| Message board | |
CANCER SUXS!!!!!!!! Back to first page Jump to page 2 3 5 6 7 8 9 10 Last page
1501. Morning everyone
Catatonik - big hugs, hope you get some action soon!! The waiting is not easy. WEll, just under two hours till they get here, I've cleaned the house and Josh said is someone coming today mum, (like I dont normally clean lol). He is not silly! Ok, the excitement is mounting, thanks for all your lovely comments about today, it will be just so great to see his face.... camera is ready. Lots a love to you all. Be back with some pics and details later xxxxxxxxxxxxxxx
paulaxx (75 
) 10:43
am, 24 May
1502. 
Hi Catatnik
RING THE CANCER SOCIETY - as Joystik mentioned they are simply awesome and will of course know all about every kind of cancer imaginable including kidney cancer. They have a great team of nurses, counsellors, the works and know the public and private systems - what needs to be done etc etc. Rattling cages is most important, and knowing what you need to rattle cages about!!! So get cancer society to tell you or your mum what needs to be done. It may well be growing fast OR it may just feel that way, as I've found with all my lumps, as soon as I found out they were cancer they suddenly seemed bigger and sorer and seemed to grow faster than they could have possibly been. The mind can really play tricks. So need to get confirmation on whether it is indeed growing fast or not. Other than that, can't help much sorry as all cancers are quite different. Good luck and big (((((hugs)))))) to your mum. Thanks for popping into this thread :o) Let us know how you get on.
soniat-d (153 
) 11:20
am, 24 May
1503. Morning everyone
#Phew that took me a while to compose, so must go again already, collect my precious Emily. They were such good girls while we were out, bless them :o)
soniat-d (153 ) 11:21
am, 24 May
1504. Just bumping this up.......
off for a walk now in the lovely sunshine and will be back later to see how eveything went at Joshi's place...Your girls are gorgeous Sonia!Bet you get told that pretty often, but they just are. Hugs to you too.
joystik (281 
) 1:12
pm, 24 May
1505.
Yes I do get told that a lot Joystik ;o)
Their curly hair and ringlets are captivating :o) But then I'm biased LOL
soniat-d (153 ) 1:17
pm, 24 May
1506. 
Hi...
Well that was so worth keeping it a surprise. His wee face lit up like a christmas tree. Nick the man from Make A Wish has pretty much assured us that Joshi will get his Salt Water Fishing trip with his dad. He had questions to ask and when he asked why he wanted that particular wish the tears filled up in my eyes, he said cos I love fishing and dont get to see much of my dad (Chris works alot). So in the next post will put in some photos of the meeting... thanks so much everyone, his dream seems like its gonna come true. :o) Very special day for us here xxxxxxxxx
1507.
It must all be happening in Paula's house
at the moment - how exciting - ooooh to be there and give Josh a huge congratulatory hug, you'll have to give him a hug from each one of us Paula! What a great day :o) xxx
soniat-d (153 ) 1:20
pm, 24 May
1508.
We were typing away at the same time Paula!
Awww how neat, so did he not fully confirm it then? How does it work? I'm thinking of contacting them and asking them how we can contribute to the cause :o)
soniat-d (153 ) 1:23
pm, 24 May
1509.
Hi boop2, re #1494
Oh yes so true - I have a policy of only cleaning up the kid's playroom after they're in bed for the night, as I just hate putting away the same toys over and over again! So the house always looks good in the evening and when we wake up, then its basically downhill from there LOL. People generally come in through our back door for some reason which is straight into that room, so first impressions are always of chaos LOL
soniat-d (153 ) 1:27
pm, 24 May
1510. paula that is great news
it perks them up so much.
1511. Some pics
Joshi with Nick discussing his wish... http://i50.photobucket.com/albums/f337/riddle1/100_0453.jpg http://i50.photobucket.com/albums/f337/riddle1/100_0452.jpg A very happy me with my darling boy http://i50.photobucket.com/albums/f337/riddle1/100_0456.jpg Thinking of you all with enormous warm fuzzies xxxx
1512. Very lovely piccies Paula
Josh looks so elated, its great. You're a stunning looking lady by the way, as it your family :o)
soniat-d (153 ) 1:31
pm, 24 May
1513.
Sonia
Thanks that is so cool, we were typing at the same time. That is amazing that you thinking of contacting them, I know how you feel. There will be a lot of causes I will be supporting from now on. The office is in Auckland, I am not sure if I am allowed to put their info on here?? So they send Josh's application to the board and make a decision then contact us as to when it will all take place and where. He is so excited. He cracked me up cos he may be in the paper (like you said Joystik) implying he'll be famous.He said I might even get my face on the back of the next dollar coin. LOL. He is so happy this is so wonderful.Yay for MakeAWish. xx
1514. Hya Landylass :o)
Yep motivation plus! So (I was losing track of where you are at) does this mean the next chemo is your last one???? Hope you're coping with work OK, must be hard. ((((hugs))))
soniat-d (153 ) 1:36
pm, 24 May
1515. Oh Sonia
Thanks sweetness, takes one to know one!!!! Not that I agree with you, feel like I've aged a good few years in the last 7 months!! You are a very special lady! Thanks for sharing today with us everyone! means so much to us xx
1516. That's OK Paula
I found their website (http://makeawish.org.nz/home.htm) the other night and it has their contact details - planning on contacting them next week and seeing what's what - still got a backlog of jobs to do - must get back to them!
soniat-d (153 ) 1:40
pm, 24 May
1517. I just called them :o)
They're sending a pack of info out to me. Just occurred to me we could offer fishing trip, boat trip, truck/bulldozer/digger rides, quad bike jaunts... Now just gotta talk the in-laws into it ;o) Should be a cinch (sp) ;o) I feel all warm and fuzzy :o)
soniat-d (153 ) 2:23
pm, 24 May
1518. Re 1515
Aw Paula, I can certainly understand why you'd feel that way - must be so hard. Wish the strain could be eased somehow. Do you get much "me time" with Chris working so much?
soniat-d (153 ) 2:26
pm, 24 May
1519. Hello
everyone. i am new to this thread. It will be a year in july when my husband (29) got told he had a brain tumor. e have 2 very young children and are coping with it remarkably well. We are very busy with the children which I think helps. At this stage he has been told from MRI scans that it looks like a slow growing tumor and he could have a up to 10 years but in that 10 years things will deteriorate. We have been to the cancer society in auckland and had counselling and they have been great. Just wondering if there is anyone else on here who knows or is suffering from a brain tumor. One thing we all have in common is that we are all affected by cancer. The one thing I have learnt about this terrible disease is that life is so very precious and you must live life to the fullest each day.
1520. Ohhh Paula....what awonderful day for you all...
and thankyou so much for sharing it with us all. How proud you must be of that lovely boy of yours. He is an inspiration to us all. I have said that before I know, but Paula, I really mean it, he just is. He is also part of a very beautiful and loving family. Your photos are just lovely. I'm so happy for you all and I hope he can get his wish soon, but I suppose next summer when its warmer would be better. Doesn't look like we are going out in our boat over winter, Kevin covered it all up yesterday, and put it to bed for a few months. WOW what a lovely day!! Hugs and love to you all.
joystik (281 ) 3:21
pm, 24 May
1521. Hi Churpy
Sorry to hear of what you're going through, the husband of a very close friend of my s-i-l's (sounds remote doesn't it, but it actually makes them very close in our family) got diagnosed with a brain tumor about 2 months ago (after showing signs first thought to be meningitis). Most of the tumor was removed surgically, and the remaining being treated by radiation which he started a couple of weeks ago. He's been given only 2 years. They have two boys slightly younger than our girls. He is apparently coping very well, but she's been really depressed grappling with this new situation. I've been wanting to call them, but my s-i-l says they're not ready to talk yet. Its frustrating, as although its a different kind of cancer, many issues are the same, I was wanting to discuss positively etc not wallow in the depression with them. I'm hoping they'll call me sometime soon. Did the cancer society mention a support group at all? How old is your husband? Wishing you both the best possible luck, and more ((((hugs))))
soniat-d (153 ) 3:39
pm, 24 May
1522. Hi...
Mum of 3 kids here. My 3 year old was diagnosed with Wilms Tumor 3 months ago. It's a big monster for a little lady to fight. Just wondering if theres any other mums or dads out there dealing with this? Havn't really had a chance to read through the whole thread yet.
twinkies_pn (0) 4:15 pm, 24 May
1523. bumping for news
of Josh. Hehe I actually enjoyed being back at working and kickstarting the brain again. Only did 10-3. Felt like staying longer but know from past experience would be knackered tomorrow. So off to cook tea and put feet up. Trade off me being at work I have gone on strike on the housework!!!! Can't do everything. Will go again tomorrow for a few hours. I have finally learnt to pace myself!!! Yeah the ankle is coming right but don't think I will be wearing high heels for a while!
landylass (47 
) 4:25
pm, 24 May
1524.
