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3001. This is such a long thread now...3000 is GREAT!!
Glad Josh is back from hospital Paula, and you know whats troubling him. Hope he is better real soon. Hope your leg is better soon too Landylass. A bar managers course would be quite fun I think. How long does the course go for? Do you have to go to Dunedin to do it?? Seems it has worked out well with the radiotherapy. I went up to the hairdressers this afty and got the hair shortened considerably. All the blonde bits are gone now!! and its about the length of the wig I have chosen.
joystik (281 ) 4:22 pm, 19 Jun
3002. haha joystik I never
do things by halves! Its a cracka bruise because my blood counts are all hitting the pits at the moment. It is right the length my thigh, but not actually sore. The course is this Wed and the following one, each a whole day so hope the brain can cope! Just part of the paperwork we have to have and it seemed a good chance to get it done while I was down there. Its great you are feeling so good. Hope all goes well with getting the wig. I wore mine on Saturday and hated every minute it was on! It just annoyed me. I have got a little bit of hair back and just wear a beanie now outside in the cold. I even wore it to bed one night last week because it was so cold!
landylass (47 ) 4:30 pm, 19 Jun
3003. Landylass, the wig I have chosen is almost the
same as my hair only a lot shorter. probably about the length my hair is after todays cut!! I have this idea that I dont want to look different so that people don ask or say anything. But being a small place, most people know and most will rpobably comment anyway. And at the end of the day, it really doesnt matter too much..
joystik (281 ) 4:36 pm, 19 Jun
Hi Aunty how you? In the wars by the sounds of things :( hope your pills help. cool to hear u had a good time at the wedding:) and your back online now too. i will send u a email. yes all stable at our house at the moment . so long may it last . you are starting radation this week so we will catch up before. hope you resting up after the weekend. good to hear the wee man joshi is ok :) love kiwikaz
kiwikaz3 (6 ) 4:51 pm, 19 Jun
Everyone for your lovely comments. Bumping for Sonia, where is she today??? Im a bit worried. Bogey - thinking of you and Ryan
paulaxx (76 ) 4:53 pm, 19 Jun
3006. hello we are here...wow 3000 posts
we are not neutrophenic....wahoo its taken 9 weeks but we are 1.08 platelets 13 so will go back on thursday and he should definately need them by then. Paula glad your back home, hello joystik,boop,landylass,twinkies and whoever else i have forgotten.
bogeyi (482 ) 5:01 pm, 19 Jun
Thats good news. Josh is neutrapenic but not too bad. Neutraphils .52 now chemo dose has to be halved till hes back up there. Darn. Weekly blood tests again. Blah blah blah. Have a nice night. Love to you
paulaxx (76 ) 5:13 pm, 19 Jun
3008. here you go the best i could do
kids kept chopping my head off or it was fuzzy..http://images.trademe.co.nz/photoserver/50/23112450_full.jpg and http://images.trademe.co.nz/photoserver/15/23112515_full.jpg
bogeyi (482 ) 5:45 pm, 19 Jun
3009. Hi everyone :o)
Busy busy day, sorry. Saw Dr Benji this morning before my treatment and he stunned me a bit by implying that there was no planned further radiation if there are new lumps there. I suggested they were just the old ones not blasted enough but he dismissed that possibility. He said surgery probably next. Cancer Society nurse visited me at home after that and we talked it all through. I'm feeling much better today thanks - back on track, sword raised ;o) Rest of day I've been on exercycle, then ironing, then grocery shopping.
soniat-d (153 ) 5:55 pm, 19 Jun
3010. There's so much I want to respond to
but gotta do the dinner thing now. Sorry about that. Later guys ;o) cxoxoxoxox
soniat-d (153 ) 6:00 pm, 19 Jun
3011. Keep fighting the battle
Sonia! Be thinking of you on Wed. Kiwikaz, my emails crashed again. Got to get the computer man back out. Mouth is heaps better tonight and managing to eat again so on the up now. Just seen the ice in Dunedin this morning on the news tonight .... grr might have to change my mind about spending 5 weeks there! Hope Joshi, Ryan & Brianna have a better week this week. Catch up again when I get home at the weekend.
landylass (47 ) 6:27 pm, 19 Jun
3012. Hi all
This is awful not being able to respond - hugs to you all. Lydia is sick now - temp rising, so don't know when I'll get back - hugs to you all :o) xxxooo
soniat-d (153 ) 6:52 pm, 19 Jun
3013. oh sonia.......big hugs to lydia
hope she is feeling better soon.
bogeyi (482 ) 7:01 pm, 19 Jun
Love the pics of you. I see where the kids get their good looks from. LOL with the tongue out - your hair looks very pretty. Hope Ryan is feeling good! Have a good nite.
paulaxx (76 ) 7:10 pm, 19 Jun
I hope Lydia is ok. Thinking of you xo
paulaxx (76 ) 7:11 pm, 19 Jun
The smiley laughing was about the tongue by the way. Just had to clarify that!
paulaxx (76 ) 7:12 pm, 19 Jun
3017. thanks paula thought i would put
a smile on your faces, hows josh.
bogeyi (482 ) 7:15 pm, 19 Jun
Hope your bruise is ok. Glad you had a good time at the Wedding and your mouth is a bit better. Be careful when you head off to Dunedin. All the best for your course and radiation. Thinking of you.
paulaxx (76 ) 7:16 pm, 19 Jun
3019. Hi Bogey
Wicked cough and strange rash - those red spots! But playing with his sister right now like theres nothing wrong. He will crash soon and cough and cough.
paulaxx (76 ) 7:17 pm, 19 Jun
3020. Hi all would you believe Lydia's back to normal?!
Fastest illness ever LOL. Wish your boys could recover like that Paula and Bogeyi. How I wish xxx Sorry to hear about what happened with Joshi today - hope he manages to have a good night Paula (((((hugs)))))
soniat-d (153 ) 7:58 pm, 19 Jun
3021. Hi Bogeyi :o)
#pokes tongue out back# LOL Nice to put a face to the name! xx
soniat-d (153 ) 7:59 pm, 19 Jun
3022. Lovely pic bogeyi, i printed it so now I got a....
wee gallery of all my trade me friends. Havent got Landylass or Boop yet but we got maewest, sonia, bogeyi and paula, so thats getting a wee collection. Ohh and of course I got all the kids already. Its just lovely to be able to see you all...
joystik (281 ) 8:01 pm, 19 Jun
3023. Hi Joystik :o)
Your wig sounds great - hope you're happy :o) Is it a good fit? Has it been adjusted properly for your head? Makes it much more comfortable. I still wear mine heaps, love it, plus too cold to go without some covering for too long though I'm covering free at the mo ;o) Glad you made it through the first round so well - did you crash coming off the steroid? Hope you have a good evening.
soniat-d (153 ) 8:04 pm, 19 Jun
3024. Ha ha Joystik - snap!
I was just doing the same thing LOL!
soniat-d (153 ) 8:04 pm, 19 Jun
3025. glad you like it joystik
we all need some humour to keep us sane.
bogeyi (482 ) 8:05 pm, 19 Jun
3026. Hi bogeyi ;o)
I wish I understood what Ryan's results mean, its like Japanese to me. Guess I'll be finding out soon enough. Hope he's OK. ((((((Hugs))))) to Ryan
soniat-d (153 ) 8:09 pm, 19 Jun
3027. Landylass :o)
Yikes - you sound like you're in the wars my dear. You've gotta take more care of yourself ;o) Will you still be online once you've moved to Dunedin for treatment? Its Thursday isn't it?
soniat-d (153 ) 8:11 pm, 19 Jun
3028. Hi kiwikaz3
Thanks for posting. Glad to hear your mum beat the monster - very cool :o)
soniat-d (153 ) 8:13 pm, 19 Jun
3029. Oh kiwikaz3
Sorry to hear about your husband - glad he's living with it so well, positive attitude goes a long way. Life is for living :o) Can you give him a "hi-five" from me? ((((hugs to you both))))) xoxoxo
soniat-d (153 ) 8:15 pm, 19 Jun
3030. Hi Maewest, great to hear from you again
Love the pic - what great friends you look like - so how did you meet? Thanks for thinking of me, means a lot, same to you Paula and others :o) Just hate all the questionmarks floating around, but guess thats the new permanent reality for me. Probably much better than a definate negative, so thats my new attitude to it, if its not bad news, thats good ;o)
soniat-d (153 ) 8:22 pm, 19 Jun
Stoked Lydia is ok, maybe just a hot flush in sympathy for Joystik! Or you??? Thanks for thinking of us too. Gonna sneak off now to watch Desperate Housewives. Oh and I too loved watching that Felicity programme but lost touch with it ages ago. Hope she ends up with that guy, you know the one I mean. Catch you all later lots a love xo
paulaxx (76 ) 8:34 pm, 19 Jun
3032. Gee sonia, that was a good swift recovery from
the young lady. Sometimes those wee bugs come and go like that. Much better for you without sick children though. Might have been like Paula said, a sympathetic hot flush for me!! I havent had so many in the last 24 hours or so, but the underlying nausea is there all the time. The wig didnt really fit at all well and that was why I went and got heeps cut off my hair. Now its about the length the wig will be when its on. Once it starts to fall out, Shelley the wig lady will cut it really short, and fit the wig for me. I do quite like it now, although much flatter look than I am used too. I cant see me as a person that will ever go out without it, so I will get used to it quickly. Shelley is going to style the front a little more for me too I think. She is just lovely, and has phoned most days since I met her, just to see how I am coping. Thats rather sweet don't you think???
joystik (281 ) 9:14 pm, 19 Jun
3033. Hi Joystik :o)
Hey you know with my wig it can look flat if left to it. I shake it upside down after I take it off and before I put it on, and then ruffle my fingers through it gently - gives it a good lift ;o) Just be prepared for the fact that your scalp may go really tender when your hair falls out - mine did - so it was no wig for a good month I think from memory - was glad I had the back-up headgear ;o)
soniat-d (153 ) 9:22 pm, 19 Jun
3034. sonia... ryan is needing less platelets and
blood transfusions and his neutrophils are climbing, meaning his body is producing these things in very small amounts but his marrow is pushing tylers marow out.We dont want any of ryans marrow there as there are high chances he will get leukemia so having 80% of ryan is not good for him.
bogeyi (482 ) 9:24 pm, 19 Jun
3035. Hi Paula :o)
Yeah I know - I was sure we were taking her to the docs after dinner - and *ping* she came right! I'm gobsmacked actually! Another Felicity fan eh?! We are so alike my friend ;o) Well I'm halfway through series 2 now and Noel is interested in getting back with Felicity but currently with another who's about to find out shes pregnant, and Ben has decided he wants back with Felicity again - so its anyone's guess who she'll end up with! I'm so addicted to it now LOL - watched it while cycling and then ironing ;o) Hope you have a good night and that Joshi sleeps well xoxox
soniat-d (153 ) 9:28 pm, 19 Jun
3036. Thanks Bogeyi :o)
So is his marrow pushing Tylers out a bad thing? Hence the upcoming op? Sorry, I appreciate you explaining this to me :o)
soniat-d (153 ) 9:30 pm, 19 Jun
3037. Sonia, I found that with mine too, and Shelley
said you can put product in it if you want it to stay up more. Do you just wash yours on your head?? Thats how she told me to do mine, with shampoo and conditioner!! I wouldn't be surprised if mine isn't the same as yours except for a different colour scheme. Mine is more copper colours with lighter streaks. I didnt crash when I came off the steroids, and actually only took them twice post chemo. So far I havent taken any anti nausea medication, but the nausea is there 24/7, kinda like I imagine morning sickness to be?? Yes?? Is that how you found it?? I think the name of my wig is "Date". Nice name aye??
joystik (281 ) 9:32 pm, 19 Jun
3038. sonia, I might have to wear a wee thin beanie
under the wig if it annoys my head. I think my head is pretty tough, but maybe different with no hair!! So have you got a wee gallery of your Trade Me friends too? Nice aye. See you all tomorrow...nite nite.....
joystik (281 ) 9:36 pm, 19 Jun
3039. yep thats right......because tyler is a 5/6 match
ryans body can detect that and say hey you shouldnt be here and he pushes it out and his marrow re grows, that is why he will have radiation this time to completely supress his immunity and wont be able to fight tyler, we want 100% donor.
bogeyi (482 ) 9:42 pm, 19 Jun
3040. Bogeyi that is so interesting. Something i knew
nothing about either, and like Sonia said, much like Japanese to me too. Its a big slow process then isnt it. So can just any random person be a 100% match or does it have to be family??? I'm off to bed so I will look for your reply in the morning and probably ask another 50 questions!!! Nite nite, bogeyi, sonia, paula, and everyone...and the boys....
joystik (281 ) 9:48 pm, 19 Jun
3041. you can have unrelated donor matches
where they search worldwide for a match, tyler is a 5/6 which they said is as good as, with a sibling donor you generally get less problems/side effects.
bogeyi (482 ) 9:51 pm, 19 Jun
3042. How is everyone
mily to stay and my mother's 87th birthday. Hope every one is well and coping with our monsters. Keeping well myself at present but my thoughts are with you all. Interested in how you guys ar egetting along. Best of luck to everyone going for treatment.
