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1001. Gee this is getting big now isnt
it?????
just goes to show how many peopleout there are affected by the MONSTER!! Love and hugs to you all - whoever and wherever you all are xxxxxxoooooo
joystik (281 
) 7:20
pm, 12 May
1002. 
Amazing eh?!
I've never manged to get a thread of mine past a few hundred! Thanks everyone, means the world to me :o)
soniat-d (153 
) 7:37
pm, 12 May
1003. You and me both Sonia.......
wouldn't have dreamed there were so many people out there interested in giving and sharing the way people have on here.
joystik (281 ) 7:49
pm, 12 May
1004. 
*Slaps a big high five to Tishie* !!!
I didn't even know the "correct" name for a Thundy is LOL - I'm still a bit green around the gills when it comes to MB's LOL!
soniat-d (153 ) 8:24
pm, 12 May
1005.
Thanks Christine :o)
Its been getting a few hits today!
soniat-d (153 ) 8:31
pm, 12 May
1006. Poor Josh...
one of my step sons had that problem when he was 8-10. Had ongoing problems and ended up with both toenails being taken off after a couple of major clip backs. Was awful at the time but solved the problem permanently. The weren't certain they would grow back but they did and quite normal.
landylass (47 
) 9:07
pm, 12 May
1007. Evening ladies...
yeah still feeling a bit nausea tonight but better. Also got a good explanation from GP on Day 4 yuk. So glad I changed Drs! I am on quite high dose steroids and while on them your body stops making its own. When I stop them it takes a few hours for my body to start producing again hence the few hours of yuk! They are like anti inflamatories. This chemo is upsetting my digestive system and I guess it gets a go at it in the few hours I don't have the steroid in my system. Expecting the tired hubby home about 10.30. Hope I sleep tonight as he is going to be one tired boy! I had the cancer society lady turn up for a chat like 20 mins before my GP appointment so was a bugger having to rush her away. Have a good weekend everyone.
landylass (47 ) 9:12
pm, 12 May
1008. landylass I hope you feel better tomorrow
hugs to you.Poor wee josh's toes as if he hasn't enough please give him an xtra big hug from me today.Hi joystick continue feeling better hug for you too. Sonia so glad you had it a bit better today it is very cold here but with a nice fire going and a warm house not so bad and of course the crusaders winning adds to it. I had to work today at the local op shop but tomorrow I am determined to sit and read all your web site.
1009. 
Aww Landylass
Thats a bummer about the cancer society lady turning up late - mine used to do that sometimes too - I learned with her to book her in on days when I had nothing else planned. Even then she managed to turn up like yours half an hour before I had to collect Lydia from Kindy. Guess if person before us has lots to talk about it drags on. Did you manage to arrange another catch-up session? Your new doc sounds great - that's awesome. I wish I'd kept seeing my new local doctor through my chemo - think he'd have wanted to check out my hard (lumpy) area months ago - he's good like that :o)
soniat-d (153 ) 9:47
pm, 12 May
1010. 
Read ALL my website Boop2?!
That'll take you a while! LOL! Remember its chronological in reverse, so if you're going to read it all its best to start at the bottom and work up ;o) Feels wierd knowing so many of you guys are reading it! But thrilled you find it so interesting!
soniat-d (153 ) 9:49
pm, 12 May
1011. Yeah Sonia...
She said she would catch up with me this week but I didn't know when. She is sooo nice too. Like a spare mum as she is a older lady! Have a great weekend with the girls and good luck for your new blast next week.
landylass (47 ) 9:57
pm, 12 May
1012. Hope you are feeling much better tomorrow...
landylass. Not nice feeling yuk like that it is. Yes hubby will be tired - hes a had a few big days too hasn't he. Weekend now, so you will be able to catch up on sleep perhaps. Thanks for the hugs boop2, I got them. I feeled hugged all day, so I must be getting heaps from everyone!! Thats got to be a good thing. I'm off to bed now, feeling a bit tired again. Had a couple of people ring tonight from out of town, wanting to come and visit over the weekend, so I will have to be looking my best seeing as I have told them I am just fine and dandy!! Sleep Tite and hugs for everyone, especially Josh and Ryan. See you all tomorrow.
joystik (281 ) 10:07
pm, 12 May
1013. Good morning every one.......
gee look at the time!! I didn't wake up until 9.00, was really tired last night. Its a fine but cloudy day here so will have breakfast and go for a wee wander outside I think. hope you all have a good but not to busy day. See you all again soon....
joystik (281 ) 9:18
am, 13 May
1014. Morning Sonia & all the
other wonderful ladies in this thread. Wow, over 1000 posts!!! that is awesome! Wishing you all a fantastic weekend and strength to continue the fight. Take care, Cheers Claire
1015.
Hi Joystik ;o)
Yes we all slept in too - lovely! Brent is taking the girls out Mothers Day pressie shopping this morning, so I've got the morning free to do what I like! Have decided to go clothes shopping again (received heaps of Westfield vouchers for my birthday!). So I'll send the family to Glenfield, and I'll go to Takapuna ;o) Trouble with clothes shopping now is, the fashion is clearly plunging V necks and I simply can't wear those anymore, not only with the mastectomy but also the burn patches from the radiation - not a good look! Also, I've given up wearing the prosthesis for now (too sore on burns) which means tops can't be too floppy/clingy either?! So finding flattering (and remotely trendy!) tops is getting harder and harder to find *sigh*. In the scheme of things though... not a biggie is it?!
soniat-d (153 ) 9:51
am, 13 May
1016.
Thanks Claire
Yep this thread has helped me unbelievably - I so appreciate everyone who comes in here and posts :o) xxxxxooooo
soniat-d (153 ) 9:56
am, 13 May
1017.
Bumping
for all you strong lovely ppl... hjave just read the whole thread ( what a mission lol) and so glad everyone is being there for each other, and yet so sad that so many people have suffered or are suffering from the monster,be it themselves or others.... my dad has just went through this and the more support the better.. kia kaha guys...
1018. I've been keeping an eye on this too!
As I said a few pages ago, my brother and his son both have cancer and it is reassuring to see you all being so positive and brave. Bro finished his chemo - finally - yesterday and feels pretty low today but so glad that part is over. The wee guy finishes in September. Last week they had chemo together and sat and compared porto-caths. You have to laugh sometimes!
wasala (750 
) 10:51
am, 13 May
1019. Hi wasala...I have been thinking about your
2 boys since you posted on here, and wondered how they are doing. Nice to think that part of the treatment is over for your brother at least, and not too much longer for the little fella. I think when fighting this Monster, you have to be brave and especially positive. Sometimes its not that easy, but much better knowing that you aren't doing it on your own. Give the boys a big hug and tell them they are in our thoughts daily. Actually, hugs to you all.
joystik (281 ) 12:33
pm, 13 May
1020. Hi cole and chill....thanks so much for popping...
in to read this thread and offer your support. It means so much to us all in here. Don't they say that a problem shared is a problem halved?? I think that is so true. Hugs to you for showing you care too...
joystik (281 ) 12:35
pm, 13 May
1021. Hope the shopping has been a pleasant........
experience for you Sonia. I found last week, before I went into hospital, that most of the clothing was very fitted, with plunging necklines too. No exactly what I was looking for either!! At the time I was looking for baggy shirts that buttoned down the front and found none. All the shirts were very tailored and fitted. However the day was saved, when I had a look in the backest corner of the closet and found about 6 from when I was much bigger, and they have been perfect. I've got these soft prosthesis thingys down my top today, and I havent ever had boobies that small. Rather fascinating....there has to be a funny side to all this doesnt there. Ha ha ha...
joystik (281 ) 12:40
pm, 13 May
1022. Hi you guys
Joshi is now on 6 hourly antibiotics, not so much for him or me, waking him at 2.30 in the morning. But its all worth it!! I am so grateful for everyones comments and Josh was reassured to, it is a common ailment just one you dont need when dealing with "the monster". I wonder how Ryan is I do think of them often too. Love the additions to your site Sonia, you clever thing! hi Landylass and Joystik hope you are all feeling ok. Sonia I feel for you with the clothes selections, not fair when probably a bit of retail therapy is what one needs!!! Hope you found something nice. Josh is not too happy with life at the mo, but playing racing on the x-box with dad is kinda helping the mood lift. Take care and lots a love xxxxxxx
1023. See what lack of sleep duz
I meant not much fun for us!! LOL. Runs off to splash water on her chops and wake up xx
1024.
Hi everyone :o)
Had an pretty good shop thanks, managed to find a few things amongst all the "nope"s LOL! (2 tops, 1 skirt, flash pjs set from Sussan, earrings, socks (for inside my new boots :o) Its madness out there, glad to be home ;o) Still have some grocery shopping to do - hopefully the girls will be in the mood to go with me a bit later?!
soniat-d (153 ) 3:28
pm, 13 May
1025. 
