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2501.
Oh Sonia
I feel for you. It must be hard for you! You are doing a wonderful job fighting this! Hang in there. Tears are falling now. xoxo
paulaxx (75 
) 10:20
am, 11 Jun
2502. 
Hi Paula
No I'm Ok this morning thanks - the area has calmed down - was clearly overdoing it ;o) Have fun playing scrabble with Joshi - We're off now for a ballet-dancing picnic on the playdeck LOL ;o)
soniat-d (153 
) 10:24
am,
11 Jun
2503.
Sounds
Like fun. Josh and I get a blast when we get to the end we make up words and then tell a story starting from the first word we used down to the last. Always gets a laugh. Have fun ;0)
paulaxx (75 ) 10:26
am, 11 Jun
2504. Sonia
Wipe that terrible thought from your mind right now. Your beast is going to be killed, and YOU will attend HIS funeral. Loving vibes to you.
2505. I know its not a constructive thought Dize5
Its just whan a 92 year old says he's being praying for me (while he's in hospital!) it kind of hits home. It s just a bit soon after the oncology meeting. Man I wish I'd mammogrammed earlier, like you did! Glad you won the battle ;o) I certainly hope to as well. Will get back inside the bubble ASAP ;o)
soniat-d (153 ) 12:45
pm,
11 Jun
2506. Was having a great time with the girls
till I whacked my head on a sharp corner drwaing blood ?! Now I have an icepack on my newly hairdressed head! Not a good look LOL! I don't have the same protection now without the wig!?!
soniat-d (153 ) 12:47
pm,
11 Jun
2507. 
Sonia
Your poor darling - are you ok. Has that little birdy and the stars stopped flying around above your head. OUCH. Not really what you needed huh? Get back in the bubble I think it might be softer. I have room in my bubble now, come on in. lots a love
2508. Ohhh Sonia...the day is not treating you like it
should be. I think you best sit down and relax for a while, and take a bit more care of your self. The weather here has just deteriated to terrible, with cold rain and wind. But it had been so good for so long, I suppose it was our turn to get this. I'm doing nothing today...like most sundays, we just blob out and do whatever. I'm sending emails to people that have emailed me during the week. I send like an update to everyone, every once in a while, but somepeople I like to be more personal with. Takes ages though. Is this Elderly Uncle on you side of the family?? (2 is certainly a good age. On my paternal grandmothers side, a lot of her 10 brothers and sisters lived into their 90's. I going to too, that way I will be able to go on lots of trips wont I. And you will too luv.....just keep on looking forward....you will win...we will win this together....all of us. Big hugs to you Sonia xxxxx
joystik (281 
) 1:38
pm,
11 Jun
2509. Hi all Kim here (missbehave) currently banned
just using a friends comp for a moment... hoping you are all doing okay.. and sending you love... sorry you donged your head sonia..ow..wishing you all strength.xxx
2510. Hi Paula and Josh...hows the scrabble going???
I'm spending the day emailing people, thanking them for their kindness etc. Its taken me ages, but it feels good to do it properly. The weather is quite nasty now, very blustery, wet and much colder than it has been for the past week. Lovely and cosy in side though at about 24 deg!! Lauren is away a a friends forthe weekend,so its very quiet here. Kevin doesn't make any noise...its me that does the talking!! Hope you are feeling much better today and have chased those bad feelings away. It is full moon on monday!! Anything could be happening. Love to you all Paula, even Chris too......
joystik (281 ) 1:42
pm,
11 Jun
2511. Nice to see you missbehave........
Hope you are not off the air for too long.. Thanks for popping in. Hugs to you....
joystik (281 ) 1:44
pm,
11 Jun
2512. Hi boop. where are you today?? Are you shifting
this weekend? I see there is another big slip down near Charleston now. They aren't having a good run are they. This time of year keeps the road crews busy. Have you got rain today?? We have and its turned colder too. Keep smiling and keep warm too. Hugs to you too.....
joystik (281 ) 1:46
pm,
11 Jun
2513. Yah I'm feeling yuk today but 100%
positive... got my computer back up and running and finished chemo!!! Wow what a catch up read I have just had and I was only gone a few days! Grr my Mr14 downloaded limewire, lost all our computer security, flicked onto new month of broadband account and a months use was gone in 8 hours and I had been on it for less than 1/2 hour all day! A few new rules now apply!!!
landylass (47 
) 1:57
pm,
11 Jun
2514. how did that game go paula......josh I hope
you won the game, sonia hows your head now, not to sore i hope.Still feeling a bit seedy today. Kids are playing twister what a hoot.
2515.
Hi Joystik
Feeling pretty good today thanks. Tiredness makes everything so much worse. Scrabble was fun, we made some interesting words. Its good to catch up with people who care. You are a lovely lady! Getting darker as the day goes on, cold too. Our fire is roaring but coal is so messy. I hope I can talk Chris out a coal burner we'll see whats around when we are able to buy. How are your studies going, Chris's dad is a real estate agent.Hope you, Kevin and Lauren all have a lovely rest of the day. Love to you all
2516. me in the uk
hard to see my dad who is 68 struggle with pancreatic cancer which has gone to his brain as well ..sometimes he cant remember me and he is struggling to walk now...hard to see him like this ..so people enjoy life ..spend what money you have ...not fair really ..he has not been well since his mid 40tees...see all you trade me members in july ..and i miss my wife and son..
puttking (264 ) 2:02
pm,
11 Jun
2517. Hey Bogey
Are you not partaking...? Sorry your still not 100% Twister is good for a laugh. Joshi is now defeating Orc's on x-box. Sounds horrendous. How was the pumpkin soup?
2518. Big hugs Sonia
was wondering all day Friday how the meeting went. 4 weeks is a long wait but get your radiation finished then enjoy not having to watch the clock for the next 3 weeks, get out and have some fun! Paula been wondering all week how you all have been coping too. Hope things are better now you are back home on your own patch. Poor Joshi, but thats another trip behind him now. Now you have the facts you know what you are dealing with. Cancer suxs but it just breaks my heart to hear what these kids are coping with. Just tell him to keep smiling... now you have the trip to Auckland to look forward too. Pomegal keep grinning!!! For what its worth my sil had heaps of benigns investigated in her 30's and has had no further problems and is now in her 50's. Maewest hope you are getting some time out soon from that workload and your results are all good. Was thinking of you on Wed being brave going back for the first one.
landylass (47 ) 2:05
pm, 11 Jun
2519.
Hi Landylass
Thats no good - your feeling yuk! Is it cos its all caught up with you? How are those BSL's. Just have to say once more it was so good to meet you. A real highlight. love to you Paula, Joshi Chris and Cass xo
2520. Hope Joshi is on the mend
not nice reading what he has been thru this week. I guess you are all glad to be home again! It must be tiring just the travelling, stress, being away from home etc. Big hugs for Joshi and just tell him to keep smiling.
landylass (47 ) 2:12
pm, 11 Jun
2521.
Landylass
Just passed your message on to Joshi, he says to say yes I am tired, thank you. ;0) Bless him Oh and he is still smiling, never really stops! little darling
2522.
Landylass, how lovely to see you back on here...
I missed you and was starting to wonder when you would be returning. I have heard of other people having problems with Lime wire too. Lauren is under real strict instructions not to down load anything with out checking with me first. Because I dont no much about computer stuff, I always say 'no, that looks dangerous'. And whats more, so far she still listens to me!! So have you had your very last chemo ever now??? You will be celebrating? When is the family wedding? Must be soon. When does your radio therapy start?? Have you got 3 weeks of that? Mine wont be til November or so. Hope you are keeping well and warm today. Weather is pretty yuk here. But, lovely to have you back....did I say I missed you???
joystik (281 ) 2:17
pm,
11 Jun
2523. Had my last dose of chemo on Thursday
YAH.. haha wasn't even excited. Read in the paper on Friday about the radiation strike and got my blood up! So rang Dunedin paper and told them they needed to put the human side to this. 18 people been disrupted and another 55 people like me that now have no idea when we will be starting and all the consequences and other people in our lives it effects. They wanted me to do a full interview but thats not me. I did have a discussion with a local reporter and put some of my concerns so that was reported yesterday amongst the headlines of radiographers views. Sadly it was more about me when I was actually trying to push the effects of people having to travel from out of town... some elderly folk have friends drive them every day, and there are all sorts of issues now with being unable to plan our lives for the next month until we know our dates. Its not just the people waiting, there are families and support people involved too... and multiply that countrywide! So I did try to do my bit!!! Was fine unti
landylass (47 ) 2:22
pm,
11 Jun
2524. Was fine until yesterday
when side effects kicked in. Got to go help the hubby get groceries so will be back later. THANK GOODNESS FOR ALL THESE LOVELY MALES IN OUR LIVES.
landylass (47 ) 2:26
pm,
11 Jun
2525. Yes, they should just pay these people to money
they deserve and quit wasting on all the unnecessary stuff around the place. It is so disruptive to people not being able to plan what they are doing. Hopefully they will be sorted by the time I have to go for mine. Yes, having a good husband around to help is cetainly a god send at times like now. They have to go through so much as well, and yet I never hear a complaint of any sort from mine. He's my Rock and Soul Mate. We have been through so much together. See you after groceries...
