course - how great :o)
Talk about good timing with it - was same with me - I went just before I started losing all my hair, and it was great, though its great no matter what stage you're at, really. You'll have to tell us all about it! Have fun with the wig fitting too - does that mean you're losing hair now? I still ahven't got mine serviced, slack me, so still don't know the name of my one.
soniat-d (153 ) 9:30
am, 28 Jun
3591.
Goodmorning everyone
Joystik, hope you have a great day, looking forward to hearing all about it later. Sonia, oh the poor wee girls. Hope they feel better soon. Bogey, Hi, best of luck at the radiation appointment. Let us know how it goes...Joshi managed to go to school today, he and cass have concert tomorrow night, so I thought he better get up to speed with his part etc. But he can have Friday off cos I can see he is so tired. How are you guys today. Chris and I are going out for lunch. Should be nice. Its our anniversary, he spoils me. Just got me another ring. Garnet and diamonds. Sweet eh? Hope everyone is having a lovely day. Thinking of you all. Hi to Maewest, Landylass, Twinkies, Boop2 and anyone else Ive forgotten too. Take care
paulaxx (76 ) 10:30
am, 28 Jun
3592. Hi all
Paul, new jewellery. How lovely. I think Chris should give my Paul some tips on that.Congratulations on your anniversary.Pleased Joshi has made it to school today. I loved school plays...so cute. I know Joystik will enjoy LGFB. It's a neat day. Everyone in the same boat having fun with makeup and then coming home with a goody bag. Chch city has had a frost and then clouded over, but we have a beautiful sunny day out here. I am going for my first hair trim today and having some more red highlights put in. Looking forward to it.
maewest (75 ) 10:41
am, 28 Jun
3593. Good to see you back Twinkies
You have a rough couple of weeks coming up with Briyanna. Will be thinking about you. What is Briyanna's website? Also Ryan's? Had a quick look back through the thread, but can't find them.Is Ryan still on a high Bogeyi? I bet he is.How are you all today Sonia. My man has a cold today..hope he keeps it to himself!! Hiya Boop. Hope you have stopped cleaning now!!Is it a nice day on the coast?
maewest (75 ) 10:46
am, 28 Jun
3594.
Maewest
I know - I am spoilt. Got a ring for xmas, one when we were in Christchurch with Joshi last year. I am running out of finger lol. I love them all!!!! The rings that is not my fingers. Anyway have a lovely relaxing time at the hairdressers. Nice to have a trim and some highlights good on you. Take care and have fun
paulaxx (76 ) 11:53
am, 28 Jun
3595. Paula
Hope the shoulder is feeling a bit better today. Have you tried 'Anti Flamme'? It's great stuff...from the chemist in a purple pot.Hope you are having a lovely day and making some time for you XX
maewest (75 ) 12:34
pm, 28 Jun
3596. Happy Anniversary Paula! How cool - what a
lovely pressie! Yes you are spoilt! Enjoy! Girls are having rest, I'm off to have one too! We all have the cold now - Lydia has it the worst - her throat and ear are red - fingers crossed she can avoid antibiotics!?! Saw the docs this morning - my neverending period (2 weeks now) is apparently just result of my body's imbalance after all its been put through, and I just have to "ride it out". If still going after another 4 weeks then they'll look further. Sorry my posts are so brief and non-responsive - flat out of time at the mo - sorry guys!!! ((((hugs)))) to you all xoxox
soniat-d (153 ) 1:43
pm, 28 Jun
3597. Oooh yes Maewest
That anti-flamme is AWESOME isn't it?! Thats the ONLY stuff that soothed my back injury. Still take a pot with us on holiday - just in case! Hope the shoulders better today Paula, yes the manipulation can make it sorer then it settles down. Then, maybe its just the weight of all those rings on your hands! LOL ;o)
soniat-d (153 ) 1:46
pm, 28 Jun
3598.
OH BTW after the docs
we popped into the petshop to look at the rabbits and our two favourites were still there! Found out they don't need grass - you should have seen Lydia's face when they saidf that LOL We're in trouble now! (I want them too now BTW ;o)
soniat-d (153 ) 1:48
pm, 28 Jun
3599. Mammograms save
Lives!!!!
soniat-d (153 ) 1:48
pm, 28 Jun
3600.
Wish I'd got one :o/!!!
HUndy hundy hundy! Boy they sure roll around fast!
soniat-d (153 ) 1:49
pm, 28 Jun
3601. paula happy anniversary
hope you guys have a nice lunch, are you having gorgeous weather like we are???
3602. sonia i hope its not going to be around
for another 4 weeks, what a pain. We went and had a chat with the radiation doc and whjat they will do with Ryan, all seems clear but i came out feeling depressed.I have never been over there before and its really depressing in the waiting room, I think its because everyone is sick and you can see that, maybe im just used to being in the kids hospital where it seems more brighter and happier????
3603. Sonia
After my BC surgery, the physiotherapist told me never to use any sort of anti-inflammatory creams again. Don't really know why, should have gone into it more. Obviously you are able to use Anti-flamme, and I always liked it.
3604.