icarus1989 (468 ) 9:55 pm, 19 Jun
3043. Hi Joystik :o)
No I don't wash it on my head LOL! Its a gentle wash in the sink! Is yours a $400 jobbie or a natural hair one? I never had a sensitive scalp either, it just did not like whatever was happening when the hair was falling out?! You'll have to show us a piccie of your new wig on! Don't worry what people think - my look changed COMPLETELY LOL ans aquaintances just thought I'd had a haircut LOL ;o)
soniat-d (153 ) 10:19 pm, 19 Jun
3044. Oh my favaourite non-wig look
was to wear a light tight beanie and then a nice scarf over the top. The beanie kept the silk scarves anchored well on the head, and gave a bit of extra body so it looked like hair was underneath ;o)
soniat-d (153 ) 10:21 pm, 19 Jun
3045. Thanks for explaining that Bogeyi :o)
So sorry another op is required but glad the docs still have options to overcome the problems. While there are options there is always hope ;o)
soniat-d (153 ) 10:24 pm, 19 Jun
3046. Hi Icarus :o)
How are you these days? Where are you at now? Good luck to you... Thanks for posting ;o)
soniat-d (153 ) 10:26 pm, 19 Jun
3047. hi paula and joshi
wishing you a speedy recovery Joshi you are having a bad time.Take care of your mum she is very precious. Hugs from boop
boop2 (106 ) 10:36 pm, 19 Jun
3048. Hi bogey and ryan
you look a wee bit cheeky bogey reminds me of my youngest son he always done that when getting a photo taken.love to ryan
boop2 (106 ) 10:38 pm, 19 Jun
3049. Hi joystick
You sound really great i am glad you are feeling so well. We had a beautiful day here but very cold the wind was coming straight off the mountains. lauren is in the best place tucked up in bed. Here is a photo of me finishing at my beloved op shop, it is the most recent. I am the old grey haired one sitting on the arm of the chair in the maroon jacket next to me is my sister. I see you have op shops on your emails. I worked there for nearly 8 years I still do the books but will miss the people. http://images.trademe.co.nz/photoserver/37/23128837_full.jpg They are such nice girls I worked with.
boop2 (106 ) 10:44 pm, 19 Jun
3050. Hi landylass
you love to knock yourself around. That bar course sounds good.Hope the radiation goes well are you nervous? Hugs from me for all your wounds.
boop2 (106 ) 10:46 pm, 19 Jun
3051. Hi maewest
you three look really good what nice slim figures. How is the CH CH weather it is hard for us to get over there because of the snow on the Lewis. Got to watch mitch (grandson)play rugby at some stage. Take care
boop2 (106 ) 10:49 pm, 19 Jun
3052. hi kiwikaz
That positive attitude seems to help. How are you coping? I wish you all the best for you and your family.hugs
boop2 (106 ) 10:52 pm, 19 Jun
3053. Hi sonia
you are still doing too much but I guess when you are like that it is hard to change.Love to Lydia she did make a quick recovery.What would happen if you have to have surgery again is it by the radiation? Hope you don't mind me asking.My sister in the photo with me is a breast cancer survivor but she will not talk about it.Love to you sonia and goodluck for this week.
boop2 (106 ) 10:57 pm, 19 Jun
3054. Hi boop2
No I'm having radiation now (its like a big xray machine but zaps the tumors with some kind of alphawaves or something (no idea LOL). Surgery will be your typical anaesthestist (sp?!) and surgeon with a scalpel. Lucky me :o/ !!! Its cool though, whatever get rid of the beast. What do you know of what your sister had done? Maybe I can fill in the gaps?
soniat-d (153 ) 9:54 am, 20 Jun
to everyone. Sonia - thanks for the Felicity update. Keep me posted. Boop, beautiful photo, what a gorgeous smile you have! Bogey its so interesting learning about what you are going through. Feel for you, does the radiation focus on a certain body part for Ryan or is it whole body??? We are ok today, Joshis looking better but a bit pale.Hospital say no need to do bloods on monday now so we are kinda left wondering if his levels remain low or ok? Also no need to halve chemo keep it at full dose - oh well they know what they are doing. Have a great day everyone.
paulaxx (76 ) 10:11 am, 20 Jun
3056. hi paula not sure about the radiation
as we didnt have it the first time and dont really want it, but understand we must.We are waiting for opur appointment so we can go and talk with them so they can explain the side effects.
bogeyi (482 ) 12:07 pm, 20 Jun
3057. Hi Paula :o)
Hugs to Joshi - does he have a main specialist in charge of his treatment, that you can ask these questions to? It must be awful wondering/not being sure that what you're doing is right. Is that how you're feeling? That was my take on it. Hope you're having a good day :o) xoxxo
soniat-d (153 ) 12:08 pm, 20 Jun
3058. Let us know how you get on with that Bogeyi
I feel like I'm a radiation expert LOL maybe I can help? My sideeffects are very few, little tired maybe (not as much as I was expecting from the way they carried on) and just the skin troubles, but then that was because they were treating close to my skin surface. The treatment I'm having now is deeper and my skin is sweet as ;o)
soniat-d (153 ) 12:11 pm, 20 Jun
3059. sonia can i ask a yucky question.... having
radiation in your case does it increase chances of getting secondary cancers.I hope its ok to ask feel free not to answer.
bogeyi (482 ) 12:15 pm, 20 Jun
You read me like a book. Yes we do have a main specialist - in Christchurch, cant really phone him. The treatment protocol josh is on is part of the Cancer Oncology Group. Based in the states, it is a new protocol, been used overseas so all direction comes from the states. We do what our hosp (Invercargill) tell us, they do what Christchurch tell them, Christchurch do what the States tell them. PHEW. I have a list of questions to ask, next time we have clinic - this falls when we come to Auck so wont be for a while now. i can find out by asking someone to ask Oncologist tho'. But really its in their hands. how are you today? My friend just posted me a bag of hard caramels and Terri Hatchers new book. Spoilt eh?
paulaxx (76 ) 12:28 pm, 20 Jun
3061. Hi Bogey
Now I can see your face in my mind everytime I type your username. How are you guys doing today... Bank manager coming here shortly to discuss us buying something ie small farm, normally I would be so excited. Things like this just dont mean what they used to..
paulaxx (76 ) 12:30 pm, 20 Jun
3062. Yikes Bogeyi
Not that I know of! My secondaries started months before I started radiation, it was only after I'd just started radiation (a few days) that they became big enough to raise alarm. The radiation has shrunk my biggest lumps beautifully we believe - tomorrow will tell ;o)
soniat-d (153 ) 1:05 pm, 20 Jun
3063. Hi Paula :o)
Our neighbour just turned up with a stunning bouquet of flowers - how sweet is that? Seems I'm being spoiled too ;o) Well that sounds like quite a chain of command LOL Good to hear its coming from latest knowledge overseas - I like that :o) Anyway, if you are concerned you should just pick up phone and ask - I've learned that the hard way ;o) Hope you're having a good day - off now for another Felicity fix while painting my nails then exercycling again ;o) See you all later :o)
soniat-d (153 ) 1:31 pm, 20 Jun
3064. Hi everyone
Well, it's good morning for me. The 'dog watch'supervisor who takes over from me at 10pm had to take his wife to hospital, so ended up doing a double shift. Got home at 7am!! When I came out from work there was thick ice on my car..couldn't even get the door open! The half hour drive home took me almost an hour!! On top of that dropped my cellphone in the carpark while I was trying to prise my door open! Fortunately someone found it an hour later and its at work waiting for me. It's still working. Amazing as I would have thought it would have been frozen solid!!Anyway I'm up now and it's a beautful sunny day. Life is sweet.
maewest (75 ) 1:33 pm, 20 Jun
3065. Hope you are all having a lovely day
Are you feeling on top of things today Sonia. It's hard to keep the 'pecker'up all of the time. I met Sandra (on the left in photo) at the initial fitting for my wig. Delia I met while we were sitting next to each other at Oncology having the dreaded chemo. It was my 3rd treatment and her 1st. We have all become the closest of friends. Sandra has Hodgkins (or non..can't remember which)Lymphoma. She has already had 3 rounds of chemo and has to go for 3 monthly bloods. Landylass, I'm sorry but I had a giggle too at your description of falling over. Do hope your bruising is settling down and also your poor mouth. Ouch, that sounded sore. Good luck with you bar course and of course you radiation. I'm sure you will find that a doddle after what you have been through. I'm enjoying see ing all your photos. So lovely to put faces to the names.
maewest (75 ) 1:40 pm, 20 Jun
3066. Ryan, Joshi & Briyanna
Hope you are all feeling good today. Big hugs to you all.Joshi hope all your spots have gone and your cough is getting better. Love and hugs to your Mums too. They are very special people.Joystik I cracked up when I visioned you washing your wig with it on your head. I don't know how you would do that! I did what Sonia did...in the basin with the shampoo then outside sitting on top of a tin to dry. Apparently you are not supposed to wash them too often..it's not good for them. Yip a good old shake before you put it on your head does the trick.Hope you are still feeling ok. Boop it must have been fun working in the Op Shop. I would love to do that.
maewest (75 ) 1:48 pm, 20 Jun
3067. Hi all
there is no way I had the time to read all the posts. My mother has cancer and was given all the treatment last year. she has recently gone back for her regular check up and it has come back. Now she has a meeting this week at the hosp for herself and family members. I am so scared, I cant see this being good news.
karma6 (9) 1:49 pm, 20 Jun
3068. Oh Karma
that is not good news for you. What king of cancer does your Mother have? I know it is easy to say, but try and stay positive. What they can do these days is amazing. Big hugs to you.
maewest (75 ) 1:52 pm, 20 Jun
3069. She has lympnode(sp)
and they have said that she cant have anymore radiotherapy as her body just would not handle it. I try very hard to stay positive. i just felt the need to talk to someone.
karma6 (9) 1:56 pm, 20 Jun
3070. sonia i am so sorry wasnt trying to scare you
in Ryans case with FA having radiation and chemo (but more radiation) they have high chances of getting secondary cancers as they have a breakage in there chromosones and the body isnt able to repair these damages. So that is why we need to go to transplant sooner than later again as FA paients also have high chances of developing luekemia and if that happens with FA the chances of survial are almost nil.Im sorry if i scared you i wasnt implying it could happen just wondered if anything was said we have been told already with the radiation and have read about it, goes with the syndrome.
bogeyi (482 ) 2:07 pm, 20 Jun
3071. Hi Bogey
I'm sure you haven't scared Sonia. It is interesting (no, that's not the word I'm looking for!) to hear all about the different treatments. I can't believe what these children have to go through. Words just fail me.My heart goes out to them all. I think when I first found, out my first thought was 'Thank God it is me and not them'. I can only imagine what it must be like for you Mothers having to go through this. It's just not fair. CANCER SUXS!!
maewest (75 ) 2:22 pm, 20 Jun
3072. Karma this a great place to
air your feelings. The support is amazing. I hope everything goes well for your Mum and your family. I think it is sometimes harder for the support people than the person going through it. Not a lot you can do but just be there with lots of hugs and love.
maewest (75 ) 2:28 pm, 20 Jun
3073. Hi maewest, so is it 3 days off now?? Or will you
have to work while soeone is sick?? Hope not. The day started beauiful and frosty, but now its cloudy and much cooler. Shortest day tomorrow, so then it downhill to christmas again..... Shelley told me to was the wig about every 20 times I wear it or so, and she did say to wash it on my head!! Sounds funny really doesnt it. I just went for a walk round to the other house and had big ideas about helping Kevin with some painting, but oh no not today thanks!! Was almost sick with the smell of the paint when I opened the door. I'll try again another day perhaps. You have a good rest now maewset, you've been working too hard too.....
joystik (281 ) 2:43 pm, 20 Jun
3074. Thanks bogeyi for your pic...its lovely and like..
Sonia, I have you in my minds eye when I'm writing to you now. I printed all the pics off so I can see you all every day, and its rather nice I think. Most interesting all the information about Ryans condition and treatment. Such a lot to learn and know about all that isnt there. There seem to be so many side effects with all the treatments don't there, but hopefully the long term effects are better. That was one thing the Oncologist said about one of my chemo ingredients, was that it can cause other cancers long term in say 30 to 40 years. That didn't bother me in the slightest, so long as I get more years, I dont want an end date on my life just yet thanks. Hope you are having a ggod day....I think about you all lots of times and like others have said, just wonder how you cope with seeing this illness in your child. Hugs to you all.....
joystik (281 ) 2:49 pm, 20 Jun
3075. Hi Sonia, you sound much better today,...I felt
kinda sad and helpless for you for a couple of days. Tomorrow is wednesday, so you will have your mammogram and will know for sure what is happening and what course of action will be taken. The thing is now days there is so much that can be done, and like i always thought you could only have 1 shot at chemo, but thats not true either. I know a lady that has had 4 different chemo treatments now, and shes still going strong. So there is always hope within the medical people. That was lovely for you getting the flowers!! That was so thoughtful of the neighbour to do that. I got vegie soup from mine and that was lovely too, especially now it has turned cold. My friend is bringing another wig out shortly for me to try. I will send the 3 others back that I dont like, and keep my favourite one. I put it on before again and it fits much better now my hair is cut shorter. Hope you're not being too busy today....hugs to you too....
joystik (281 ) 2:54 pm, 20 Jun
3076. Yip 3 days off now Joystick
I woke up at 12 and still in my jamas! There's one day down the drain. Just sitting here in the sun-gorgeous. I don't know how you would wash the wig with it on your head...it would come off. I just dried mine off in a towel before putting it outside. Dries in no time. OH the smell thing. It all comes flooding back now. I remember my sister came over from Aussie for a month and was cooking my favourite foods. As soon as she started cooking I had to leave the room! And certainly couldn't eat it! I found platters of cold finger food not too bad and anything bland. Spicy food was out!! Strange thing I couldn't stand the smell of the toilet and was always scrubbing it! We have a septic tank & I was sure I could smell the drugs!! Nobody else could though.Cleanest it's ever been. LOL
maewest (75 ) 2:56 pm, 20 Jun
3077. Hi Paula, hope things are betterat your home today
with Josh. So, like he hasn't got enough to cope with, so we just add asthma to the list as well!! Poor kid! At least you know now what the problem was though. Interesting about his treatment coming from the States. A lady I know in CHCH, with liver cancer and leukaemia, she was getting her treatment for her liver from the states too, and she is in remission now. She had 9 tumors on her liver and they were injecting chemo type drugs straight into the tumors, and all but 1 of the disappeared completely! Great news. Her Leukaemia is not cured but under control and her medication is regulated by blood tests. Its all so amazing when I think about 4 years ago she was so close to dead it wasnt funny, and now she is totally independent and doing mostly what other people do. There is definately plenty of hope out there for people to win this battle. Hope you have had a good afternoon with Mr Banker!! Anytime you will be out looking. Yes, funny how you prioritys and wants change isnt it!!