joystik (281 ) 3:01
pm,
11 Jun
2526. Back Joystik...
Be positive over your chemo... its your friend! I was on FEC and had 3 doses then changed becaused of other health issues and Thursday was my 9th treatment because of going onto the remaining 3 being double bangers... ie two weekly treatments per cycle instead of just the one. I wasn't sick ONCE!!!!! I had a lady leave a message on Friday thats just had her 4th FEC but haven't made it back to her to see how its going. Just remember everyone reacts different to different drugs. For me, thoise zofran were gold! I also had dexamethosone [steroids] and my third was metamide. This last lot were the ones I dropped because they were making me crook. I agree with Sonia it took me 4 cyles to work out these steroids and I haven't had the big crash either since I weaned myself off them by gradually cutting them down. The secret is to cut them down to 1/2 pill and I even go as low as last morning have a 1/4. Wished someone had told me about doing this at the start! Don't just stop them!!!! My hair didn't go unt
landylass (47 ) 5:04
pm, 11 Jun
2527. until after my 2nd
cycle. Started showing up on pillow about Fri and I was ready to shave by Sunday. But when it came to point just wasn't ready. By Tuesday I woke up with a mouthful from my pillow, it fell out onto my breakfast & lunch! Everyone I went that day I moulted so Tuesday night Miss 16 and stepson had some fun with designs then took it off. It was kinda a fun time and if I hadn't had them do it I probably would have sat down and bawled my eyes out. The relief of not having it dropping everywhere was enormous! It didn't stop growing all over though and to start with it was queer on the pillowcase at night... kind of prickly. So I took to giving the bits still there a swipe with the hubbys shaver every morning. I felt pretty self conscious for a few days wearing a headscarf but soon got used to it. I remember someone in supermarket not recognising me when I spoke to them but after those first few days it just became normal. At home I opted to run round bald as it was still hot weather and I found kids friends
landylass (47 ) 5:10
pm, 11 Jun
2528. just accepted thats how I was
now and after the first couple of shocks didn't worry about it. Now its growing back... still waiting on the blonde curls.... I don't bother wearing anything. The wedding is next weekend so guess i will have to dust off the wig! Had a bridegroom and bridemaid with flu last week so the bride is doping up on garlic and goodness knows what so she doesn't go down with it this week! Heaven forbid. My ankle is still not right but got some flat shoes to wear as would hate to fall off the high heels! Its just going to take time. Had to take Xrays to physio on Fri and he was not impressed with them. Basically told him nothing because of the angles they had taken.
landylass (47 ) 5:17
pm,
11 Jun
2529. Sonia
My heart goes out to you and your family, I lost my brother (29 Years old) 4 years ago to cancer, he left an awesome partner and a wee girl who is now 6, I don't go a day without thinking of him or missing him, your thread has shown people how strong some are, and you are really amazing, thank you so much.
jodi111 (762 
) 5:42
pm,
11 Jun
2530. 
Thanks Jodi
So sorry to hear about your brother - that's just awful - I hope you get to give your niece lots of hugs xoxox Thanks for posting :o)
soniat-d (153 ) 6:02
pm,
11 Jun
2531. 
Hi everyone, my its been a busy afternoon again
here in this thread!?! Hey Paula thanks for the bubble offer - I'm jumping in right now ;o) Have spent the afternoon with Great Uncle Tom again today - yet another recording to type out tonight - will start earlier and take breaks!!! Yeah how silly with the head bang eh? Yowsa still sore, I did lie down with icepack on it, fortunately Brent got home right after it happened and took over with the girls. I am a bit of a Klutz!
soniat-d (153 ) 6:07
pm, 11 Jun
2532.
Hi Landylass :o)
Great to hear from you. Yep planning to get friends around here for a pot luck dinner in a couple of weeks. Otherwise taking time out for ME - getting back to exercising etc etc. Trying to forget about what coming :o/!!! Got my fingers crossed and trying to stay inside the bubble LOL.
soniat-d (153 ) 6:09
pm, 11 Jun
2533. Hi Paula
I've been thinking of Joshi a lot! Hope he starts feeling more energised soon. Can't wait to see his famous smile ;o)
soniat-d (153 ) 6:18
pm, 11 Jun
2534. hi everyone
just got back from our outing we took the kids down to mission bay and had a yummy ice cream, was cold and windy a nice crisp day love days like this, kids complained it was to cold.
2535. We had lovely norwester
here in Oamaru today, but boy about an hour ago the big blast hit. Cold as and raining. Hope its over by Wed as hubby flying out of Timaru to Wgtn on one of those little planes! Got the family wedding next weekend so may it all be over by then!
landylass (47 ) 7:12
pm, 11 Jun
2536. Boops are you high
and dry over there on the Coast? Looked quite bad tonight on TV and more forecast. Stay warm!
landylass (47 ) 7:12
pm, 11 Jun
2537.
Ah Yes
Mission bay was one of my favourite places to go. I even lived on the North Shore for a little while Sonia - Chatswood. Hope everyone has had a fab day. Sonia Joshi is feeling okish, he doesnt want to go to school though. Not sure if he is trying to pull oone over cos hes got a wicked look when he says it. I will see how he is in the morning. There is a new girl started in his class that might just be all I need to say in the morn cos he does so love the girls/ladies. Anyway I am thinking of you all. By the way - Its snowing heavily here right now, poor cows. So pretty to see it falling. The ground is all white. Take care xo
2538. Paula, I did wonder if you were getting the snow..
Nothing going on here but I guess thats a good thing for the cows and things. Maybe I should go and look, but it wasnt before. Be right back!!No nothing at all. Partly cloudy with a big moon peering through. Joshi and the girls aye. Bit of a ladies man is he. He's bound to want to go to school unless of course,he's snow bound, and then you might have to find a snow plough once he knows there is a new girl attending!! Warm cosy hugs to you all....
joystik (281 ) 10:06
pm, 11 Jun
2539. No sign of Boops today, but the weather on the
coast was pretty bad at times today with flooding, and a twister or 2 in Greymouth and Hokitika. If you're Boop, I hope you are keeping warm and dry. Hugs to you too....
joystik (281 ) 10:08
pm, 11 Jun
2540. oh sonia i would love to show the kids it
snowing, we have been to the snow but they havent seen it snowing, how cool.We are off early in the morning ryan will be needing platelets they were 26 on friday.
bogeyi (482 ) 10:12
pm, 11 Jun
2541. Hey thanks Landylass for all your tips and info...
on the chemo, drug taking and the hair thing. I'm off to see the wig lady on wednesday, and hopefully I can find something I like. I can see me being more of a wig person than not. But who knows until it actually happens. Its good to know how different people react to different drugs etc. Often Dr's etc prescribing these things, dont bother to tell you what you are taking stuff for and how exactly to take them. I thought Dr Perez was very good at explaining things all the same.
joystik (281 ) 10:16
pm, 11 Jun
2542. And another busy and exciting week coming...
up for you Landylass with the wedding. Where are they having it?? In Oamaru?? Should be a lovely time for all the families to get together. Weather should have improved by then as well. Better go to bed, not that I have to get up early, I dont. Lauren is still away. Hugs to you landylass.....
joystik (281 ) 10:21
pm, 11 Jun
2543. No snow here either Bogeyi...I was hoping for some
but not telling my husband. He's not that keen on it either. Spent too many years driving log trucks in it to ever like it again. My platelets were 342 last week, so his are very low. I will tell you what they are after chemo....probably nil!! I dont know lots about blood but its on my dischargewhat all the readings were at discharge. Hope Ryan is feeling better after his platelets anyway. I was a blod donor until late last year, and just loved it. Its great to think a small thing like that can help so many people. Ryan might have had some of my really good blood!! I'm an O neg so the universal donor, and they would ring me every month to make an appointment to give more blood. The country needs more donors!! Good night Bogeyi..have a good sleep...hope your migraine has gone...hugs to you all
joystik (281 ) 10:29
pm, 11 Jun
2544. Nite nite Sonia, Hope your head is feeling better
too. More care needed so as to not be knocking yourself about. Hope you have got Uncle Toms story down on paper. What a long time to have been around. And what a lot of stories to tell future generations. How simply fascinating. Old people are wonderful aren't they. Just a pity really they weren't looked after better in some of these care institutions. Some of the stories coming out about ill treatment are disgraceful are' nt they. See you tomorrow.
joystik (281 ) 10:34
pm, 11 Jun
2545.