Not using it now dize5 ;o)
Don't have any pains (touch wood!). No, I'd never use it on my radiated regions, have 2b careful there forever apparently...
soniat-d (153 ) 3:19
pm, 28 Jun
3605. Hi all
Yeehaa - just got clearance from physio. Still have to be careful with arm but shoulder etc doing well. That's one thing out of the way but still waiting to get appt to see oncologist. Cheers to you all
cburton1 (60 ) 3:31
pm, 28 Jun
3606. Hi there ladies--
I hope if this thread disappears you'll start a second "Cancer Sux" thread--I check in here every couple of days to see how you all are--I've been having some tests and have been told my immune system is fighting itself resulting at the moment in all my joints being inflamed--so off to a specialist--but nothing compared to others in here--this thread is an inspiration.
jarjarbinks01 (4 ) 5:03
pm, 28 Jun
3607. Hi Sonia
Thanks for the comment about the anti-flamme, I started to wonder if I was over-reacting. What is the reason for us not using it, is it because the skin has been burnt?
3608. Sonia
My rabbits are off the ground in a hutch with long legs. I feed them pellets, carrots,lots of hay. Hay is very important roughage in their diet. No lettuce or cabbage as it can upset their stomachs. Occasionally they get a piece of toast, rolled oats, peanuts or sunflower seeds. Mine love parsley also. Lots of handling so they get used to it is a good idea. Back to the thread topic. I had a breast check today and I am going to book in for my mammogram. I didn't realise the public waiting list for non-urgent is 6 months so I am having it done privately.
kiwibunz (342 ) 5:26
pm, 28 Jun
3609. HI...
Thanks for my anniversary wishes. Having the best day. Joshi is a bit sad and tired. Roll on the holidays. Bogey sorry you felt a bit blue with that appointment today.I can imagine it wasnt a pleasant experience. Hey though you guys would lighten a dark day, so once you get in there, they wont know the place. Bet you'll make people smile who had forgotten too. Sonia - So when do you pick up the bunnies lol ;o). Sounds like a plan in action. Brent is away tee hee. Thanks for your kind wishes. Thinking of you as usual. Take care love from us xoxoxo
3610.
Maewest
Thanks if it starts playing up - I shall be straight to the chemist to buy a pot. I have seen it but used volataren in the past. Thanks ;o)
3611. thanks paula
im fine now probally nerves and because its an adult enviroment that kids have to go in.His radiation he will have to lie still for 30mins he only has 1 treatment so hopefully he will be still.
3612. bogey
I remember when Josh had his brain hemmorhage and they needed to do a scan on him CAT or MRI I cant remember now, anyway they said to me it is really important that Josh stays still. I was worried he wasnt going to be able to cos it can take up to an hour. I was able to stand nearby with mirrors set up so he could see me at all times. Thing is Josh and I are so close, we have the same sense of humour everything. So the minute the machine started and it was so loud and the noise just cracked me up, I looked at his eye cos thats all I could see and he was the same, so I tried to be mature and shake my head at him, saying no keep still. I turned away and got composure. Every set of pictures they took, meant a new noise. It was so hard to keep a straight face.But he did it.The 2nd one he had they let him listen to a cd walkman.Do you think thats a posibility, it helps. I have no idea about radiation so am unsure whether thats a dumb idea???? Glad its only for one lot!!!!
3613. Hi Paula, Bogeyi, Dize5, Kiwibunz and every1 :o)
Thanks for the posts - yep - I want the bunnies as much as Lydia LOL! Thanks for the excellent tips Kiwibunz ;o) Lydias on antibiotics now - must get back to them - hey Joystik! How'd the LGFB course go? Hows the wig - do you like the "new you?"
soniat-d (153 ) 7:22
pm, 28 Jun
3614. paula he also has to have a CAT scan
before the radiation so that will be practice, with the radiation he is in the room by himself but there is a 2 way telly i believe so he can see me and i can see him and we can talk to each other, hes aloud to take a story disc which i think will be a good idea, we go on day 6 of his treatment so who knows how he will be feeling.
3615. Sonia
Poor Lydia, hope the antibiotics kick in quick. Are you ok, didnt you say you all had it now?? Hope so, get a good nights sleep. Man I sound like a mother!! Sorry just take care xo
3616. bogey
Whats the first few stage of treatment then. I know they have to attack the body so he'll have no immunity what so ever. Just interested in what you've got ahead of you. You'll be isolation for ages wont you? If you dont want to go into it thats fine I understand.
3617. i dont know yet if hes having the same
dose of chemo as last time, we had 8days of chemo and other drugs 9th day is a rest day and 10th day is transplant day, then with radiation that will be on day 6.But there may be some changes hopefully we get the protocol soon.
3618. Hi Paula :o)
We're talking to Brent on Skype - he's at the airport :o) :o) :o) Yep I have the cold too, not too bad though ;o) Thanks for the thoughts :o) Glad to hear u have been treated today :O)
soniat-d (153 ) 7:52
pm, 28 Jun
3619. Thanks
for that. I do think about you all the time. Must be awful the waiting. Tomorrow will be interesting to see what his platelets are after getting some. How is he doing, looking forward to getting puppy I bet. So how long will the stay be this time
3620. Thanks
So much. It has been a lovely day. Thats cool that you can chat that way. 26 days till we come up to the big smoke. Looking forward to it. Have a nice night
3621.
Yep we love Skype
The girls think everyone can talk to their dads on the computer LOL. Yep looking forward to the 26th allright - hope Auckland warms up a bit by then!?!!
soniat-d (153 ) 8:03
pm, 28 Jun
3622.