Sonia
You never cease to amaze me. With all you are going through, you are constantly thinking of others. Bless you! I do get a bit of time to myself. Its ok, my turn will come. XX
1525. Churpy
I feel for you. I hope you get some comfort from the wonderful people on this thread. I have!!! Take care
1526. bumping fro all the
ladies.
1527. Hi churpy and twinkies... sorry for what you
have going on in your lives right now. Yes it is a MONSTER, but we are all fighting the same monster in here and with lots of determontion and positiveness we will win in the end. The cancer society are really great and are only a hone call away if you need to talk to someone. I was only diagnosed in March with Breast Cancer and had my operation on May 5th. This is all very new and fresh to me too. I have to have chemo and start in about 3 weeks now. We all help each other in here by sharing and caring and sending off lots of hugs!! So I just sent some off to you all, especially the wee 3 year old girl. Hope to see you again soon.....
joystik (281 ) 4:34
pm, 24 May
1528.
Twinkies
Hi Since I first posted here about our son who is being treated for Leukaemia I have made new friends all over NZ. I am sorry I dont know much about the type of tumour your mentioned, but how are things going? Thinking of you
1529. Woops must have skipped a page
wow Josh what a beautiful smile!!! Hope they can give you a date soon and get it organised quick. I would want to be doing it NOW! Churpy I have a niece with hubby with brain tumour. There are so many different kinds. He has been 2 1/2 years since diagnosis and is only 36. I have known several people that have died of brain tumours in last 2 years..... all of them within a few months of diagnosis. So the one positive you have to focus on is that he is going to have time. The first op Mr36 had upset his vision which is now out of focus. They have a young family 13-5 and its hard going on everyone. Good luck. You need lots of support from family and friends.
landylass (47 ) 4:36
pm, 24 May
1530. Thanks guys :)
gosh some of you brought me to tears with how fast your time was from diagnosis to surgery etc... im sure my partner will be glad to hear im human after all! (tears instead of jokes...lol). We have her gp on the job & i told her to get sent for another scan in meantime so we can see a growth rate. I'll crack onto the cancer society tomorrow. Either way she'll need surgery (apparently chemo / radio are no good for kidney cancer) but she cant have surgery until her bloods stable... if that ever happens (she's on warfarin etc, prone to clots as well as chronic asthmatic, prone to pnuemonia etc). ugh i think its all just hitting me actually so gona go cry some more then get my sh#t together and come up with a plan. *hugs out*
catatonik (39 ) 4:40
pm, 24 May
1531.
Joystik
Hi Thanks for your beautiful words, what a day. I know he is an inspiration I look at him and I find it incredibly hard to think back to the days when I sat beside him in the hospital with hardly any sleep, feeling like it was all a dream. I want it to all be over for him, because he seems so well at the moment.Two and half more years to go he is doing so well!!! He just hopped into the bath and he has some bruises from school, I guess I will always freak out when I see them. Today meant so much to us, thank you for being a part of it. xxx
1532. Landylass
Hi, thanks for thinking of us too. Hope you have had a nice day. Take care and love from us xx
1533. Theres no harm in crying...I have cried more in ..
last 2 months than I have ever cried in my entire life I think. You also have to try to look for the positives in it all. Sometimes I have looked and cant see any, and then after a time , yes they are definately there all right. Hope you have lots of love and support around you. I have and its just wonderful.(((HUGS))))
joystik (281 ) 4:44
pm, 24 May
1534.
hi Bogeyi
Hows Ryan? How are you? thinking of you.
1535. Hang in their cat...
its amazing what they can manage to do today. I got a friend thats dad needed a knee operation then he developed galls stones. They wouldn't operate because it was too risky. He was in such pain. They managed to get him under long enough to get a troublesome stone out and also operated on knee in a 2nd op where they kept him awake. They will sort something for her. Big (((((hugs))))))) cause sounds like you need them at the moment!
landylass (47 ) 4:45
pm, 24 May
1536. paula i know what you mean with bruises
my heart always stops when i see a new bruise.
1537. our appointment on tues wasnt to good
his neutrafils had dropped they said dont panic to much as he is fighting a viral infection and the first thing it eats is the neutrafils, how can we not panic they are the counts we are watching and hoping to climb meaning tylers marrow is growing.Bit scared to see blood results tomorrow....Ryan is good, i have the flu and feel rotten.
1538. Oh bogeyi
I'm sorry, these roller coaster carriages just dont let us off do they. Did you have to have a flu injection, we were all told we had to no choice. I do feel a bit yucky too, hope its not something brewing. I hate waiting for blood tests. Feel for you. All the best for tomorrow, will be thinking of you. Hope you feel better soon.
1539.
Hi Cat
Typed this lovely big reply just now and went back to check something and boom couldn't get back to it - grrr... what was I saying :o/!@!! Will my chemobrain ever go?!
soniat-d (153 ) 5:06
pm, 24 May
1540. ((((((hugs bogeyi))))))
That's not what you need is a sick house - poor Ryan - sounds like it's just a nasty scare caused by virus. Got all my fingers and toes crossed for you xxx
soniat-d (153 ) 5:20
pm, 24 May
1541.
Hi Cat
It's perfectly OK to cry - we've all been there! Check out my posts in the first few pages of this thread - I was a mess I was! *red face* #shrugs#. Like Joystik said, I've never cried so much in entire life either - nor appreciated just how precious our life really is. In some ways cancer is almost a blessing in making us stop and reevaluate what is important in life, tricky thing is beating the monster away. We WILL do it ;o) I'm thinking if the cancer is just in one kidney its probably not such a biggy - can't they remove one kidney if necessary and thats still OK? I could be wrong. But anyway, yes the chemos available now are amazing (my own situation aside) - so tailored to each type of cancer, its unpleasant but the results are impressive, far better than what I thought when I was first told I had cancer. My cancer is a super aggressive one, and the radiation seems to be blitzing it, so there you go ;o) There is hope :o) Try and feel our cyber hugs enveloping you :o)
soniat-d (153 ) 5:30
pm, 24 May
1542. Hi.
We're hanging in there for now. It has been a long journey, it's amazing how fast 3 months goes. Briyanna is in good spirits. She finished her final treatment aat the end of march and has been having regular appts and tests since. She had a chest xray, CT scan and an abdominal ultrasound this afternoon. We're hoping to get the results for these back before Friday. We're waiting anxiously for them because the results will show whether the cancer has spread. So sorry to hear about all these other people who are fighting the monster. Hugs to you all :-)
twinkies_pn (0) 5:32 pm, 24 May
1543. ** That should say
"final radio therapy treatment" at the end of march.
twinkies_pn (0) 5:34 pm, 24 May
1544. Take care bogey....
I got Mr14 starting to burn up something wicked and my counts are all down right now. Looks the the bugs are back to bite again this week. Hubby has told me to stay away from him!!!! Grr my boy is sick! Miss16 got the formal Friday night so hope she doesn't go back down with it again. Hope you are better soon and those blood tests are ok.
landylass (47 ) 5:35
pm, 24 May
1545. Hi Twinkies
Big hugs to Briyanna and your family. Fingers crossed for those results, the waiting is so awful. All I can do is pray for Briyanna and hope for nothing but elation on Friday as good results come back. I'm going to keep visualising that for you, and hopefully thats what you'll get ;o) Try and stay positive for her ((((((huge hugs)))))))
soniat-d (153 ) 5:44
pm, 24 May
1546. Thanks sonia.
We're trying to keep positive. It's an anxious wait. All we can do is hope for the best. Hopefully we'll get the results back tomorrow afternoon. We'll see.
twinkies_pn (0) 5:52 pm, 24 May
1547. Hi Sonia
Many thanks for your kind words. Unfortunately the cancer society did not want to have a BT support group. So people with BT in the auckland area have set up there own and we take turns going to eachothers house. I am only happy to give you details etc if you would like. It is terrible that he is very down, completely understandable tho. One thing i have found is phonecalls about everyday things people are doing. Please just say if you want the details for him I am only to happy to help. I would rather not post them on the message board tho, but Im sure we could suss something out. take care.
1548. bumping
...
1549. That's wierd Chirpy - I wonder why they don't want
one? Unfortunately these friends of the family live out of Auckland (middle of North Island actually) so I guess that's out, which is a shame. You've reminded me though to press my s-i-l about them, see if I can call them now. Fingers crossed for that... Thanks for popping in, you're welcome to lurk or post in here anytime (of course!), the more the merrier ;o)
soniat-d (153 ) 8:37
pm, 24 May
1550.
Hi Bogeyi
How are things with you and your beautiful family tonight?
soniat-d (153 ) 8:37
pm, 24 May
1551. doing ok thanks sonia
i hate being sick. How are your beautiful girls.
1552.