Hi Joystik ;o)
Yep JUST finished typing it all up now - still have some other typed stuff I was given earlier to include - will do it tomorrow and then that family's will be all finished!!! Its a great story of typical farming family life back then, albeit with many interesting characters. Its coming together so well - I'm really excited! As for my head - banged it agin tonight! WT..?! Got a woolly hat on now, till I get myself sorted! Very late so off now till tomorrow - meeting Dr Benjamin in the morning. Wonder how that will go?! Nite all ;o)
soniat-d (153 ) 11:55
pm, 11 Jun
2546. Just popped in to catch up
Not long in from 12 hours at work. Eyes are a bit droopy. Sonia what a great thing you are doing with your uncle. Good on you. Hope your poor head is not giving you too much grief. Hi Paula. My heart goes out to you and Joshi. I can only imagine what it must be like for you having a sick child. And you too bogeyi.Hi Landylass, boop, Joystik, twinkies and anyone else I have missed. Wouldn't it be great if we could all get together. Who knows??
maewest (75 ) 12:22
am, 12 Jun
2547. Cancer suxs
It is everywhere. My boss has just been diagnosed with cancer in the oesophegus (sp). Goes in on Fri to have part of that and half his stomach removed. Also one of our drivers has it in his brain. Also met up with 2 ladies this week..one having a mastectomy this week and the other has an inoperable ovarian cancer. Hell, it's not fair. All such lovely people. My friend who had the double mastectomy about the same time as Joystik is doing really well and has just gone back to work part time. She's an inspiration. We met in oncology having chemo last October and have become very close.The support here is amazing. I'm off to bed now but will pop back in in the morning before heading off to work again. Nitey nite xoxoxo
maewest (75 ) 12:28
am, 12 Jun
2548. hey all.
We've had a heck of a busy weekend here. Havn't had a chance to come online. Have however had a read through the thread. Hugs to all who are have a hard time at the moment. Prayers and thoughts to you. Briyanna finished this round of chemo on Friday so no more chemo till July. Briyanna had to have a blood transfusion (thank you to all who donate blood btw :-)) Was amazed to discover 275mls of whole blood takes 3 and 1/2 hours to transfuse into a 3 year old. Picked up out prescriptions and headed home. Yay!! Briyanna's had a really good day (maybe the new blood?!!). Has been chatty and smiley all day, not seeming to have a care in the world :-)
twinkies_pn (0) 12:31 am, 12 Jun
2549.
Morning everyone
Bit nippy here today. Not a snow day for the kids but they were excited to be going to school, think they were planning a snow ball fight??? Sonia - isnt it always the way when you have a sore bit its like a beacon and attracts things. I hurt my toe once and for the rest of the week kept kicking it wt?! Hope your head is ok. Bogey, I hope the platelets goes ok today with no nasty side effects. Thinking of you all with love xoxo
2550.
There are some really
nice people out there arent there! Just lately I have really been thinking about us all, especially the likes of Ryan and Josh and anyone needing blood. So today I started a thread to thank all those people who give blood. Told them how special they all were. Some people added a post saying thats ok. Gave me a warm fuzzie to carry on the day. ;0) You are all in my thoughts
2551. Morning ladies....how much snow Paula??
We haven't got any here, but further north around Christchurch it is very heavy. Roads closed all over the place. We didn't wake up until after 8.30 this morning, good job Lauren didn't have to catch the bus to school or she would have had a day off too. Off out to dinner tonight for my friends husbands birthday. Should be fun. Hug for Joshi and keep warm wont you.....
joystik (281 ) 9:45
am, 12 Jun
2552.
twinkies
You inspired me to add that thread. Thinking of you and wee Briyanna. Glad to hear she is doing well. Best wishes
2553. I just loved giving blood when I was a donor.....
felt so good to be able to do something that didn't hurt me in any way, but could save others lives so easily. It was always a pleasure.
joystik (281 ) 9:46
am, 12 Jun
2554. Joystik
My neighbour has just phoned and said there isnt any up the road a bit. How strange - I'm not very good with accuracy but there is a couple of cm's on the ground. Its not going anywhere in a hurry. The children have fires lit in the classroom so now worries about them being cold. Hope he remembers his jacket at lunchtime! (Oh stop worrying mother!) lol ;0)
2555. HiSonia, hope all goes well with Dr Benji today...
will be thinking of you lots. Hope your head is feeling much better too. Is it a nice day in Auckland?? Its clearing here for a sunny day, with NO snow!! I was hopefull of a little bit at least,but NO SNOW!! I even got up at 2.20am to see if there was any... Have a great day. Specal hugs for you....
joystik (281 ) 9:49
am, 12 Jun
2556. Paula, he probably wont need his jacket.....
he will be sitting inside the classroom chatting up the new girl!That smile of his would win them all I'd say! I heard o the tv news, they had 60cm of snow up around Methven. Thats heaps..
joystik (281 ) 9:51
am, 12 Jun
2557. Meawest, you will be pleased you don't have to....
be driving round in all that snow today. Do you have to work later on in the day?? Yes, there certainly are a lot of people out there with cancer, but if the odds are 1 in 3 then we are all going toknow lots aren't we. How soon will there be a preventative I wonder? Surely it cant be that far away. I told Lauren (14) that there should be one in her life time. They have certainly had plenty of time to research it. You have a cosy warm day and hugs to you too...
joystik (281 ) 9:54
am, 12 Jun
2558.
Joystik LOL
Of course - the new girl I forgot. Your right!! Ever since Joshi could talk he has said when he grows up he wants to be a girl lover. He just seems to attract them too. Before he could walk or talk he could wink beautifully and many times out shopping I would find ladies wondering if they had really seen what they just saw. Dear boy, might as well make hay while the sun shines eh? lol
2559. Hi twinkies, pleased your wee dot is doing much
better. I had been thinking about her and wondered if she had gone home yet. Its so good to hear good news on here. Hope she keeps on progressing that well. You and your little family,keep well and warm today, and big hugs to you all....
joystik (281 ) 9:56
am, 12 Jun
2560. Too true Paula...life is short..party hard!! Hope
Josh has the best day at school today. Do they go on the bus or do you have to drive them to school? Wonder how the cows like the snow?? They are out for winter now aren't they?? So you just have to supplement feed them and move them around?? Don't get cold will you. Two pairs of socks in your gummies today!! I must go and have a shower...Bye
joystik (281 ) 9:59
am, 12 Jun
2561. Hi Landylass, you got snow in Oamaru?? Doesnt
get snow often, but did while we lived there, except we missed it cos we were in Christchurch!! Bad Luck. Hope you haven't got too much planned for this week. Save yourself for the wedding on the weekend. Have a cruisy week. Keep warm today, and hugs to you too....
joystik (281 ) 10:01
am, 12 Jun
2562. Joystik
We employ one full time guy now, so he and Chris go everyday to the grazing block. About 10 km's away. They feed them crop, like swede or turnip and supplements too if need be. Lucky me, I dont have to go out in it to work at the mo, just waiting till the calves come. Middle of August I will be so busy! You have a lovely day. Always a pleasure to catch up with you. Love to you and Lauren and Kevin too
paulaxx (76 ) 10:04
am, 12 Jun
2563. Thats not so bad then Paula.....Its a lot for some
wives of farmers that have to run the home and work on the farm doing milking and all that as well. Yours sounds like a much better setup to me. When we lived in Golden Bay, I did a lot of relief milking and really enjoyed it, except that is for the early starts!! I'm really not a morning person, but the $$$ got me going first thing I must admit. Love to you all at your home too Paula... It is a bit fresh outside..I just hung the washing out. Lovely and sunny though.
joystik (281 ) 10:40
am, 12 Jun
2564.
Hi everyone!
Oh boy what a day it is here - all Auckland out of power, guess its best it happened on a strike day, as far as radiation is concerned ;o) Dr Benjamin was all out of sorts cos of the cuts, saying to receptionists to cancel all appointments unless drastically urgent - cos rooms were dark - they weren't THAT dark though, had natural light, I think that was silly... Anyway... got to see him and he sits halfway between my breast surgeon and my oncologist. He says surgery possible if small contained lumps are left. Yay thats what I thought! If they're not contained though... OMG PLEASE may they be contained?! He said CT scan should be more like 6 weeks away, but after I pushed him he agreed an ultrasound next week was a good idea to see whats happening - have to do it privately though. He said my previously big lump is still there but MUCH smaller and a softer consistency, things can still happen there, still not quite 4 weeks since last megablast - effects keept going past 4 weeks he reckons. So I'm happy as is p
soniat-d (153 ) 11:07
am, 12 Jun
2565. OoOoOOOOOoooh it's FFFFRRREEEZING!!
Am feeling refreshed and happy today. It's nice having Briyanna home. I've noticed she gets tired very quickly. She collapsed in bed about half an hour ago after playing with her dolls all morning. Things seem so normal today. I wish she'd just be like this forever!! Hope you all are keeping warm on this freezing winter day!!
twinkies_pn (0) 11:07 am, 12 Jun
2566. 
Heads a little ouchy still - silly me!
Went out this morning after seeing Benji to get some caps (to keep the head warm). Lucky got 2 funky ones hugely discounted ($4.95 etc!) so snapped them up and got one more half cap half knitted number - felt nice on the tender scalp! So many of the hats are made for teeny tiny heads (which I don't have LOL) which is frustrating. Got more stares today walking around with my ultrashort do, I just smiled back ;o) No one ever gave me a second glance with the wig!
soniat-d (153 ) 11:11
am, 12 Jun
2567. Thanks yes I'm proud of my Family Tree work
Certsinly brought me up a few pedastals with Brents family - they are wildly impressed ;o) Doing it for the girls of course - hope they appreciate it when they're older - I think Lydia will - she's very like me :o) Given its pouring down today, looks like I'll definately have the time to finish that story off today, it feels great to have that one finally complete ;o)
soniat-d (153 ) 11:14
am, 12 Jun
2568.