Hi Dize5
Yes the docs have all told me the radiated area "remembers" for a long time and will never be the same - always protect from sun , don't apply any creams witl ingredients ending in -ol etc etc. So I guess this is the big negative over chemo - you do bounce back to normal from chemo, but not from radiation...
soniat-d (153 ) 8:07
pm, 28 Jun
3623.
OK had better get my darlings to bed now
And I'll be retiring early tonight too. "Night all - sorry to anyone I've missed. Hugs to you ALL :o)
soniat-d (153 ) 8:08
pm, 28 Jun
3624. Just
thought I'd mention the guy we employ full time has just come back from Auckland and reckons he wore a t-shirt the whole time. LOL. I dont mind if its cold. Just looking forward to coming up and meeting who ever we can while we are there. Nanite now love and hgs
3625. paula have you got dates you are coming
up here??
3626. So I was thinking tonight...
I have had a sore knee for a while now, and docs ask me if I have sore bones at all and I say no - is that silly? The knee is soooo far away from the boob and kidney area I've been assuming its just aging pains from an old injury. Hmmm.... thinking I'd better mention it to Benji. Sure its nothing.... OK Lydias in bed, Emily's bouncing off the walls, gotta get her down now ;o) Night all ;o)
soniat-d (153 ) 8:55
pm, 28 Jun
3627.
sonia you know we always get into trouble
for thinkg to much, just your brain working overtime hun.Have a good night.
3628. Hi sonia
I think anything is worth mentioning to him. When do you see him again? Hope you and the girls recover quickly. Have you any other pets cause the rabbits are so cute. Take care sonia and have a good rest. Hugs
3629. Hi everyone,
you all sound so busy. Lucky paula he still loves you then. I love rings too.Gosh you and joshi have been through heaps no wonder you are so close.Hi maewest, yes another lovely day . I have slowed down on the cleaning cause I am so tired but in saying that have really enjoyed getting the house straight.They seem to be having another boom here so many houses being sold. Take care maewest.Sorry bogey hope you are feeling brighter you wouldn't be human if you didn't get down occasionally. Love to you and ryan. Hi landylass and joystick hope your day went well. night.
3630. Hi twinkie
you have a hard time ahead of you I wish you and Briyanna well and hope it all works out for you. Warm hugs
3631.
My brain isn't working overtime! My knee is
constantly sore! LOL Hard to ignore really, yep has to be old age #shrugs# Seeing him Saturday morning - taking the CT slides ;o) Nope NO pets so far - I've only ever had tropical fish, girls have had nothing. I'm itching for a pet - well, two little bunnies actually ;o)
soniat-d (153 ) 9:34
pm, 28 Jun
3632.
Hi Paula :o)
I can relate to that bond you have with Joshi - I'm the same with Lydia - two peas in a pod we are ;o) Emily's a mystery to me, but I adore her too :o)
soniat-d (153 ) 9:37
pm, 28 Jun
3633. Ohhh dear ladies I am so late on here tonight, you
have probably all gone to bed. Such a busy day today. Oh Bogeyi, before I forget, the chicken was delicious. ha ha ha!! Glad I could see the funny side after the embarassment died down. I will try not to ever do that again, I must admit, my blood almost ran cold when I realised what I had done. Our family home burned down when I was a teenager, and I have never forgotten that. Well I went and had my bloods done first before I headed off to the Cancer Society offices for the workshop. The blood looked really good and dark red as usual, but that probably means diddly squat!!
joystik (281 ) 9:43
pm, 28 Jun
3634.
Good luck with those bloods Joystik
Hope it all goes to plan tomorrow. Its funny how you try and read the signs when the bloods taken LOL I used to base it on how long it took for the hole to stop blleding - if it took ages = bloods were crap... thought like that for ages till I finally realised it just meant scar tissue from an earlier test - silly me LOL.
soniat-d (153 ) 9:49
pm, 28 Jun
3635. Is anyone else getting that wierd refresh thing
after you post? Mine keeps going pack to where we were about an hour ago. Wierd... anyway, MUST do quick tidy and get to bed. Goodnight for real all :o)
soniat-d (153 ) 9:51
pm, 28 Jun
3636. The Look Good - Feel Better workshop was just
great. There were 18 of us there and I was the youngest. Most of the ladies were in the 55+ age group and 5 of them with absolutely No hair. They were quite happy to sit there without their wigs on doing their makeup. They had volunteers there from local pharmacy's that put the makeup on each of us, and gave us all the hot tips on applying it etc. It was very good actually. Then in the last hour, Shelley the wig lady came in and brought some wigs and a catalogue and I had to model some of the wigs for her. How embarassing! I have decided to keep the wig I chose first. There was another one I really liked but it was brighter colours, and the fringe part was very long which put me off it. Shelley offered to cut the fringe, but I decided that if she did that and I didnt really like it, then I would have to have it anyway. I'm very happy with what I have chosen though. Came home with a big bag of make up.
joystik (281 ) 9:54
pm, 28 Jun
3637. I spoke to 2 ladies that are having the same......
FEC Chemo that I am having and both had problems with veins after the second treatment. One had been in today and had a PIC line put in, and the other was wishing she had before now when its really needed. I'm pleased I will have mine before the next treatment, (Well hopefully I will) Hope you have all got your fingers crossed for my bloods to be good for friday!!