They're great thanks
Emilys moving from pull-ups to panties and doing superbly, another easy toilet-train (touch wood) don't know why I dreaded it so much LOL. We all had sore throats past few days but everyone seems to be coming right, thank goodness. Wish the rain would stop, the lakes in the park have burst the banks - no painting opportunities for me :o/!!! Time to start listing a few items on TM instead me thinks!
soniat-d (153 ) 8:44
pm, 24 May
1553. Wow what a busy place this has been tonight....
lots of new posts - thats great. Must be bug time again I was thinking reading all that! Hope you feel better real soon bogeyi. Not much fun when Mums sick as well is it. And you too Paula, just keep away from the bugs please, and Landylass. We have Lauren here with a very mild cold which is getting betterafter only 2 days, so hopefully it has found our home too inhospitable to stay. I dont want it now or later. Did I tell you I was told NO to having a flu injection this year! They don't want it interfering with the treatment.
joystik (281 ) 8:57
pm, 24 May
1554. Looks like the rain is heading down south...
and is going to put a stop to our great run of golden weather. Today was stunning but that was specially put on for our Star of Southland, JOSH!! You rock Josh!! Your pic are beautiful, you smiley little chappy!! Bet you are looking forward to your fishing trip. Who knows, we might see you out there!!. Lots of love and hugs to you kiddo!!
joystik (281 ) 9:03
pm, 24 May
1555. Thats strange about the Cancer Society Churpy??
I have found them to be just brilliant down here. My support person Anita, phones up at random just to see that I'm ok and if I have any questions that I need answers for etc. They have been exceptional. Maybe there is another branch you could try. I think thats pretty mean to tell you to form your own group!! I'll send you some big warm hugs from Southland, and hope that make you feel better. xxx
joystik (281 ) 9:12
pm, 24 May
1556. How old is Emily, Sonia? Shes doing pretty well
at toilet training isnt she?? Lauren was good too but I think the less fuss you make the sooner they seem to come to it in a way. They will only do it when they are ready anyway. Did you get your lovely picture hung up in a nice spot??
joystik (281 ) 9:15
pm, 24 May
1557. She turned 3 in March so she was a late starter!
And while going through chemo, I couldn't be bothered with the hastle of "Quick quick I have to go NOW!" so I didn't try ;o) So I started her a year later than Lydia, but same learning pattern, and quickly dry most nights too (even though she still has a bottle b4 bed!?! Lucky me :o) (Touching wood the whole time LOL)
soniat-d (153 ) 9:35
pm, 24 May
1558. Thats great Sonia, the less drama the better.....
really I'd say. Righto off to bed for me after a busy day. Haveto make some Lycra bike pants for a lady tomorrow so better get to bed early so I am organised. Love and hugs to you all. Sleep tight xxxx
joystik (281 ) 9:42
pm, 24 May
1559.
Hey Churpy
(Hopes you're still there) I just had a thought. Wherever your husband goes/has gone for treatment like Oncology/Radiation ward etc) put up an A4 flyer on the notice board saying "Brain Tumor Support Group" in big writing and tear off tabs with your phone number underneath. I've seen them in our Radiation ward and the tabs slowly disappear. Just a thought, though it does mean organising it yourself...
soniat-d (153 ) 9:44
pm, 24 May
1560. 'Night joystik
Lycra pants? That's interesting ;o)
soniat-d (153 ) 9:45
pm, 24 May
1561. Hi Joystik
I too have a support person ring religiously every 2 weeks, she is wonderful. In regards to the BT Support group meetings, they didnt want one for a number of reasons. The main one being funds to have a counsellor in with all of us. The other being, with brain tumors being so fatal, it would be hard of the rest of the group if one person passed away.
1562. Hi Sonia
that is a good point. However my hubby hasnt had his biopsy yet, we are on the "waiting list". Once the biopsy is dont they will no the make and model of the tumor, therefore they will no what chemo or radio to give. I will definately remember that once the treatment starts. many thanks for the thought.
1563. 
Yikes
Thats no good! Aww Chirpy have a chat with us about whatever you feel, the cancers may be different but the feelings are much the same. ((((((((Big hugs)))))))
soniat-d (153 ) 9:54
pm, 24 May
1564. Hey no worries :o)
So its early days then. All I can say is, hey Radiation is pretty impressive on the cancer I have, so have faith in that if its offered. So how long's the waiting list? I'd really push to get that biopsy done - rattle cages! They may SAY its a slow growing one, but best get that confirmed ASAP. The biopsy will tell I'd imagine.
soniat-d (153 ) 9:59
pm, 24 May
1565. Gosh, I have been out this afternoon and this
place has gone mad. Joshi how lovely you look and your mum I am sitting here with tears in my eyes you are just beautiful. Good luck with your fishing trip. We have a 15 year old two doors down who has a brain tumour they operated on it about 4 years ago but sadly it is growing again and he has to have radiation. It is benign so that is a plus I guess.
1566.
Hi Boop 2 - yes its been an interesting day!
I'm supposed to be sorting out this study - not much getting done! LOL Nice to meet new people here - wish it wasn't for this reason of course...
soniat-d (153 ) 10:04
pm, 24 May
1567. Paula I just can't believe how kind
and generous you are with everyone when you are going through so much it is so heart warming in here because they are real people with troubles of their own but still have time for others. Do you understand what I am trying to say? Love and Hugs to you all.
1568. Sonia
where his tumor is, is on the front left lobe which is his communication. They dont want to debulk as there is a huge risk of a bleed, therefore his communication will be affected horrificly and a specialist does not want this to happen. We have had our MRIs publicly. However the last mri (public) was in feb. The appointment for the rsults for this is JUNE!!! We were mortified. So we went private to discuss the results. The long and short of it is that since his symptoms at the mo are manageable he should just stay on the public list which is 6-12 months. IF his symptoms get worse during this time we will go private. $20,000 for a 2 hour op, but we have medical insuranace thank goodness. I really want to no what type of tumor it is so they can zap the bloody thing. we have got 2 very young children so that keeps us very positive and busy.
churpy (131 ) 10:08
pm, 24 May
1569. Hey Chirpy
The Cancer Society should have offered you counselling through them - did they do that? I've twice just turned up on their doorstep and both times they've taken me in to talk to nurses and counsellors straight away - 1/2 hour talks easy. Now I have an allocated counsellor (booked hour-long sessions for free) and she's great. Also a nurse should be allocated to you to check on your husband and see how he's doing through all this once operations and treatments commence.
soniat-d (153 ) 10:08
pm, 24 May
1570. Yes
we do have anurse ring us religiously every 2 weeks, she is wonderful, just a great support. We have been to counselling which has been fantastic, we see Lucy and think she is awesome.
churpy (131 ) 10:11
pm, 24 May
1571. How good's your health insurance Churpy?
How much of bill would you foot yourself? Glad you're taking the initiative and going private for quicker answers. I can understand the precariousness of the situation of it - debulking is cutting it away isn't it? Would you like to talk with our friend with the BT? I could see if they're interested. Would be a toll call though, but sounds like you're in very similar situations.
soniat-d (153 ) 10:12
pm, 24 May
1572. We have regular care
southern cross. So would still end up paying between $7000-8000. Hubby is only 29. how old is your friend? If they need someone to talk to I am more than willing to talk to them. One thing we have learned is that talking to people in similar situations helps emmensly. How are you going Sonia. I have just strted reading through ALL the pages here :) You are a very positive and brave woman, and sound like a wonderful women, mum and wife. Your girls sound beautiful. We have 2 boys 2 and 9 months. We love them to bits :)
churpy (131 ) 10:25
pm, 24 May
1573. Hi churpy
you are so right about sonia she is amazing. Good to have you in here they are so nice.
1574. Wow Churpy he is so young
Don't know Marshall's exact age, but Helen is close to my age so 37/38 and Marshall is about the same. They have 2 boys close in age, eldest about 4.5 and youngest about 3. Gorgeous boys. I'll ask my s-i-l tomorrow to see if they'd like to talk with you, I agree its best to talk with people in the same situations and yours are very similar, and he's only a month or two ahead of you in all of this. They're going through the public system - have no health insurance. If you check post 177 on page 4 thats my website, you could work out how to contact me in there... talk to you again later ;o)
soniat-d (153 ) 12:18
am, 25 May
1575. I'd better get to bed soon eh ;o)
Been up watching this season's grand finale of Desperate Housewives *yawn* was pretty good :o)
soniat-d (153 ) 12:21
am, 25 May
1576.
So for tomorrow...(I'll be away all morning again)
:o)...
soniat-d (153 ) 12:23
am, 25 May
1577. Hi Landylass
Hope the loogies are being kept away from you. So is this next chemo going to be the last one? Did I read that right?! :o)
soniat-d (153 ) 12:23
am, 25 May
1578.
Hi Paula
So how did Ryan sleep last night? I'm so happy for him :o)
soniat-d (153 ) 12:26
am, 25 May
1579.