I'm thrilled to hear that Briyanna is doing so
well at the moment Twinkies - long may that continue! I don't know why blood donation isn't compulsory (for anyone who meets required criteria - guess that would be hard to enforce! I do think though it could be set up that if you are eligible to dinate and you don't then you fall down the wait list for transfusions if you need them. How anyone thinks they are entiltled to others blood if they never donated when they could, is beyond me - I've always felt that way. I donated blood for years and years until this - now they say I can't anymore. Sure hope others start to take my place?! I'm O+. (((((hugs))))) to you and sweet Briyanna xx
soniat-d (153 ) 11:20
am, 12 Jun
2569. Hi Joystik ;o)
Its a terrible day here - driving rain - flooding already in places and major power cut throughout all central Auckland (not here thank goodness!). Had an interesting time getting into the hospital, why people can't just drive like normal albeit cautiously is beyond me. Drivers doing illegal u turns in driving rain when t=you can hardly see them, etc etc. Glad to be home - must go get Em soon, supermarket on way so must go now actually - with my cool new cap on :o) Bye all have a nice day ;o)
soniat-d (153 ) 11:24
am, 12 Jun
2570. Hi soniat-d
Yaaaaaa for Dr Benji, that sounds like all good news to me. I am very pleased for you.. Hugs Di.
kelsall (222 ) 12:09
pm, 12 Jun
2571. Sonia that sounds like a day and a half for you...
up there!! If you could see the day we have here, you would be envious I am sure. It is so beautiful and sunny, with a little breeze, enough to dry the washing, and no power cuts either. I tried to order something from Auckland this morning and couldn;t because of the powercuts, because I was using my visa. They are going to phone me back when the power is restored!! Good ole Dr Benji aye!! You sound loads better today and so much more positive. Some days its not that easy to be positive though is it. Keep it up.....Bet you look kool with your new short hair do and your fancy wee caps. My wig will come from the same place as yours, so hope it looks as nice as yours does.
joystik (281 ) 1:22
pm, 12 Jun
2572. hi guys, well we are home early his platelets
are 16 and they are pleased so hoping he can last till thursday, what a day alright sonia got to the end of the motorway and all lights are down, very intersting in Auckland traffic.Power out at starship had to walk upstairs from floor 3 to floor 7 just about needed killed me.Dark up on the ward nurses wondering how to get all the info that normally comes via computer....hahahaha.Back to the dark ages they were saying.
2573. Hi guys the wind here is unreal
Our house is up on poles and the wind is coming in from our vulnerable direction, so opening windows on other side of house etc. We still have power here, for now (touch wood) don't like being in this room, its moving around a bit :o/!!!!
soniat-d (153 ) 1:29
pm, 12 Jun
2574.
Hey guys....move to Southland........
Its just fabulous down here and Paula and I will look after you all. Bring the whole family and the pets...houses are very reasonably priced here and I have almost got my real estate qual so I can start looking now for you. Plenty of employment too. Chris might give you some work on he farm to fill in. Kew Hospital is really good and friendly. Southland ROCKS!!!
joystik (281 ) 1:31
pm, 12 Jun
2575. I was meaning to say the other day, I asked the
Oncologist about taking supplements while on the chemo, and he had a look at them and said, Yes keep on taking them. I am taking CAA, CoQ10+Omega3, and Iron, and when I have finished the Iron will take the CoralC Calcuim. Not supposed to take Calcuim with Iron apparently. I think some of you were told not to take them during the chemo weren't you??
joystik (281 ) 1:44
pm, 12 Jun
2576. Joystik
Chris is laughing his head off at that! yeah everyone come to Southland. Bring your skis. Could be fun. Sonia I bet you look amazing in those caps! Hope the weather improves for all who are feeling it at the mo. Oh and thanks you darlings for posting on my thread. xo
2577.
Bogeyi
So Ryan didnt need the platelets today?
2578.
Joystik
Kew phoned me today to talk about Joshi as I wondered if he might have needed treatment when we are in Auckland ??? :0/. But no thank goodness we are going to be on about week 4 of the next 12 week course by then. Wednesday 5th July is the next day for him to go to Kew for General Anaesthetic an dchemo into his spine, other chemo into his port so I wonder if you will be there that day?? I asked if Joshi got a break from treatment and the answer is no. The only reason they would stop is if his bloods go haywire. Poor luv 2 and a half more years of this! Still it beats the alternative!! Thanks for your comments, glad you like my poem xox
2579. Haven't time to read today as got visitors
coming for tea. Grr was feeling yuk last night and went to bed early. My lot got home late, woke me up and I couldn't sleep. Had about 2 hours. Quite heave rain. Stepson rang 6.30am from Timaru... he was outside in 6in snow playing with the dog!!! His sensible wife was still in bed... Wanted to know did we have any.. So climbed outta bed and stuck the head out the window for a look in the dark... nothing. I was just about to stab myself with insulin needle and all went dark.... power was going on and off for couple of hours and no radio station going, no school buses but one school started but other didn't. I couldn't get my car out of the gargage to take them as forgot how to overide the electrics! Didn't lie at our place but here is a picture couple kms further out from us. http://images.trademe.co.nz/photoserver/76/22813176_full.jpg
landylass (47 ) 4:13
pm, 12 Jun
2580. went in all prepared for platelets today
Fri his platelets were 26 so normally we would be needing them now but today they are 16 and they want to see if he can old off for a few more days, if he lasts till thurs it will be 13days, they were pretty happy.
2581.
Wow Landylass
Thats what it looked like here too.Hope you get a better nights sleep. Cass woke me up with another blood nose around 4. Chris was so yucky with a cold I could hear him all snuffly around 1ish so tonight I hope to get to bed really early. Take care
2582. Bogeyi
So even though his count has gone down 10 they are still pleased that its not lower - do I have that right? Well if they are happy - thats good. Thinking of you all
2583. its a hard one to understand we would like to see
platelets of 150 and above to be normal but know thats not been happening in the last 8 weeks, when we first noticed the problem he was having blood and platelets twice a week again, now blood is about 2-3 weeks and platelets 10+ days....so for some reason his body must be producing something for them not be eaten so quickly, docs are stumped as his neutrafils are climbing very slowly and his transfusions are becoming less but his bone marrow biopsy stayed the smae??????does this make sense or have i confused the hell out of ya..
2584. calling south islanders please post a pic
of the snow for my kids, told them we were going to jump on a plane to CHCH, they were like really.They have been to the snow but i want them to be able to stand in it while its snowing..
2585.
See post 2579 bogeyi
Gorgeous pic Landylass, made me go "awwwwwwww" I love snow :o)
soniat-d (153 ) 5:38
pm, 12 Jun
2586. Had visitors this afternoon - they just left
Girls are konked LOL. Yes the caps look cool made from corduroy like material with a print on one side and a pin with carms hanging of it. Never thought I'd ever have anything so trendy! LOL
soniat-d (153 ) 5:40
pm, 12 Jun
2587. whaaaaaaaaaaaaaaaa i want some
paula did my speel make sense about the counts??
2588.
Carms should have read charms ;o)
Not checking before I post again *rolls the eyes at myself* LOL
soniat-d (153 ) 5:41
pm, 12 Jun
2589. Hi Sonia & all
Hope you all had a god day. Went to specialist today, the monster had got into blood vessels but they did get it all. Waiting now for appt with oncologist, but due to expected Dr's strike could be four weeks away. Healing really well too (yeehaa). Heres hopeing those lumps are contained Sonia - wishing you all the best for your ultrasound. Hugs to all
cburton1 (60 ) 7:18
pm, 12 Jun
2590. Oops should have read
good day
cburton1 (60 ) 7:20
pm, 12 Jun
2591. just been down to see if i can give blood
they will come back to me in a few days, what is an adult ladies HGB meant to be is it the same as a childs????
2592. 
Wish I could answer your questions Bogeyi
I'm so clueless on the whole blood thing - guess its time I started paying more attention eh?! Was supposed to do a blood test today for CA153 etc, must admit I'm putting it off silly me - the power cuts were my excuse today. Will go do it tomorrow ;o)
soniat-d (153 ) 7:56
pm, 12 Jun
2593.
Hi Bogeyi
Just got kidlets to bed and thought I better check on here. I think I understand what you mean. Not gonna try and relay it back to ya - just keep us posted and I'll be happy lol. not snowing here yet... will take some pics if it does tho. P'haps I could bring you up some in a bottle like an ex of mine did when I lived in Auckland.Tee hee. Anyway Im not sure what our HB should be 150 I think?? Not sure.
2594. Hey Bogey
On the blood donor thread they were talking about Westwave taking donors tonight. Is that where you have been?
2595. Hi Sonia
How are you feeling this evening? Just thinking about you? And everyone else too of course big hugs to everyone ((((((hug)))))
2596. I'm fine thanks Paula :o)
Got a huge pile of ironing to tackle tonight - gotta put kids to bed now. Have a nice evening everyone :o)
soniat-d (153 ) 8:42
pm, 12 Jun
2597. Hi sonia
my heart aches for you and what you are facing. Big hugs for you. Leave your ironing till the morning or fold it all up and forget about it. I think you are pushing yourself too hard take time out love for yourself. Your hats sound great as I have given up whitebaiting now I could have sent you my fishing hats! My dear old uncle he was 92 when he died and my aunt used to look after him he had to wear a nightcap to bed as he was bald she just loved him to bits and when he died she went soon after. She always said they had a marriage made in heaven and I am sure they did I never heard them have a cross word. Please rest up a bit sonia.