joystik (281 ) 9:57
pm, 28 Jun
3638. My message kept telling me I had more than
1024 characters and then wouldnt refresh the page when I posted it!! Stupid thing. Pleased you've had a good day Sonia with the girls. Sorry ou got the cold though. I've still got a head cold but its stayed the same as it was, no better or worse. I just want it to go. You have a good sleep and enjoy tomorrow. What is Skype?? I'm a country girl now and I have never heard of it. When is Brent home again?? Hugs to you and the girls.....
joystik (281 ) 10:01
pm, 28 Jun
3639. computer is playing up for me as well
I know with ryans finger pricks if his bloods are low or not, if low it bleeds well for him if high they almost need to milk his fingers.
bogeyi (482 ) 10:07
pm, 28 Jun
3640. Happy anniversary Paula and Chris!!
I'm pleased there is another Ring person amongst us on here!! I am one of those too. Mine are all sapphires and diamonds apart from 2 celtic design ones that I like. I am always on the lookout and hinting about rings for birthdays and Christmas etc. I have 16 altogether now and so am having to chose very wisely and have the finger arranged before I buy the ring! Glad Josh had a good day at school. Concert tomorrow and then Friday off...sounds like a goof scheme to me. There was a lady, Jan from Kelso at the workshop today. Thats up by you isnt it? Must go to bed. Sleep well wont you...hugs all round....
joystik (281 ) 10:15
pm, 28 Jun
3641. Sounds like you had a good day
joystick. I wish you well for Friday. Hugs from me I hope they keep you really warm.
3642. Universal
light and love is forever with you. just keep believing.your friend a x
3643. Goodnight Bogeyi, Ryan, Boop, Twinkies, Briyanna
Landylass, Sonia and girls,Paula and Josh,Maewest, dize, and everyone else. Its been a big day today and I must go to bed. Hope you are all there already. Sleep tight and see you tomorrow....Hugs to you all....
joystik (281 ) 10:18
pm, 28 Jun
3644. Hi Everyone - GOODMORNING
Joystik, sounds like you had a nice day! Great. I have a friend on the Coast who is one of the ladies who always helps out and does the makeup she loves it. Says its a really special day.Sonia, bumma about your sore knee. Best you do tell them! Bogey I think havent had it confirmed yet 25,26,27 July home on the 28. Just waiting for the ticket etc in the mail. Had a grotty night with Josh, concert tonight and hes not going to school. He vomited twice last night and coughed and coughed???? Man!!!!!! The rash is still on him. look like flea bites? They're not tho. Dr saw them, but now they are on his tummy as well???? Will phone them today. Poor Josh, Stags are coming to his school today to sign autographs etc. Cass is going to give one of Josh's t shirts to sign. Better get Cass on the bus. Love and hugs to all. xoxoxo
3645.
All the best
to you if you have any doctor check ups, bloods , appointments etc. Always thinking of you all my friends. Have a nice day.
3646. morning all, poor josh i hope hes feeling a
bit better this morning, do they know what the rash is from???I am off to a funeral this morning one of our dear friends passed away on the weekend she was on the same ward so feel a bit down.
3647. oh Bogey
thats so sad.Dont know what the rash is??? Take care today. Be thinking of you this morning with love.
3648. Hi everyone :o)
Oh no Bogeyi funerals really suck these days - I've banned myself from them! (((Hugs)))) to you. Thinking of you xoxo
soniat-d (153 ) 8:59
am, 29 Jun
3649. Hi Joystik
I was the wig model at our course too! LOL I already had my wig too and showed that off as well. It wierd how they don't include that one in their samples, as they say its one of their most popular ones and everyone at the course liked it!? Yep seeing the women sitting there happily bald was a shock for me too - I have never been able to do that!?! Eyeshadow was a mystery to me before - now I'm quite the pro LOL I apply it most days - certainly makes my eyes look brighter on the rough-looking days ;o) Skype is this thing you can load on your PC (best if you have Broadband connection) and, if you have a microphone attached to your PC, you can "phone" others on your computer. Its good for overseas calls - they're free! Other person has to be near the computer to hear it ringing, but you can see if the other is online or not, so you generally only call them when they are online. Its very cool. Talk to my parents in Germany on it, and to Brent while he was away.
soniat-d (153 ) 9:02
am, 29 Jun
3650.
Oh no Paula
What a night for Joshi - yikes! I'll be thinking of him heaps today (as usual ;o) let us know how he gets on. (((((hugs))))) Joshi - hope you feel better soon xoxoxox
soniat-d (153 ) 9:04
am, 29 Jun
3651. Brents home :o)
Hes got it too, looks like we may all be staying home today. Lydia's in good spirits, both still got major phlemmy coughs. Nothing to what your boys are dealing with. ((((hugs))))) Paula and bogeyi (I'm in a huggy mood this morning ;o)
soniat-d (153 ) 9:08
am, 29 Jun
3652. Sonia
Glad Brents back with you all. Sorry hes got it too. Glad to hear Lydia's happy. ((((((((((HUGS)))))))))) back to you from us. So no bunny shopping today huh??? ;o)
3653. Good morning ladies, lovely and warm today and
raining a wee bit too. Still it makes a change from all the cold frosty mornings. Glad Brent has arrived home safe and sound, but shame you all got the colds thing happening. I'm sure you will be better in no time. Sorry Josh had a bad night Paula. So are the spots to do with the virus?? Hope he feels better later and can go to the concert. Shame he's missing seeing the Stags, but maybe there will be another time some time. Hi Bogeyi and Ryan. Hope you are having a good day too. Any appointments today? Good luck to anyone off for appointments or tests. None for me today, but hopefully OP tomorrow...