Hi Paula, Josh and Family
Have been thinking about Josh heaps - I was wondering whether they could at least do the toenail corner cut thing now? I know that won't fix the infection, but just wondering. I had that first a few years before the big op and it did clear things up for a good few years. Man I feel for him (((((hugs for a brave young man)))))) xxx
soniat-d (153 ) 3:31
pm, 13 May
1026. sonia...if I lived near you I'd offer to go
shopping with you - you'd feel better about not finding much that you like....I have the same problem at the moment! It gets hard when you hit 30-ish....you don't want to wear the teenage fashions for fear of looking like a tragic old slapper but you can't bring yourself to buy anything remotely nana-ish either!! LOL! I haven't spent so little on clothes in my life as in the past 3 years. I used to goi clothes shopping every weekend, sometimes twice! Kids wrecked it for me - less money and a worse figure! Glad you managed to get yourself quite a bit :o)
1027. Hi Wasala
Is your brother down because hes just had the last treatment (ie he's ill)? Or is he past the end zone? It is scary when you've been having checks every 3 weeks (and in my case bloods every week) to nothing - like stepping out of a plane without a parachute really! I was in cloud 9 though thinking yay the chemos over, hopefully he'll get that too. Would be a real shame if he didn't as it really is something to be celebrated. Sending ((((hugs)))) to them, hope things improve soon :o)
soniat-d (153 ) 3:40
pm, 13 May
1028. The shopping trip sounds like a success......
Sonia. Glad you found a few things you like in amongst all the stuff that doesn't suit any more. With me, it has to be exactly right or its wrong and I just don't buy it. Some times my poor hubby sits and waits for me, and after several hours I return empty handed, or with more Plants for the garden, when I was supposed to be buying clothes.. Hope your grocery shopping is not to taxing. We have a small supervalue just up the raod and although it is considerably dearer than say Pak'n'save, it is far more convenient and is right here, so we support it 100%. Talk again later. You sound really happy, I'm pleased.
joystik (281 ) 3:41
pm, 13 May
1029. hiya soniat,paula,landylass and everyone else
paula we are doing ok still going to hospital 3 times a week,Ryan got platelets and blood on fri. Ryan should of been flying out to disneyland today for 15 days so feel sorry for him. Paula pity you guys arent closer ryan lives on his xbox for hours....what else can they do, he loves it would be great to have a xbox buddy i cant stand playing it to long.
1030. Ohhh, tishie, that all sounds rather tragic....
but I know what you mean. Everything I saw in the shops either looked like it was for those under 18 or those over 70 and there wasn't a great lot in between. Hopefully it will improve. And its all made for really skinny people, and that I am NOT!!. Hope you enjoy the rest of your day, and Mothers day tomorrow.
joystik (281 ) 3:44
pm, 13 May
1031.
Hi Tishie - yep that would be fun!!!
I can so relate, had that issue myself before this. Look at my figure in my wedding pics then look at me now - sad man, but hey, worse things.... I'm losing track of your due date - when is that again? My friend who's overdue still is, 4 cm dilated but no action, just intermittant labour pains then it stops. She's facing induction Tues/Weds if no more progress. Man they're frustrated, both their boys arrived before/on time!
soniat-d (153 ) 3:44
pm, 13 May
1032. Hi Paula, Josh and family......nice to see you
are up and running. Yes, pity we weren't a bit closer too, my daughter is in the bedroom with her friend playing the XBox. Theres always room for more people to pla it. She plays hers with very loud music going as well though, so you may not enjoy that so much. James Blunt at the moment I think!! Sorry Josh that life isn't treating you as good as it could be, but I'll send you some more hugs and hope that helps just a wee bit. Hi Bogeyi and Ryan, glad to see you are keeping on with the onwards and upwards thing too. I been thinking of you all too and will send more hugs off to you right now too. Love to you all.
joystik (281 ) 3:49
pm, 13 May
1033. hiya joystik i can relate to that
ryan got a surround sound in his room from make a wish foundation so he to plays the loud music (black eyed peas) with his xbox.
1034. Oh Bogeyi Poor Ryan
(Re the Disneylan thing). That sux man - is it delayed or cancelled?
soniat-d (153 ) 4:01
pm, 13 May
1035. Hi Sonia
He does feel awful ie. sick, headaches etc but I think you're right. It will be a kind of come-down thing too. It's a bit like after I had my last baby, I really missed my obstretition (sp!) for weeks. Have you been to Naturalwear at all? My aunt owns it and she knows everything there is to know about forms and prothesis. She might be able to find you a more comfy one! She is really lovely and outgoing and makes all her customers feel a million dollars!
1036. Hi Wasala
Small world eh? Yep Naturalwear is where I go for mine - its just because of the rash, the only way I'm really comfortable is when I'm wearing nothing but its too cold for that LOL!
soniat-d (153 ) 4:08
pm, 13 May
1037. sonia yes he can go but when hes well
was really hard he was over the moon to be chosen and then CRASH he got sick again.He is really amazing though my daughter would complain as she does but he said oh well at least i can go sometime...bless him hes so grown up for 8.
1038. Sonia I'm glad you've been there
She's Christine but you probably saw someone else. They're all very kind and caring!
1039. I'll say bogeyi
What a fantastic attitude for such a young man. He's star quality alright!
soniat-d (153 ) 4:45
pm, 13 May
1040.
hugs
you never get too many.
1041. Hi everyone
I have been trying to catch up on all the threads since I have been away. Trouble Is, by the time I got to the end I can't remember who said what!!! And I thought the chemobrain had been left behind in the dust! Oh well. So lovely to meet Landylass. Joystik, we went as far as Invercargill, but was there the day of your op. Felt you had enough on your plate. Funny, I thought about you all every day and wondered how you were all getting along. It has a strong pull, this message board. Hello to all the new ones who have joined in. Such sad stories but so good that you can share them on here. Straight back into work for me..busy,busy. One of my 'new'friends had a double mastectomy on Wed and is due home tomorrow. She is coping really well.Be interesting to see how she manages the drains once home.Having one was bad enough!
1042. sonia:
my caesarean is booked for Thurs 25/5, so only 12 days to go - 11 days really coz today is pretty much over. As long as there's not a rush on emergency caesars - otherwise I'll get bumped down the list (and quite rightly so). Still stuck on names, here's my list in no particular order: Jared, Mason, Hudson, Ryan, Kyan, Kian, Elijah, Aiden, Finn, Quinn, Micah, McKay, Jarrah, Ellery, Jed, Ezra, Xander, Xavier, Malachi, Todd BUT having said that, when I go back over the list a few days later I think "what was I thinking writing XXXX down? Yuck!" so it changes all the time! You can all give me your opinions if you like. The name has to work with Noble as the surname. No 'N' names because I'm not into alliteration for names and no 'B' names because the middle name will most likely be John after a friend who died 4 years ago and I don't want my son to have the initals BJ!! LOL!!
1043. bogeyi:
do you think having cancer makes kids more mature? I do. When my friend Toni had leukaemia (20 years ago) she was like a 11 year old with a 40yo mind. It was remarkable how her attitude to everything changed in the nine months she battled for. I guess having to go through something that major at any age is bound to affect you dramatically. When Ryan does eventually get to go to Disneyland he'll be able to think how if he'd gone in May it would all be over and just a memory instead of having it ahead of him :o) You must be so proud to have such an awesome young man as your son, I know I would be! :o)
1044. joystik & sonia...I struggle with the
clothes being for skinny chicks too!! I never used to. 10 years ago (before kids, I might add) I could walk into any shop grab a size 10 and look great in it. Now I grab a 10 - 12 because in my head I'm still that size and yet for some strange reason I can't wriggle into it in the dressing room!! LOL!! Funny how much a size 10 has shrunk in the past 10 years!! LOL!! I weighed 47kg when I was late teens/early 20's so I ate like a horse. Everyone said it would catch up with me because I'm no gym junkie and I just laughed their comments off - now who's laughing???!! I'm ignoring the fact I'm 36 weeks preggy atm, this is a problem I have when I not preggy!
1045. Hi again
Sonia, glad to hear you bought some nice bits, they have talked about doing the wedge thingy on Joshi's toes but wont do it while he is on treatment :o/ Guess its for a reason, that outweighs all these jolly infections. I would love to be nearer to you to Bogey1 and Joystik, I have been playing on the x-box this arvo and even in a porsche cant seem to take those corners too well. poor Ryan I know too well what its like for these boys to have to put off special things for their health, its not fair. Its amazing how they learn to accept the disappointments along the way. Josh is waiting daily for the mail from Make-A-Wish he has asked for a saltwater fishing trip with his dad. I guess they take into account he may not be well enough on a certain day, if he gets that wish anyway. oh well I will pass on your loving wishes to Josh and go set my alarm for the midnight meds. Loads a love to you all
1046.
Damn Paula now I really wish you lived up here!
I'm sure we could take him out on our parents-in-laws very flash launch for a fishing jaunt - total luxury! Though I'm guessing he's thinking true one-on-one fishing - used to love doing that too! Offers there though ;o)
soniat-d (153 ) 7:31
pm, 13 May
1047. Mason Noble sounds awesome to me Tishie ;o)
No pressure! LOL!!!
soniat-d (153 ) 7:32
pm, 13 May
1048.