2598. yep went to west wave to enquire
as i wasnt sure we dont have FA but are a carrier of the gene, but hubby says should be alright as we all have defective genes its only when two people have the same it can pass on our chance was 1 in a million or something like that we had more chance of winning lotto we were told....hahahaha
2599.
Thanks boop2 ;o)
I was just thinking the same thing! Think I'll leave it till tomorrow lunchtime. Have all tomorrow morning for ME :o) Going to lie down now and watch "Child of our Time" - Lydia is about the same age as them, so that makes it more interesting for us ;o)
soniat-d (153 ) 9:32
pm, 12 Jun
2600. Hi joystick
I really admire your positive attitude, good for you.Malc had a major heart attack when he was 42 and spent 3 weeks in hospital he couldn't even lift the teapot when he came home he had your attitude he never let anything stop him from doing what he wanted he knew how far he could push himself. He is 73 now and is fitter than a lot of men half his age. It sure helps to be that way. I will miss Sheri too but no doubt she will call for a cuppa. We are lucky up here in Northern Buller we had a lot of rain but nothing like what they are experiencing down at Greymouth.There are a few slips around but I think they have cleared them now.I have been so busy cleaning that house it is so dirty we have painted the 3 bedrooms and get the carpet down tomorrow, a waiting list of3 mon.for a new kitchen. I don't know how people can live like that.I hada lot of catching up on here, fell asleep in my chair and was too tired to read last night a good feeling though. Hugs
2601. Bogey
Thats classic. Yea what are the odds! Hope you have a great night. Going to try and donate some blood myself too. Was younger when I tried last time. Maybe Ive growed up enough now to withstand it. Was pretty little back then with low blood sugar?? We'll see - would love to
2602. Sonia and Boop
Have a nice night.
2603.
Thanks Paula :o)
Just bought tickets for Lydia and me to see Swan Lake on Ice at the end of July, a combination of Lydia's 3 favourite things (ballet, skating, & swan lake music) :o) Hope she'll like it!
soniat-d (153 ) 9:44
pm,
12 Jun
2604. Hi paula and joshi
We never get snow here ,lot's of rain though.I wish I was there to play scrabble I love it my eldest son gives me a hard time when he comes hopes I have been practising and all that rubbish as we really enjoy a challenge. He always seems to get the J AND K AND ALL THE S'S. Paula when I lost my youngest son I wish I had talked to someone as nearly three years down the track I still find it hard to talk about. It was totally different to what Joshi has and I don't mean it is the same situation but sometimes I think it helps to have someone else guide you through these things I thought i would cope because it didn't matter what people said it was not going to change the situation but now I wished I had. I think to unburden yourself at times get's rid of a bit of stress. Hugs to you and Joshi. Cassi sounds a dear wee girl just like her big brother.
2605. hi landylass
I hope you feel better now. Yes, we are fine here thanks, lots of water but not really cold.Take care thinking of you . hugs
2606. Hi boey and ryan
That will teach me to fall asleep at night it is taking me ages to catch up on all my friends. Your boys were not as close as mine but they still look like they could be double trouble like mine were. Hugs to you and Ryan I hope he picks up he looks so good in his photo. night
2607. sorry I left out the g bogey
time I was in bed
2608. Hi twinkie
so glad your wee girl was brighter today the poor wee soul has been through the mill. Hugs
2609. Hi maewest
you are dealing with heaps too take care of yourself. We are fine here. This house cleaning is not only keeping me off the streets but off my computer as well ! Hugs
2610.
Goodmorning everyone
Hope you are feeling good today. Boop2 thanks for your lovely words last night. It sure does help talking or (typing) to someone who gets it. A lot of the people I talk to dont! To be fair how could they! You are all very special. My poor Joshi, yesterday got home from school, i told him I had written him a poem. He tried to read it but couldnt finish it, only got the first line out.I didnt mean to make him cry, but we sat there together cuddling and crying. Hes so special to me. They both are! He followed me around like a lamb everywhere I went he wasnt letting me out of his sight??That was before the poem too.Sat on the loo laa while I was in the bath.Which isnt unusual but for the rest of it it was a bit?Chris had to go out to a quiz nite and he said Im glad your not going mum.Bless him! He just needed me close.IM NOT GOING ANYWHERE!
2611.
Sonia
I am sure the Swan lake tickets will be a huge hit. Sounds wonderful. Be a very special time. Thats so exciting. Hope all goes well for you today. ;0)
2612. Good morning ladies.....still no SNOW!!!....
We went in to Invercargill and had dinner with friends at Ziffs out at Otatara. It was really lovely there and the food delicious. I had a lovely seafood chowder, and then a light meal of Blue Cod, Kumera chips and salad. Just beautiful. When we left to come back home at 12 midnight, it was snowing a wee bit in Invercargill. It was just starting to settle on the road, but it wouldn't have lasted til morning I dont think. Lauren was hopeful of a huge dumping of the white stuff out here, so she could have the day off school, but NO, nothing doing. Hope you're all keeping warm and not too busy...
joystik (281 ) 9:05
am,
13 Jun
2613.
Yes I know Paula
We often do "ballet dancing" in the loungs to the Swan Lake classic CD (Barbie of Swan Lake video of course fuelled the interest to start with ;o) and Lydia often asks me to show her the Torvill and Dean Bolero skating video and just goes "Wow! Thats amazing!" and then show's me her "skating" on the lino LOL so I think this'll be just perfect! Just hope the show is not too long for her!
soniat-d (153 ) 9:29
am,
13 Jun
2614.
Hi all yes I'm taking it real easy today
Just going to chill..... ;o) No radiation of course, looks like it is on for tomorrow. Have to do that blood test sometime this morning though...
soniat-d (153 ) 9:31
am,
13 Jun
2615. Good on you Sonia. Bout time you had a day off.
Not too much happening here today either. Just the usual house work, which I have done already. Going to phone a lady I was in hospital with soo to see how she is coping. She had a hip replaced. And have a wee play on the computer. Still a bit showery round the hills but sunny here,so thats great. The ballet sounds beautiful Sonia. My friend's daughter had done ballet since she was about 5. She is now 18 and is very good. I have been to lots of shows that she has been in and it is so graceful and lovely. My Lauren was nver the least bit interested in things like that. She was always more of a Boy/girl!! I dont mean that in an unkind way either, but definately not Ballet material!!
joystik (281 ) 10:25
am,
13 Jun
2616. Hi Paula.....I will find out on Thursday when my..
second chemo will be. If it is always on a Thursday, it will be the nex day after you are there, but I will let you know after the first one. I would so love to see you and joshi too. Do children have there chemo at a different part of the hospital or just the oncology dept?? There were heaps of people in there the other day getting there dose. Felt sad when I saw them all really, but it was probably a reality check for me!! I willcertainly let you know. Hope you are all cosy in Gore today. Been nice and sunny but showery round the hills. The wind is quite nippy. Warm hugs to you all.
joystik (281 ) 10:29
am,
13 Jun
2617. hi joystik,sonia,paula not much happening here
either, Ryan is doing his corospondence (sp) took the kids to school this morning to have them photographed will be nice to have a photo where ones not grumpy or pulling a face, taking Ryan back soon to be in the class photo.
bogeyi (482 ) 10:30
am,
13 Jun
2618. Hi Joystik
Seems our day is always a Wednesday. If yours is Thursday thats ok, still going to come and find you one day. Joshi goes to the paediatric ward and then when he has the intrathecal chemo (under general) he goes to the surgery on first floor, then straight back to his room, childrens ward. He is famished by then - fasting from 7am.We have two outreach nurses there that are just the Best! He has all his chemo done there too. I know what you mean about reality check! Hang in there, your amazing - your attitude has helped me/us no end. We think you are so great! Cant wait to meet you! Sun is shining here too, but too cold to get out in it. I think Im a wuss now. xo
paulaxx (76 ) 11:00
am, 13 Jun
2619.
Hi Bogey
Thats great that you are going to get Ryan in the photo as well. Are his friends supportive to him? Its hard some days I think because the kids can look quite well, but deep down we know they arent as well as others. Have fun. Do you use the x-box as a lure for the school work. I think Josh would spend all day on it if I let him. Just ordering bowls of pop corn at leisure. lol have a good one
paulaxx (76 ) 11:02
am, 13 Jun
2620. Hi boop, how lovely to see you back again....
I thought perhaps you were toiling at the new house. So people certainly don't know much about cleaning do they. It is a bit of an insight into how some people chose to live, and its not always pleasant. Glad you are all ok up there anyway and out of the floodwater.
joystik (281 ) 11:19
am,
13 Jun
2621. Brrrr It's freezing here
Still some snow on the ground. We went for a walk down the road at midnight last night. It was beautiful, with the full moon shining on the snow and the air was crisp. Good for the soul.Paula, your poem must have been very special. Brought tears to my eyes too reading your post. Hope Joshi, Ryan and Briyanna are all having a good day today.How is it over on the coast today Boop? Sonia, I agree, time to start taking it easy. The hats sound great. I had red tips put in my hair about a month ago. Love the change. Short, trendy and RED! LOL. How are you going Joystik? It will be good for when Thursday has been and gone and you are underway. The waiting is the worst.Hello Landylass, Bogeyi and Twinkies. Hope you are all staying warm.
maewest (75 ) 11:25
am, 13 Jun
2622.