joystik (281 ) 9:17
am, 29 Jun
3654. Hi Boop, whats happening up you way today??
You've probably still got sunshine for now until the showers make there way northwards. Hope you're having a relaxing day too. Hi Maewest...are you working today or an at home day for you?? Stay warm and dont work too hard either. Must have a shower and get dressed...what a life...fluffing round like this half the day....see you again soon..
joystik (281 ) 9:20
am, 29 Jun
3655. Hey, have any of you read thru the thread about...
Inflamatory Breast Cancer?? Its another terrible thing, that any one of us can get, and is affecting woman as young as 16....How dreadful. Its only about 4 threads down for this one at the moment...
joystik (281 ) 9:23
am, 29 Jun
3656. 
Wow! Scary!
I couldn't get that link to work but this one did http://www.komotv.com/ibc/ ... scary stuff!
soniat-d (153 ) 9:55
am, 29 Jun
3657. 
YIKES
That is scary!!! Thanks for the info.
paulaxx (76 ) 10:09
am, 29 Jun
3658. Hi joshi
so sorry you are not well today, keep warm and read your nice book I know your mum gives you 120%care. Love from boop
3659. Hi joystick, sonia, paula, maewest, twinkie
Hope your day is okay and not too tiring for sonia. We didn't have a frost either it is qite nice out I am going out too clean the windows as sick of being inside. Hugs to you all
3660. Hi bogey
sorry about the funeral are you feeling better today?Hugs to you and ryan.
3661. 
Just got a call from my Breast Surgeon's nurse
telling me my CA153 is 19. I asked is that OK? She said "I dunno, depends what your last one was". Excellent! So far they've only told me its OK, not what the number is?!
soniat-d (153 ) 10:32
am, 29 Jun
3662. 
Sonia
What does that mean????
paulaxx (76 ) 10:46
am, 29 Jun
3663. Thats sounds good Sonia...I think from my
understanding, these are tumor markers and if they are decreasing or staying the same then thats good. My SIL mother has a CA125 test and she emailed me one night, most unhappy because hers had gone from 69 to 344 which to her meant that her cancer was on the move again. She has had cancer for 5+ years and was told she wouldn't make it to Xmas about 3 years ago, but she's stil going...
joystik (281 ) 10:48
am, 29 Jun
3664. Whew!
Thanks Joystik! Now I can relax! I kind of assumed that my surgeon would have rung instead if it was bad. Will start noting my numbers down for future ;o) Thanks so much! Right, back to my girls, and the 3rd child feeling sorry for himself LOL
soniat-d (153 ) 10:53
am, 29 Jun
3665.
Sonia
Dont worry about what I said, your man needs you. Think I get it anyway from what Joystik said. Thanks. Joystik - I guess the rash is part of the virus. Phoned the hospital to tell them about him. They will phone me if they need to do more bloods etc prior to next Wednesday. Havent heard anything from them so perhaps not... Hope you are good today, bit drizzly and yuck here. Not so cold tho!
paulaxx (76 ) 11:03
am, 29 Jun
3666.
Hi Boop
From Joshi and I. He is playing his x-box, never really to sick for that.lol. Thanks for your kind words. Thinking of you
paulaxx (76 ) 11:04
am, 29 Jun
3667. Paula it has cleared here now but is warm.....
hope you are having an ok sort of a day. Ohhh you might have to go for bloods tomorrow when I'm in there?? No he will be fine...I get spots all over if I have any asprin based medication. Hope Josh is feeling a little better. Give him a big hug....
joystik (281 ) 11:18
am, 29 Jun
3668.
Thanks Joystik
Already thought about tomorrow and you and us and Kew. I havent heard from them yet. Spots are all on his legs and ankles? Its bizarre.He's had them for two weeks now Keep you posted. xo
paulaxx (76 ) 12:30
pm, 29 Jun
3669.
LOL Paula!
He can look after himself! Lydia is pretty good, she should be at school really, Emily has gone downhill a bit, but not too bad. I'm feeling a bit better. Must dash to Supermarket while they're asleep...
soniat-d (153 ) 12:39
pm, 29 Jun
3670. Oh go on Sonia, we just all know you want to run..
after him hand and foot!!! He will be OK in about a week if you pamper him lots and lots!! Hope the little girls feel better real soon. It awful when kids are sick isnt it. I just had the District nurse call in to see me. Its another reliever, and I think she expected to see some sick old person appear at the door, and got me, a healthy young person that looks as fit as a buck rat and twice as dangerous!! She certainly looked surprised...ha ha ha
joystik (281 ) 1:32
pm, 29 Jun
3671.
Joystik
I bet Sonia ran off to the supermarket to buy all the stuff to make Brent a nice homemade soup. Then she'll put some nice vicks on his chest. Sorry, just teasing. I know what men are like when they aren't 100%. Look after you too Sonia. Thinking of you. Glad Lydia's better, hope Emily follows suite. xoxoxo
3672. Joystik
You sure are doing so well. So the bloods are all ok to go ahead tomorrow or do you have to do some more to check in the morning?