joystik (281 ) 3:02 pm, 20 Jun
3078. Oh paula, I forgot the hugs...........
and more hugs for you all....(not Mr Banker!!)
joystik (281 ) 3:03 pm, 20 Jun
3079. Yes maewest, the smell of the paint almost made
me go green! Kevin wondered what I was doing with my head stuck out the window. Because he's been painting in there for days, I dont think he could really even smell it any more. But, boy oh boy I could. Just put a roast of beef on for tea, and even that is pretty borderline.....got the fan going at high speed!! If you stay in your Jamas a bit longer it will soon be bedtime again and it will save getting dressed. Much like a teenager!!
joystik (281 ) 3:06 pm, 20 Jun
3080. Boop, yummy tamarillos, we had a tree of them
at a house we owned in Takaka, and it used to fruit all year round. I could always go out in the morning and pick a few off the ground. Wouldnt be any hope of them growing here I dont think. I grew one in Oamaru, but moved before it fruited. It had flowered though. So, are you basically frost free where you are?? Hope you are having a great day too. Hugs you you both....
joystik (281 ) 3:29 pm, 20 Jun
3081. Oh Joystik
Come on - hes not tooo bad actually! ;o). Just kidding. Thanks here come some cuddles right back at ya. Hope the sicky feeling is better. lots a love to you and your family
paulaxx (76 ) 3:30 pm, 20 Jun
3082. Hi karma, sorry your Mum is being given the run
around by this cancer thing. I have breast cancer and it had also spread to my lymphnodes. I havehad surgery to remove all the nasties, and have just started my chemo a week ago. After the chemo, I will have 3 weeks of radiotherapy, and then hormone therapy for 5 years. I am very positive that I can beat this thing, and the trick is to try and be as positive as you can all the time. Its not always easy, I know but it certainly helps. Hopefully there will be a good outcome to your mums appointment at the hospital. I'll be thinking of you all and sending you some hugs for you and Mum too.....
joystik (281 ) 3:35 pm, 20 Jun
It is really interesting about the types of treatment offered. When I was completely ignorant to all chemo/cancer stuff, I just thought it was all one thing. Just never had to think about it before. Its incredible to be given choices over which path to take. Given the fact that if we hadnt gone to the dr Josh only had 3 weeks if that, we went with the option they felt was best for us. Its new to NZ. I hope you are having a lovely afternoon. Its nice to know we have the support of the bank, I just cant think too far ahead, its still just one day at a time for me. xoxo p.s your wig sounds lovely
paulaxx (76 ) 3:35 pm, 20 Jun
You must be exhausted. Glad someone found your phone. Hope you warmed up quick. Thinking of you and thanks xo
paulaxx (76 ) 3:37 pm, 20 Jun
3085. Good to have the money man on side Paula...
thats a good start. You have another season to go where you are don't you? Gee Paula, do you mean Josh only had 3 weeks total??? That is sad, so sad. So what if you .....oh no...dont go there.... Even with mine Paula, the Oncology nurse said the other day that without pretty severe intervention with chemo drugs etc, I would be on 'skid row' so to speak. Hardly bears thinking about does it?? So, I'll just have all the drugs, and more if they can find them and come what may, another 30 - 40 years sounds good to me!! And especially now that the sun has decided to re-appear! Oh...and that sicky feeling.....it never goes, even in the middle of the night, it is there. But, if you are busy, you dont notice it nearly so much. So.....KEEP BUSY HEATHER...only til the end of Ocotber. Are you warm today??
joystik (281 ) 3:42 pm, 20 Jun
3086. sonia and boop2
thanks for the hugs and hi 5. I have been out and about today doing groceries etc. my support carer come in for 4 hours so i get things done , because of seizures he can't be left alone. But i got home and he has wired up another speaker to his stero in the garage and blasting me to kingdom come. He loves music and the louder the better it seems. Its funny because the noise of kids and crowds etc get to him but music does not.Poor carer needed ear plugs but she was laughing !!! my my youngest home today with earache , she is so good at amusing herself since dads been sick. hes gone off for a sleep now so some time for her ( he usually sleeps 4-5 hours day.) anyway havent caught up with my aunty Landylass so am off to give her a ring. and give some of my time to miss 5. will be thinking of u on wednesday and wishing u the best. hope u all having a good day :)
kiwikaz3 (6 ) 3:43 pm, 20 Jun
3087. Landylass, hope you got to Dunedin OK? Take
care of yourself down there and watch the ice on the roads and paths. You already have the bruise of the year and don't need any more. Hope your course tomorrow s a lot of fun, and good luck for the radiotherapy. We'll be thinking of you .....hugs to you.....
joystik (281 ) 3:44 pm, 20 Jun
3088. Haha Joystik.
I'm dressed now. Have started vacuuming, done one room and time for a coffee...can't be bothered!!! Only have a small house too!The windows look better now the sun is going down!Who cares...what was that about priorities lol. I'll dig out a couple of photos for you..the shaving day and the wig. I had a little sofr velvet black hat that I wore at night (the head gets cold!) and sometimes I wore it during the day with a rolled scarf wrapped around it. It's just whatever feels comfortable for you. Your scalp will get itchy for a while and the wig just makes it worse. When I got brave, I didn't wear anything at home.
maewest (75 ) 3:45 pm, 20 Jun
3089. I can relate to the music thing
Kiwikaz. I love it too. The local Cancer Society have a Music Therapy session in a couple of weeks. Think I might go to that. I went to hear Julian Lloyd Webber a couple of weeks ago. Haven't been to a classical concert for many years. It was wonderful...just got lost in the music. Will have to do that again sometime. Paula you will have fun looking for a new home once you get into the swing of it. Positive stuff for you all.
maewest (75 ) 3:53 pm, 20 Jun
3090. Hi kiwikaz, nice to see you again today....
Glad you're having an OK day. Its been abit chilly out here, but nice again now. Good you have a carer so you can have time out during the day. Must be the time for bugs. My daughter 15 had the day off school yesterday, but was ok again today and went off happily to college. Tomorrow they come home at midday, something to do with stop work meeting I believe. Only 1 more week and its holidays again. We had so much planned til this happened!! Never mind, we will be off again as soon as I am better, early next year. Say hi to landylass for me, I just posted her a message. Hugs to you and your family.....
joystik (281 ) 3:55 pm, 20 Jun
3091. Thanks maewest, that all sounds really nice to
me. I'm really not very creative with hats and scarves and the like, but I guess If I cant wear the wig I will have to learn. I cant see me EVER going with nothing on my head. The thought of it makes my cry.....still!! Music can be very soothing to the soul I find. The concert you went to sounds superb Maewest.
joystik (281 ) 3:58 pm, 20 Jun
3092. joystik i wonder sometimes why us
i never let Ryan see me sad about what he has to go through, we have a good strong relationship and he knows I would do anything for him not to have the pain and hurt, the way i deal with it is fun we jump up and down on the hospital beds, we played indoor cricket in our room (created havoc) and you will always hear me say....if your counts are low today im going to bash you....his reply is no can you use the spikey stick today..this was so funny the first time they hraed it, the looks i got classic. So i tend to make it fun for him always saying gruesome stuff he likes and makes him laugh, at the end of the day my heart is breaking and if im not strong he wont be strong.
bogeyi (482 ) 4:15 pm, 20 Jun
3093. Bogeyi, that is so true, and you really must be a
very strong and capable person to even be able to deal with this. But then I guess its like everything, once you've got something like this, you just have to deal with it, like it or not. I knw with me when I was first diagnosed with cancer and told Lauren, she just tried to pretend it wasn't true, and kept telling me that the hospital had made a mistake, and all that sort of thing. It was obviously her way of coping with the bad news, but now she has come to accept that what will be, will be, and not liking stuff doesnt make it go away, so you have to face up to your fears and be able to talk about it. Me losing my hair is a HUGE one for her though, (and me too really!!) and she just said last night, I dont think your hair will fall out Mummy!! (She's 15 nearly!!) Wishful thinking I guess. Hugs to you ....you are a wonderful supportive Mum.....
joystik (281 ) 4:22 pm, 20 Jun
3094. i have always told ryan the truth and what
will happen right from when he had his hand surgerys when he was little, i tell him what he needs to know and thats it, I feel this is why he is like he is I have never hidden anything from him or said it wont hurt so we have a great trusting relationship.
bogeyi (482 ) 4:32 pm, 20 Jun
My daughter was the opposite with my hair. She (10 at the time) wanted me bald so she could paint my head. She was quite disappointed when I didn't lose it completely (so was I actually).
nztrader2004 (477 ) 4:39 pm, 20 Jun
3096. I am feeling a bit nervous today.
I had a breast cancer removed (& some lymph nodes) in April last year (lumpectomy) & 25 radiotherapy treatments. At my 6 monthly check-up, the surgeon found a small hard lump in my scar. Had a scan & biopsy & decided to have it removed as it was "pre-cancerous". On a scale of 1 to 4, (4 being bad) it was a 2. Had yearly checkup in April just gone & mammogram - all fine. On the weekend I found another hard lump in the scar, about pea size. Am seeing the specialist tomorrow, & she will do needle biopsy if she thinks it is of concern. I keep telling myself it is just an encapsulated stitch coming out, or something minor, but ladies, I am scared. Cross fingers for me - my sword is high!!
dize5 (452 ) 4:41 pm, 20 Jun
Yes thats what they said. 3 weeks and that would have been it. :0/. So like you we say whatever we need to fight this - bring it on!!! Have a lovely evening. xo
paulaxx (76 ) 5:00 pm, 20 Jun
You sound so much like us. We had the stereo blasting in Josh's room, always laugh at something, never sit in the sadness of the place, it can really bring you down. Josh has asked some pretty curly questions that wee children shoudnt even have to think about. But like you honesty is the best policy and it has strengthened our trust too. I am so honest with him sometimes people get surprised. But this is yours and my reality isnt it. I feel for you with what you are going through you are doing a wonderful job! Glad we met on here!
paulaxx (76 ) 5:04 pm, 20 Jun
All the best for your appointment. Sending you positive vibes.
paulaxx (76 ) 5:06 pm, 20 Jun
miked10 (227 ) 5:07 pm, 20 Jun
3101. dize5 big hugs to you
paula we to have had the curly question and im sure i know what it was, i answer honestly but never relating it to him in general.He has asked a few times can he die from this (parents worst nightmare question) i just say kids and adults can die from FA, but its good the docs are keeping a close eye on you and you are healthy when going into transplant hes all good and happy with that.
bogeyi (482 ) 5:26 pm, 20 Jun
3102. Hey all. Heres an update on Briyanna.
I've pulled it from the update I just did on her website (www.caringbridge.com/visit/briyanna - don't forget to sign the guestbook hehe).
twinkies_pn (0) 6:05 pm, 20 Jun
We discussed with the oncologist the limp that Briyanna has developed and her tendency to tip-toe around, this may be a side effect of the Vincristine drug she was on previously. One symptom I had failed to notice is Briyanna has lost her reflex action (tap under the knee test). An appointment with the Physiotherapist has been arranged. Briyanna attended the Radiation simulation after the clinic. It all went pretty well although was long winded.
twinkies_pn (0) 6:05 pm, 20 Jun
When we got into the simulation after several 'rearrangements of position', forty minutes and one further tattoo later it was all over. Although Briyanna did complain about the hard bed (mould) she had to lie in. Briyanna starts her Chest radiation next Tuesday (think it must be eight days worth with the weekend off, as they don't work Sat/Sun).
twinkies_pn (0) 6:05 pm, 20 Jun
The Radiology Consultant was on leave so we didn't get to discuss the forthcoming treatment with him, or how this will work into the current Chemo schedule, we think this means the next Chemo will be delayed until after the Radiation treatments have completed, (they don't usually do both together)............ ANyway, off to read the thread! Finally have a moment to sit down and catch up!!!
twinkies_pn (0) 6:06 pm, 20 Jun
Josh got given a book for kids with Leukaemia and it says that you can die from it. He said Mum is that right could I die from this. I said honestly yes SOME people do BUT that is why you have to have all the tests and medicine all the time to try and not let that happen. Then I left the room quick to find the tissues. He handled that really well. He has also told me if he does die he will be with the Angels and come back to visit. They are so precious arent they? We talk about death a bit so Cass and Josh both know that its nothing to be scared of.(Not implying anything directly of course) Well we try anyway??? Hope that makes sense. Its never in a morbid way.
paulaxx (76 ) 6:07 pm, 20 Jun
Hi. Josh has Vincristine too and limps (also a side effect from a Stroke) and he tip toes too. Constantly reminding Josh to walk NOT on his tip toes. Good to hear how things are going with you - keep your chin up
paulaxx (76 ) 6:10 pm, 20 Jun
hugs to all
trishm (34 ) 7:47 pm, 20 Jun
3109. Hi Paula :o)
((((hugs my sweet))))) I'm kind of shocked that someone gave him that book if that was in it, without prepping you first - how bizarre?! Yes I have the same discussions with my girls - very similar actually. Lydia got a scrath on "her booby" yesterday at school and came home all upset saying she now has what I have. Boy that took some talking out! She's very sensitive to it at the moment, poor lamb.