Maewest
Thank you for your lovely message and email.Really means a lot to me/us. Wow a midnight stroll! Thats certainly making the most of the hours in the day! Hope you are not working too hard. Have a great day. Best wishes Paula and Joshi
paulaxx (76 ) 11:55
am, 13 Jun
2623. Hi bogeyi and Ryan...hope you two are
happy and are having an good day. Did you get all your school work done Ryan?? How many hours a day do you spend at that?? Or can you do it all really quickly, and then play X-Box?? It has become quite cloudy here now and the wind is freezing. I hope you are tucked up nice and warm. Its lovely inside here. Hugs o you all up there.
joystik (281 ) 1:45
pm,
13 Jun
2624. Hi Boops, when do you move to your new house?
Or are you there now?? The cleaning isnt much fun, but painting is pretty good. Kevin is busy painting round at the house we are renovating. I had thought we would move in there when it was all finished so we could have a lovely new house, but at the moment I have changed my mind and I think we will stay here. Mainly because I cant be bothered moving, but also because it is on 1/2 acre section, most of which is lawn that will need mowing!! But, we'll see when the time gets closer, I might have changed my mind by then. I like this street better, but the other house is bigger and would be all new inside including kitchen, bathroom, carpets, vinyls, and drapes. Will have to toss up wont I. Whatever happens, we will sell 1 or other. Hope you're keeping warm...
joystik (281 ) 1:50
pm,
13 Jun
2625. hi joystik they get through the work so
much quicker at home as its one on one and its fun to, so theres plenty of time for the xbox.Paula read your poem its beautiful, suns poking its head out and i am in the corner window lapping up the warmth.
2626. I thought that bogeyi. We almost went to live in
the Marlborough Sounds when Lauren was about 5, and she would have been schooled by Correspondence, but decided not to because she is an only child, and I think the interaction with other children is very good for learning also. I wouldn't be able to home school now. The work is almost beyond my comprehension now. She is year 10. I wish the sun would poke its head back out here...its got quite chilly....
joystik (281 ) 2:07
pm,
13 Jun
2627.
Awww Paula
Your poem is wonderful, but so sad. What a great job you did with that! Tears are flowing for you guys. xxoo
soniat-d (153 ) 2:16
pm,
13 Jun
2628. Hi Joystik :o)
Yes Lydia loves dancing, takes after me ;o) I was never allowed to go to dance lessons as a kid (sad but true!) so only started as an adult. I have Lydia on a waiting list for the local ballet school but nothing has come up there yet. Thinking I'll try elsewhere actually. Emily's shaping up to be a dancer too, she has a huge love of music too (also like me ;o).
soniat-d (153 ) 2:23
pm,
13 Jun
2629.
Had my bloodtest today
and booked ultrasound for next Wednesday morning. Looks like my final zap is on for tomorrow (touch wood).
soniat-d (153 ) 2:25
pm,
13 Jun
2630.
yes paula your post
made me cry also you and your little one sound like you have the perfect mother child relationship orrrrrr hugs, only got chance to read this page but is lovely to come in and see all you lovely ladies helping each other through your daily struggles and your ups and downs, have been on this mb since i was preg with my 4 1/2 year old so 5 years and i have never seen a thread so uplifting, so sad, and so happy at the same time you girls all rock and have the strength to help each other through, that in itself makes me glad to be a human being, hugs to you all, yes i think you can just call me aunty huggy lol hugs hugs hugs, wish i could sit around the table with you all over coffee, can u imagine that we would be there for weeks lol
2631.
Awww Paula
I just read your Good morning post - aww how sad :o( Words cant express how I'm feeling for you now. (((((hugs))))) to you and joshi ((((((hugs)))))) xxxoxox
soniat-d (153 ) 2:43
pm,
13 Jun
2632.
Aunty Huggy
and Sonia. You are so special to me. Sorry to make you cry, I didnt mean too. Just had those words in me that had to get out... the poem that is. Sonia it helped me to know he needed me there. Dont be sad hun, we are so close and so often through this I have felt like I wasnt helping. So its all good, very healing to have a bawl together. Lots a hugs and love to you too. Your all such amazing mothers you inspire me xoxoxoxoxoxoxoxoxox
2633.
Sonia
Final Zap tomorrow - Yahoo!!!! Hope the blood test went ok. Another day closer to beating this!!! July is coming closer all the time too. YAY. I dreamt about you the other night. You and i met and it was like we'd known each other for ages. Cool. This morning Joshi said mum, last night I dreamed about Sonia. It was amazing - see he so thinks of you too even in his dreams xo
2634.
Bogey
Thanks for that too. Josh really thrived on his learning at home also . Loved it. Very happy to - makes me wonder about home schooling??? Nah - might interfere with TM MB lol ;0)
2635. Good luck Sonia for getting your final blast......
tomorrow. I will be thinking of you ( as always) and hoping it all goes to plan. I'm wondering if I will get my appointment tomorrow with the Junior Doctors on strike. I am off to see the surgeon so he can check the wounds out, and also to discuss having a port put in. It did say in the local newspaper that out patients appointments would be affected, but I have heard nothing more than that. Might pay me to give them a call I think. Dont want to sit there for hours for nothing. When do you get blood test results? Good luck for your scan next week too..Big hugs to you sonia..
joystik (281 ) 3:00
pm,
13 Jun
2636. paula
i know it isnt the same but when i misscarried twins many years ago the only way i got through it was to write a poem, some how after i had done that the weight lifted off me, there is a lot to be said about power of word, good for the soul, keep smiling darl hugs aunty huggy xx
637. Paula you peom is very beautiful but sad, and
shows what a closeness there is between you and Josh. It made me cry too......everything make me cry now....I never used to be like that at all, and I didnt think one person would be able to cry so much, but they can. Lauren made me cry when she said 'Mum, I thought that just anyone could get cancer, but its not like that, its only special people that get it, isnt it??' I had never looked at it like that, but it made me cry, and her too....Stay close to that wee man of yours Paula xxxx
joystik (281 ) 3:06
pm,
13 Jun
2638.
Oh Joystik
That made me cry. I have to say that emotions with me now run very close to the surface! Thanks so much. I truley treasure my darling children. I am so lucky to have them. Hope you get the answers for your appointments etc soon. xoxo
2639.
Aunty Huggy
I too had a miscarriage and wrote a poem. Only way to get through it at the time for me too. It was called heaven and earth. Bless you and love and hugs to you xxxxxxoooooooo
2640. Paula,I just phone the hospital and they said that
neither of my appointments would be affected, so thats a big huge plus.. I was really pleased. Better go, my baby will be home in a minute from college...at nearly 15 she is still my baby.....
joystik (281 ) 4:01
pm,
13 Jun
2641. Joystik
Great!! Lauren is and always will be!! Have a great afternoon. xo I like to think I'm still my mums baby at shhhh nearly 36 ;o)
2642. Hi Paula :o)
Wow those dreams are amazing :o) Wow! I've had a dream too, and on Wednesday 26th July its going to be a reality ;o) Can't wait!
soniat-d (153 ) 4:15
pm,
13 Jun
2643. I felt like writing one when I had my miscarriage
but never did. Planted a tree over my angel though. I've been playing with words for a poem to my girls, think you've given me the incentive to get it down! Not sure how good itll be there - bits of it sound good in my head ;o)
soniat-d (153 ) 4:18
pm,
13 Jun
2644.
Hi Pomegal ;o)
Thanks for your lovely post - wow thats a long time on the MB LOL! What a pro you are! I keep telling myself I have to cut back, but this amazing thread keeps pulling me back in ;o)
soniat-d (153 ) 4:21
pm,
13 Jun
2645. Yeah I know - last blast! Wohoo!
Its kind of a measured glee - who knows what's coming?! Its the unknown that gets me down, I like to know whats ahead ;o) Looking forward to, and apprehensive of, the ultrasound all at the same time! Blood test results Thursday morning. (((hugs))) all - off to do other duties ;o)
soniat-d (153 ) 4:24
pm,
13 Jun
2646.
orrrr sonia
it doesnt matter how good it is it will be from your heart, i have wrote a few peoms in my time the last one was for my partner and was quite funny as i was pregnant, we had bet each other and so i just added a bit whenever i thought of it, the beginning of it went, my darling shawn yuou helped me spawn and gave me a fat bum hehe cant remember the rest i had them written down somewhere, you just write how you feel for each of your girls and believe me i have a book that i write in for both my 4 and 3 year old and its easy peasy, they both have different strengths and beautys, its not easy rhyming charlotte, or victoria hehe it makes you feel so good that it is down on paper wether it be a peom or just how you feel about them, i have a personal letter for my 14 year old that was written when he was 18mths old that i put in his book that i put other things in and i wrote it then as he was my first child and i was so scared back then that something may happen to me and he would never know how is mummy felt hugs
2647.
oh and sonia
although i have been haniging around here for 5 years i am not on it half as much as i use to be lol i also used my full name as my user name and changed it, and lost 70+ feedback doing it grrrr but thats nothing hehe glad that i can post now and people cant look me up in the ph book
2648. paula
how amazing eh funny how just writing something down gives you some sort of closure eh, i remember mine being about how the baby was so special that god needed it more than we did but that mummy and daddy loved it so much, Mmmm i must have a look and see if i can find them as i have wrote ones for my mum and aunty as well about how i felt, living 12000 miles away from all does make you do things like that too hehe
2649. ooops no hugs
huhs hugs hugs love aunty huggy hehe
2650. OOOHHHH Sonia
Yea our dream will come true xx This is my poem Heaven & Earth This candle is a symbol. A token of our love, we didnt get to meet you, you went back home above.It cant have been the right time for you join our lives, but just cos we cant see you or gaze with loving eyes, your in our heart for always and we love you very much.I cried for you our baby the one I couldnt hold.I guess it wasnt meant to be or so I keep being told.So when we light this candle its for you our unborn one. Not knowing if you were a daughter or another son.Thanks for gracing us,even for the shortest time.I know we'll meet again my love heaven & earth its a very fine line.