Hi Twinkies, Catatonic and Churpy
Thanks for popping in, hope you come back sometime soon :o) Good luck with the sewing Joystik, hope I haven't forgotten anyone - off to bed now..... zzzzzz
soniat-d (153 ) 12:29
am, 25 May
1580. Good morning everyone....its soooo frosty here...
but a beautiful day coming up, already lovely and sunny. Must have a shower, then fly about and do the house work and then off to Riverton for a walk on the beach and lunch. Hope you all have a great day doing whatever you are doing. Will talk again later. Bye for now....xxxx
joystik (281 ) 8:47
am, 25 May
1581. Goodmorning everyone,
I hope you all have a good day. Sonia what a gorgeous website!! Your daughters look adorable. My 2yr old wasnt adorable this morning and woke at 5am rearing to go for some reason, so then mr 9 months woke up too!! I find it hard when this happens as hubby needs all the sleep he can get so I do most of it. Do your meds that you take make you tired?Hubbys body has adjusted well but to start off with he was totally zonked out.
1582.
Goodmorning everyone
You are all so special!!!! I have Joshi home with a cold and a really BAD infected toe AGAIN :O( Darn it. Just waiting for his nurse to start this morning and I will phone her. Thanks Boop2 for your amazing words, we are all in this together, this thread has helped me more than anyone will know. Not having any family near is so hard some days but now I just get on here and there you all are. I dont feel so alone anymore. so THANKS!!!! Sonia you are such an amazing mum, with all you are going through you are so COOL, the kinda mum anyone would be proud to have! What a role model. Hi Joystik, thinking of you with love as always, will definately let you know when the fishing trip is sussed, Joshi is so excited. You are so thoughtful and no YOU ROCK!!!!:o) Hope everyone is hanging in there and having a good day, sun is shining here, but very frosty this morning Jack was very busy last night he must of got stuck I think. lots of love to everyone xxxxxxxxxxx
1583.
bogeyi
Sending lots of good positive thoughts your way. Hope today is a better day for you. i really hope you are feeling better. xxYou are another awesome mum, hang in there!
1584.
Sonia
Took Joshi a while to get off to sleep, he is planning it all in his head. Have a lovely day with that beautiful family of yours. xx
1585. Hey everyone
I have read some of this long thread, and wanted to say how AMAZING and STRONG you all are. Life is hard enough with kiddies but to be diagnosed with cancer is even harder. My grandfather died of a brain tumor last october, was very sad, i only wished my nana had the support you all have with each other. goidd luck on all of your journeys. xxx
kewlkiwi (42 ) 9:17
am, 25 May
1586.
sonia grand finale
of desperate housewives when was that on grrrr did i miss something!! well today is the day that i have my biopsy and i have till 1.30 to wait ohhh it will be over today well i really hope it will be over anyway hope you girls have a wonderful day hugs xx
pomegal (91 ) 10:06
am, 25 May
1587. good luck pomegal
I wish you all the best.A big hug to you. Hi Paula and Joshi have a good day. Josh,I like nothing better that to feel a fish on my line my husband caught 3 snapper out here awhile ago and didn't stop beaming for a week. Hi joystick enjoy your walk in the sunshine. Hi sonia love to you and your family . Have you finished your heavy doses yet? Love to sonyai and Ryan the poor wee man.
1588.
Hi everyone just here for a few minutes
Had the wackiest morning - Lydia woke up complaining her legs and shoulders were sore (as she can overplay things we weren't sure if it was something serious or not) so all running late, go to my car after Brents left with the girls and battery is dead! Call parents-in-law not home, neighbours out, you get the idea - 40 mins to radiation appointment panick panick! Managed to sort it all in end, delay appointment, AA came started car, took into Coutts and got lovely loan car - all sorted! Phew! Just called school and Lydia's not right, so off to collect her. May be a while therefore till I get back. Hugs to you all till later ;o) xxx
soniat-d (153 ) 11:18
am, 25 May
1589. sonia if it dosent rain it pours
hope lydia is feeling better soon, hello paula,joystik,landylass,boop and everyone else. Appointment went ok bloods have stayed almost the same so they seem pretty happy,platelets 22 so we have to watch him closely and hopefully he can hold out to monday for a transfusion, other than this we are doing ok.Paula hope josh feels better soon was thinking if the boys want to email each other sometime could be quite cool for them if he wants to my email addy is on his site www.caringbridge.org/ak/ryan at the bottom.
bogeyi (482 ) 12:42
pm, 25 May
1590.
That would be cool for them to talk to each
other bogeyi - glad his bloods are looking better :o) Yay!!!
soniat-d (153 ) 1:57
pm, 25 May
1591. Lydia seems to be improving
Growing pains maybe, never heard of them till now so I'm dubious - taking her to docs this afternoon - they're both sleeping now :o)
soniat-d (153 ) 1:59
pm, 25 May
1592.
Sonia
Hope Lydia is ok, poor wee lamb its hard when they are hurting.Let us know what the Doc says. Just got back from the hospital only takes an hour to get there, walked in they checked his toe, lanced it took a sample then we left. I started the antibiotics again last nite cos I could see it was flaring up, poor kid only stopped the last lot 3 days ago.Hope this time it clears it up. Good luck at the docs, hope she is feeling better real soon. xx
1593.
bogeyi
What a great idea. I will tell Josh and when he's feeling better, we'll get onto that. Hows your flu? Wow, his platelets are low, your poor things its hard waiting. Take it easy, thinking of you.
1594. Gee growing pains aye! I remember having them
when I was little, or at least being told thats what it was. Always aching legs, that made me cry at night. My dear mummy would come in to me and give me a wee white pill in a teaspoon full of raspberry jam!! I can still remember that, and that has to be 37 or so years ago. So how come I can't remember what happened yesterday??? Hope Lydia is soon back to her cheery self again. Cars can be a pain and let you down right at the wrong time aye. We didn't go to Riverton. It came over quite cloudy and got rather cold so we have tucked outselves in here until the next sunny day. I have bike shorts to make anyway....so off I go to do them right now.
joystik (281 ) 2:11
pm, 25 May
1595.
Hi Churpy :o)
Hope you've recovered from the early start, not what you need eh?! I feel for you, I felt bad back in the chemo days when I was asking Brent to go get the girls up, give them breakfast... poor guy did it without complaint. This whole thing is just as hard (if not harder) on the partner. With us, everyones always asking how I am, but very rarely how Brent is - I ask him but he always answers "fine", "OK" "good", etc I don't think he's being honest quite frankly but it seems he doesn't want to burden me. It's hard alright. As for the tiredness, what kind of meds is he on? Are they chemo-type ones? With chemo yes I definately felt tired at first but seemed to get better with it as I adjusted. Chemo has a cumulative effect though, so after the initial low, I felt pretty good, but after each treatment things pulled me down a bit more each time. But each chemo's so different. His tiredness could also be from his own body combatting the tumor, or the pressure on his brain maybe, have you asked the nurse about it? Ne
soniat-d (153 ) 2:11
pm, 25 May
1596.
Cont'd...
... Never be afraid to ask questions, no matter how silly they sound. You have the right to be aware of what is going on, helps to determine what sysmptoms are OK vs warning signs, you know? I didn't ask enough questions, or probe enough. Am now!
soniat-d (153 ) 2:11
pm, 25 May
1597.
Hi all, really want to keep talking
but the fine weather's beckoning me to get back to that painting (gotta keep moving, want to get fitness up so I can get back to exercise as soon as my skin has healed, which it is doing very well :o)! Back later ;o)
soniat-d (153 ) 2:14
pm, 25 May
1598. Hi Paula and Bogeyi, hope your boys are having a
good day. Sorry to hear about the low bloods bogeyi. Hope it all gets sorted without too much intervention. Hes a very brave young man, your Ryan. And your Josh too Paula. He's got more than enough without sore toes again. Hopefully it can be sorted quite quickly too. All these thing that are normally rather minor, become just the opposite once there are bigger things involved dont they. Hugs to you both and the boys too. Wicked frost here too Paula. As it was thawing, it was dripping out of the big gum trees like rain, sounded amazing. Cold and cloudy now.
joystik (281 ) 2:15
pm, 25 May
1599. Hi churpy, kewlkiwi,pomegal and boop, hope you are
all having a kool day doing things. Bit of an early start for you churpy!! Our next door neighbours go to wrk at about 5 or 5.30 and quite often wake us up with there vehicles. Its like the middle of the night to me. Just lately though , since I've been having to sleep on my back, I've been getting up about then for a stretch and a wee walk about. Sorry to hear about your Grandad Kewlkiwi. Always sad when things like that happen at any age. The support in here is tremendous. I dont have any family where I live either, but have so many really good friends on here now, I just don't know where I would be without them all. Hugs to you all..xxxxx Hope your Biopsy has gone well pomegal.
joystik (281 ) 2:22
pm, 25 May
1600.
And another hundred!!