soniat-d (153 ) 9:30 pm, 20 Jun
3110. Good luck dize5 :o)
Hey, if you had a pre-cancerous one before - cool this new one could just be another. Glad you're onto it checking often "Early detection is the best prevention" ;o) (My new mantra) Best of luck with the mammogram etc :o)
soniat-d (153 ) 9:32 pm, 20 Jun
3111. Hi Twinkies
It amazes me how they can do those radiation markups on wee kids - the amount of mucking around they do, then making you NOT MOVE on that ghastly hard bed. Good on Briyanna for lasting it through! I seems that when I was at my markup they lay me out in a wierd crooked position (felt bad to me but they wouldn't let me move) so now every day they get me back in the crooked position - I hate it! Only one to go though ;o)
soniat-d (153 ) 9:35 pm, 20 Jun
3112. Thanks Kiwikaz3
I too LOVE music and have to have it going a lot, when cleaning house, cooking.... music is the best :o)
soniat-d (153 ) 9:40 pm, 20 Jun
3113. Hi to everyone else :o)
Sorry to who I've missed ((((hugs to you))))) I must go again now, finish tidying and lie down. Its a big day tomorrow, not just last day radiation and then the dreaded ultrasound but also I'm going to a work do in the evening with Brent. So trying to get house in order as MIL will be looking after girls here... won't go overboard though ;o) Will try and get on here and let you know what ultrasound shows, promise I will ASAP ;o) Nitey night all :o) xoxoxox
soniat-d (153 ) 9:43 pm, 20 Jun
I am sneaking off to bed but had to post on here that my thoughts and love will be with you tomorrow. I have been thinking about you constantly. I hope you have a restful night sweet. Hugs to you, Lydia and Emily and Brett too sleep tight my friend. Sweet Dreams xoxoxoxo
paulaxx (76 ) 9:49 pm, 20 Jun
Who's Brett - thats BRENT!!!! I am tired tonight. nanite hun
paulaxx (76 ) 9:50 pm, 20 Jun
3116. Hi sonia, sorry I missed you tonight. My friend
came out from town with 3 more wigs. I still like the 1 I chose first the best, but have kept the new ones for a few days for a play. Just wanted to say I would be thinking about you tomorrow and send you all the love and hugs to get through the day. I know what these appointments can be like, but I'm sure your outcome will be positive. Keep on smiling and be positive and you will get through this Sonia. You are such a great support to everyone on here, and I can never thank you enough for the help and love you have given to me. You are one of life's real treasures. Take care, sleep tight, and hugs to you all....xxxx
joystik (281 ) 10:20 pm, 20 Jun
3117. Hi everyone
I am thinking and praying for you all. Good luck tomorrow sonia. I am ready to fall in too bed now . Love to you all while I am having this big shift. So, so tired. joystick send me your addess and I will send you some tamarillo's. (((((((((((hugs)))))))))))))
boop2 (106 ) 10:22 pm, 20 Jun
3118. Boop, you rock!! I will email you with the address
lucky I was still awake to see that message aye. I am ready to fall into bed too actually. You have a good sleep and we'll talk again tomorrow. Hugs to you too....
joystik (281 ) 10:24 pm, 20 Jun
3119. Hi Paula, bogeyi, and twinkies, lovely to read
your posts. Honesty is the best policy always with children. I have never been faced with the type of issues that anyone of you have been, but if Lauren ever asked anything, I always told her the truth. You really cant go to far wrong if you do that. I just feel so much for you mums that are facedwith all this. I think about you all lots of times during each day and send you lots of hugs to help you through. Ohh....I send heaps of extras for your kids too, not just the sick ones but all the ones that are well and have to see their little brothers and sisters going through so much. I'm so proud of you all in my new Trade Me family. Sweet dreams everyone and I'll be back tomorrow...Bye
joystik (281 ) 10:35 pm, 20 Jun
3120. Loving thoughts
to you today Sonia. Keep us posted.
dize5 (452 ) 7:59 am, 21 Jun
Hope you have a lovely day today. Thinking of you. Take care xo
paulaxx (76 ) 8:24 am, 21 Jun
Hi. Hope the sicky feeling is not there today for you. You are doing amazingly. Thinking of you too. xo
paulaxx (76 ) 8:25 am, 21 Jun
love and best wishes for your big day. Paula and Joshi xoxo
paulaxx (76 ) 8:25 am, 21 Jun
Hi. Hows it all going at your place. Thinking of you. I might have to grab the xbox controls today I think and escape into Josh's world. LOL Have a good one
paulaxx (76 ) 8:27 am, 21 Jun
3125. Landylass,Maewest, Twinkies,
and anyone else I might have forgotten - Hope you keep warm and have a nice day. Love and thoughts xo
paulaxx (76 ) 8:28 am, 21 Jun
3126. Good morning everyone.....going to be a bit of a
mucky day weather wise I think, but thats ok cos I'm not doing anything outdoors. Woke up with a really good headache at 5.30, got up and had a drink of water and went back to bed, went to sleep, and woke up with it slightly better at 7.00. Almost gone now but still got the nausea, but thats not so bad. I am going to study today and go for my assessment early next week so I can do some work!! Hope you all have a good day, keep warm and will talk again soon. Enjoy your fun on the x-box Paula, and good luck for your appointment Sonia. Will be thinking about you.
joystik (281 ) 8:54 am, 21 Jun
3127. Hi Boop, hope you've got the hatches battened
down on the coast. You're supposed to get very heavy rain today. It will fill the towns reservoir I guess, so its not all bad. Hope you have a good day too. Take care.....
joystik (281 ) 8:56 am, 21 Jun
3128. Hi sonia,paula,joystik,landylass,boop,twinkies
hope all goes well sonia today.Paula enjoy the xbox.Joystik hope your head is feeling better now.
bogeyi (482 ) 9:34 am, 21 Jun
3129. Hi Sonia -
thinking of you today and have a wonderful night out tonight!
solarouge (46 ) 9:38 am, 21 Jun
How are you today. Josh is watching a video now so im not required for the xbox yet tee hee Been baking for my friend instead. I was thinking about you the other day and all the meds you have to give Ryan, thats a lot you are amazing!!
paulaxx (76 ) 10:19 am, 21 Jun
Poor you head aches are yucky!!! mind you so is feeling sicky. Hope you get your study done. Think your incredible for being able to concentrate!!! Oh and forgot to answer your question the other day - yes we have one more spring here so May 2007/1st June we will be moving on. Just putting our feelers out as to what we are able to go to etc. Hope you are keeping warm xoxo
paulaxx (76 ) 10:22 am, 21 Jun
3132. Hi paula, do you think you will stay within the
southland area?? Or move away? Its a big decision isn't it. I guess value for money wise, this is still the bestvalue in NZ down here, but shhhhhh.....dont tell everyone, or they will all want to come. We moved from Diamond Harbour (on Banks Peninsula) to Nelson, to Oamaru, to here last may, and really like it here. Not that we didn't like any of the other places we lived, but here there are more opportunities to things other than work to support a big mortgage!! My family mostly live round Nelson/Golden Bay area, and sometimes I would like to be nearer, but up there is very expensive too. We will be here for a while I would say. Got my appointment to have the Portacath put in today. It is for 30th June, but now I have to phone oncology dept, cos they dont want it done that day... as that is 14 days after chemo when my immunity will be at its lowest. Hopefully they will be able to do it the next week probably the day after my next chemo, july 7th. They only do portacaths on Fridays!!
joystik (281 ) 10:33 am, 21 Jun
3133. hi joystik
oh that will be good to get your port in. Hope they can sort it sooner rather than later for you. You dont have to stay in do you? Josh came home that night. We would like to stay down here definately. Like you say the dollar goes the furtherest here. Sometimes we think about Whitianga, I would love to live in the Nelson area. Lots going on up there and the climate...YUMMMO. But this is where we have to be right now. So something will turn up thats right for us. My mum is talking of moving closer??? I am such a sun worshipper, its a bit hard to get used to the cold! Are you managing you sicky tum tum? And headache gone?
paulaxx (76 ) 10:41 am, 21 Jun
Just got back from ultrasound - no good news I'm afraid. Where once there were 8 lumps now there are 12 - biggest 3cm!!!!! Thanks everyone for wishing me luck. Off now to ring my specialist and see what her first thoughts are - may have to wait till everyone has seen the results. Grrrrrrrrrrr Bugga........
soniat-d (153 ) 10:48 am, 21 Jun
3135. Hi Joystik and Paula
Thanks for your lovely posts - I really appreciate it - had my cry feeling quite strong now. At least my gut feel was right - I could feel them on my chest wall - know the feeling now.
soniat-d (153 ) 10:50 am, 21 Jun
3136. Oh Darling
Sonia. You know your body so well!!!! That is so S****y!!!!! So glad you are so proactive with this! Keep fighting hun! We are here for you when you need us. Lots a love xoxoxoxxoxoxoxxoxoxxoxoxoxoxoxoxoxoxoxoxoxxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxxo xoxoxoxoxoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxoxoxoxoxoxoxo.......
paulaxx (76 ) 11:12 am, 21 Jun
that doesn't sound like good news at all. Be strong, stay positive and know that there are alot of people who are thinking and praying for you. Keep your sword high, fight the fight and rest assured that you are doing a great job.
luke_83au (2 ) 11:14 am, 21 Jun
3138. Thanks guys :o)
I'm feeling pretty OK ready - The guy who did the ultrasounds said to me "don't give up yet!". I'm not, I'm just frustrated and weary right now, you know?
soniat-d (153 ) 11:17 am, 21 Jun
I rang my specialist to see what her first thoughts were - she wanted to see the results. She suggested maybe the lumps have died inside and the rest has gone necrotic but given there are new lumps.... we can't be quite that hopeful (also, didn't look like that on the screen). Have booked meeting with her for Monday 11am and the CT scan has been brought forward to ASAP. (To quote Lydia...) Drats and Bothers! Don't hear any fat ladies singing yet though... I will fight fight fight!
soniat-d (153 ) 11:37 am, 21 Jun
3140. Oh Sonia, that wasn't what I wanted to hear either
but there is still plenty that con be done so thats the main thing. I just feel so much for you through all this. You are so on to it and it just keep chucking more up for you to have to be even more on to it. But, you are a fighter and a survivor, and although this is CRAP, you will get through this and will win in the end, I know you will. Just don't really know what to say to you. We are all out here for you and love you to bits, and are just willing this to all go away for you. Just makes me cry to think one person has to be dealt it out like this. Take care and warm hugs Sonia xxxxxxx
joystik (281 ) 11:48 am, 21 Jun
3141. Paula, I rang Oncology about the port, and they
to go with the June 30 date, but I will have to have loods on the wednesday, just to see, and if they are too low, they will either cover me with antibiotics or put me on the acute list for the following week. The ports are only done fortnightly on a friday, not weekly. But they do have an acute surgery list in the in between week. I told her about the nausea and the headache, and she said to take the Maxolon regularly and not put up with nausea!! And take a couple of panadol for the headache and see if it goes. Might have been the way I slept, cos I took no panadol and it went!! I asked if the side effects would get worse with successive treatments, and she said, NO, the first one is the worst usually. I am so pleased. Just the hair thing to get through and I will be fine. You been on X-box yet??? Any snow? Its a lovely day here now...
joystik (281 ) 11:53 am, 21 Jun
3142. Oh Sonia
That is just what you didn't want to hear (or us either!). I just don't know what to say. At least I guess they in the early stage and they can get on to it. Does that mean surgery? I guess you won't know any more until your next appointment. Big hugs coming your way XXX
maewest (75 ) 12:11 pm, 21 Jun
3143. Drats & Bothers
I do like that although I can think of other unprintable words that I would rather use!!Hope your headache has gone now Joystik. I woke up with one too but that is just an overtired one. I was in bed for nearly 12 hours. I have only been up for an hour.Catch up time. Feel much better.Hope all the kiddiewinks are having a good day.Paula it must be hard living in the cold when you are used to warmer weather. Mind you, it is absolutely freezing here today. Think the forecast of snow may be right. Off to get the thermals on. Have a lovely day everyone XXX
maewest (75 ) 12:20 pm, 21 Jun
Good take her advice and dont put up with any of the side effects if you dont have to. Josh is sor tof asking for pain relief now and when he does I know he needs it. no snow here, but there was a couple of hours ago at the run off where the cows are. Glad I was here by the fire with Joshi. I had a quick go witha snowboarding game with Josh (appropriate for the weather) but my girlfriend popped in. Will go and be with Josh now. Take it easy. love Paula xo
paulaxx (76 ) 12:43 pm, 21 Jun
Hi, I do think about the warmer weather probably too much!! I just have to wrap up and keep busy.
paulaxx (76 ) 12:44 pm, 21 Jun
Just wanted to send you a ((((((((((BIG HUG)))))))))) XXXXXXXXXXXXXXXXXXXXXXXX Bless little Lydia - darling wee girl.
paulaxx (76 ) 12:46 pm, 21 Jun
3147. Just been to browse your online diary
thank you for sharing your story, your honesty will certainly help others who will be facing a similar situation. It must be wonderful to feel so many 'cyber hugs' heading your way! Lots of love
1800 (276 ) 12:52 pm, 21 Jun
3148. Thanks everyone :o)
Im OK really - I knew before this really (hence the poem) dealt with it then. Booking my CT now...