On behalf of all my TM buddies here
Thanks svce! ;o) (((((((back)))))))
soniat-d (153 ) 7:33
pm, 13 May
1049. Before kiddies I was a size 11
(ie big 10 or small 12) After kiddies a size 13 now after chemo I'm a sixe 15. Arrgh! Now nanny is back in action I'm planning on getting back into the exercise ASAP!
soniat-d (153 ) 7:36
pm, 13 May
1050.
Oh Sonia You Darling
That is such a lovley thought. I just told Josh and he looked like he was gonna bawl. When I left Auckland I met my hubby in Whitianga and thats where we lived when Josh was born, you can imagine the fishing we did then. Now we live way down here and well ... really appreciate what we had now we dont have it any more. Thank you so much for that, your offer is wonderful! I am sure he will get to go again one day. It will be a dream come true for him. xx We still have family in Whitianga and Thames so hope to get up there sometime??
1051.
Hey no worries! Offers truly there
Look us up if you're ever in Auckland, truly ;o) I'd have to run it past the in-laws but I'm positive they'd be eager to do that for Josh :o) Here's us fishing off the boat http://www.sonia.tyler-davies.co.nz/0603March/Boating1.jpg to whet your appetite LOL ;o)
soniat-d (153 ) 7:43
pm, 13 May
1052.
Great Photo
Just told Chris about your offer and we are both touched. Showed the kids your photo looks wonderful, love the feet in the bucket. A friend from Whitianga just came to stay for duck shooting and bought chiller bags full of seafood, snapper, mussels, oysters and a cray for me. So even though we didnt catch them ourselves it was nice to have a taste from back home.
1053. Hi,
I hope all you laDies have a great mothers day with your families. Hi ryan sorry you didn't get to Disney Land be better to go when you are feeling better. I love fishing too so hope you get there with your dad, Josh.Hi Joystick, landy lass sound a bit brighter today.Sonia I am off to the website now please don't disturb me.
1054. Yummy, all that seafood......
my very best friend called in tonight just before dinner with some fresh Blue Cod that she had bought in Riverton. We will have it tomorrow. Blue cod is just delicious. We bought an 8m Bayliner just before last christmas, but so far have only had it out on the lakes and catching salmon. It was ,oads of fun and I'm sure something Josh would enjoy too Paula. Kinda have to pick the weather pretty carefully to put to sea in Foveaux Strait!! We do plan to go over to Stewart Island, after I'm better now. A few things are on hold for a while. Also my cruise ship trip is scheduled for when I am better. I know how disappointed I am about what I cant do now that I could have before, so Its a 100 times worse for these eager young fellas. Big hugs to you all.
joystik (281 ) 7:59
pm, 13 May
1055. Hi maewest, you could have looked me up
last friday. I was quite wide awake and chirpy by about 4.30, just went down hill again about 11pm when the nausea set in!! Great now though, came home monday morning and all is going well. Had the drain out, 3 to go, but that will happen in time. And I am getting used to sleeping on my back now. Would love to hear how your friend that had the bi-lateral got on. I dont know anyone else thats had one done at my age, but I had a few visits from staff at the hospital, who wished they had, when they had the one done. Great to see you back anyway
joystik (281 ) 8:04
pm, 13 May
1056. Wish I had known that Joystik
I would have called in to see you. Saw my friend yesterday. I was absolutely amazed how neat her chest looked after the op (yes I did have a look!) She has opted not to have reconstruction. She has had a long time to think about it all as she had chemo and radiation first, to try and shrink the lump. She will get her results next week. Will keep you posted on her progress.
1057. That's interesting they did it the other way
around Maewest - how big was her lump? And (I almost daren't ask this) how much did it shrink after the radiation?
soniat-d (153 ) 8:31
pm, 13 May
1058.
So Tishie
are your initials TB by any chance?
soniat-d (153 ) 8:34
pm, 13 May
1059. Joystik - have you got some nice Zofran
for the nausea? I lost 1/2 my stomach last month - not cancer for me but a congenitally foreshortened osophagus being repaired for the 5th time and the nausea is still bad. My brother and I borrow Zofran from each other all the time. Luckily he lives round the corner!
1060.
Ah well
off to put the girls to bed - then its movie night :o) See you all later!
soniat-d (153 ) 8:35
pm, 13 May
1061. Hey wasala, I only had the nausea
until they gave me decent anti nausea drugs that worked. They tried 4 different cheap ones during the night which made no difference , and first thing next morning, my favourite nurse arrived and gave me the 'top shelf' ones and bingo, I was fine from there on, with no more nausea. Thanks for the tip though. Who knows when I may need to use your suggestion.
joystik (281 ) 8:38
pm, 13 May
1062. See you tomorrow sonia....have a good sleep
and enjoy your breakfast in bed for mothers day in the morning. Those two dear wee girls will be just busting to do it for you. Hugs to you all and take care.
joystik (281 ) 8:40
pm, 13 May
1063. Maewest, I get my results next week too...
on wednesday. Where did your friend have her surgery done?? My scars look pretty good too actually. I looked at them straight away as soon as I woke up, just incase it had all been a dream and they hadn't done the op!!What age is your friend if you don't mind me asking?? I'm 44.
joystik (281 ) 8:44
pm, 13 May
1064. Joystik Zofran is the top shelf one!
Also known as Ondansetron. It costs $40 odd dollars per tab when you're actually in hospital and some hideous amount on prescription too. If you've got another one that works though, stick with it!
1065. Hi sonia
I have just been through your website and feel drained.I just can''t believe how much you have been through you will get better. I thought you looked very pretty with that wig on it suited. You have a lovely home and husband he is a bit of a hunk. The wee girls are delightful. Is Brent a builder? What a great trip wee josh would have in that boat.I keep thinking of you and the other girls fighting this horrible disease and pray for you all. You are all so brave and courageous.Hugs
1066. Her Lump was big
don't know the dimensions, but very large. The surgeon said it had shrunk. It never got picked up in 1st mammogram because it was hiding behind a large cyst. Op at St George's, Chch.She has just turned 50. Sonia, your website is amazing. Haven't read it all...it will have to be in stages.
1067. Thanks Boop2 - glad you liked it!?!
I'll have to tell Brent you think he's a hunk - that'll make his night! (I think he is to BTW ;o) He's up getting the girls to sign Mothers Day cards for me (they should be asleep by now!), so popped in here quickly ;o) Oh, no Brents not a builder by trade, its his hobby! His grandfather was a carpenter and taught his a lot of tricks, and he works out the rest. Hes a clever man :o)
soniat-d (153 ) 9:26
pm, 13 May
1068.
Don't expect you to read it all Maewest ;o)
LOL Thanks, I'm proud of it too! Many yeears in the making!
soniat-d (153 ) 9:28
pm, 13 May
1069. I am pleased you had
a successful shopping trip Sonia. Nothing like a bit of retail to lift the spirits. I have found a wonderful 2nd hand shop (sells on behalf of). They also sell new stuff..retailers lastr year's stuff. Never come out of there empty handed!!
1070. Hi maewest
glad to see you got home safely. I woke up early this morning feeling fine, had brekky but went back to bed and had another sleep. Grr had a massive blood sugar of 25.5 last night! It should be about 7! Dam pills. My own fault, swigged down some pills with a drink of coke. I will learn the hard way! Feeling heaps better today. Normally in for a big crash tomorrow but have cut some pills in half and will try to wean off them instead of just stopping this time and see if that makes any difference.
landylass (47 ) 9:52
pm, 13 May
1071. Great to see you landylass,hope you have
a better day tomorrow than today. I'm just off to bed so came in to say a quick good night to everyone. Hope you all have a lovely mothers day tomorrow. Especially think of people like myself who dont have a mother anymore, but I still thibk about her every day. My daughter makes up for it now. Hugs and happy thoughts to you all. See you all tomorrow.
joystik (281 ) 9:59
pm, 13 May
1072. I don't have a mum
anymore either Joystik, glad to see you are still doing well! I'm off to bed too... been out for a big tea... make up for tomorrow if I am crook!
landylass (47 ) 10:01
pm, 13 May
1073. are my initals TB????
No - did you try stalking me on whitepages??! LOL!! If you did, TB is my BIL. I'm TM & hubby is HB. I'm off to read more of your website.....I did a quick flick through the photos, they're great!! Your wig is very realistic. I love wigs, having not been blessed with the sort of hair I'd like, and having never mastered the art of using a hairdryer or straightener properly!! I think I missed some essential girly-gene when it comes to hair styling! If I try blowdrying my hair I end up looking like a reject from Bon Jovi!!! Hhahaaa!!! I have one blonde wig and two hairpieces which I love but I don't wear very often because I don't go out anywhere worth using them, such is life after kids.