3673. Paula, I have to go at 11am and have bloods done..
first before I amadmitted to Day surgery. They will decide then whether they will do the op and cover me with anti biotics or wait till the following friday and put me on the acute list. Of course, if the bloods are right, it will just all happen tomorrow.
joystik (281 ) 1:59
pm, 29 Jun
3674.
Oh thanks
Sorry I remember you said that already.Be thinking of you then even more than usual. Hope it all goes smoothly for you.
3675. No thats ok Paula, you have a lot on you mind
every day too.. Is Josh a bit better this afternoon?? I reckon you will be right you know. Our Sonia will be out getting Brent all the stuff he likes, and lovely friesh fish, just caught, cos she knows how fresh he likes it. Maybe she will make hime some lovely hot scones for afternoon tea, or shortbread, or perhaps a chocolate cake?? Just kidding too, not thats naughty really isnt it. Just come back to rain again here now but still warm.
joystik (281 ) 2:17
pm, 29 Jun
3676. Hope you're feeling ok Bogeyi, funerals never
make you feel great do they. I've been thinking about you this morning. Hope Ryan is OK today. He'll be watching the mailbox for his game to arrive.
joystik (281 ) 2:19
pm, 29 Jun
3677. Hi Boops, thanks so much for your parcel which....
I got today. The courier driver must be dyslexsic! He left it at the neighbours 2 days ago and she only found it this morning, but clearly addressed to my house!! Might have some later on I think. Sometimes I put them in boiling water to remove the skin and then cut them up and sprinkle sugar over them....delicious. Hope you are having a good day and not doing all the windows on one day!!
joystik (281 ) 2:35
pm, 29 Jun
3678. paula thanks so much for your lovely email
that was so nice to come home to, the funeral was beautiful to mark the life of a beautiful girl.
3679. 
sonia i have visions of you down by the
harbour with your fishing rod catching him fresh fish....
3680.
LOL everyone
You know me too well! OK no its too cold to fish LOL but yep, went to supermarket for more fresh veges and made soup for lunch - it was for me too :o) He's not too bad actually, I think after watching me go through that chemo he thinks twice before complaining that he feels bad LOL
soniat-d (153 ) 2:54
pm, 29 Jun
3681. Hi lovely ladies!
I have popped in here from time to time - you are all awesome. I started a thread and was advised to post here. Okay - here's my story. I had a mastectomy/reconstruction (R) nearly two years ago with no further treatment required. I have since discovered lumps under my reconstruction and my doctor has referred me for an ultrasound. When I took my referral form in I was told I would need a mammogram as well. Although I feel fairly confident that it will just be scarring, muscle or something like that, I am a little scared. I went through the whole process of diagnosis nearly 2 years ago thinking it would be nothing. Has anyone else had lumps under reconstruction? Can I still get breast cancer after mastectomy?
meridian1 (293 ) 2:55
pm, 29 Jun
3682. ((((hugs))))) bogeyi
Glad thats over and that it was so lovely. How old was she? I'm assuming it was cancer - thread says it all CANCER SUX! I hope that she is happy now and free from pain - my thoughts go to the family...
soniat-d (153 ) 2:59
pm, 29 Jun
3683. Hi Meridian
OK don't want to scare you, but yes thats what I have. I didn't have reconstruction, luckily for me in this case, or it wouldn't have been found for much longer. Recurrance is pretty common sadly BUT in the words of my dear specialist "local recurrance is a whole different story to if its spread". There are ways to treat it. Radiation the most likely start, if that is what it is. Radiation has shrunk all my lumps ;o) Good luck! Please let me know how you get on - happy to talk offline too ;o)
soniat-d (153 ) 3:04
pm, 29 Jun
3684. Thanks sonia
I have to dash out, but I will be back later to check in. My cancer was ductal carcinoma in situ. Any more thoughts on this would be helpful. I will bump when i get back in. Thanks again sonia - your support is appreciated (to the point of teary eyes!)
meridian1 (293 ) 3:07
pm, 29 Jun
3685. Bogey
Your welcome. Glad to hear it was as nice as can be for such an occasion. Sonia - Soup tee hee. I was just being naughty! ;o)
3686. sonia she was 16 and a breath of fresh air
whenever we saw her, yes it was cancer.
3687. i'm back
I wish I knew the stories behind alot of these posts without having to read 3600 odd posts! Congrats on such a great thread Sonia and co. I am waiting for the appointment for my mam/ultrasound and possible biopsy to be scheduled. When they took my breast they found that just a small area had become invasive, most was still contained within the ducts.
meridian1 (293 ) 4:12
pm, 29 Jun
3688. Sonia,I was just joking too......hope you aren't
offended by all that!! Hope your soup is lovely as I'm sure it will be..I think we are having chowmein, havent decided yet, not as organised as you Sonia.
joystik (281 ) 4:20
pm, 29 Jun
3689. Sorry you will have had a sad day Bogeyi....
never a pleasant time especially ssaying good bye to someone so young. Hugs to you....
joystik (281 ) 4:22
pm, 29 Jun
3690.