soniat-d (153 ) 1:08 pm, 21 Jun
3149. OK so booked the CT for tomorrow afternoon
2pm - Just gotta work out someone to look after Emily then. At least this means we'll have all results on Monday which will be good. I'm thinking I want them to cut my chest wall out - rpelace it with a metal plate I can be the bionic woman LOL. Lets see what she thinks of that proposal!
soniat-d (153 ) 1:15 pm, 21 Jun
3150. It came out lovely and sunny for a while but is a
bit dull here right now. I actually dont find the weather in winter a lot different from Nelson to be honest. And it is warmer here than it was in Oamaru in winter. I actually not too bothered by weather - like Billy Connolley said"thers no such thing as bad weather - its wrong clothing!!" If its cold turn the heater up or put more clothes on. Took the anti nausea pill and the nauseated feeling was gone within 15 mi utes, like majic, so I will take them 4 times a day now if I need them. Lauren will be home any minute, only 1/2 day today on account of a PPTA meeting or such like. Seemed like a bit of a waste of time running the buses for 1/2 day. Off for a walk to post the Hospital admission form. See you all later.....
joystik (281 ) 1:15 pm, 21 Jun
3151. So glad I got demanding with Dr Benji
If I has it his way, none of these scans would have happened for another 5 or 6 weeks ?!
soniat-d (153 ) 1:16 pm, 21 Jun
3152. Hi maewest, hope you're having a quiet day off.
Do you have any snow yet? I believe there is some up canterbury way somewhere. They spoke about it on the news but i wasnt listening very well. Keep your thermals handy just in case, and enjoy your 3 days off. Got any fun things planned?? Hugs to you.....
joystik (281 ) 1:21 pm, 21 Jun
3153. MAMMOGRAM everyone!
"Early detection is your best protection"
soniat-d (153 ) 1:21 pm, 21 Jun
3154. Good luck soniat-d. We are all thinking of you.
Just found out yesterday that a really good friend of mine (37 with four young children) has bowel and liver cancer. Not looking good - but she's strong and is adament that she will fight it as hard as possible. Her hubby is devastated.
beagle12 (53 ) 1:22 pm, 21 Jun
3155. Oh Sonia
Bugger, bugger, bugger. Big hugs to you. Sword up!!!
dize5 (452 ) 1:22 pm, 21 Jun
3156. Hi Joystik glad the pills worked
I used the natrural ones (white and green box) a lot, kept using them after I stopped the others for sometimes up to a week. Sure did the trick - can't remember the name, it was one of the three you were given...
soniat-d (153 ) 1:23 pm, 21 Jun
3157. All except fot Me sonia!! No more mammograms here
But yes its something I promote every where I go too. Early detection is the best protection.
joystik (281 ) 1:32 pm, 21 Jun
3158. I know of so many woman in there 40's and 50's....
that have never had mammograms, and I find that incredible when there is really quite a lot of publicity out there about Breast cancer. Some people even with family histories of cancer - it defies logic actually. I had the mammograms and it still got away on me. Hardly bears thinking about what could have happened if I hadn't been on the lookout for it. Fight, fight, fight Sonia, we all know you will....
joystik (281 ) 1:35 pm, 21 Jun
3159. I know Joystik
A good friend of mine has a HUGE family history of it, OK she's my age but still no mammogram! Even after seeing what I'm dealing with. Fear is all I can think of, but the thing to be feared is not finding a lump, but finding it too late!?!
soniat-d (153 ) 1:50 pm, 21 Jun
I am sure this morning will have been quite tough for you.. I am one of many who will have been sharing your company while on this mission to defeat the big C ... although we are mostly quite distant in a physical sense it is the presence you have here on this MB that makes me feel as close to you as any good friend could be ...You show such a tough fighting spirit ( you have a great sense of humour as well !!!).... you are an absolute inspiration... now please please settle back into your strongest fight mode you can find and concentrate on ridding that BC bug from your body ...I know we all want to help... and if there was any more I could do apart from writing these few lines of encouragement to you... then I would do it ... you are in my thoughts and prayers .. sending you all the 'stay strong' wishes I can ...
farmerlloyd (23 ) 2:07 pm, 21 Jun
bugger, please remember there are lots of people out here praying for you, for your courage, your strength and most of all healing. keep fighting and you are right it is never over till the fat lady sings. keep rested and recoup blast the music and gather your strength. hugs to you . from me and hubby.
kiwikaz3 (6 ) 2:45 pm, 21 Jun
3162. sonia im sorry about the bad news today
You go girl!!!I love your positive attitude we may have different cases but we are all fighting the same battle...If you want to talk or vent or yell i am only 35mins away or we can meet up somewhere for coffee, you only need to holler and i will come running my friend..xxxxxxxxx
bogeyi (482 ) 3:09 pm, 21 Jun
I'm 24, and about 10 years ago never knew anyone who had Cancer. 10 Years on, i've had friends parents pass away, family members and friends develop this nasty demon. My thoughts and prayers are with you. Keep strong!
caroline1981 (14 ) 3:16 pm, 21 Jun
3164. havent posted in here before
sorta avoiding it, but my thoughts are with those doing the Red Mile. My sis has cancer she had breats cancer dianosed first now she has it in her liver she is terminal. Ive been struggling today to accept it all im about to loose another sister and i dont want to, ive had so many other things going on lately i havent taken time out for thiss event properly and ive had a bit to much to drink LOL oh well a few ours of numb bliss. Well all i can say is yes cancer sux but mostley for us who are left behind in the process of it all wish it could be different but it cant.
butacup6 (0 ) 3:22 pm, 21 Jun
3165. The thing is everyone HAVE A MAMMOGRAM!!
For every case that is detected early, there is another great survival story. And another thing, just because it is a lump, that doesn't mean its cancer. It can be all manner of things, but you have to be on to it early and get it sorted. The cure rate for breast cancer is really high and in fact one of the highest for any cancers that you might be able to get. We are all in this big battle together, and we will WIN!!!
joystik (281 ) 3:30 pm, 21 Jun
3166. wasnt for my sister
but yes get yorself checked if unsure cos the alternative sux
butacup6 (0 ) 3:32 pm, 21 Jun
3167. No Butacup, it wasn't for my Mum either....
but theout come for most people now days is very good, so long as it is discovered early enough. HAVE A MAMMOGRAM. Early detection is the best protection. Cant be said too often I'm afraid.
joystik (281 ) 3:51 pm, 21 Jun
3168. bloody hospitals
kirsty just bought the mail in and i have an appointment for June 21 at 10.30am with the radiation team...arghhhhhhhhhhhhhhh you would think that when they are making an urgent appointment (as my nurse spoke to them on monday) that they would also ring in case we dont get the mail on time...vent over
bogeyi (482 ) 3:59 pm, 21 Jun
3169. oh Bogey
Thats just rude I reckon. Good on them (CAN YOU HEAR THE SARCASM).
paulaxx (76 ) 4:31 pm, 21 Jun
3170. Hi ladies
Saw the oncologist today to get my lump checked, & there are 2 lumps now. I had a scan this afternoon, and the radiologist got a second opinion & they both think it is O.K. They think one lump is a tiny cyst & the other just thickening of scar tissue. I see the oncologist again tomorrow & she may or may not do needle biopsies. So I am much relieved tonight.
dize5 (452 ) 5:06 pm, 21 Jun
Thinking about you, hope you are having a nice night out. Bestest wishes for tomorrows scan. xo
paulaxx (76 ) 6:16 pm, 21 Jun
3172. Hi everyone - not going out ;o)
Brent is - its a work quiz night in a bar, just wasn't that interested in it - want to put my girls to bed and give them cuddles. I'm not down, just have certain priorities on days like this ;o) Thanks for all the kind wishes everyone - workin' on that bubble Paula ;o)
soniat-d (153 ) 6:35 pm, 21 Jun
3173. Thats good news dize5
If in any doubt get a biopsy done - just to be sure. Will they excise the lumps anyway?
soniat-d (153 ) 6:36 pm, 21 Jun
3174. Geez bogeyi
What tossers at the hospital doing that?! Slack, man... have you managed to reschedule? They owe you bigtime!
soniat-d (153 ) 6:38 pm, 21 Jun
3175. Sorry to hear that buttacup
I certainly hope you're mammogramming regularly. Finding those nasty lumps early makes ALL the difference. Wish I had!
soniat-d (153 ) 6:39 pm, 21 Jun
3176. Hi beagle 12
Good luck to your friend (((((hugs)))))) to her. Good to hear shes remaining determined ;o)
soniat-d (153 ) 6:40 pm, 21 Jun
3177. by the time we cleared the mail it was 4.30
so was pretty mad, rand them and guess what havent heard back from anyone yet.
bogeyi (482 ) 6:41 pm, 21 Jun
3178. Thanks Farmerlloyd and dize5
Very nice posts, thanks for taking the time to say all that farmerlloyd, that was very nice of you. I certainly am determined, just wish the docs could find a sword that works?! Got my mental one up in the air though ;o)
soniat-d (153 ) 6:42 pm, 21 Jun
3179. Hi Joystik :o)
Hee no mammogram option for me there either LOL - The mamm machine was broken at the place today, and they said "lucky you're only here for an ultrasound!" and I said "hey, nothing left there for them to squeeze! LOL Oh BTW they did ultrasound my remaining boob and thats still all good. Hey thats something ;o)
soniat-d (153 ) 6:44 pm, 21 Jun
3180. Yep bogeyi
They've all pretty much finished by then. Oh well, hound them tomorrow morning! Make them bump someone else? Good luck :o)
soniat-d (153 ) 6:46 pm, 21 Jun
3181. Hi Maewest
I'm hoping for surgery at this point but I dunno.... lotta lumps there, pretty deep... man, I hate that I can feel them, last few days I was thinking "Hey, maybe its the scar tissue from radiation", etc now I know its different. But keeping my mind off it ;o) OK must get back to things...
soniat-d (153 ) 6:48 pm, 21 Jun
3182. sonia dont forget my offer of coffee
if you ever need it.
bogeyi (482 ) 6:52 pm, 21 Jun
3183. Absolutely bogeyi ;o)
I don't know how to contact you - can you contact me?
soniat-d (153 ) 6:53 pm, 21 Jun
3184. contact email on ryans web site any time just
holler if you need some venting or maybe school holidays whenever i am here for you. When ryan went to transplant last year we asked what is the 1 thing he wanted when he came out, it was a real mini dirt bike he hung this under his telly in his hospital room and told everyone this was what he was going to get, this was an insentive for him (although he never knew this)and yes he got it and loves it but cant ride it at the moment with no platelets.Well round 2 and have offered 1 thing again as i feel this makes him fight with all hes got.......guess what he wants
bogeyi (482 ) 7:05 pm, 21 Jun
3185. Oh Bogey
Dont do that - what does he want.....
paulaxx (76 ) 7:26 pm, 21 Jun
3186. Hi Sonia
Your such a sweetheart. Got so much on your plate yet you never forget to thank anyone when you pop in here. Hope you are having a nice evening????
paulaxx (76 ) 7:28 pm, 21 Jun
BOGEY CAN YOU HEAR ME CALLING YOU.... Tell me I want to know what Ryan wants....
paulaxx (76 ) 7:34 pm, 21 Jun
MMMM, a baby brother or sister??? What about a trip to Disneyland??? UMMM I dunno cant think straight
paulaxx (76 ) 7:36 pm, 21 Jun
3189. paula hush your mouth nooooooooooooo
babies, for that im going to make you guess a couple more times.mwhaaaaaaaaaaaaaaaa
bogeyi (482 ) 7:51 pm, 21 Jun
3190. OH Man
paulaxx (76 ) 7:53 pm, 21 Jun
A visit to your new friends in the snow down in Gore. Oh thats it isnt it I GUESSED YEEEE HAAAAA. Come on DOWN
paulaxx (76 ) 7:54 pm, 21 Jun
3192. yep your right
love the second choice more maybe i can sway him, but yes a puppy
bogeyi (482 ) 7:55 pm, 21 Jun
3193. Oh Classic
What sort???oh thats such a lovely idea. MMM that was fun. Your welcome down here anytime... our puppy has just been out in the snow. Little rascal
paulaxx (76 ) 8:00 pm, 21 Jun
3194. well kids have been wanting a dog for ages
and we kept saying NO, but in the back of our minds we were going to use this as a tool for ryan so he has something to look for.It will have to be a small dog, prefer one that dosent malt everywhere and good natured......we have alot of homework to do and look at all breeds.
bogeyi (482 ) 8:09 pm, 21 Jun
neat. We did the same with our latest edition. Hís pic is on my profile. Doesnt malt,smell and is really the coolest little guy. he loves the kids to bits and they him so all round its lovely. Have fun choosing.
paulaxx (76 ) 8:41 pm, 21 Jun
3196. paula i have seen your gorgeous wee pup
what breed is it.Ryan told me hes thought of a name (dont know how serious he is) but he said marrow, I said it well it appropiate (sp)
bogeyi (482 ) 8:50 pm, 21 Jun
3197. Bogeyi, a puppy is a lovely Idea for Ryan......
It give a small boy lots to look forward too doesnt it, and they can grow and play together. What fun, how neat. The hospital are a bit of a right off for sending tha appointment late arent they?? Make sure you get on their case, and remember its the squeeky wheel that get the oil!! I got my admission form to have my portacath in today. The appointment is for next friday, and the envelope was marked urgent and fastposted!! HELLO!! We are only 35 minutes drive from the hospital so fast post doesnt get it here any faster!! Strange people out there arent there??
joystik (281 ) 9:08 pm, 21 Jun
3198. I think
that is such a cool name and very appropriate. He is a Bichon Frise. With a tiny tiny bit of Maltese.