2651.
I hope
That no-one gets sad over that. I really debated whether to post it or not!!! :0/
2652.
Its amazing Paula
What a talented thing you are ;o) I can so relate to what you wrote xxoxox
soniat-d (153 ) 5:23
pm,
13 Jun
2653. AWWW thanks
I love writing. I guess you all know that by my threads. tee hee
2654.
Thanks Pomegal :o)
You and Paula have inspired me to get started. Still gotta do those videos for them too!
soniat-d (153 ) 5:25
pm,
13 Jun
2655. You and me both Paula ;o)
You can tell by my webpage ;o) This family tree book I'm doing is a work of art. Interview with Tom ended up a busy 6 pages of interesting family history! I've been spending the afternoon transferring it into webpage format to upload - still not finished! Man I forgot how long this takes :o/!!!
soniat-d (153 ) 5:28
pm,
13 Jun
2656.
Well Sonia
There are some people in this world that you can take or leave. At least everything you have to say is worth listening too. You are one of those people you just cant get enough of. xo
2657.
:o) #blushes#
xxx ;o)
soniat-d (153 ) 6:35
pm,
13 Jun
2658. Huge hugs
My mother has just had a rather large mass removed from her liver along with half her liver all going well so far.( So know how you feel) I hope things go well for you really easy to say but stay strong
2659. What a beautiful poem Paula, you are quite a
wee work of art really arent you. Your poems are full of deep and meaningful words from your heart. They are really beautiful. Hugs to you Paula.....
joystik (281 ) 7:40
pm,
13 Jun
2660. Hi fe4, sorry to hear about your mum. Sounds
like all is going well so far and I hope that continues for her. Sending my best wishes for a complete recovery from this monster. Hugs to you and your Mum too....
joystik (281 ) 7:58
pm,
13 Jun
2661.
"bump"
hugs to all
2662.
She is a work of art isn't se joystik?!
I'm very very impressed! Feeling a bit paranoid this evening, don't think taking it easy is that good for me LOL ;o) Hi Fe4 sorry to hear about your mum - hope things improve for her ((((hugs))))
soniat-d (153 ) 8:46
pm,
13 Jun
2663.
Thank you Joystik and Sonia
I only share because I care. Keep smiling xxx
2664. bumping for the crew
:)
2665.
Hi bogeyi ;o)
How are u this evening? I'm really tired actually, going to watch a movie with Brent then hit the hay. Have a nice evening ladies :o)
soniat-d (153 ) 9:22
pm,
13 Jun
2666. Sonia, you will be just fine I'm sure. Sometimes.
to much free time give the Devil more chances to put all sorts of stupid and ridiculous thoughts into our minds, that we know aren't true. I have found myself getting a few rather paranoid feelings too at times, but dont if I keep really busy doing stuff. We will always all be here for you, when you are happy and when you are not so happy. Cancer does that to people....I too know that now. Hugs to you Sonia .....
joystik (281 ) 9:23
pm,
13 Jun
2667. im good thanks sitting here by myself
its soooooooooo quiet everyone is in bed.Went to the health shop today and got some vitamins as i was feeling run down took them today and have more bounce in me, we tend to forget about ourselves and make sure everyone else is sorted.
2668. Bogeyi you will have your blood in such good order
soon they will be ringing you requesting it if you become a donor again. Glad you are feeling better. Mothers are good at sorting others first arent we, but thats just what makes us special people too I guess. You have a good restfull sleep tonight. I'm off to bed now...was 12.30 last night so I'm a bit weary tonight. Hugs to you and family too....
joystik (281 ) 9:49
pm,
13 Jun
2669. joystik have a good sleep
i am off in a few minutes as well.
2670. I have just read your poem
paula the one for joshi it is very moving. I do hope he feels better tomorrow he has been through enough the wee soul. Hugs to joshi and his mum. I write poetry too when something happens I need to put it down on paper. Let's hope tomorrow is a better day.
2671. Joystick two days to go
all the very best for your chemo. We are getting there with the house had the carpet put down today and the vinyl tomorrow in the wash house and loo.Have to wait about 3 months for our kitchen. It is starting to smell much nicer now we are at last making progress.There was a lot of snow on the mountains today and the wind was really fresh both the alpine passes were closed because of snow. We can't complain at least we have power.Hugs to lauren she sounds delightful. Take care joystick.
2672. Hi sonia
pleased you were taking it easier today. I bet you will be pleased to stop the radiation and have a few days without having to rush off somewhere. I have never been a dancer but must say I love dancing with the stars , especially Beatrice and Brian I think they are so lovely.Hugs for you , Lydia and Emily.
2673. Hi Bogey and Ryan
Did you get all your work done today Ryan? Maths was always my favourite what's yours? Bogey please take care of yourself as well as it is so easy to get run down even if you put your feet up for 5 mins helps. Hugs to you both.
2674. maewest I think i would rather look out
the window at the snow than walk in it. We are fine over here nowhere near as cold as CH CH (my home town) we don't get frosts here. My friend Sheri is having a hard time adjusting to the climate in CH CH after Nelson. I bet it looked beautiful across Hagley Park with the snow. Well done the Flames beating the sting last weekend.
2675. I finally finished it - yay!
http://www.sonia.tyler-davies.co.nz/FamTree/Simpsons/JosephBayerKatherinaWech/JosephBayerKather inaWech.htm Now I'm off to bed ;o) PS Watched fun movie - Carolina, not brilliant, but watchable :o)
soniat-d (153 ) 11:52
pm, 13 Jun
2676. Can't sleep so
have been browsing through your family tree Sonia. All I can say is...WOW!! What an absolutely amazing job you are doing with it. I am in awe of you. Fantastic. Yip, quite often go for a wander down the country roads late at night. Love it. It is so peaceful. Guess it comes with doing years of shift work and getting home late at night. I won't be checking in for a couple of days. Big day tomorrow. Appointment with surgeon then off to work. Also read your poem Paula.It's beautiful. Hugs to all. Must get back to bed.
2677. Just one thing to say....
I know where you're at. Fight it girl. Fight it for all you're worth. Thinking of you with all my might.
2678. Bumping for the girls
to all who are at appointments today....good luck hope all goes well. I am having my hair done at 11am...oh to feel somewhat normal.
2679.
Bogeyi
Hope you feel great after getting your hair done! My hairdresser asked me to go in tomorrow and have a cut and colour. She is using me on the weekend for some hair competition photographs :0/. Think I'm getting a bit old for this sort of carry on!! To all of you at appointments today. Hope they go well. Thinking of you all with love xo
paulaxx (76 ) 11:59
am, 14 Jun
2680. sonia
just looked at your website and its amazing your wedding day was georgous and your family are all lovely hope your head is not too sore. hope everyone else is good and having good appointments love aunty huggy, hugs hugs hugs to all xx
pomegal (91 ) 11:59
am, 14 Jun
2681. Thanks Pomegal :o) Oh to look like that again!
Ok silly me when posting that fam tree thread somehow got a space in the middle of it - need to remove that for it to work ;o) Don't expect anyone to read it of course - its 6 pages worth on paper LOL!
soniat-d (153 ) 12:45
pm, 14 Jun
2682. 
Ok #bright red face# (green was best icon
option!)
Can't believe how stupid I am LOL I still have 5 radiation treatments to go! Silly silly me forgot to cross out all the days that didn't happen because of stikes so when I thought I'd done 44 treatments I'd only done 39?! D'oh! #shrugs# I don't mind, when the therapist told me and said "Oh you must be so disappointed!" I said "No actually, I was nervous of stopping as it means nobody's attacking the little monsters in there any more!?!" She noddwed and said many feel like that. Guess it depends on whether people have lumps or not. If I didn't it would be a totally different feeling! I'd just be sooo glad to have my mornings back, and it would be all over ;o) Sadly not for me, but hopefully some positive news is ahead. Fingers crossed... :o)
soniat-d (153 ) 1:02
pm, 14 Jun
2683.