Hi Meridian1
Sorry I don't know what a ductal carcinoma in situ is, but guessling a lump in a milk duct which is what mine was too. Plus I has either 1 or 3 affected nodes out of 32. What treatments did you have after your mastectomy?I was thinking surgery may actually be first for you (if it is cancer, may not be). Hope you're getting it investigated pronto ;o)
soniat-d (153 ) 4:32
pm, 29 Jun
3691. Also, I was shocked at how common local
recurrance is - they didn't explain that to me well enough thats for sure, or I'd have demanded my lumps be looked at much earlier! I had so many lumps start at once, it din't feel like lumps, more like a hard muscle or something. Wasn't diangosed till after I'd started radiation, so had to continue with that, rather than operate. Mere's my online diary since recurrance was dignosed, if you're interested... http://www.sonia.tyler-davies.co.nz/CancerDiary.asp
soniat-d (153 ) 4:35
pm, 29 Jun
3692.
Ha ha ladies, yep I make a mean vege soup
Yum yum LOL Got Lamb vege stew on for tonight - thats yummy too ;o) How is Joshi now Paula? And has your shoulder settled down?
soniat-d (153 ) 4:37
pm, 29 Jun
3693. Thanks sonia
I will definately check your website out. I had no treatment after the mastectomy. My surgeon said that they had taken all the affected breast tissue plus a good margin around the areas affected. Ductal Carcinoma in Situ is in the milk ducts, and only becomes dangerous when it becomes invasive (spreads out of the ducts). I am definately getting it looked into, and have a very thorough GP.
meridian1 (293 ) 4:44
pm, 29 Jun
3694. Hi Meridian1
I have to say I'm a little gobsmacked that you had no other treatment, guess it was not as aggressive a cancer as mine was? Mine is a bit of a doozy - recurring before I even finished my treatment is very unusual (though another case presented only about 10 days after mine, I wish I could talk to that lady but... privacy, confidentiality, blahh blah...). If you take the web address back to the dot co dot nz you can see my main website which has my full story (in short forms!) in the first 3 links - the May-September 2005 link includes my original diagnosis and op if you're interested. Because I was having radiation after the op I was advised against a reconstruction at the time of the mastectomy, as the radiation could "shrivel" the new boob etc. Glad we did that! Now have no plans to reconstruct ;o)
soniat-d (153 ) 5:12
pm, 29 Jun
3695. Sonia
I am going back and forth from your diary to this page. I am so in awe of you! Ductal Carcinoma in Situ (DCIS) isn't an agressive cancer - it is non-invasive, but can easily turn invasive, as mine had started. I have been so brave around my family/friends through everything. I'm not feeling very brave right now.
meridian1 (293 ) 5:19
pm, 29 Jun
3696. Can I ask how old you are Meridian?
Were you public or private for the op etc? (Idle interest :o) Don't be in awe of me LOL I'm no saint believe me! Sorry you're not feeling brave now, know exactly what you mean. Try not to worry till you know for sure - whatever it is you can worry/rejoice then ;o) Lets hoping rejoicing is on its way ;o) Good luck, stay in touch, very keen to hear how it all goes for you ;o)
soniat-d (153 ) 5:24
pm, 29 Jun
3697. hi Sonia
I'm 36, and went private (have insurance). I spent so much time after my diagnonis in 2004 reassuring and comforting others , and I have started doing that again (it really wears you out - I'm sure you know). I know that the chances of it being nothing to worry about are high, but I can't help feeling like I have been here before. You ARE inspirational, not just to me, but to many others who visit this thread!
meridian1 (293 ) 5:29
pm, 29 Jun
3698. Sonia
thanks for asking, my shoulder has settled down. Joshi is concerning me, but havent heard back from the hospital so obviously they are not!!! Might phone again tomorrow. His gums are looking bright red! I dont know what that may mean but with all thats going on with him, well you know - Im a mum and mums worry. Yum your soup and stew sounds delish!!! Ive just coated 24 meringues for the concert supper tonight for the wee ones and made tan square for the adults. Should be a good night. Keep warm and hopefully tomorrow yoú will all be feeling heaps better. You are so amazing!!! (((((hugs)))))
3699. bogey
16 - Not fair is it. Thinking of you tonight! Take care xoxo
3700.
Hi Paula :o)
The red gums could just be a side-effect of his chemo? My chemo affected my gums badly, but feels like they are recovering now. I can understand your worry, yep I'd ring by all means, just probe away - Mums know best. ((((hugs)))) back at ya ;o)
soniat-d (153 ) 5:57
pm, 29 Jun
3701. I hear you Meridian ;o)
((((hugs)))) my dear - I know, once you hear/feel of a lump in a breast, after what we've both been through, its the automatic assumption that comes to mind. I really have to turn my mind over and think "nooooo sonia that was just you, remember the odds" LOL. Oh, I hope its nothing, I really do. Glad you have insurance it does help (I've maxxed out mine now though!). Demand an ultrasound (better than mamms IMO) ASAP to get it over and done with ;o) Then you can hopefully relaxxxx :o)
soniat-d (153 ) 6:01
pm, 29 Jun
3702.
And yet another hundy quietly slips by ;o)
How'd I miss that? LOL
soniat-d (153 ) 6:02
pm, 29 Jun
3703. You have been through
much more than me sonia - much much more - as have others on here. I'm nearly finished reading your diary (in between tending to my kids etc). Will move onto the rest of your site next.
meridian1 (293 ) 6:07
pm, 29 Jun
3704. Beautiful girls!
What a gorgeous family you have Sonia!
meridian1 (293 ) 6:34
pm, 29 Jun
3705. OMG my girlfriend just rang and said shes
coming to pick me up and taking me to bingo, should be a laugh or am i showing my age.Never been before.