paulaxx (76 ) 9:09 pm, 21 Jun
3199. Hi there
Hi Sonia, I'm very touched by your emails. I'm from Ireland and we have our fair share of Cancer too, however we can trace alot of it back to the fact the there are Nuclear Plants in the UK very near parts of the east and north of Ireland. I live out in West Auckland and can't believe those pylons are allowed soooo close to residential houses...mostly Housing NZ, even though reports etc...say there is no link I believe there is and would love Housing NZ to relocate their head office beside a sub-station. Anyway enough of my rantings, I truely hope and believe you will get better as you have an unbelievable positive mental attitude. Take care of yourself. Helen :-)
helenh2 (25 ) 9:13 pm, 21 Jun
3200. Hi Sonia, you're such a ROCK aren't you?? You
have determination like no one else I know. And good on you. It gets you where you have to go. I know if you sit and wait for things to happen, they just dont. And sadly its mostly political, and to do with budgets and funding. Nice you're having a quiet evening in with the little girls tonight, thay will enjoy that too. I'm just having my hot black currant drink and then off to bed I think. I feel so much better since I took that Maxolon earlier and quit that nausea. Now its like othings happening at all...GREAT!! Hugs to you Sonia....I'm thinking about you.....
joystik (281 ) 9:13 pm, 21 Jun
3201. thanks joystik we are at hospital tomorrow
so will chase them up, paula are they good natured dogs will show ryan the pic tomorrow.
bogeyi (482 ) 9:15 pm, 21 Jun
3202. Hi Paula, did you really get more snow today???
The afternoon turned out so ,lovely and sunny here. I went for a walk up to the shops to post some letters, and decided I better rug up warm, and almost roasted myself instead. It was 16.4deg outside when I got home, and I had shoes, socks,jersey, scarf etc. Looks a bit crappy up Canterbury way again though. Your puppy is so cute Paula. Will he grow much bigger than he is now? I quite like those Schnauzers too, but don't know anything about them at all. Hows Josh tonight?? Hope he's feeling much better. Hugs to you all....
joystik (281 ) 9:21 pm, 21 Jun
I love small dogs. He is the nicest natured wee dog we have ever had. He is teething at the mo so everything goes into the mouth. But hes got lots of toys and knows whats his. Still likes taking Cass's stuff but hes so cute he gets away with it. Best of luck for tomorrow. Be thinking of you
paulaxx (76 ) 9:24 pm, 21 Jun
3204. Hi Joystik
Yes it was snowing heavily earlier. The lawn is white. Stopped now though. Its been cold here all day. But the fire has been very toasty. Josh is still awake cough cough coughing. Hes getting a bit tired as its worse at night. Nothing really I can do more darn it. Off now to go and see him. Have a good nights sleep. Nanite xo
paulaxx (76 ) 9:26 pm, 21 Jun
3205. Hi everyone :o)
Emily took a bit of settling - Lydia passed out in minutes ;o) Brents still not home - said he'd be here at 8!!! Think I'll put on a movie and kick back. Thanks everyone for your lovely posts :o). Hugs to Ryan and Josh and Briyanna - hope you have a nice night's sleep. Hugs to all you lovely ladies - your support means the world to me - thanks!
soniat-d (153 ) 9:34 pm, 21 Jun
3206. Paula, do you sit him up abit at night to help
stop the coughing?? I used to put a pillow under the mattress just to elevate the chest a bit. You will know all about stuff like that though. Hope you all manage a good nights sleep.. I think your weather is much colder through Gore way than it is over here. Not a sign of snow here....too sunny. Nite Nite Paula and family
joystik (281 ) 10:00 pm, 21 Jun
3207. See you tomorrow Sonia. Enjoy your movie....
Brent will be home soon.....sleep tight and sweet dreams to you too.....
joystik (281 ) 10:02 pm, 21 Jun
About the puppy - may I add my tuppence worth please?? Mum & Dad had a poodle for about 10 years & then a Bichon. Both absolutely gorgeous, both have non smelly wool as opposed to stinky dog fur, both loyal,fun & all the other magic- but Given different issues they had I would go for a poodle over the bichon. No offense Paulaxx but Every Bichon I have known yaps like mad - very head strong little pooches but adorable I know !!)& can drive you crazy when you want peace & quiet as my folks did in time of sickness(cancer). BTW I am not biased as am bossed around by a German Shepherd !! Take care all you awesome ladies in this amazing storybook thread.
persioux (192 ) 10:33 pm, 21 Jun
3209. I would like to offer my love and support
for anyone going through chemo at the moment, and everyone out there who is or have been cancer sufferers. My heart is truly with you all and feel for you all. Kindest Regards Lisa Lewis
ishop4you (14 ) 11:17 pm, 21 Jun
3210. persioux thanks for that, this is what we will
be looking for is peoples oponions and then we will search the internet while hes in there (a good side tracker)before we make a decision.
bogeyi (482 ) 8:04 am, 22 Jun
3211. Morning ladies! A chilly start here today, but a
nice sunny day coming up. Still no sign of snow. I feel we have been crossed off the snow list for this year. If I want to see snow, I shall have to go visit Paula and Josh, I think about an hours drive away. My SIL breeds poodles and King Charles Spaniels, and they just about drove me mental the last time I visited there. They all barked and yapped constantly from the time we walked in the door til we left. She would just get them quiet and the phone would ring, or someone would knock at the door and set them off. But the problem there was toooooooo...many dogs all competing for attention. Kinda puts you off certain breeds when you see them in a bad light like that though. I have seen other poodles on there own and they have been lovely, same for Bichon. The Bichon has such a cute and lovely face doesn't it?? You off to the hospital this morning Bogeyi and Ryan? Hope you get stuff sorted with them in there. Have a good day wont you....
joystik (281 ) 8:51 am, 22 Jun
3212. Thanks for your message ishop4you.....always nice
too know that there are people out there everywhere helping us all along this winding, sometimes bumpy road, back to good health once again. Hugs to you too.....
joystik (281 ) 8:53 am, 22 Jun
3213. Hi Paula and Josh...hope you all managed to sleep
ok through the coughing? I had a good sleep and only woke up when the neighbours went to work at 5.30, as always. She is the rural mail contractor, and he's a truck driver, and they head off about 5.30 and where once I never heard them, now I must be sleeping more lightly andhear them every morning. First morning I have woken up without nausea, and its just great. Feel like a new person actually. Got a wee head cold so hope that doesn't come to anything. I want this port in next friday, so dont need a cold right now. You get any more snow?? It is supposed to snow to low levels again today in Southland. I dont think it will though, its beautiful here just now. You have a great day...I'll be thinking of you. Hugs for Josh to help him stop coughing......
joystik (281 ) 8:58 am, 22 Jun
3214. morning joystik
Glad to hear you had a better sleep, we are off about 9.30 to hospital, had a call from the radiation people and they have made it for next wed.Beautiful and sunny here at the moment but not sure for how much longer.
bogeyi (482 ) 9:01 am, 22 Jun
3215. Hi Sonia, hows things with you today?? What movie
did you watch last night? I only ever watch Forest Gump!! It is my most favourite movie of all time. I bought the DVD cos I was hiring it so often! Still makes me cry every time I watch it. I bought another one 'Evelyn" a while ago and that was good but sad in places too. Have you seen it?? Have you seen 'The Notebook'? Someone told me to get that and watch it too. Hope you slept well last night. Today is lovely here. What about there?? I'm going to study today for a while and go for a walk later. First day with no nausea and I feel like a different person. Hope you have a good day too Sonia....I've been thinking about you lots....Take care...
joystik (281 ) 9:03 am, 22 Jun
3216. Great bogeyi, at least you have got action there
then. Sometimes you wonder what type f intelligence runs these places dont you?? Is todays appointment for more blood tests?? I have forgotten what you said? Its nice to sit here typing to you and looking at you and Ryan at the same time. Makes it real somehow!! I printed the big pic of Ryan in the Fire Hat!! Hes gorgeous and handsome too....
joystik (281 ) 9:06 am, 22 Jun
3217. Joystik to Boop .....are you there today??? Hope
you aren't washed away up there. By now it will be beauiful again. I think the forecaster said best place to be today was West Coast, so we will all come and visit. Did you move house yesterday?? hat may be why we haven't seen you? Does take a while to get the computer set up again sometimes, although it became a priority here, and in fact I got a lap top so I didnt have to wait....Is that addiction??? Anyway, I trust all is well with you....hugs to you....
joystik (281 ) 9:09 am, 22 Jun
3218. gets his looks from his mum....ha ha
yep off for blood test he must need platelets today as last time they were 13, but we have stretched out to 3 weeks...yahooo
bogeyi (482 ) 9:17 am, 22 Jun
3219. Good Morning All!!!!
Just to let you all know that just because I have been able to pop in for awhile doesn't mean I haven't been thinking of you all and sending you all warm fuzzies and lots of strength. Keep strong, take care & keep warm!!! Best wishes, Claire
cole2 (360 ) 9:28 am, 22 Jun
3220. Are the platelets just transfused in like the....
drugs?? Through a port?? My platelets were 342 after surgery, but they wont be that now after chemo. They will probably like Ryans, down to barely there at all. Were his platelets still increasing over the last 3 weeks, or slowly decreasing? I find it fascinating how they can kill off all these good cells with the chemo, and they can re-grow so quickly!! The human body is such a wonderful thing until it slips a cog!!
joystik (281 ) 9:28 am, 22 Jun
3221. Thanks cole, nice to see you again. Hope all is
well with you too, and you have kept well and warm and out of the snow!! None where I am either. Have a great day and see you again soon.....
joystik (281 ) 9:29 am, 22 Jun
3222. Morning Everyone
Joystik, I didnt elevate Josh's bed but if we have another nite like last one, I will do that. Thanks for reminding me. Glad you arent feeling sicky today. Thats good! Another cold one here today. Chris is out hunting. A keen hunter!!! Snow nearly melted now. Hope your head cold doesnt amount to anything!! lots a love
paulaxx (76 ) 9:38 am, 22 Jun
All the best for today. Thinking of you at the hospital again. I completely agree with persioux comments re the yappy dogs. I know poodles too that just wont shut up!!! Drives you nutty. I do however think its the owners that need to control the dogs behaviour early. Teddy has found his voice but honestly only ever barks when there is something to bark about. If it was just constant I would be in a straight jacket now! Tee hee. I tell him to stop, he stops. Its part of the training thing surely???? I might be wrong. (That certainly wouldnt be the first time.) Hope your morning went ok.
paulaxx (76 ) 9:42 am, 22 Jun
3224. I just
want to add - cos I dont want to upset anyone. That some dogs I guess are natural barkers. I know my comment re the owners and training wouldnt be applicable to all scenarios (persioux parents) the ones I am referring to have just let their dogs get away with barking. Im going now - cos I am so NOT an expert! Just love my Teddy Boy to bits
paulaxx (76 ) 9:46 am, 22 Jun
Sending you love and thoughts this morning. Paula and Joshi
paulaxx (76 ) 9:47 am, 22 Jun
3226. Morning Sonia,
I have just read your latest update and am absolutely shocked, obviously not as much as you are. Sweetie, the war is NOT over and you CAN beat this monster. Keep Strong!!!! Sending Huge (((((HUGS)))) & wonderfully warm fuzzies your way. Take care, Claire
cole2 (360 ) 10:16 am, 22 Jun
3227. Paula you teddy is beautiful. And yes it is in
the training as well as the breeding. My SIL would let 16 dogs all run about together, barking there heads off and we would leave and go home. I think she wondered why?? They just put up with it - we couldn't! Even Lauren hated going there for that reason. Loved the dogs and the wee puppies of course, but hated the barking and yapping. Now we are too far away to visit...Hope Chris has a successful hunting trip.. Will he bring home some venison?? Its very good for you, high in iron and low chlorestrol. The snow does go quickly if you dont get too much at a time. Hope the cough gets better during the day today and doesnt keep you awake tonight.....
joystik (281 ) 10:29 am, 22 Jun
Thanks for that. Whoops hes just gone after more ducks, getting a bit low in the freezer again. He doesnt seem to have the time to get up inthe bush these days like he would love to. I never thought I would like wild duck, but it is all in the cooking. now i look forward to them. Some people just shoot them for the sake of it, that I dont like. Took me ages to get used to the hunting thing all together. But I get it now and we always eat what he gets. Im downloading some songs at the moment. I love music its so therapeutic.
paulaxx (76 ) 10:34 am, 22 Jun
3229. Hi everyone :o)
Busy morning - just been shopping and cooking for tonight - having my little brother over to celebrate his birthday (19 on Monday - he had exam Wednesday hence the delay). Cooking an old fave of mine I haven't cooked in years - lamb spare ribs (a devine marmalady spicy sauce - yum!) Cooking it now so I can skim all the fat off this avo - smelling nice already :o) Have delayed my CT to 2.30 today (had childcare issues). So all under control now!
soniat-d (153 ) 10:43 am, 22 Jun
3230. Paulaxx your Teddy boy is adorable
& I love doing the wild duck with a chinese type influence. I marinate in soy sauce,chilli sauce,honey,tomato sauce, oyster sauce,garlic & ginger. It is so yummy & gives it a totally different flavour. I must get a duck out of the freezer!! Hope all of you in this wonderful thread have a good day today.