1074. hi sonia
have been reading your thread on and off for a while but never said anything till now. i wanted to wish you all the best of luck, i know that cancer is a horrible disease as my uncle had cancer a few years ago. keep up a positive attitude and know lots of people are thinking and sending ther good wishes. Tania
netdog1 (28 ) 11:31
pm, 13 May
1075. paula i hope josh gets his wish
ryan was gobsmacked when it arrived.tishie yes i think these sick kids are very mature, he cracks me up since about 4/5 he would go down to theatre and tell the surgeons what he needs done, even now they ask him all the questions i am just back up to correct anything.lol
bogeyi (482 ) 11:47
pm, 13 May
1076.
LOL Tishie! Nope no go!
Oh that's funny about the hair - my hair has always been dodgy - never in my life have people said "Wow love your hair" never! But since I started wearing this wig I get a comment every few weeks!!! Who's my hairdresser? Wow you've just had your hair done; Those highlights are amazing; Where do your girls get their curly hair from?... etc etc. I'm silently dreading losing the wig now - everyone's going to be highly disappointed LOL! It's starting to really grow now, so maybe a few weeks away from going to the hairdresser and making a plan - first step will definately be dyeing it - lots of grey hairs now #sigh#!
soniat-d (153 ) 12:06
am, 14 May
1077. Hi Tania
Thanks for posting and the knd wishes :o)
soniat-d (153 ) 12:06
am, 14 May
1078.
I'm off to bed too soon
We've just watched "Elizabethtown". Not sure what I thought of it actually. Cool towards the end though :o)
soniat-d (153 ) 12:09
am, 14 May
1079. Morning Sonia
Wishing you and all the other fantastic Mums in this thread a wonderful Mothers Day. Relax, put your feet up, enjoy the day and most of all enjoy your precious children!!! Have a brilliant day, Cheers Claire
1080. good morning wonderful mums
hope you have a lovely day with your family. I have been up most of the night with 2 vomiting kids and worried ryan would be next, so far so good hes not been sick, so my eyes are hanging out of my head this morning.
1081. Good Morning and Happy Mothers Day....
to you all. Hope its a Happy Family day for everyone. The weather is yuk here. Been raining all night and just had sleet and hail now. Tragic for the family missing at sea off StewartIsland following a trawler sinking last night. There were 9 people on board , 3 generations of one Bluff family, returning from Muttonbirding. I dont think there would be any hope for them now. Three were rescued last night and 6 including children still missing. My love and thought to all of them involved.
joystik (281 ) 8:52
am, 14 May
1082.
Good Morning and Happy Mothers Day
I hope you are all feeling special this morning and being treated like royalty. Thinking of you all and wishing you the nicest day possible. lots and lots and lots of love Paula. Bogey1 I hope you are coping with the sick kids - poor you. Lets hope Ryan doesnt get it !!! Fingers Crossed. Take care xx
1083. good morning paula
hope you have had a good morning, i hope to he dosent get anything to as you know when your neutraphenic (sp) its not good.Been a fun mothers day 2 loads of sick bedding and another to put on, vaccumed the floor now cleaning my oven (yuk) who said being a mother isnt fun.lol
bogeyi (482 ) 11:00
am, 14 May
1084. Oh man - bogeyi
I wish I could come and clean your oven for you!!! Yes being neutrapenic is a worry, Josh's last bloods were quite good, but there are so many bugs going around its a bit scary. Chris bought Josh a card and pressie for me and naturally it bought tears to my eyes. The rest of my day has been cruisy thanks, I feel a little guilty with what you are going through, doesnt seem right - today of all days. I hope it impoves for you. Yes there isnt a manual mummy button you can turn off just cos its mothers day. When theres sicky washing and stuff like that, we were designed to go on auto pilot and ride it out. Thinking of you. xx
paulaxx (75 
) 11:19
am, 14 May
1085. nah its cool paula find it quite funny
actually, i dont need pressies my daughter made me 3 lovely cards and wrote a poem, really all i want is ryan to be well thats all i ask.
1086. Oh bogey
you don't need the bug in the house for mothers day. Hope Ryan doesn't catch it. Horrible Joystik about that boat. I woke up one night having an awful nightmare about people in the sea. Went to Moeraki Boulders for lunch next day for Mothers DAy and we sat and watched "Time Out" rescue unfolding at Moeraki!!!!! Was just awful after the nightmare the night before!
landylass (47 ) 1:21
pm, 14 May
1087. bogeyi
I know what you mean. Health is the most important thing in the world. Lots a love
1088.
Hi everyone :o) HAPPY MOTHERS DAY!
Golly bogeyi, I don't envy you this day - yikes, I had cleaning kids sick up - did that not so long ago with Emily - while I was in my last chemo round - the smell really got to me bigtime when I was feeling nautious also! I have my fingers crossed that Ryan doesn't get it xxxxxxxxxx
soniat-d (153 ) 2:16
pm, 14 May
1089.
Hi All
I've had a nice Mothers Day so far - though Emily's diarrohea (sp) ish again and unhappy - must be a virus I gues the way it comes and goes... Went out for brunch this morning with rest of Brents family to celebrate, nice food, kids were all great so very enjoyable. Pretty tired again, so off for a lie down now while the girls nap :o)
soniat-d (153 ) 2:18
pm, 14 May
1090.
happy Mothers day
everyone!! Hope you all had a great day. Hugs to everyone. christine
1091. I scored well.....
a massage so thats gonna be a treat when my chemo is finished and before radiation starts! Hope everyone had a good day. So cold and wet here... snow out on the range so I guess another cold day tomorrow. Little bit of nausea today but not bad... haven't taken any of those pills today and weaning myself off steroids this time instead of just stopping them so see what tomorrow brings.
landylass (47 ) 7:52
pm, 14 May
1092.
That's good that you're weaning off the steroids
this time Landylass ;o) I can't fathom how almighty the crash would have been before you did that?! I'm jealous - oh how I'd love a massage! Our nanny reckons massages are bad if you have cancer in you (like me I mean) and that it makes it travel faster. Same goes for exercise... I reckon thats a load of booha ;o) Has anyone else heard that????!!
soniat-d (153 ) 9:16
pm, 14 May
1093.
A big thanks from me Christine!
Hope you had a good one :o)
soniat-d (153 ) 9:19
pm, 14 May
1094. Good night ladies....pleased to see you have ...
all got through Mothers day ok. I had a lovely day, and added to my flower collection somewhat. They are just beautiful. Hope the sickness has left your house before tomorrow bogeyi, thats just not nice at any time is it. Big hugs to you all, and talk again tomorrow.
joystik (281 ) 10:05
pm, 14 May
1095. Glad you all had a good day
Good luck for tomorrow with all the treatments.bogeyi hope your family are fine again tomorrow.
1096. thanks joystik and boop2
tyler is still vomiting but kirsty was fine this morning.Ryan said he felt a bit sick so who knows with him if its anything or not.We have a appointment with docs tomorrow so will see what the day brings..sweet dreams everyone
bogeyi (482 ) 10:14
pm, 14 May
1097. Fingers crossed for you for tonight and
tomorrow Bogeyi - sorry it was such a rotten day for you!?!
soniat-d (153 ) 11:58
pm, 14 May
1098. Good Morning everyone......hope you are all......
ready to start another week in fine style. Hope all your little kids are feeling much better today, bogeyi, and over the worst of there bugs. And Emily too sonia. Another showery day here today by the looks of things. Bit od snow on the low hills, so I guess that means winter is all but here. Wont be doing a great lot today. Good luck for your treatment today sonia. Hope you are feeling much better landylass and this round of chemo is not being too hard on you. Hi paula, ryan,boop2, and everyone else I havent mentioned. Take cae of each other, and hugs to you all.
joystik (281 ) 8:41
am, 15 May
1099. Brrr
Morning everyone. Chemo from last Wed caught up with Joshi and midnight meds, so we'll be snuggling by the fire today. The steroids for him finish today - yay, they really make him a grizzly bear. Hope Ryan didnt get the bug!! Keep warm everyone and lvoe to you all xx
1100. See my fingers are too cold to type
Love properly. That or lack of sleep. So LOVE to you all xx
1101. Hi paula and Josh....hope two are lovely and warm
by the fire. Any sign of snow over your way?? We have a little tiny bit on the low hills, and I hope thats as close as it gets for now. We only get snow on the ground here once a year on average, but there hasn't been any for the past couple of years. Any way, hope you are feeling a bit better by the end of the day Josh. Love and warm hugs to you both....
joystik (281 ) 10:11
am, 15 May
1102.
bump..... back to the top again.......