.....
joystik (281 ) 2:22
pm, 25 May
1602. Hi Joystik
Just popped my head outside for a minute and its 3 degrees. Brr, thinking of you. xx
1603. twinkies hopefully they come today
one of the worst bits waiting. Paula where do you live, is it snowing or just cold/freezing.
1604.
What a bloody
nice thread this is. Im so glad i posted. Thanx for all the kind words sonia and joystick. My boys are having aBIG sleep at the moment. Sonia I can sympathise with your husband when you ask if he is ok. As a caregiver you dont want any extra burden on them, as you want your lovesd one to focus on getting better. There have been times when I wish people especially some of hubbies side would ask me how I was. But I have learnt to get on with life and put my energies into him. Our wee baby caught viral memngitis 3 months to the day that hubby got diagnosed. I nearly lost the plot then and just wished they would ask how I was. I feel this has made me stronger as a person and no one can surprise me with anything now. The mengitis experience hit us for a six but it made us stronger and together we know we can get through anything.
1605. Churpy
Wow, you have and are going through so much. Keep your chin up. Hope you are having a good day.
1606.
bogeyi
I live about 10 mins out of Gore. Been here two years next week, time has gone quite fast. Chris just showed me a newspaper article of a darling girl from New Plymouth who passed away from ALL (the leukaemia) Joshi has, Im not trying to be a sad sack, just sometimes it hits home. Sad things are just so sad now. But thats life isnt it, youve been going treatment etc for how many years now???
1607. Those sort of things hit home when
you're looking the illness in the eye. Until Briyanna was diagnosed, I felt sorry for people with cancer, now I sympathise with them. Just goes to show how selfish humans can be until something terrible smacks them in the face.
twinkies_pn (0) 3:37 pm, 25 May
1608. Twinkies
I know what you mean.I was always sympathetic but now I have the compassion to go with it. So how is Briyanna doing? Do you go to Starship?
1609. Oh yes...you certainly get the BIG reality check
alright. Cancer has never been far away from me with my Mum dying at 48, both Grandads at 65 and 68, and lots of other relations, a school friend at 21, but its just something else when you have it yourself. You dont know how it feels til its you and then you just have so much empathy for others suffering the same thing. My heart is especially out there with the children who have to endure this MONSTER. But together we can do it...we can fight this and we will WIN. Love and hugs to you all.
joystik (281 ) 3:43
pm, 25 May
1610. Hey Paula, its 8 deg here so just a wee bit
warmer. But 23 inside so thats pretty cosy. You keep warm and keep Joshi warm too. Hugs to you too.
joystik (281 ) 3:45
pm, 25 May
1611. Thks Joystik
Im feeling a bit sad, (tear rolls down cheek) some days are just a bit hard. I know you know that,I think when your tired its worse. I had to have an x-ray on Monday cos I cant sleep at the moment I have a really sore shoulder. I dont know what Ive done, but my gp is referring me to a specialist.After trying, naprosyn, codeine, and panadol I now have tramadol and even tho I woke in pain last night I didnt stay awake so hope tonight I get a decent sleep and tomorrow will be a better day. Thanks for being there everyone
1612. She's chugging along.
Sometimes I think she is completely oblivious to everything thats going on. She gets very tired and grouchy. We're down at Wellington Hospital. Would love to be a starship though, have heard it is great. Where are you at with Joshi?
twinkies_pn (0) 4:05 pm, 25 May
1613. Twinkies
We are currently going through treatment at Invercargill hosp. Spent two months in Christchurch.Josh is getting most of his chemo at home from me, but there are still the monthly hospital visits and fortnightly bloods.Which we now can do at Gore so it is getting easier in that sense.
1614. You're brave doing it yourself.
I struggle understanding it all. Some of the info shoved at me goes right over my head. How long has Josh been fighting for?
twinkies_pn (0) 4:27 pm, 25 May
1615. Its ok
I have printed this spreadsheet and colour coded all the chemo, and all other drugs and what days etc so have got quite a handle on it now. Joshi was diagnosed in October last year. It seems so long ago some days and others like just yesterday its weird. With Josh's treatment its for 3 and a quarter years so we still have 2 and a half years to go. Whats the treatment path for your darling?
1616.
thanks ladies
i am back and still in one piece lol had the core biopsy which i wasnt expecting but the ladies and doctor were brilliant feel a bit better now just have to wait now 5 days for the results okies speak later hugs xxx
1617. pomegal
Hope the next 5 days go fast for you. Take care
1618.
Hi everyone just got back from docs
Will have to go cook dinner soon too #sigh# We have to watch Lydia overnight, possible bone infection (? never heard of that) apparently growing pains are only during the night. Her bones still sore. Its her right leg mainly. Hopefully it's nothing. Early blood test tomorrow if she has a bad night.
soniat-d (153 ) 5:37
pm, 25 May
1619. 
Wow another hundy done and dusted
while I was away! Amazing... hugs to all you lovely ladies :o)
soniat-d (153 ) 5:39
pm, 25 May
1620. Hi Paula
Oh, I soooo feel for Joshy with the toe :o( Poor wee man, its just not what he needs right now. Sure hope the antibiotics work. Sorry too to hear about your shoulder, that does NOT help does it?! Bummer about the family not being near - here I am feeling sorry for myself that my mum's flown the coop, actually I'm over that now! Sure sounds cold where you are brrrrrr. Have you got good heating in your home I hope???? (((((((hugs to you and family)))))))
soniat-d (153 ) 5:46
pm, 25 May
1621.
Oh and I know what you mean about
how good it is having this thread, it is SOO keeping me sane at the moment! Yay for all of you! Coming in here certainly removes the cabin-fever feeling when no-one visits day after day. Our friends are dropping by the kerbside left right and centre... Sometimes I think that's the worst part of all this, the friends I thought would stick with me through anything (as they have in the past) just can't cope with the big C :o/!!!
soniat-d (153 ) 5:50
pm, 25 May
1622. Twinkies I've been thinking of you too today
Its a shame the results aren't in yet, but I was surprised when you said they were expecting them today - usually it is a good 2 days was my experience anyway. ((((Huggs)))) sweetie. I'm still visualising positive results - hoping they'll become the real thing tomorrow ;o)
soniat-d (153 ) 5:52
pm, 25 May
1623.
GOOD LUCK Pomegal
Try and distract yourself as you await the results, what will be will be ;o) No worries :o) Also, no news is good news with biopsies - the longer the wait, the better ;o)
soniat-d (153 ) 5:54
pm, 25 May
1624.
Hi Joystik :o)
Sounds like you're having a good, albeit frosty day! The frost sounding like rain sounds cool :o) OK gotta gotta go, back later hopefully ;o) Sorry to those I haven't responded to yoet - I WILL get there!?!!
soniat-d (153 ) 6:03
pm, 25 May
1625. twinkies i go to starship with my son Ryan
he was diagnosed in 2002 with a rare blood disorder, in 2005 he had his transplant and all went well, in the last 6 weeks we have had a major hiccup and hes lost most of his graft, now we are waiting to see if its another transplant. You soon understand all the lingo and terribly long words and medication it will soon become second nature.
1626. sonia re the bone infection
i remember when ryan was little he stopped walking and we had to go to starship to rule out an infection in the bone, as it can be serious.Hope she better soon.
1627. Sonia
Do hope you have a good night with Lydia, and tomorrow she is feeling better.Yes this place has become my surrogate family, I feel heaps better about things this evening, just writing down that you feel grotty helps, I think because its acknowledged then you carry on a little lighter, I dunno.?? :o) Anyway thanks for starting this thread. Take care,be thinking of you tonight. Let us know how Lydia is tomorrow
1628. oh sonia
let's hope Lydia is okay I know my boys had growing pains. Hugs for Lydia, Sonia, Emily and Brent. Hi Paula and Joshi and bogeyi and Ryan I do get the names mixed up at times but hey I know who I mean.Hugs for twinkies and pomegal we are all with you. Hi joystick not such a bad day here. Finish at the op shop tomorrow after 7 1/2 years will miss it like hell only cause I am moving else I would be there otherwise.
1629.
Hi boop2 and everyone
Hey I can relate to how you're feeling leaving the job you love - I had to do the same when heavily pg with Lydia and man it was hard - I thought I was returning in a year which made it easier, but then found out being a mum was just TOO great to do part time ;o) Lydia is a lot happier and moving better on the leg, so hopefully it was just a "thing". Yes, I was told how serious bone infections are so we'll be on our toes tonight!!!
soniat-d (153 ) 8:03
pm, 25 May
1630.
Hi Pomegal
Don't fret - the DH finale was in the States - we're waaaay behind here. We were loving it so much a while back we couldn't wait a week for the next episode so we downloaded all the upcoming episodes from the States. Did the same with Grey's anatomy. Now both series have ended so we suddenly have nothing to watch LOL
soniat-d (153 ) 8:05
pm, 25 May
1631. I hope you wont mind me popping in
I used to work for a Doctor who at the age of 23 was told he had stomach cancer and was only given 6 months...I worked for him for 7 years and he died just before he turned 90 ! He survived by eating a raw diet and he swore that eating a handful of different types of nuts every day would lengthen a persons life by 7 years. Hope this gives hope to someone.