persioux (192 ) 10:52 am, 22 Jun
3231. OK so last night I ended up watching my
Sex and the city DVDs (4 episodes back to back ;o) Felt like a laugh in the end. Don't like sad movies any more - I used to love "Terms of Endearment" but don't think I can watch it ever again, given the storyline! I have a huge movie collection LOL Fave movies of all time... When Harry Met Sally, While You Were Sleeping, Serendipity, Working Girl, Love Actually, Under The Tuscan Sun, First Daughter.... yep, I'm a hopeless romantic LOL Oh yes, Bogeyi, I LOVED The Notebook ;o) Read the book first years ago and loved that, movie just as good - highly recommended! Think that might be the next one I watch actually ;o)
soniat-d (153 ) 10:52 am, 22 Jun
Sounds yummy. might just write that down for future ref. Thanks
paulaxx (76 ) 10:54 am, 22 Jun
3233. Hi everyone :o)
Thanks for your kind thoughts, I managed to get to sleep - the melatonin tablet really helps. Did anyone see the article in the Herald yesterday about the link between shift work/depleted melatonin and Breast cancer? That's why I take it now, and are working so hard on getting to bed earlier - I was definately staying up waaaay too late!
soniat-d (153 ) 10:55 am, 22 Jun
We are soo alike I love all those movies. Just telling my neighbour about the Auckland trip. Now I'm all excited again. I am going to put your phone number in my cell now. A bit premature I know, just getting organised early lol
paulaxx (76 ) 10:55 am, 22 Jun
3235. My neighbour cooks wild duck in an oven bag,
with a can of fanta tipped over it and said it is so delicious. I had wild duck once and thought it was just gross, and so have never ventured that way again. Mostly the lead pellets put me off, but the flavour was quite strong too. Bit the same with mutton birds....ohhhh yuk!
joystik (281 ) 10:57 am, 22 Jun
3236. Hi Cole2
Thanks for that - yep, I wasn't totally shocked to be honest, knowing the new lumps were there - I was however shocked that the others hadn't shrunk - it still makes no sense to me that actually, can't feel lumps in the majorly lumpy mega-radiated area at all. Yet there they were in all their dastardly glory on the screen - hoping the CT scan will clear up exactly what has happened. Worst thing thats hitting me at the moment is that this probably means surgery isn't possible - THAT does not bode well, so that's what I need everyone to hope for me now - I WANT THAT SURGERY!!!!
soniat-d (153 ) 10:59 am, 22 Jun
Melatonin - is this available in health stores. I am curious now. Just googled it and the benefits look wicked.
paulaxx (76 ) 10:59 am, 22 Jun
I know what you mean. Had a duck dinner once and it was gross. Thought I was never going to go for it again. Then found a way to cook it and OMG it is yummo. I make duck curry, roast - with stuffing - cooked slowly all day. Now im hooked. Might have to bring you one or two over when we finally get to meet...
paulaxx (76 ) 11:02 am, 22 Jun
3239. Me too Paula!
Hey, how far into Felicity did you get? We have from Series 2 on (finished series 2 yesterday LOL!) and it just gets better and better! I was mentioning to Brent yesterday how you enjoyed it too and he said he could cut the series onto a DVD for you. Would you like that? Costs us next to nothing (downloading them did, so that would make it more cost effective LOL). Anyway, can't wait! Have you received the itinerary from MAW yet? She told me on Friday she was about to send it off - just wait till you see whats planned - very exciting!
soniat-d (153 ) 11:02 am, 22 Jun
3240. Didnt see the article Sonia but will look for it
now. I have always been a good sleeper, and last night was the best sleep I have had since the surgery. Felt good this morning with no nausea, just a head cold coming on I think. You are sweet cooking a lovely dinner for your little brother. Sounds delicious too. Better start thinking what we're having and not leave it til the last minute again!! You sound better today Sonia, after a sleep. Good luck for the CT scan. Wish I was closer, I would look after your babies any day, they are beautiful.....
joystik (281 ) 11:02 am, 22 Jun
3241. Yes I know - Melatonin's like a best-kept secret!
Oh how I wish I'd known about it before all this! I would have taken it during chemo even! Well I got mine from that Natural remedies doc I went to but I'm sure you could get it in HEalth supplements shops - ring them up and ask!
soniat-d (153 ) 11:04 am, 22 Jun
3242. Here's the NZ Herald article online
soniat-d (153 ) 11:06 am, 22 Jun
3243. Thanks Sonia
I will, did it take a while for it to start working for you???
paulaxx (76 ) 11:07 am, 22 Jun
3244. For the last year or three
I've been staying up till between 1 and 2 am (as that's when Brent stays up till). Have growing suspicions thats a factor in this nightmare!?!
soniat-d (153 ) 11:08 am, 22 Jun
Thats wicked. I am going to phone my local, right now....
paulaxx (76 ) 11:10 am, 22 Jun
3246. Found the article and read it and printed it......
most interesting. Seems there are plenty of things that can really put you in the firing line to get it arent there. I read a bit of a list one day and could almost tick every one of the things, and thought well there was no way I was going to escape getting Breast Cancer.
joystik (281 ) 11:11 am, 22 Jun
3247. No Paula the effects were instant!
I've learned though to take it at about 10pm not when I go to bed (which is about 11.30 now, but I'm working on bringing that further forward). I now spend the last hour I'm awake watching a comedy DVD like SATC with the room in darkness and thats working a treat. Before, I took it right on bedtime and was getting these insanely vivid nightmares/dreams (a side effect of melatonin) but since I started taking them much earlier - no probs - sleep like a baby ;o) Even slept through Lydia waking last night (we have intercoms from their rooms so its as loud as) so its lucky Brent heard her and went to her ;o)
soniat-d (153 ) 11:12 am, 22 Jun
Shop here sells 5THP which is the bodys natural precursor to melatonin. Apparantely stimulates the body to start producing more. Im going in after to get a bottle. Thanks your a darling Sonia
paulaxx (76 ) 11:13 am, 22 Jun
That sounds good. I took those UNISOM and they worked but soon as I stop taking them, back to the same ol same ol. I have very vivid dreams already, be interesting to see what comes from these
paulaxx (76 ) 11:15 am, 22 Jun
3250. Thats interesting Paula
I've just noted that down. A natural health person is visting me tomorrow at 1.30 to discuss supplements, will run all this past her and see what her take on it all is! OK must go, have a nice day all. I'm feeling pretty good actually, its there in the background, but I'm staying positive and motivated. Best way to be ;o)
soniat-d (153 ) 11:16 am, 22 Jun
3251. Thank you
for your help. Thinking of you at 2.30. Love and hugs xo
paulaxx (76 ) 11:22 am, 22 Jun
3252. Thoughts are with you
Lisa and Jaden
ishop4you (14 ) 11:29 am, 22 Jun
3253. BREAST CANCER
For one, they might have had a mastectomy due to breast cancer and the augmentation is part of their reconstructive surgery. Hope this helps... Lisa Lewis
ishop4you (14 ) 11:35 am, 22 Jun
3254. Just an update on my hiccup yesterday
I went back to the breast surgeon this morning, and she is happy with the scans and feels sure that one lump is just a cyst & the other is scar thickening. However she did a biopsy on each one, purely because I was there and she didn't want to be neglectful, so I was happy with that. She will check me again in 3 months, just to see if there is any change. So, sword up, and on we go..... Loving thoughts to you all.
dize5 (452 ) 12:09 pm, 22 Jun
3255. we are home again platelets are still 13
so have held of again.Joystik ryan has a pic line in his arm at the moment and when he has another transplant he will have a hickman line put in.
bogeyi (482 ) 12:34 pm, 22 Jun
3256. Thats good news dize5
Yay for that - glad someones getting good results from these scans! I bought a lotto ticket today, I figure I'm "winning" such lousy odds, might as well turn it in my favour LOL
soniat-d (153 ) 12:40 pm, 22 Jun
3257. Hi bogeyi
Oh no that doesn't sound like an improvement? Sorry, its japanese to me again. (((((hugs))))) my dear xoxo
soniat-d (153 ) 12:43 pm, 22 Jun
I don't follow your last post, Ishopforyou, but thanks for the kind wishes :o)
soniat-d (153 ) 12:45 pm, 22 Jun
3259. ha ha ha sonia thats fine
no its not an improvement but we arent going to see one, but what we are seeing is his platelets are hanging around longer so thats good as well.
bogeyi (482 ) 12:49 pm, 22 Jun
ask about shark liver oil too. I've just started taking that along with the 5htp one.
sunbeamnz (72 ) 12:51 pm, 22 Jun
3261. Hoping, wishing &
crossing fingers for the surgery Sonia. Not a day goes by that I don't think of the fight you are fighting and what an inspiration you are to everyone else in this thread and your wonderful family. Warm fuzzies sweetie, keeping everything crossed for you!!!!
cole2 (360 ) 12:55 pm, 22 Jun
3262. Thanks sunbeamnz and cole 2 ;o)
Thanks for the tips and kind wishes. Off to put Em to bed now, then making a birthday cake LOL
soniat-d (153 ) 12:58 pm, 22 Jun
3263. Sonia, good luck for 2.30.....
I'll be thinking of you. Hope your birthday cake turned out superb. What type of cake did you make? My favourite is carrot cake with cream cheese frosting, followed very closely by Hummingbird cake with the same cream cheese frosting YUMMY!! Thats my secret to maintaining a body the size I have!! Ha ha haha
joystik (281 ) 1:36 pm, 22 Jun
3264. Thanks bogeyi, just googled to see the difference
between PIC lines and Hickman lines and portacath. I'm having a porta cath put in next friday, if my bloods are high enough. Dont know what the chances will be there actually. It will just be 14 days since the chemo, so it will be interesting. So Ryan platelets hadn't got up or down?? Isn't that better than say having dropped down?? I guess only slightly. Keep warm....
joystik (281 ) 1:48 pm, 22 Jun
Glad you didnt have to have platelets but sorry they havent come up! How is Ryan today?
paulaxx (76 ) 2:17 pm, 22 Jun
Hun I guess you'll be in the waiting room about now. Thinking of you. Hope you have a really nice night with your brother and some special family time. love and hugs
paulaxx (76 ) 2:18 pm, 22 Jun
3267. paula thats ok we dont expect it to come up
as ryans marrow isnt producing properly, hes a box of fluffies telling everyone at hospital hes going to get a puppy.
bogeyi (482 ) 2:39 pm, 22 Jun
3268. Bogeyi its a good thing he has something to be
excited about itnt it?? Have you decided what sort you are getting? I think its exciting to actually. I was going to get me a wee kitten when I got cancer, but our cat is a silver abyssinian, and he is just beautiful, and I dont think he would really love a little kitten. And the other thing is they can be a bit scratchy, and infections are something to steer well clear of when you are having chemo. So I decided not too. I love puppies too but wouldn't have one because we go away roaming to much....
joystik (281 ) 2:43 pm, 22 Jun
3269. I just found a couple of pics of Myrrh, my boy....
not very good pics, but here they are. He loves getting dressed up too.... http://images.trademe.co.nz/photoserver/50/23241150_full.jpg http://images.trademe.co.nz/photoserver/7/23241207_full.jpg He is 7 years old now and still plays like a little kitten would. Abyssinians have the most awesome nature...I love him to bits and he loves me right back..
joystik (281 ) 3:02 pm, 22 Jun
3270. Gee joystik
what an absolutely gorgeous cat!!! Makes me kinda want to get on, sort off, ha ha but he is lovely!!!
cole2 (360 ) 3:18 pm, 22 Jun
3271. Thanks cole, I love him and hes got such a neat
personality, actually he thinks he a human most of the time. Something funny happend a couple of days age. I had been playing with my wig, you know, trying it on and all that, and he was sitting on the bed watching. I took it off and just layed it on the bed and went to do something, and when I wet back in the room, he was laying with his head inside the wig!! It just looked hilarious. We used to have another one as well, a ruddy coloured one, but he sadly got bowled over by a car....
joystik (281 ) 3:23 pm, 22 Jun
3272. Hey Joystik what's a hummingbird cake?!
Actually I realised when I got to the kitchen I didn't have enough time before I had to go, so its just baking away now - its for a teenage boy so - Chocolate cake of course ;o) I only make the light fluffy ones, can't handle the heavy choc cakes - too much!
soniat-d (153 ) 3:48 pm, 22 Jun
3273. Yep so I'm back from the CT
They recognise me there now - how sad is that?! Went fine, I still hate that gloop you have to drink - that last half bottle is the worst - I so feel like gagging... having to drink it en-route to the hospital didn't help! Emily helped me make the cake (or more importantly lick the bowl!) Lydia is at a friends, she's being dropped off here later on. Greetins all. Yes Paula, I was indeed in waiting room then, had just gotten of phone from Sounthern Cross asking for pre-approval and was told I'd reached my yearly limit (as I had for my ultrasound 2 days earlier). Health insurance is a joke (not a funny one!).
soniat-d (153 ) 3:52 pm, 22 Jun
3274. sonia hope your feeling ok
that stuff you have to drink sounds yucky.
bogeyi (482 ) 3:58 pm, 22 Jun
3275. Hummingbird cake is much the same sort
of texture as carrot cake except has bananas, crushed pineapple, chopped walnuts and some have a bit of grated carrot as well. The frosting is delicious, and even better if you make it in 2 round tins and put the frosting in between as well and then ice it all ovet and roll it in coconut. YUM!!
joystik (281 ) 4:03 pm, 22 Jun
3276. Pleased that is over for you Sonia. The lady in
the bed next to me i hospital had to drink that stuff too. It was cruel actually, she had to drink 2 litres in 20 minutes!! I just had a contrast hooked up to the needle in my arm - so much easier. When do you get the results?? Yes Health Insurance is a joke - thats why I dont have any!! For the amount you pay in premiums, there shouldn't be any limit. Bet they have made thousands out of you in all the years you didnt claim. Will be thinking of you now and hoping for really good results.
joystik (281 ) 4:06 pm, 22 Jun
3277. Keep smiling and enjoy your birthday tea .......
tonight. We're having sweet and sour meatballs and what ever else I decide to make, but not as exciting as you place Sonia!!