.....
joystik (281 ) 11:56
am, 15 May
1103. I got Miss16 home
today threatening to throw up. Rung school and the flu bugs have hit. So there is this weeks challenge, avoiding that. She had a really busy weekend with sports and work so hoping a good sleep might just work! Down to 1/4 steroid tablet this morning and still no crash so maybe its worked!!!! haha Sonia my GP just told me on Friday to start doing 10 mins exercise twice a day, and I will be in there for my massage. Whole hour of bliss so I'll be taking the risk!!!!
landylass (47 ) 12:03
pm, 15 May
1104. Oh dear landylass...I hope you dont get any ....
of these schoolbugs, that would be something you can well do without. Like you say, she might be just over tired. They get like that too. Glad to see they've recovered all the bodies from the boating tragedy. So sad. We were living in Oamaru when the Time Out went down. That was so awful. I knew this had happened before I went to bed on Saturday night, and I woke almost hourly, and stressed about those poor people in that freezing cold water. But considering it had happened at 2.30pm, they would have been long gone by then anyway in those temperatures. Shame that 2 made it too shore and died before rescue. One has to be very respectful of the sea. Hubby was a fisherman for years and has the greatest respect for it.
joystik (281 ) 1:44
pm, 15 May
1105. My hubby and his brother
both used to be in SAR and we have friends that were commercial fisherman too. At least this one looks like just total bad luck and not some idiott in Wgtn making inappropriate rescue decisions. So sad for so many from one family and community.
landylass (47 ) 1:58
pm, 15 May
1106. Yes true. Hubby spent most of his commercial
fishing days out of Westport and Greymouth, and saw a lot of his friends and colleuges lost to the sea in various accidents over the years. They always found it difficult from the West Coast, to get Rescues underway from Wellington, because they had no idea what the conditions were even remotely like. Hubby gave up that type of commercial fishing and moved from the Coast before it got him too, thankfully!
joystik (281 ) 3:08
pm, 15 May
1107. What time do you have
your appointment on Wed Joystik?
landylass (47 ) 3:22
pm, 15 May
1108. Was Just thinking about your
appointment on Wednesday 2 Joystik. Josh is feeling a little better thanks. He stayed in his jama's all day so was nice and warm and cruisy, thanks so much. No sign of any snow around here today, yesterday it was threatening alot but nothing eventuated. Hi Landaylass, Sonia, Bogey1 and everyone else hope your days been a good one. love Paula
1109. joystik
Did you live on the West Coast. We spent 5 years there prior to moving here 2 years ago.
1110. Bump
:o)
1111.
...
I just wanted to be the one to post 1111. :o)
1112. hope everyone is recovering from the bugs
joystick you are right about the westport bar it is treacherous it has claimed a few since I lived here. Has your husband any relations here? Hi Paula where did you live on this beautiful Westcoast. I live at Hector a small towm 35 k's north of Westport.It is so cold here today snow up on the hills behind and you can feel it getting real chilly.
1113. Hi landylass and Paula, my appointment is
at 10.45 on wednesday morning at outpatients, so I guess I go prepared for a long wait do I?? It was terrible the first appointment I had there. Appnt was at 3pm and I got in at 10 to 6!!, only to be given the worse news of my life. Never mind, I am well over that now. No paula, the day got better and better here too, and the showers less frequent. In fact it has been really lovely and sunny most of the afternoon. Hi Josh, glad you a feeling a little better than yesterday....must be the big hugs I sent you.
joystik (281 ) 4:25
pm, 15 May
1114. No I haven't ever lived on the west coast.........
Hubby fished from there in the late 70's early 80's, and then decided to give up fishing out of there while he was still alive!! We fished in Golden Bay and Marlborough Sounds for some time and then sold up the little boat and brought a 130ft deep sea longliner and went half way to the islands fishing. Sold that now too and trying to be retired, sort of!! I have some friends from Chch with a holiday home at Hector, Sherri and Ray. No family living there but sadly, hubbys daughter buried at the cemetery there, so we visit several times a year to see her.
joystik (281 ) 4:32
pm, 15 May
1115. The West Coast is a beautiful part of the
country, and Kevin would especially like to live there still I think. It has become rather over priced though now, I feel. We have just been there in the last school holidays, and nothing has really changed from the last timewe were there. Boop, I dont kow now whether its Hector or Granity that my friends have their bach. I shall be finding out soon though cos Kevin wants to go there and stay in the next school holidays.
joystik (281 ) 4:36
pm, 15 May
1116. Paula, we have been here in Otautau for just 1...
year, and prior to that were in Oamaru for 2 years. Before that we were in Nelson for 4 1/2 years. Not much further south we can go now is there? Are you involved in dairy farming? Gypsy day must be coming up pretty soon isn't it?? It is quite nippy outside, but the heat pump is set on 24 deg and its just lovely indoors.
joystik (281 ) 4:39
pm, 15 May
1117. Hi joystik and Boop
We lived on the West Coast on the Road to Arthurs Pass in a wee settlement called Taramakau Settlement. It was so isolated coming from having family at my back door in Whitianga to knowing no-one. We were and still are sharemilking so spent 5 years there and did enjoy it but as I say very isolated. Had to spend two hours in the car a day just to take Josh to school and back as there were no school buses. Chris was so busy on the farm as we didnt employ people at that stage and I was pregnant with Cassielle. So it wasnt an easy time. We are here for 3 years and this coming season will be our last. We are selling our cows and then ??? My mum still lives in Hokitika she moved down when we were still there 4 years ago.
1118. hi Boop...
we want to come back and visit your neck of woods!!! Hubby wants to go up the Denniston Incline for a visit and explore further north. He was in a National Youth Brass Band many moons ago and was billeted at the town at the bottom of the incline starting with W... can't recall it now. Nearly every house had a bandsman in it which totally blew them away for a small place. We got as far as Westport a few years ago on holiday but ran out of time to go further north. Loved the place.
landylass (47 ) 5:04
pm, 15 May
1119. Was it Waimangaroa landylass?? We both love it
but with having Lauren at college, the High School in Westport didnt have a very good reputation, so we thought better of moving there. The other alternative was to board her in Nelson and send her to college there, but seeing as she is the only one I've got, that wasnt an option either. We went up to Deniston last year, and the charming creek walkway, which is beautiful too. Doesnt rain there anythin like it used to 20 years ago. Much nicer climate now. Well I think so anyway.
joystik (281 ) 5:15
pm, 15 May
1120. Thats the place!
We have been saying for last 5 years next Xmas we will go camping up that way but it still hasn't happened yet. Maybe this year. It was July school holidays were were in Westport and I would love to see the place in summer. Have heard a few hair raising stories about fisherman on the coast, bet you were glad your fella got out of it!
landylass (47 ) 5:18
pm, 15 May
1121. Yes paula,I know where Taramakau is too.
We had a motor home when Lauren was much younger (pre school) and roamed about all over the coast, exploring. There are so many beautiful places there but a lot of them way too isolated for my liking too. Where do you think you will go to from Gore?? Will you stay in the South Island? I guess where Josh is nearest to treatment he needs would be a big consideration. We have moved around a lot too - 18 moves in 22 years I think it is.
joystik (281 ) 5:18
pm, 15 May
1122. Hey Sonia....where are you today???
I've missed you in here today. Are you still getting over a hectic Mothers day?? Maybe we will see you after dinner. Which reminds me, mine is ready so I better go. Blue cod (fresh) and home made jacket potato wedges with sour cream and sweet chilli sauce. See ya
joystik (281 ) 5:20
pm, 15 May
1123. I'm away to see if I
can get miss16 at least drinking. Been in bed all day and doesn't worry me she isn't eating as she is still feeling sick, but got to get some fluids into her. Catch you tomorrow. Wonder how Sonia got on with radiation today.
landylass (47 ) 5:21
pm, 15 May
1124.
Hi there ladies
Been out at appointments ALL DAY!!! As for the last one - the iridologist - all I can say is WOW that man is amazing! But I have to come back - hungry kids to feed ;o) More later - can't wait to share it all ;o)
soniat-d (153 ) 6:25
pm, 15 May
1125. Looking forward to update
sonia... got the girl eating and drinking so maybe we are over the worst... sometimes nothing like a good catch up sleep to do the trick!
landylass (47 ) 7:31
pm, 15 May
1126. Thats good landylass, you at least need to be
drinking or you can ge relly de hydrated quite quickly.. Hopefully she will be up and running in no time flat.
joystik (281 ) 7:49
pm, 15 May
1127. Good to see you sonia,...look forward to hearing
all about it after your dinner has been eaten and your sweeet little girls are all tucked up in bed. I havent been able to get back online since my last post before I had my dinner. I didn't know what else to do with myself.
joystik (281 ) 7:55
pm, 15 May
1128. OK a quick post or 2 before bathtime ;o)
Firstly went to Herbal supplements doc this morning after the radiation. After discussing my history he prescribed (1) Melatonin (2) Di-indolmethane vegicaps - I bought those then. Then to order through another distributor, all Usana brand supplements (1) Essentials (a mega multivitamin) (2) Selenium (3) CAL-MAG plus (4) Bioflavonoids (5) BioMEGA (6) Co-Enzyme Q10. I enquired about the grapeseed extract I'd read about and he said ah yes thats in the Bioflavonoids. I asked how much it would all cost and he said the Usana Essentials is about $100 per month...?!?! "The cost of health eh?" I thought...
soniat-d (153 ) 8:04
pm, 15 May
1129. When reviewing my history
we discussed my lack of sleep (hence the melatonin) and all the stress I allowed into my life to which he shook his head at me and said "Oh dear, you silly girl!". I agreed with him!
soniat-d (153 ) 8:05
pm, 15 May
1130. Reason I was out all day was
At radiation this morning I had my two newly usual blasts from in front and then behind. They came back in to do the new mega-blast on the lump cluster and said whoops its not set up yet (they forgot to book it in to the machine or something) so I'd have to leave that until tomorrow. I said no - can we do it later today (was really pysched to blast them today)? They said yes 2.10pm so I had to go back then. I got there real early but lost a lot of that gain trying to get a park!? They ran half an hour behind so had to get my s-i-l to collect Lydia from school (Emily was already in Nanna's care for the early afternoon). The blast was heaps longer than my other treatments, which I liked (the burn won't be good though!?)
soniat-d (153 ) 8:12
pm, 15 May
1131.