1632. Herika
You should start a natural therapies thread. Do you know anymore?
1633.
Hi Joystik :o)
The car's still at the doctors LOL - so typical of it really. It seems the more bells and whistles a car has, the more problems it has too! Wosrt one was a bout a year back it just started lost all its power (spasmodically of course) so I'd be cruising along the motorway and suddenly hit a slow rise and speed dropped to about 40kms, no matter what I did with accelerator pedal - felt like such a tosser driving along like that :o/!!! Turned out to be a clogged filter or something... Sometimes I wish I had my faithful Honda back ;o)
soniat-d (153 ) 8:10
pm, 25 May
1634. No no, please post in here! I like to hear all
this stuff and have no time to look in any other threads now ;o) Thanks for letting us know Herika! All this info is going into my melting pot. Have changed diet pretty radically already, not that it was bad to begin with ;o)
soniat-d (153 ) 8:12
pm, 25 May
1635.
Hi Sands7
:o)
soniat-d (153 ) 8:12
pm, 25 May
1636. Hey Kewlkiwi
Thanks for your post too, very nice of you to pop in and say all those nice things :o)
soniat-d (153 ) 8:13
pm, 25 May
1637. just had a call from a friend to say ryan
is in the local newpaper again, now have to hunt some copies down we dont have a delivery person at the moment seems they go through alot of kids.
1638.
Hi Twinkies
re 1607, oh how true! I was the same! Guess its human nature that everyone thinks it won't happen to them or their family. If only!
soniat-d (153 ) 8:16
pm, 25 May
1639. Hi Sonia
Sorry haven't caught up on your posts for a while. Hope you're feeling a lot better. How's it going - sorry too lazy to read all the posts since last time. I've got to go and have a colposcopy soon. GREAT! Just when heard Sis and Dad have cancer.
1640. Hi Sands7
Yes someone asked me about where I was with radiation but can't find the thread. Status is first 20 treatments completed. Over halfway through this next round on area above previously treated area (and extra little blast from behind my shoulder). Last Monday I had my last of 5 mega-blasts on the big lumps and the lumps seem to be shrinking like mad! Certainly feels that way, so that's exciting! My skin got very burnt, particularly in mega-blast zone, so piling on aqeuous cream like cake icing and putting huge gauze pad over it all and leaving on for hours. Its working magic, healing very well :o) That's current status ;o)
soniat-d (153 ) 8:21
pm, 25 May
1641. How exciting bogeyi!
Have you called the paper? Usually you can pop in to their office and collect copies, or they may even send them out to you. (You probably know that of course, just checking!) Any chance you can scan it in so we can all see it?!
soniat-d (153 ) 8:24
pm, 25 May
1642.
OMG Look at the time!
Gotta get girls in bed! Bye now :o)
soniat-d (153 ) 8:25
pm, 25 May
1643. This is just the busiest place tonight....Hello...
everyone. It has been rather an eventful day right round the country hasn't it. Poor wee Lydia, I do hope she has a good sleep and is feeling much better in the morning. Dear wee girl, she doesn't need stuff wrong too. Sorry you are feeling on top of the world either Paula..Hope you have a better sleep tonight and your shoulder is feeling a whole lot better tomorrow. Want my codiene?? The sent me home from hospital with a bottle full of it and I havent taken one, or anything else either. Maybe the xray will show something out of place. Hope you've got the fire stoked up - looks like a bit of wet weather for a few days now. Oh well nearly winter now, and then it will be spring again...I cant wait, I love spring time.
joystik (281 ) 8:25
pm, 25 May
1644. Bogeyi, thats so neat having Ryan in the paper..
Ask all the neighbours for their copy. Most people just poke the paper into the rubbish bin once they have read it anyway. Its exciting when your child features in the paper. Lauren was photographed at Intermediate, when 4 in the class made wooden blocks in their art class, died them all pretty colours, and then donated them to the local childcare centres for christmas. I was such a proud mummy. Hopeyou are feeling better tonight bogeyi, and Ruan too. Hugs to your family.
joystik (281 ) 8:31
pm, 25 May
1645. Sorry you have been having a sad day Paula.....
I was a bit like that this morning, after the weather turned cold and we decided not to go to Riverton. I sort of became a bit depressed about the whole thing and started the brain in overtime about what the treatment will be like and how sick I may or may not be, and the no hair thing etc, and on it went. It funny what your mind does if you let just a tiny bit of negativity in. Anyway, I snapped out of it quick when the courier arrived up with a most beautiful gift basket from my favoutite brother and sister-in-law in Nelson.It was full of hand mad choccies,fudge, perfume, hand and body lotion, bath bombs, foot things, just lots of very special things from a very special part of my family. So, you see I wasn't alone at all, someone was thinking about me. But I know, there are times when its sad.
joystik (281 ) 8:42
pm, 25 May
1646. joystik what a lovely thought
i have just looked at your profile where the heck is that....i know i know i feel stupid asking, dont forget to add nth or sth island so i dont have to embarass myself anymore.lol
1647. joystick I was talking to a
lady in this street yesterday who is selling up and moving to Riverton where ever it is. What a lovely surprise getting all those goodies.Hope everyone has a goodnight.
1648.
Hi All
Lydia's
temperature is normal
and she started twirling around on her supposedly bad leg before bed, so I'm not too worried ;o)
soniat-d (153 ) 9:24
pm, 25 May
1649. good news sonia
...
1650.
Sounds like the courier picked the right day
to turn up with the goodies Joystik :o) Try not to worry too much about what's ahead, just deal with each step as it comes, I for one was pleasantly surprised at how fun and non-worrying/sickening the actual treatment was, truly! When's your LGFB course again? Anyway, guess what, my pretty bad start to the day got turned around when a parcel arrived in my letterbox too ;o) Thanks you sooo much Joystik, thats so nice of you, wow, fantastic! So did you buy that $5 book about phospherous etc. Is it worth the moeny? Also wondering if you've seen and breast cancer success stories with the CAA - out of idle curiousity? ;o) But hey, what a very pleasant surprise, and what a lovely gesture - thank you!!! ((((((hugs))))) xxx
soniat-d (153 ) 9:31
pm, 25 May
1651.
Sure is Bogeyi
I so feel for you with what you're dealing with. May the tide turn soon for you and Paula and your darling boys :o) Well, our house looks like a tornado went through it, so better go get it sorted #sigh#. Hope you're all having a nice evening :o) Hope you're feeling better too Paula ;o)
soniat-d (153 ) 9:34
pm, 25 May
1652. Good morning :o)
Lydia seems fine this morning - yay!
soniat-d (153 ) 7:48
am, 26 May
1653.
Good morning Sonia
I am so pleased that Lydia's better. Thanks for your understanding with my little head spin yesterday. I am feeling a whole lot better today. Be glad when i know what up with the shoulder. Hope you have a great day.
1654. Joystik
Its always the way here too when you feel like you are thousands of miles away from all who care someone sends something to say they are thinking of us. Yay, I am so glad you got some goodies.I am expecting something in the mail soon, some new slippers, calf skin, and possum. They should keep the tootsies toastie. Thanks for your support, hope you have a wonderful day Thanks for the offer of codeine, I hate taking any thing like this I was given some codeine too, but that didnt help only gave me something else to worry about (if you know what I mean). So just for now I will take the strong one at night just so I can sleep. Thanks though.x It will all be sorted soon enough. Its nothing compared to what all you fantastic ladies are going through. :O)
1655.
Hi bogeyi
Wishing you a better day today and thinking of you and Ryan.
1656. Good Morning everyone... pleased that Lydia's leg
is not causing you too much grief Sonia. You're more than welcome, for the wee parcel we sent. We bought the books and especially Percy Westons Book about him curing his wife of cancer using the CAA. It is most interesting. We are into giving anything a fair hearing, that might do good. I think its really the balance of the calcuim to phosphorus that is up for the consideration. Look at some foods and how un balanced they are?? Bit frightening really isnt it. Hope you have a great day Sonia, and they get your car going real soon. Talk again soon....
joystik (281 ) 9:05
am, 26 May
1657. Hi Paula, hope today is better for you too....
I feel great and its not so cold today, even though its raining. Sometimesyou need a rain to quit the frosts for a while dont you. Got my sewing done yesterday so I dont quite know what I will do today. Might do some revision on my Real Estate course, so hopefully I can do the contact assessment next week and then get my registration, and start working!! Hows Josh today?? How is toe is not picking on him too much. Give him a big cuddly hug from me. Hugs to you too Paula and wishing you a better day...
joystik (281 ) 9:10
am, 26 May
1658. morning joystil,sonia,paula,landylass
and everyone else. we are good today so we are going to do the unthinkable, hit the shops its been so long since we have been shopping. Paula hope you feel better and hope joshs toe is healing, got your email...thanks.. will get ryan to send an email to josh over the weekend.paula glad lydia is better, joystik had a giggle with the sewing word thats a swear word around here my mum cant believe i dont have a needle and thread..lol, my motto is if i cant buy it or my mum cant make it, we wont have it. have a good day ladies.