Wow Paula :o)
Take that as a HUGE complement! You're only as old as you feel sweetie ;o)
soniat-d (153 ) 1:04
pm, 14 Jun
2684. Sonia
Just read that you have more treatment.I totally get what you mean that while its happening its attacking! Thanks for the compliments - bit of a hoot. I will post a photo after the session on Saturday - if they are ok???? She wants to make me up for the Gothic Luxury category - which is really quite the opposite of me. Oh well better go check Josh. Another yucky day for him :+( xo
2685.
Awwww poor Joshi :o( xxxxxx
What are the symptoms bothering him at the mo????
soniat-d (153 ) 1:25
pm, 14 Jun
2686. Hi Sonia
He cant bear to be touched. His body gets achy. He feels sick and weak. No tolerance at all. Last night he came racing in to me crying saying I could have really hurt her. Meaning Cass.Poor kid he felt like hitting her but didnt. I was so proud of him. Had to explain to Cass to leave him alone for a while and then showed Josh how we could throw pillows and whack the bed to get our frustrations out. He is just so out of sorts. Thanks for asking hun. I think they may have increased a chemo on Wed (last) cos he's grown.
2687. orrr paula
hugs to you and your little one, must be very frustrating for all concerned hugs xx
2688.
Oh Paula
I can relate to how he's feeling totally! :o/ That's how I felt with the second type of chemo - like every cell in my body was aching. There's nothing worse. What pain relief have they given him? I was given stronger stuff after that, but I realise he's a kid - hope there's something they can give him to ease the pain. And distractions - x-box maybe? Is he playing that? I found watching TV or lying down just made me more aware of how bad I was feeling. Anyway, please send him my (((((hugs))))) My neck has just started aching in sympathy just thinking about him, poor brave man (xxxoxoxox) Oh to be able to take his pain away from him, you must feel so helpless. Hus to you too Paula (((((((hugs)))))))
soniat-d (153 ) 2:03
pm, 14 Jun
2689. Thank you so much
Got your hugs and I will go and gently give them to him too. I can offer him panadol but he is feeling to yucky, doesnt want to swallow it. It is hard watching! I will give him one soon wiht a drink of lemonade and try to settle that tummy as well with some ondansetron. If his aches get too bad hes got codeine here too. May slip one in with the chemo tonight. Have to put all his tablets into a gelatine capsule otherwise he cant swallow them. I have to give him two lots tonight (chemo) every Wednesday he gets Mercaptopurine and Methotrexate. Thanks you guys xx I feel at my strongest when he needs me the most.
2690. He doesnt
want to play x-box. That is a worry!!! I just took his temp if it gets to 38 degrees I have to ph the hospital. Its 37.5! Oh boy!
2691. Big [[[[[[hugs]]]]]] for Joshi....
hope you get on top of it quickly Paula.
landylass (47 ) 2:53
pm, 14 Jun
2692. Joystik if you are around
I just had a look at when I started same chemo etc and will post some stuff for you in breast thread. Hope everyone is coping with the cold! Been feeling yuk but hopefully over worst. Poor hubby left at 5am to drive to Timaru to fly to Wgtn, got there and they cancelled and he had to come home! Daughter away south to a choir competition and won't be home to midnight so will be some tired bods in our house tomorrow! At least when our power came back it has stayed on. Some of the rural locals here might still not have it by weekend.
landylass (47 ) 2:57
pm, 14 Jun
2693.
Oh boy Paula
Poor Josh - I think 37.5 is close enough to 38 unfortunately?! Poor sweet Josh - I've been thinking of him constantly this afternoon - sending positive vibes xoxoxox
soniat-d (153 ) 3:37
pm, 14 Jun
2694. I have been
Trying to read this message board and keep up with the goings on. I hope Josh is doing okay and that you are all warm. We are freezing here so a Hot bath soon and blankets on 3!!! Have been thinking of you all. Love and Hugs Christine. xx
2695. hi paula hope josh is ok
i know ryan had to touched gently when he had slight GVHD as his skin hurt, he to is one tough wee fella and wont take pain medication even pamol is hard to get him to take cause if hes feeling off he knows he might be sick and he dosent like that. Gentle hugs to josh.
2696. when ryan has his hickman line out
he was in major pain (never seen him like this) i was called down to recovery as he was crying and in alot of discomfort, nurses were trying to get him to have morphine (never had to have pain relief b4 in surgery) then i came on the scene and asked him to take something i got a very grumpy/angry NO, then the anethesist (sp) came and was asking Ryan are you in pain (his answer yes) he said you should take some pain relief and it will help.....well there was only about two hand spaces betwen ryans face and the anethesist and out came....for the last time, how many times do i have to tell you guys NO....i had a little giggle at that. In the end it took 2 of his favourite nurses upstairs about 10mins to get some morphine in him and 1/2 hour later he was sitting up being cival.lol
2697. Bogeyi and everyone
That is classic. Josh is soooooo like that! I managed to slip some anti nausea into him. But thats it so far. He knew what he was taking I would never do it behind his back. I cant lie to him about anything! He seems a bit better had a fruit muffin - toasted for tea and some ice-cream. Early to bed for him tonight. The Vincristine chemo he gets gives body aches, jaw pain, headaches, sensitive skin, so am picking its caught up??? We shall see. Temp come down a bit too ;0) Hope you and Ryan ok Bogey
2698. gregp3
Thanks for your lovely thoughts. Take care
2699. Hi Paula and Bogeyi
It must be so hard when they won't take the medication to help them - my girls do the same, why kids do that I have no idea. It must be hard giving him the chemo stuff yourself - knowing it'll make him feel soooo bad. I just can't imagine it, just thinking of you Paula and sweet Ryan - sweet dreams you brave boy ;o) xxx
soniat-d (153 ) 6:24
pm, 14 Jun
2700. Just
snuggled Joshi into bed. Tomorrows another day. Love to all xoxo Sweet dreams Sonia. Oh and thanks for your understanding - yeah its hard giving him the chemo day after day but it sure does beat the alternative. He knows he has to have it to get better. It better bl**** work thats all I can say.You all have it so rough. Its not fair. xoxoxo
2701. Hope Joshi has a good
sleep Paula and wakes up feeling better. Gawd its heartbreaking reading your posts! Take care of yourself too, I guess you are in for a sleepless night checking him.
landylass (47 ) 8:21
pm, 14 Jun
2702. paula i remember when we were in transplant
and all of a sudden it must of clicked for ryan and he said to me, so they need to make me sicker so i can better.I was amazed that he understood that (but i should of known better he understands to much).
2703. I have almost missed a whole day on here and its..
all sad tonight. Just mde me cry reading all about it, but I'm a bit sad tonight anyway for whatever reason. Think perhaps because the reality of the whole thing kinda hits you, when you are about to start the chemo, and today I looked at the wigs, etc. Just a bit sad. Poor Joshi....so helpless when you cant do a thing to make him better, and what you are doing just seems to make him feel worse for now at least. I just feel so much for you and Chris,Paula. Its a terrible thing for any body to go through, but let alone a parent. Gentle hugs to you all......
joystik (281 ) 9:04
pm, 14 Jun
2704. Hi sonia, not long to go for you now and all those
treatments will be behind you too. Hope you have had a good day. The wig lady, Shelley, was lovely. She let me go through her catalogue, and chose anything that I even remotely liked, chose a colour I liked for the style, and they will all come down from Hair Creations, in Auckland over night. I will collect them tomorrow and bring them home for the weekend and try them all on, and see if I like any. If I dont she will get more down until I find what I want. They are all short styles, with lots of texture and highlights, foils etc. She was lovely, but the whole thing really started to become much more surreal today!!
joystik (281 ) 9:10
pm, 14 Jun
2705. Joystik
Im sorry you are sad. That was something that has been on my mind lately. I know we all have each other and you will never know how much you have all helped me, I just dont ever want to make anyone sad with our stories. You are all going through so much, you dont need to be carrying the burden of our heartache too. Thanks so much for all your darling words and kindness. I hope you feel better in the morning. I know what you mean. Reality hits! Life is a journey. Joshi said to me in the car, Mum if I didnt get cancer i wouldnt have all these new friends I have now. You are all our friends now. I just hope I'm there for you like you are for me/us!! xoxo
2706. Hi landylass....what a busy place you have there..
people coming and going. Did you have much snow around Oamaru? It was terrible up further round Timaru and inland wasn't it. Its raining here tonight and has got a lot cooler and I see snow is forcast again for the weekend and friday, with a widespread dumping right over the south Island again. Hope the wedding is in a lovely warm venue. I will go to the other site and read about your chemo..Thanks so much for posting that for me. You're a wee treasure...hugs to you too
joystik (281 ) 9:14
pm, 14 Jun
2707. Bogey
These kids are born with a knowing arent they? Well hows the hair?? Did ya feel special for a while and step out of the whole routine of it all just for a moment???
2708. Hi landylass
How are you? I know what you mean its heartbreaking when he is low. He still thinks he wants to go to school ... I dont know what to do??? I will see how his temp and pain are in the morning. He's still not asleep. He wants to me to go and get into bed with him ... so off I go for a little cuddle. Back soon xo
2709. paula felt good, had blonde and copper highlights
in was all ready and glam to go out but came back and relaxed by the fire...lol