I forgot to say, at the supplements doc
this morning I told him I was also seeing iridologist this afternoon, and the doc told me not to! He said that his recommendations are the most effective, naturopaths a bunch of hoo har etc etc
soniat-d (153 ) 8:14
pm, 15 May
1132.
(Brent's sorting girls so I'll keep going)
So then I go to the Iridologists this afternoon. I've been to him twice before, in 2000 and 2002 when trying to conceive the girls. In 2000 he did a full reading and noted some interesting things - the one I remember most being that I have a prolapsed uterus (which I knew was right). That amazed me at the time. I fell pg 7 weeks later ;o) In 2002 he said I was fine and didn't need anything - Emily was freshly conceived at that time - pg test 2 weeks later. So I trust this guy ;o)
soniat-d (153 ) 8:18
pm, 15 May
1133. So, today he digs out my file and says so whats
the problem today? I said I was feeling depleted, had had BC last August, chemo therapy now in radiation. Thats all I chose to say - wanted to test him! He looked at his notes and said breast cancer eh? Was that in the right breast? I said, why yes. He showed me notes and said, "yes see at your last reading I said you had a knotted milk duct in your right breast". There it was in black and white, and thats where the tumor started, location wise... I was gobsmacked! But wait, there's more!
soniat-d (153 ) 8:21
pm, 15 May
1134. So then he read my irises, first my left
and said "I don't want to scare you, this doesn't mean anything yet, but you have a knot in your right breast in a duct between your nipple and armpit" No danger yet, but keep an eye on it. (So then I'm thinking thats funny, supports my lack of trust of remaining breast) He reinforced that cancer doesn't spread from one to the other - it goes a different way, nodes liver etc.
soniat-d (153 ) 8:24
pm, 15 May
1135. Then he moved to my right eye
And paused for a long time and said "Chemicals started this tumor - very clearly, it was some very strong chemicals" I said "what like from food like coke phenylalanine etc?" he said "oooh no, something must stronger than that"
soniat-d (153 ) 8:30
pm, 15 May
1136. I asked him what else he could see,
he said he could see some inflammation in my nodes, but nothing too worrying. At this point I was disappointed, and said "well the cancer has returned - can't you see that?" he said "Oh no (sympathy talk, then) I only see your own body's (things, can't remember the term). Cancer is a foreign body so I can't see that, I can only perhaps see when it has affected the body. Hmmm I thought, but then he had seen the nodes inflammed, that is where the big ones are... Is no one else blown away by what he could see? There's more but must put girls to bed now ;o)
soniat-d (153 ) 8:32
pm, 15 May
1137. Well I'm blown away totally sonia.....
by this guy and what he had to say. I read all your post out to my hubby and he was just gobsmacked too. The guy obviously knows what he's doing doesnt he. Some of the supplements that h recommended for you sound like what we are taking, but with slightly different names. We are using CoQ10 enzyme plus omega 3, CAA and Coral C. The CAA contains selenium, boron, iodine, silica, Chromuim, Folate, vits B,C,D and E and bioflavinoids.
joystik (281 ) 9:06
pm, 15 May
1138. They have to be on to something when they can
look in your eyes and tell you whats going on with the rest of your body aye??? Bit like the way clairvoyants know so much about things without telling them anything. But in different sort of way.
joystik (281 ) 9:09
pm, 15 May
1139.
I Know Joystik - amazing eh?!
His name is Brad Crouch :o) So anyway... He then started to write down his prescription for Biostrath and Zambrosa and I decided to tell him about seeing the other guy this morning and what he'd prescribed. He looked dubious and asked to see the list, which I showed him, and (I'll try to keep this short) big discussions about docs vs naturopaths, marketing companies like Usana charging over-top prices for supplements not so great etc etc. He ticked the Co-enzyme Q-10 but said get it from other than Usana - shop around for best price. He put ?'s against a few others, x'd essentials etc and I was confused about what to do, told him I trusted what he said but I really wanted to not only re-balance my body but also fight fight against the C. He said he'd look into the usana products, compare with his own and will give me his recommendations by phone in a few days. I did get the Biostrath now though - yuck it tastes gross, but also tastes absolutely loaded with good stuff ;o) Hold on Zambrosa for now...
soniat-d (153 ) 9:26
pm, 15 May
1140. The other thing I've forgotten to mention is
Vitamin C. Doc recommended IV Vitamin C injections (kind of like chemo in high doses). I mentioned this also to brad and he said yes, you need at least 10 grams per day (which is what doc said). I'm meeting the doc who does these injection tomorrow to discuss, but don't start this till after radiation. I have quite a few questions for him! I also have some more questions for Brad when we next talk!
soniat-d (153 ) 9:31
pm, 15 May
1141. Thanks for telling me what you're taking Joystik!
I'm trying to digest all this new info as fast as I can! Have you heard anything about IV'ing Vitamin C? Seems very new, and not enough solid evidence, good evidence, but not much of it as few people do it. I'm guessing its also expensive!!!
soniat-d (153 ) 9:35
pm, 15 May
1142. Whoops! 1134
That should read I have a knot in my LEFT breast
soniat-d (153 ) 9:38
pm, 15 May
1143. wow sonia you have had
a full on day, your brain must be over loaded with all the new info.
1144. Wow Sonia
thats getting into info overload. Interesting that they can agree on some things though. Keep us updated.
landylass (47 ) 9:39
pm, 15 May
1145. sonia I am simply amazed at what he said
you have certainly had an interesting day. What is he looking at exactly when he looks into your eyes? Does all of what he said make sense to you? Hugs for your girls
1146. Have any of you hear dof Paul Kirk
or the company "A Stress Free Day"? He beat terminal bowel cancer, and now helps other get over terminal illnesses. I've met him, and highly recommend him - he has (I think) an 8 out of 10 ratio for curing termial illnesses. (www.astressfreeday.com) - and no, I am not a sales person :-) His message makes sense.
1147. joystick you are not going to believe this
Sheri and Ray are my friends too they have their holiday home across the road from me in Hector.I look after it for them. Sheri is not impressed with CH CH . It is a lovely home everything is growing around it now. We have sold our house here and are moving to Westport but it really is a wee bit of heaven here.What name is your step daughter I could pop some flowers on for you is it at Mokihinui or town? NZ is a small place.Buller high hasn't got a good name.
1148. Hi Paula hugs for Josh
We have a camper bus and went for a trip down the coast to Taramakau and all the wee places off the beaten track it was lovely.my husband comes from Hoki.I can understand it being lonely it is a bit like that here too Hector is mainly holiday homes now and where I am I hardly see a soul all day.I have a great friend who came from there they were agreat farming family but he is over 80 now before your time.Your daughter's name is unusual I have never heard it before.
1149. Hi landylass
I am a bit further on than Waimang. and not far from Charming Creek, Ngakawau end. Have you read the books about the Denniston miners early days? They are going to make a movie about it I think it is called "The Denniston Rose" WE are moving into Westport next month and I really mean this all you ladies that want a holiday are welcome at our house we have a bit to do on it but by summer it will be finished hopefully. 3 months waiting list for a new kitchen here.
1150. Hi Boop 2 yes amazing eh?
Its iridolgy and it looks at all the coloured part of the eye - every part of the eye reflects the health of specific parts of your body - they have this big map of the eyes out in the waiting room. I was really sceptical of iridology etc before I saw him the first time, each time he amazes me more and more! Funny thing is, I'm sure my eyes have changed colour through the chemo etc, they used to be bright blue, now very murky!?!
soniat-d (153 ) 10:06
pm, 15 May
1151.
I'll say bogeyi
Man is my head spinning! Thought it good to type it all down, to help me remember it all!
soniat-d (153 ) 10:07
pm, 15 May
1152. That is really facinating
I know once I had my eyes tested the optician told me to get my thyroid tested at the doc's it was alright but amazing what you learn.
1153. I think when you are not well your eyes do look
like that but they will come right.
1154.