1659.
Joystik
Joshi is seemingly ok, I sent him off to school today with a huge note in his lunchbox - not to forget his medicine at lunchtime. He was still a wee bit snuffly but it hasnt amounted to anything and he really wanted to go. They know they just phone me anyway and I'd be there in a flash to get him. Is is a lot warmer here today, i just thought I'd check the temp gauge and its actually 5 degrees, that cracks me up thought it was so much warmer! But it does feel warmer. Anyway have a fab day everyone. Thinking of you.
1660.
bogeyi
Pleased to hear you are off to do a bit of retail therapy!!! Good on you. hope you get something nice for you!! Take care and thinking of you too.Love to Ryan
1661. YAY for shopping...I haven't done serious shopping
for such a long time. Think I will hold off now til the summer, and then it will be different styles. I think it seems warmer cos theres not all that white stuff lying about like there has been the last few days.. just checked the temp guage and its 8.7 outside and 22.4 inside. Wondered why I am getting round in just a tee shirt and no jersey. Heat pumps are not that expensive to run thank goodness. Our house is all electric heating anyway, so it doesnt matter what its costs...you have to be warm.
joystik (281 ) 10:00
am, 26 May
1662.
morning ladies
hope you are all having a better day today and yes joystik you have to be warm when you live where you do lol we use to have diesel central heating when we lived down there and it was brilliant, well my plaster has a wee bit of blood in it this morning but i slept ok, the mr kept cuddling me last night and telling me how much he loved me orrrrrr i didnt even click until i recieved a txt from his mum that he could be going through a bit of stress also with loosing his dad to cancer in january so i have been giving him lots of cuddles too. i was told i can take the dressing off today after it has been on 24 hrs and i dont want to lol i dont want to see it at all what a wuzz eh, well back to sorting out my miss 4 as she has come home from kindy with the sick bug! sonia hope you daughter is feeling better too
pomegal (91 ) 10:23
am, 26 May
1663.
Thats so true. You have to be Warm!
Chris was looking on the net today and saw a property in Edendale for sale and now i am starting to think, wow, we really are going to buy a place. Yay. Cant wait to have our own house. I dont care what its like, it doesnt have to be the best, just warm and a roof over. How exciting. 12 More pay days here and then off we go.The place he was looking at was 79 acres.We have been living in other people houses for over 10 years now and its time to settle for the children into their own home. :O). 12 months will fly.No more milking cows. Its been such a tie. We are going to take about 6 of our favourite girls with us though, they are lovely. Tee Hee
paulaxx (75 ) 10:25
am, 26 May
1664.
pomegal
Thats lovely to have the cuddles and love coming on in. It is hard for the guys. Chris has found it very hard at times with our Josh's diagnosis as he lost his mum to Cancer. Hope you daughter feels better soon, hang in there 4 days to go.
paulaxx (75 ) 10:28
am, 26 May
1665. Something to look forward to paula
hi everyone cold here today but like joystick house is nice and warm
1666. thanks paula
are you moving to edendale?? we use to live in waikaia down that way and i have a lovely friend who lives in wyndham that is a sharemilker lol where are you moving from?? and yes 4 days to go but hay i am not counting lol
pomegal (91 ) 10:37
am, 26 May
1667.
okies paula
just looked at your profile and see you are in gore orrr i did really like gore when we was there i found out i was pregnant with my youngest who is now 3 when i took the test in the toilets there lol
pomegal (91 ) 10:39
am, 26 May
1668. not too sure
Pomegal. We are sharemilkers living just out of Gore at the mo, hoping to buy some land before the end of this contract.
paulaxx (75 ) 10:40
am, 26 May
1669. LOL
about taking the test in the loo laa. You'll always Gore in the nicest way huh?
paulaxx (75 ) 10:41
am, 26 May
1670.
Remember
Whoops left out that word. You'll remember Gore! Runs out to splash water on face. To wake up!!!
paulaxx (75 ) 10:46
am, 26 May
1671. hehe paula
yes i do then me and my friend who still lives down there went to that nice cafe/bar on the corner for a celebration (decafe and cake) lol
pomegal (91 ) 11:10
am, 26 May
1672. Hi all.
We got the results of the xray, CT scan and a summary of the abdominal ultrasound this morning. The abdominal ultrasound showed that her remaining kidney, the site of the right kidney, and all other abdominal organs are currently clear of tumour. Unfortunately though we were told that the chest X-ray and CT scan show that the small tumours on her lungs had grown considerably since the last set of scans, and so the chemotherapy used so far is considered to have failed to stop the cancer. So now it's treated at recurrent wilms...
twinkies_pn (0) 11:29 am, 26 May
1673. cont'
On Monday we will return to Wellington hospital to meet with the surgeon who removed her kidney to discuss an operation (scheduled for Tuesday) to remove the biggest tumours from one of her lungs. Then when she's up to it will start the next round of chemo. I think im still in a bit of shock. I was really beginning to believe that we'd beat it. Guess not.
twinkies_pn (0) 11:32 am, 26 May
1674. Oh Twinkies
My heart goes out to you and your family. When you hear hard news like that, its so difficult to comprehend. We are thinking of you and will be here if you need us. Im so sorry. Kids are amazing, its not going to be easy but the sooner you start this next ordeal the sooner you are to beating it. Bless you and I send you some strength and love for the next tying time xxx
paulaxx (75 ) 11:36
am, 26 May
1675. Sorry Twinkies
I was trying to send you my message so fast I mistyped and meant to say this trying time. All the best, be thinking of you
paulaxx (75 ) 11:42
am, 26 May
1676.
Greetings ladies
Hey Paula that is good news about the house plans! I can still remember how excited I was when Brent agreed to look for a bigger (this) house, I was pg with Lydia at the time. First house we thought "oh no", second house, even worse and as we walked out onto street a real estate agent came out of the house next door and said it was about to go on the market, would we like to look at it? (This house ;o) Felt like I'd won lotto! Our friends thought it was "a dump" but we could see the potential and its certainly no dump now LOL! Fingers crossed it all falls into place for you :o)
soniat-d (153 ) 1:32
pm, 26 May
1677. hugs to you and
your family twinkys
1678. 
Hi Twinkies
Yikes its kind of a mix of really good and bad news isn't it?! The fact there were no new growths in the kidneys was very good wasn't it? It's good they can operate on the lungs, at least with wee kiddies their bodies can recover really quickly so hopefully it'll be fine and dandy! Hey at least after they're cut out, it seems that more don't regrow where they were, so I think that's a good long-term sign. Its a real shame she needs more surgery, fingers crossed it all goes well. Are any dates being planned yet? ((((((Huge hugs)))))) to you xxxx
soniat-d (153 ) 1:37
pm, 26 May
1679. Whoops Twinkies
Sorry missed the Tuesday date - we'll be thinking of you then. Its a real rollercoaster this monster isn't it? Words fail me really. Cancer sux - big time. ((((Hugs))))))
soniat-d (153 ) 1:39
pm, 26 May
1680. Hi Joystik
Its hopeless at working out whether the contents of foods are good or bad (tend to go by gut instinct - how natural is it?) so sounds like that book is a good idea for me. Thanks again. Car's still at the docs - something keeps draining the battery and they can't work out what - sounds like its going to be a big time bill :o/!!! Thanks goodness they gave us a loan car - the parking guy at the hospital this morning (who knows me well by now!) asked me "How many cars do you have?!" LOL It's the third one I arrived in in two weeks LOL
soniat-d (153 ) 1:44
pm, 26 May
1681. Ohhh twinkies...i feel so sad for you right now...
but hopefully you will be able to get things sorted and after more chemo, your little one will be good as new again. Funny how you go to these appointments with such a lot of hope that things will be just fine, and how quickly your hope turns to anxiety and sadness. I went into my histology appointment feeling great and hopeful that I wouldn't need chemo or radiotherapy, and came out flattened completely. I have told myself many times since though, that there are many people much worse off than me, and things for me could also be much worse. Just remember we are all here for you and your family and I will send you lots of hugs now...
joystik (281 ) 1:53
pm, 26 May
1682. We looked at houses at Edendale, Wyndham,
Mataura, Gore and here in Otautau before deciding to come here. The property in Edendale was on the main road and had about 5 acres from memory, but the house was pretty old. Main road put us off too, cos my beautiful abyssinian cat had been run over and killed in Oamaru. Also we had a really flash 2 story house in Oamaru with a beautiful sea view, and so most things we looked at were pretty much a come down after that. Once I got off my 'high horse', I realised that there were so many other things we could have and do if we didn't put heaps into just a house. Our home here is a basic 3 bedroom on 1/4 acre, but we bought a boat, and a bus to convert to a mobile home as well, so thats another project!! It is great moving into your own home though. You will just love it and its really something for you to look forward too. Hugs to the lovely boy, and his family too...
joystik (281 ) 2:00
pm, 26 May
1683. twinkies big hugs to you and your family
i so know what you are going through, you think you are doing so well and then there is a set back.This is a great place to vent or just talk.Be strong.