3706. sounds
like fun bogeyi. Hope ya win!
meridian1 (293 ) 7:01
pm, 29 Jun
3707.
Awww thanks
Meridian :o)
Have fun bogeyi!
soniat-d (153 ) 7:21
pm, 29 Jun
3708. Ohh lucky you Bogeyi....hope you win.......
sounds like fun too me.....good luck....
joystik (281 ) 8:18
pm, 29 Jun
3709. Hey Joystik
So how's you hair holding up? Do you mind sharing? I was lucky - mine didn't fall out till after round 2. Its looking better by the day now I'm pleased to say - have decided its getting close to decent. Brent and I have just decided that we'll have a quick holiday this month - Aussie or Fiji. Must make sure I'm back before the 26th Paula ;o)
soniat-d (153 ) 9:02
pm, 29 Jun
3710.
bump
hugs to all
3711. Ohhh sonia, my brain....I was meaning to ask you
about hair. No mine hasn't started to fall out yet, but I have just noticed over the past couple of days, that my hair hurts!! You know what I mean?? Its not so much my head as my hair! Sounds a bit ga ga doesn't it?? Was it like that for you before yours fell out? They told me it would go about 21 days, which will be next thursday. How long did it take before yours had all fallen out?? One lady there yesterday said hers started to fall so she got a Number 2 but it never all fell so now she has a very sparse number 2 all over. Mine feels lke its just waiting to come out......
joystik (281 ) 9:49
pm, 29 Jun
3712. Paula, hope you have a lovely time at the concert.
I would go for the supper!! Sounds delicious. Were you making the caramel slice?? Bit of a cook are you?? I used to do home baking all the time but the more I baked, the more we all ate!! And I always made all the yummy suff that we all oved, like Ginger crunch, Raspbery cream slice, Louise cake, Neenish tarts, Muffins for africa. Weightwachers almost got 3 lifetime members.
joystik (281 ) 9:53
pm, 29 Jun
3713. Sonia, you have got quite a list of supplements...
a few of them are what we are taking here too. Kevin and Lauren are taking them all the same as me, especially the CAA, Coral C Calcuim, and the CoQ10+Omega3, then I take flax seed oil, Vitamin C and Iron. I feel great and some of it must be from the supplements. I dont think Chemo is renowned to make you feel great?? Your dinner sounded really yummy Sonia - I love home made soup and we have it often in the winter.
joystik (281 ) 9:56
pm, 29 Jun
3714. So are you wearing your wig at all now Sonia???
Or just going with your hair now? I think it looks lovely in the pic I have sitting in front of my computer. It suits you short just as well as it did long. I wonder if it will stay a bit curly?? Mine has so many grey ones in it now,, it will look really grey when it comes back. Some of the older ladies at Look Good - Feel Better yesterday, didn't even have wigs! They were completely hairless and just had a wee cap of whatever on. Very brave I thought
joystik (281 ) 10:00
pm, 29 Jun
3715. Yes Joystik I had sore hair too!
(Hair follicles actually, but felt like the hair) Apparently that doesn't happen for everyone, but it happened to me, bigtime! I made the mistake of headshaving after about 1/2 the hair fell out. Why did I regret the shave? Well, afterwards the hair stubble felt like knives when I lay down at night etc. So I attacked my head with parcel tape - pulling out all the loose hairs I could (glad no one was watching that show!!!). That felt better, but if I ever have to do this again in the future, I WILL NOT be head shaving!!!
soniat-d (153 ) 10:02
pm, 29 Jun
3716.
Cont'd...
So my advice, don't headshave, put up with the stragglers (I thought it might look better bald, but no!). By all means cut it shorter, but make sure you have a good inch or so left on each hair shaft - enough for it to lie across the head when you lie down, rather than only being able to stick up. I think its the hair follicle thats sore, which is why the hair stubble hurt sooooo much when pillow pressure was applied to it. The follicles will be sore for a while I'm sorry to say. ((((hugs)))) it will pass in a few weeks hopefully.
soniat-d (153 ) 10:03
pm, 29 Jun
3717. The holiday sounds like a lovely idea. I am
supposed to collect up some forms from the travel agent to renew Kevin and My passports - they expired last July. I renewed Laurens but didnt do ours and now the price has doubled!! Lauens had a baby pic in it and was so cute. Where do you think you will go? We think we will go to Perth as we have friends there and one of Kevins sons is there also. Might go via Norolk Island one way, so as to see Kevins Aunty who has lived there for years and is now 96.
joystik (281 ) 10:04
pm, 29 Jun
3718. Hi Joystik ;o)
Well I'm headcovering free in the house now, unless its cold. So glad I coloured it - looks good :o) Trendy wooly hats if cold. Going out (its cold) so wear my wig then. If it were summer, Id probably be ditching the wig altogether about now. Yeeha! That'll be you soon enough ;o)
soniat-d (153 ) 10:05
pm, 29 Jun
3719. Yes I was stunned at everyone turning up bald
at my course - I thought "I'll NEVER do that!" and I haven't! Yep, it is brave, but for me it wasn't lack of bravery