Here's the kind of Vitamin C info I'm reviewing
http://www.prisonplanet.com/articles/september2005/140905killscells.htm versus http://www.medicalnewstoday.com/medicalnews.php?newsid=40451&nfid=crss
soniat-d (153 ) 10:15
pm, 15 May
1155. An interesting quote about why research so slow
Vitamin C used in cancer therapy has been a controvesial subject for a long time. Now a new study shows that Vitamin C administered intravenously can be more than 25 times effective than Vitamin C administered orally when used against cancer. Further interest and studies are set to follow after the study was conducted by highly respected experts of their fields of medicine. If it works, what will this mean for drug companies? ... After all Vitamin C is incredibly inexpensive and there would be no way for drug companies to profit from this research. ... The study was released in the Proceedings of the National Academy of Sciences
soniat-d (153 ) 10:19
pm, 15 May
1156.
What is iridology - its shown here
http://iridologynow.sandycarter.com/how-iridology-works.html .
soniat-d (153 ) 10:23
pm, 15 May
1157.
Sorry - you can tell I'm all excited about all
this eh?! Anyway the other important thing Brad said was that he'd noted back last time that I had a strong resilient body, can't remember the words exactly, but generally one that stays healthy and lives long. So he said that it has weathered the storm very well so far, and holds me in good stead to battle this through. That was a really good thing to hear at this point ;o)
soniat-d (153 ) 10:24
pm, 15 May
1158. Hi all you lovely ladies
Glad to see you having good chats today - I've been thinking of your sons and families today bogeyi and Paula. Hugs to to Landylass, and Heather thanks so much for the letter - received that today - no chance to read that yet LOL but will take it with me to read tomorrow ;o)
soniat-d (153 ) 10:26
pm, 15 May
1159. sonia will go to those
sites tomorrow.Night I hope you sleep well
1160. Sonia
Good Morning, wow did you actually sleep with all that buzzing around in your head? I love people like that, who can give you information about yourself from just looking at you, or in your iris's. You go Girl. You are doing so well. My dr tried to get me to do the i.v vit c with Josh. I am considering it definately between courses of chemo etc. have been told by the hosp NOT to do anything else. Boop2 Cassielle means Angel of Joy, because I was told I couldnt have children well say no more. Funny how you know where Taramakau is Joystik cos a lot of people who live on the coast dont, ha ha. I do hope you are all having a good day, my boy has gone to school just till lunch though. He is very grumpy and sensitive at the moment. So I dont want to push him too hard. Thinking of you all with loads of healing light surrounding you while you sit at your pc's and huge pink clouds of unconditional love coming to you from me. Have a nice day xx
1161. Bogey1
How did you get on with the Dr's are the kids on the mend? Thinking about you, hope this week is a better one for you. Take care
1162. morning all
well done sonia you soung good. Josh probably likes seeing the other kids at school does he paula? I think we know the coast fairly well travelled up and down quite a bit you never get sick of the view from Grey to Westport it is fantastic and very rugged.Have a nice day paula.
1163. Thanks for all that information sonia,...I had
such a terrible time staying connected to the site last night. Every time I refreshed the page I lost it and then couldnt get back on. Was it just me or anyone else. I went out and announced to my somewhat amused hubby, that if it didn't improve I was either going to the Pub or bed!! I was just so lost with out my mates to chat too. I went to bed at 10.30. You info was so interesting sonia. All that stuff is so good really. After all, at the end of the day its probably an overload of chemicals that have got us all into this mess in the first place, and by being able to balance all that out with natural stuff, has to be good. I will be taking all my bottle to the Dr tomorrow to see what they say about it.
joystik (281 ) 11:42
am, 16 May
1164. Morning landylass, sorry to see you have ....
doubled your quota of sick kids today. Thats really not included in the plan is it??? Hopefully they will be better tomorrow and the bugs will have flitted out the door again without having had time to settle near you. Its a beautful day here. Nurse came and took all the dressings off. They were so starting to annoy my skin yesterday, and I had been scratching like mad, especially where the drains go in. She didnt take any drains out though. Seems to be too scared to now after what happened when the first one came out. The one on the no lymph side drained 175ml in 24 hours, so thats no where near to coming out. You stay well and warm and have a great day.
joystik (281 ) 11:47
am, 16 May
1165. Hi paula and Josh.....hope Josh is enjoying
being at school for the morning, and they aren't working him too hard!! Is cross country tomorrow now?? It is supposed to be a lovely day again tomorrow. Its really warm and sunny here now. There aren't many places on the coast that I haven't poked my nose into, while we were roaming around in our camper. We spent quite a few months on the coast, and aren't the type of people to stay on the main hi-ways. Oh no not us, we go up every dusty side road and have a cuppa about 20 times a day, and poke about in all the creeks and rivers, set fishing lines and look for fresh water crawlies. Thats us!! The west coast is a lovely part of New Zealand. Haven't really done any exploring in the North Island yet. Any way I must carry on, I have got so many people that have sent me flowers, cards, emails, chocolates, smellies, and I need to reply to them all. Hope your day is super sweet paula, and love to you all.
joystik (281 ) 11:53
am, 16 May
1166. Well, boop2 its a small world alright isnt it???
I got an email from Sherri and Ray this morning telling me all about how she knows you, and what a wonderful couple you are. I met Sherri through Rays sister Cathy, who is my friend. Sherri is a lovely person, and Ray too actually. Thanks for offering the use of your home for a break...I think thats just so nice of you. You are special. Take care and have a great day.
joystik (281 ) 11:56
am, 16 May
1167. hiya ladies
kids are better, kirstys fine, tyler is off again today as he has a headasche still, kirsty and tyler are off to aussie tomorrow so no point in sending him to school in case he picks up something else. Appointment went good yesterday 3 docs are all excited with smiles on there faces, there is SOMETHING going on Ryans neutrafils are coming up every so slowly we got as low as you can go 0.00 they couldnt get a reading six weeks ago, about 3 weeks ago we were at 0.03 last fri 0.28 and mon 0.41 he is still highly neutraphenic but they are happy they are thinking that MAYBE something might be happening.Although they are all smiling i am happy but not getting to excited yet as i dont want to get my hopes up and then it all crashes.
bogeyi (482 ) 11:58
am, 16 May
1168. Hi bogeyi
I'm glad to see the numbers going up - much better than not, even if a long way to go eh? Fingers crossed still for your brave wee man :o)
soniat-d (153 ) 12:50
pm, 16 May
1169. hi sonia
exactly going up slowly is better than going down, just dont want to get my hopes up and then have them dashed.
bogeyi (482 ) 12:53
pm, 16 May
1170. Hi Joystik, how frustrating that must have been
I wondered where everyone was last night LOL - thought maybe I'd scared you all away! I probably have divulged too much of myself on this thread *shrugs* but, hey, when you been examined and prodded by docs week in and week out, had your medical and lifestyle history queried by so many profesionals, I now feel like its tatooed on my forehead anyway! LOL
soniat-d (153 ) 12:53
pm, 16 May
1171. Hi Bogeyi
I see hoping as OK its the expecting to be wary of - I keep hoping, but try not to expect ;o) (((((hugs))))))
soniat-d (153 ) 12:55
pm, 16 May
1172. Hi...
Yes Josh does like seeing the other children at school. Probably a refreshing change of scenery for him, must get a bit tired of looking at my face all the time. Yes the West Coast is pretty and it is lovely to be able to return to old haunts. I dont know where we will end up after here, but Josh is our priority so it will be in the South Island. Close to treatment centre. Keep smiling everyone. Off to pick up my boy. Hugs n Loves
paulaxx (75 ) 12:56
pm, 16 May
1173. Sorry joystik
forgot to say yes x country will be on weather permitting. Josh is just going to watch with us. Hope he feels ok with that on the day. If I dont poke my head in here again. All the best for your appointment tomorrow, will be thinking of you!! xx
paulaxx (75 ) 12:58
pm, 16 May
1174. paula i think the same with ryan he must get
sick of looking at me, they miss there friends and the interaction with kids.
1175. Yes bogeyi, that is good news, up is better than
down or staying stable. Glad the bugs are clearing out from your place. Hope they are not moving to the Southland region, cos we dont need bugs down this way thanks. Actually, that is one thing I have found with having 1 child, she hardly gets any bugs and colds and stuff, which is great. Hope is continues. Think shes only have about 10 days off school in her entire school life. Any way, good luck for continuing good results for Ryan. I think about you guys every day lots of times and send you warm fluffy hugs. Hope you are getting them all!!!
joystik (281 ) 1:14
pm, 16 May
1176. Information such as you were posting would....
never scare me away Sonia. You can never have too much information when you are fighting something like this. It will be interesting to see what they have to say when I rock up with my bottles of stuff tomorrow, at the histology meeting. Some Drs are pretty sceptical really arent they. I remember telling one Dr years ago that I was taking Evening Primrose for PMT, to try and control things a little. And he said, have you tried having a glass of water, it would do the same!! But theres more. He went on to say 'the problem with you women, and especially red heads like you, is that you like to sharpen your tongue, at least once a month, and have a go at someone, and then call it PMT!!' I changed my Dr and didnt go back to that one. He, incidently, thought he was so funny saying that, but I think he believed it too. I shall let you know what they have to say about CoQ10-Omega3, CAA, and Coral-C.
joystik (281 ) 1:21
pm, 16 May
1177.