1684. Big hugs twinkies
this monster can be such a roller coaster ride. Mr14 and I both went to Doc today. He has had the flu 39.5 temp Wed night but on the mend and I started coughing yesterday. I have chemo next week and Doc decided to leave blood counts today as will have to get them done on Tuesday anyway... so just got to keep an eye on temp over weekend. Had plumbing nightmare last night.... posted in the other thread. Miss16 got the school formal tonight so just waiting on her to arrive home from hairdresser. Her big brothers are away to Dunedin tonight on a stag party pub crawl. Just hope they behave themselves!!! Stag party was a last minute change of plan from next weekend and left miss16 without her ride to the ball as big bro that was taking her is now disappearing. Grandad has saved the day rolling out his old 60's merc!
landylass (47 ) 2:57
pm, 26 May
1685. Paula it will be great for
you to have your own place that you can do what you like with. How exciting. One of stepsons just sold his house last night as he is moving to north island. Nothing more stressful than buying or selling!!!!
landylass (47 ) 2:59
pm, 26 May
1686. Hi landylass, that sickness thing is not too
good for you is it. Hopefully it will all blow over duing the weekend. Just take it easy and watch the Crusaders win the super 14!! Bet Miss 16 is looking forward to the ball tonight.. Its a huge occasion for them now days isnt it. Dont think such a fiss was made when I was there, but I went to a country High School and I dont think much of a fuss was made about anything in the country. Much more laid back. Just had a ring from Oncology. Have an appointment to see Dr Perez on June 6th, and she said he may want me to have a CT scan and a Bone Scan, so I was able to excitedly tell her that I'm having the CT scan next week.
joystik (281 ) 3:32
pm, 26 May
1687. She thought all going well with Dr Perez,
I may be starting the following week and will be on FEC chemotherapy. Dr Perez is from Dunedin. Have you come across him on your travels?? Sooner it gets started, the sooner it will be finished now, so Bring it on!! Have you got beautiful weather in Oamaru today?? Its been raining all day here,but it is a lot warmer than yesterday at 14 deg. Hugs to you landylass.
joystik (281 ) 3:35
pm, 26 May
1688. Hi pomegal, I had completely forgotten that you
had been a South Islander for some part of your life recently. How do you like living in the North afterbeing down here where everyone is soooo....friendly? We think its great and the people just wonderful. Hope you are feeling ok today. Its just the waiting bit thats a pain aye. They had my results the following day, but the outpatients clinic was full so I had to wait 4 days. I already new in my own mind what my rsults were going to be before I went in though. You know that 'gut' feeling you get?? Hugs to you...
joystik (281 ) 3:39
pm, 26 May
1689.
Hi everyone
Yes it is exciting, got to talk to the bank manager and accountant about our ideas, then we can really get out there and look. Bearing in mind that we stay near to the hospital for our boy. I am glad you are one step ahead of the oncologist by getting the scan done next week Joystik. Is the chemo that you ladies take i.v or oral. Or both? Just wondering. Hope you are all doing well this afternoon.
1690.
Hey Sonia
How are the girls this afternoon? No more sore bits for Lydia???
1691. paula what hospital does josh go to
....
1692. Landylass
Hope everyone in your household gets better real quick!! Seems winter bugs are here with a vengance!!! Take care.
1693.
Hi Bogeyi
Josh goes to Invercargill hosp. Otherwise known as Kew. How are you all doing???
1694. we are good thanks
do they have a seperate part for kids??? dont know how big the hospital is
1695. Wet and cold here today
Joystik. I have been under Dr Plaza, and saw Dr Chris Jackson I think his name was on Monday. I believe he is leaving shortly. Miss16 has just arrived home from hairdresser. Most girls putting hair up, mine wears it up all the time and just spent 2 hours getting it straightened! She is 7th form and last years formal it was long dress lots of curls etc. This year short dress and her and boyfriend and not even going to bother with the after party! Very laid back. I'm more concerned about what the 3 boys are getting upto on pub crawl in Dunedin tonight for stag party! Dad isn't going and might be a good thing!
landylass (47 ) 3:57
pm, 26 May
1696.
Well...
They have a paediatric ward and that is where we get most of our treatment and if we get admitted we go there. Its an hours drive away. The nurses that deal solely with the Cancer kids are lovely and they are called the Outreach nurses. When Josh had his port put in a surgeon comes over monthly from Christchurch, but most treatment can be done there.Initally you get sent to Christchurch, thats when we were first diagnosed we went for 2 months.
1697.
Landylass
Hope your daughter has a fantastic time tonight. Arriving in style in the old merc :O)
1698. cancer of the breast
Kia Kaha sonia, god bless
1699. Hi Paula :o)
Lydias absolutely fine - they're running around the house like mad - time to get them into bed!!! Sorry had hardly any time on the PC today - did all my ironing while Emily slept so I could relax and watch a movie tonight ;o)
soniat-d (153 ) 8:20
pm, 26 May
1700.
Wow!
Another hundee!!! Thanks everyone :o)
soniat-d (153 ) 8:20
pm, 26 May
1701. Awww Landylass
Thinking of Kylie having great fun tonight, driven in style :o) How exciting - hope to see my girls do that someday ;o)
soniat-d (153 ) 8:22
pm, 26 May
1702. Have been thinking of you alot Twinkies
Hope you're OK. ((((big hugs)))))
soniat-d (153 ) 8:23
pm, 26 May
1703. Evening
here are a couple of photos of Miss16 first one at last years formal with her mates that also went to Germany http://images.trademe.co.nz/photoserver/42/22060042_full.jpg she is in green; second one tonight http://images.trademe.co.nz/photoserver/20/22068920_full.jpg. She was so laid back about it this year!
landylass (47 ) 8:29
pm, 26 May
1704. joystik
we only lived there for 6 mths but i did really love it, it was through the winter of 02, yes the people were really lovely down there too, a little bit different to up north here lol
1705.
Sonia
Enjoy your movie and your evening. Off for an early one Nanite and best wishes xx
1706.
Landylass
You must be very proud. She looks gorgeous. Very happy, I hope she has a wonderful night.
1707.
I agree - Sie ist sehr huebsch!
Aww Landylass - glad to see her looking so happy :o) My mum always insisted on sewing my ball dresses and only finished them like 1 hour before I had to go and they never fitted properly etc. In my pics I was stressed and embarrassed :o/!!! Why oh why did she do that to me?! LOL Character building, that's for sure! Awww I can almost visualise her bopping away on the dance floor now :o) Very cool!
soniat-d (153 ) 8:44
pm, 26 May
1708. Hi all
sonia so glad lydia is well again. landylass your daughter looks lovely oh to be young again.Hi paula and joshi how are you both?
1709. omg this was on page 3 not good enough
bumping up.Landylass i hope your daughter had an awesome time.Good morning ladies, yucky day up here today.
1710. HI Bogeyi
Now I've got the lurgey!!! How are you, shken it? Josh seems to be better than me so thats good!!! Hows Ryan? Are the others back from holiday yet?
paulaxx (75 ) 10:10
am, 27 May
1711. Aw Paula these
bugs are really doing the rounds! Its wet and cold here today. Sun tried to shine but its going to rain again. Kids had a wicked time last night but gave the afterparty a miss interestingly. Haven't sighted or heard from the big brothers this morning. I am presuming their wives/girlfriends would have been concerned if they hadn't made it home last night! Must go get Miss16 out of bed as she has a netball team to coach and then her own game this morning. Keep warm everyone!
landylass (47 ) 10:25
am, 27 May
1712.
Landylass
You bet me to it, was just thinking about you and going to pop in and ask how it went for all last night. Glad they had a great night.Wonder if the guys are all feeling chipper??? Have a good day. Take care
paulaxx (75 ) 10:30
am, 27 May
1713. morning
a wet foggy day here today never mind have heaps to do.Look forward to the netball and rugby. Do Joshi and Ryan like the rugby?Come on Cruasders
1714. Hi Boop2
Joshi does like rugby but is not really that into it. He will be interested to hear the scores tho. Hope you have a lovely day
paulaxx (75 ) 11:48
am, 27 May
1715. boop same with ryan likes it but not into it
in a big way like some boys.Paula hope your feeling better soon, colds all gone now glad i got it worse than ryan as he didnt need that as well.Family came back on tuesday and had a blast thanks to nana and grandad.