Hi there back for a short while
So saw the Vitamin C doc today - we had a LONG talk, I really probed... He was extollong the virtues of vitamin C injections of course (his office had a window to next room where people were reclined taking their vitamin c injections @ $75 a pop and the cynic in me kept thinking "yes but you would say that wouldn't you? This is your business!"). He described how body cells absorb C and turn into water etc and cancer cells turn in to ammonia and kill themselves. Drew graphs, diagrams, gave me a huge printout to take home and read etc etc. I aksed about their results what are their stats and he said they've only been doing it for 9 months or so?!?! But big results overseas... Here I am - the guneapig again! Wish I could get recommendations for this from an impartial phyician of some sort! What to do... what to do???!!!
soniat-d (153 ) 1:43
pm, 16 May
1178.
I'll be thinking of you tomorrow Joystik!
Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!Good luck!!!!!!!!!!!
soniat-d (153 ) 1:51
pm, 16 May
1179. Thanks sonia...for all the good luck.
Yes hard to know what to do when you are going to be one of the first to have this tried on, so to speak. How often do you have these injections at $75 a pop?? Weekly, daily?? I was going to have a look and see if I could find anything else about it too. Last night on here was the pits, Man, I tell you, I hate it when that happens. Its better today but still not 100% by any means.
joystik (281 ) 2:14
pm, 16 May
1180. No probs Joystik ;o)
It's compelling reading, I'll send you a copy if you'd like?! The treatment would be twice a week for three months to start with, so that's about $1800 for that, then once a week or fortnightly or something ongoing after that. I can't remember exactly the ongoing bit. It wouldn't start till after chemo and radiation complete. He pointed out that (in my case with it recurring) this would just be "buying me time" until docs work out what switches cancer cells off. I didn't like that concept so much, but I guess that is the reality. I just try to turn a blind eye to that most of the time!
soniat-d (153 ) 2:22
pm, 16 May
1181. soniat-d
interesting info re vitC. Do you remember last year when the MeNZB debate was going on? Some doctors pushed the benefits of Vit C. They reckon that when a person is diagnosed with Meningococcal disease one of the first treatments (along with a/biotics) should be high dose iv Vit C.
1182. sonia please keep posting
I find all of this so interesting I haven't had breast cancer but my sister has and she won't talk about it at all if I ask her something she changes the subject. I am trying to store all this knowledge as I think it helps to know about things. I don't know about the vitamin c it sounds fine but expensive ,does that matter if it works. Afriend of my husband had cancer many years ago I can't remember where now but they gave him so long to live they sold their house and went for a trip to Wales where they came from, had a great trip . Someone told him to drink carrot juice and he did by the gallons even wwhen he had a bath the ring around it would be bright orange he is 78 and still going strong the doctors had no answer to it but were absolutely amazed as all signs of it were gone so who knows?
1183. Hi paula
Did josh have a good day at school ? Good luck joystick you are certainly fired up. It is a beautiful day in the Buller lot's of sunshine.
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missbehave (30 ) 3:09
pm, 16 May
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missbehave (30 ) 3:10
pm, 16 May
1186. Hi Missbehave
Oh please - share away!!! I'm absorbing all the info I can! Yes I have to say, I like the concept of vitamin C in hig doses - what he said all make sense. My gut feel says "do it" and its been right so far when the docs were wrong ;o)
soniat-d (153 ) 3:26
pm, 16 May
1187. Hi Mimi1
Thanks for posting. Yes I've found it being used to treat Aids also! I did read somewhere that for some reason it doesn't work on Leukemia (sp), they're not sure why...
soniat-d (153 ) 3:29
pm, 16 May
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missbehave (30 ) 3:38
pm, 16 May
1189.
That's interesting about the carrot juice boop2
Brad told me that all purple vegetables, fruit etc works well on Breast Cancer. Thank goodness I LOVE beetroot! The other interesting things this morning's guy said - Cancer loves sugar and soaks it up (hence my insane sweet tooth recently, so must put kerb on the sugar-rush sugars and shift to slow-release sugars).
soniat-d (153 ) 3:39
pm, 16 May
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missbehave (30 ) 3:43
pm, 16 May
1191.
Wow Missbehave :o)
Thats impressive! Yep I'm hoping to stun the docs (again) too, this time for the better ;o) Thanks for all that, very cool :o)
soniat-d (153 ) 3:46
pm, 16 May
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missbehave (30 ) 3:48
pm, 16 May
1193. Hi Boop2
Yes thanks Josh did have a good day at school. He never ceases to amaze me, well actually you all do amaze me. :O)
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missbehave (30 ) 3:53
pm, 16 May
1195. misbehave, that is so interesting, and thanks for.
sharing that with us on here. There has to be better ways, orat least alternatives to all these chemical treatments that are so harsh. It is just so enlightening to hear a story such as yours. It gives everyone hope doesnt it.
joystik (281 ) 3:55
pm, 16 May
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This member has been disabled.
missbehave (30 ) 3:59
pm, 16 May
1197. All the best to you # 1
Early this morning my uncle passed away, from the dreaded disease. No more suffering for him now, the only comfort for us is that he knew he didnt have long and tried to see everyone before his time. We only found out about his cancer like 4 weeks ago.I had posted a thread on here back then, saying that my uncle wanted to have a party, just so he could see and remember everyone, before the cancer really set in. A wake I guess you call it. I hope you will beat this #1, big hugs to you.
aroha20 (428 ) 4:03
pm, 16 May
1198. missbehave thanks for sharing that info
very interesting.
1199. Thanks Aroha :o)
Sorry to hear about your uncle. Hey I love that party idea - thats awesome - it always hits me at funerals that everyone turns up AFTER they die to pay their respects and say all the nice things they wanted to say about them. Much better to say it to their face when alive - and what better way than at a party!! Thanks for the hugs! And thanks for posting ;o)
soniat-d (153 ) 4:53
pm, 16 May
1200.
Another hundeeeeee!
Dances round the desk ;o)
soniat-d (153 ) 4:54
pm, 16 May
1201. misbehave that is so good
Everyone must feel a bit more positive after reading that I think it is marvelous. gotta get tea be back later to read up on everything. Lots of hugs for healing
1202. dont ya just love hospitals
get a call asking if i can bring ryan in to see a doc tomorrow (sure no problem)ask what time, well we open at 8am so if you can come in early HOPEFULLY you will be seen first, ha ha ha ha ha didnt think such a word (first) existed in hospital rooms.
1203. Thats good bogeyi ;o)
Chances are you'll get seen on time(ish!) for once ;o) Is it a stretch to get there that early? It would be in this household LOL!
soniat-d (153 ) 7:18
pm, 16 May
1204.
Hey Landylas :o)
No time no hear - hope you're doing OK :o)
soniat-d (153 ) 7:20
pm, 16 May
1205. Sounds familliar bogeyi....hospital rang me and
asked if I could be there at 9am instead of 10.45!! I said to the lady I would have to get up about 5 just to be here by 9 but she wasn't fazed at all. Not really a problem if you look at the bigger picture, more an inconvenience. Hugs to Ryan, and you too.
joystik (281 ) 7:23
pm, 16 May
1206. yep as i have a 10yr old and a 5yr old
but tomorrow morning i am dropping my kids and parents off at the airport at the un goddly hour of 4am so i will be wide awake when i get home just need to get the boy up.
1207. Ohhh true...thats an early start, perhaps you
could give me a wake up call before you go to the airport. Hope the kids have a great holiday. Wish I was going too.
joystik (281 ) 7:25
pm, 16 May
1208. haha so do i
maybe next time when ryans better.
1209. Oh Bogey1 and Joystik
Both of you have such early starts. Poor you. Will be thinking of you both tomorrow at your hospitals. I have just got home from swimming pool, I ventured out tonight by myself and did an aqua aerobics class, what a hoot! Kept waiting to hear mummy but no didnt happen! Anyway hope tomorrow is good for you all round. Take care Hi Sonia hope youve had a nice day. Got a mental picture of you dancing around your lovely desk at the 1200th post, made me smile out loud :O). have a good night everyone love to all
1210. Thanks paula, its probably not that bad really....
but I have been sleeping in and not doing too much and tomorrow I have to. But oh well, if thats the worst thing that happens tomorrow, I will be stoked. Hugs to you all and Josh too. Hope he's feeling like watching the cross country tomorrow. I will be thinking about him too. He's a very brave young fella.
joystik (281 ) 9:29
pm, 16 May
1211. all the best joystick will be
thinking of you tomorrow.HUGS Love to Ryan and Josh at his cross country. night
1212.
Morning All
Bumping to the top. Page 3 is no place for all you lovely ladies to be. Have a great day.
1213. morning
Hi paula hope you have a nice day for the cross country. Enjoy, Josh. Very cold here this morning but it shows promise.