joystik (281 ) 4:09 pm, 22 Jun
3278. Yep Joystik its amazing really
I've been insured with them since I was 4 months old (!) and I have the Ultracare 400 plan is like the best there is. We're going to change the girls' ones to somewhere else...
soniat-d (153 ) 4:29 pm, 22 Jun
3279. Had the contrast in my arm too ;o)
My left arm is a joke now - after years of blood donations, now all this with 6 months of weekly bloodtests - I look like a druggie!
soniat-d (153 ) 4:31 pm, 22 Jun
3280. Cake smells yummmmmm....
Going to turn it out of pan now...
soniat-d (153 ) 4:31 pm, 22 Jun
3281. damn you sonia for saying that naughty word
CHOCOLATE CAKE, Ryan and i have just popped one in the oven for dessert....yummmmmmmmmmmmmmmmmm. Now we are all wondering if we really need to have dinner first.
bogeyi (482 ) 4:47 pm, 22 Jun
3282. Yumm bogeyi ;o)
Mine's just finishing cooling, about to ice it. Robert's going to arrive in half an hour, as will my girls ;o) The lamb took ages to skim all the fat off, but it'll be so much nicer for it. Now I remember why its so long since I last cooked it! LOL
soniat-d (153 ) 5:22 pm, 22 Jun
3283. been out of the oven for 5mins
bogeyi (482 ) 5:28 pm, 22 Jun
3284. paula saw sims bustin out in the shop
what does josh think of it.
bogeyi (482 ) 5:38 pm, 22 Jun
So glad thats over for you. Yum Roast Lamb, and cake. Now my mouth is watering. Have a lovely evening. lots a love
paulaxx (76 ) 6:02 pm, 22 Jun
3286. Hey Bogey
Glad Ryan is good today. Sims game is fun. Good for a laugh and we all need those. ENJOY your cake!! MMMMMM I made tan square yesterday, might have to have a bit of that. xoxo
paulaxx (76 ) 6:03 pm, 22 Jun
OHHHH - HE IS SO GORGEOUS!!!!! I love him. Hope you have had a nice day. On the general message board see the thread I started about what a nice trader did. That made our day... some people are so wonderful. love to you
paulaxx (76 ) 6:04 pm, 22 Jun
luke_83au (2 ) 8:26 pm, 22 Jun
3289. Thanks Paula.....we just think he's the cats .....
pyjamas and some..Very quiet here tonight, so I think I might go to bed early too. I read an article about melatonin and staying up late is no good for you either. Hope Josh doesn't cough lots tonight....put a pillow under the mattress. Hugs to you all...Heather xxxxx
joystik (281 ) 9:39 pm, 22 Jun
3290. Cheers to you very courageous ladies
is my message. What a very sad & humbling experience it is to read this thread. So many gutsey ladies with faith in their hearts. God Bless.
rosejenny38 (1035 ) 9:46 pm, 22 Jun
3291. Faith in your heart is definately an ingredient...
for winning the fight against this monster. Thanks so much for your good wishes to us all on here. Some time the road seems pretty long and winding, but we will get there in the end. Hugs to you....
joystik (281 ) 9:53 pm, 22 Jun
3292. Goodnight everyone.......
Paula and Josh, Bogeyi and Ryan, Twinkies and Briyanna, Sonia, Boop, Luke, Landylass, and everyone else that I havent named that has come in to see us and wish us luck and strong swords!! Wishing you all sweet dreams....see you tomorrow...
joystik (281 ) 9:56 pm, 22 Jun
3293. have a good sleep joystik
see you in the morning.
bogeyi (482 ) 9:57 pm, 22 Jun
3294. Hi everyone :o)
Had a lovely evening - Robert loved the meal and took the leftovers home for tomorrow - he's not coping with living alone in mum and dads house!?! Ok Melatonin is in - I'm off now for an hour's quiet in the dark then to bed - my method of slowly working forward my sleep time LOL
soniat-d (153 ) 10:13 pm, 22 Jun
3295. Goodnight everyone :o)
Hope you enjoyed your cake too Bogeyi - Robert took leftovers of that too LOL
soniat-d (153 ) 10:14 pm, 22 Jun
3296. Thanks Rosejenny38
What a thread eh? Who would have thought It would get this far? Has a momentum of its own now LOL. (((((hugs))))) to all my dear friends on this thread xoxoxox
soniat-d (153 ) 10:15 pm, 22 Jun
soniat-d (153 ) 10:16 pm, 22 Jun
soniat-d (153 ) 10:16 pm, 22 Jun
3299. It could
soniat-d (153 ) 10:16 pm, 22 Jun
3300. Life ;o)
Hundy hundy hundy!!!!
soniat-d (153 ) 10:17 pm, 22 Jun
3301. wahoo another hundy sonia
have a good nights rest.
bogeyi (482 ) 10:23 pm, 22 Jun
3302. GET A MAMMOGRAM
LISTEN to what Sonia says, get a mammogram and get it NOW. It saved my life, I cannot stress the importance of mammograms enough. Please phone TODAY for your appointment, it may be the best call you have made in your life.
dize5 (452 ) 11:11 pm, 22 Jun
3303. bumping for the morning girls
going to school this morning had a call from tylers teacher and he has been nominated for the topic award at assembly and asked if i would be able to come, so not sure if hes getting a certificate or not.Hope all are well this morning.
bogeyi (482 ) 8:08 am, 23 Jun
3304. Sounds exiting bogeyi ;o)
Hi dize5 - lucky you eh? Thats great :o) I wanted a mammogram way back when my original lump would've been tiny (couldn't feel it), but my doc told me I would be wasting my money (young, no fam history, etc etc) and wouldn't refer me. Can't dwell in the "if only's" though. Yep, Mammograms save lives! (If they say you're too young, ask for digital ultrasound instead ;o)
soniat-d (153 ) 9:00 am, 23 Jun
3305. Good morning everyone
We all slept in this morning till after 8am! Somehow we almost caught up (a miracle when you're dealing with 5 and 3 year olds!), so Lydia's only going to be a few mins late to school! I'm off for a nice long shower :o)
soniat-d (153 ) 9:01 am, 23 Jun
Bogey Thats fantastic. I just want to point out right here that, that Tylers nomination highlights to me WHAT AN AWESOME MUM YOU ARE!!!!!! You see with all you are doing and going through you are managing to keep your family together and your children are doing so well under the constant strain and pressure. So be proud today not only of your darling children but OF YOU!!!! Thats so cool. Thinking of you with lots of love xoxoxo
paulaxx (76 ) 9:01 am, 23 Jun
3307. Bogei, YOU ROCK!! Your kids are neat and they
ROCK too. You enjoy his time of fame at the school today. Its great to see your kids recognised for something positive. Hows Ryan today? Hope hes pretty OK?
joystik (281 ) 9:04 am, 23 Jun
Good morning. Glad you had a lovely night with your brother. Have a nice day today. Sending you our love and hugs xxoo
paulaxx (76 ) 9:05 am, 23 Jun
I was just having a giggle about your beautiful boy wearing your wig. How are you today? I've just phoned Kew to say Joshi is no better, its the weekend tomorrow and elevated the bed etc. So they are going to phone me back. Not such a cold day here today. Quite mild in fact. Thought I should check the temp since i said that, it was 4 degrees. Funny what you get used to.
paulaxx (76 ) 9:08 am, 23 Jun
3310. Sonia, my first experience of going for a ....
mammogram was a very negative one too. I was 29, but my GP referred me because my Mum had breast cancer twice, and then died from secondary's. Then the receptionist took it upon herself to tell me I was too young, and it was a waste of time on their part, and money on mine ($140). I told her to get it sorted cos I wasnt going until it was done. I got my way but not without a fight first. And just incidently, what the hell has it got to do with the receptionist how you wish to spend $140??? Woman in their early 20's are being diagnosed with breast cancer with NO family history!! The thing is they dont want to find anything because after that you start costing real money!!
joystik (281 ) 9:09 am, 23 Jun
3311. Paula, I'm sorry he's still no better. They might
want to see him again maybe?? Is Josh's temp up too?? My head cold is still the same as it was so I think ts getting better. No other symptoms and I'm happy as. Its much warmer here too, no frost, overcast and misty so far with plenty of room for improvement!! It 6.7deg here. I going to help my friend do her window display for her Real Estate properties today sometime, get my hand in there!! Yes, the cat with the wig on looked soooo....funny!! Should have been quicker and got a pic so you could all see. He's really quite freaked out by the manakin head sitting on the dresser with the wig on it though, so I have put her in the hall cupboard. He is interested though and waits by the cupboard for me to open it, so he can jump up and check her out several times a day. Funny wee chap. Get better quick Josh...hugs to you all....
joystik (281 ) 9:15 am, 23 Jun
That is so cool. Those cats are so beautiful and intelligent arent they.I love animals. Thanks yes they may wish to see him. I hope they do, Fridays always seem like this, waiting for phone calls from the hosp.To see if we go or not. Have fun doing the window display. Catch up later. Glad your cold is no worse. But wrap up warm just in case. Lots a love
paulaxx (76 ) 9:18 am, 23 Jun
3313. Sonia, glad you had a lovely birthday tea with
you little brother. Seems funny that you have a brother that age....I have step grandchildren the oldest is 17!! But hey thats another story. Your dinner really did sound delicious and your cake too. Between you and Bogeyi, you almost had me baking a cake too..But no I managed to control the urge until someother time. Hope oday is good to you. Is it sunny? No here either yet, but I'm ever the optimist! Have you seen that Otter thats on the loose? Imagine having that arrive in your garden! Or are you miles from there? Better go and shower and do some things. Hugs to you.....take care aye??
joystik (281 ) 9:19 am, 23 Jun
3314. Paula, are the Junior Doctors back to work now??
Not that it would affect Josh, but it does slow things down with out patients etc doesn't it. I have to go to Kew 3 times next week. Monday for Pre Op, Wednesday for Bloods and Friday for the Portacath to be put in. Then Oncology Clinic the following week on Tuesday, and Chemo again Thursday. That will be number 2 done and dusted. Only one more after that and I'm half finished. I just feel so good and in fact seem to feel better every day...Its awful havinf to wait for them to ring isnt it? I find the Oncology unit are quick off the mark though...no complaints there. More get well hugs for the wee man...
joystik (281 ) 9:24 am, 23 Jun
3315. Hi Joystik :o)
Yes it is funny - in fact when my mum announced she was pregnant with Robert I laughed! My dad sad wryly, "I don't think its so funny!" LOL I was 19 and my other brother was 17 - big gap! Robert's birth rejuvenated my pareants unbelievably - he was great for them, and they both adore him :o)
soniat-d (153 ) 10:12 am, 23 Jun
3316. Yes, It would do that allright!! I think its
lovely actually. My youngest brother was born after my mum had her first breast cancer operation, like 6 years later. The medical profession were very interested in him, because of the type of treatment she had for the cancer. Back then I think it was cobalt, and was radio active substance, adminsitered into the area of the tumor somehow....thats rather vague isnt it?? Long time ago now though..would be 40 years ago!! The only thing he had wrong with him that was evident was 2 thumbs on one hand. Just the usual one, then a wee one growing off the side, which they removed when he was about 6 months old. Apart from that, nothing else was discovered. I would think he would need to monitor he health carefully all the same, and I have encouraged him to do just that. He lives in Aussie.
joystik (281 ) 10:22 am, 23 Jun
3317. With rfeference to 3304
Sonia, that is why I feel so strongly about mammograms. My cancer was deep down on the chest wall, and would not have been felt manually until it was enormous. It was doubling in size every 6 months, so my prognosis could have been vastly different, if I hadn't had the mammogram. I sound like a preacher, don't I, but I feel so strongly about this. I am 64 so age means nothing at all.
dize5 (452 ) 10:35 am, 23 Jun
3318. Hi Paula :o)
((((hugs)))) to joshi - hope you manage to get someone to see him today - 4 degress?! Brrrr! I thought it was bad here when we woke up to it being 13 degrees LOL Reminds me must set up the fire on timer - well overdue! Anyway must get back to my herbal research. Got a supplements person visiting me at 1.30 - want to be all prepared ;o)
soniat-d (153 ) 10:36 am, 23 Jun
3319. Preach all you want dize5
I like hearing stories like yours - wish that was my story ;o)
soniat-d (153 ) 10:37 am, 23 Jun
3320. I seem to find myself up on a soap box a fair bit
too, jnus trying to get woman to see sense and have a MAMMOGRAM. And then you hear stupid excuses like, I dont want any playing round with my boobies, and theres no cancer in my family, and I dont smoke, and my mothers never had a lump and she's 65!! Make absolutely no blimmin difference what so ever, does it!!
joystik (281 ) 11:04 am, 23 Jun
3321. Sonia I will be very interested in what the
supplement person has to say. I had a big read up about paw paw enzyme last night and thats most interesting. Think I might get some. Certainly wouldnt do any harm. I slept like a very good baby last night, from about 10.30 until 6.45am, and only woke up once. Much better than it has been.
joystik (281 ) 11:06 am, 23 Jun
3322. Hi Paula, any news yet?? I know you will post
when you know and have time....Keep warm and safe....hugs for Joshand you.....
joystik (281 ) 11:07 am, 23 Jun
3323. There are more effective ways to cure
cancer than just slash, burn and poison (surgery, radiation, and chemo). Have any of you ever read "Your Life is In Your Hands" by Prof. Jane Plant? She cured herself of breast cancer by changing her diet. The most important part was eradicating cows milk from her diet. It contains hormones which can encourage tumour growth in mammary glands. She makes a very strong case since she had tried conventional medical treatments and was unsuccessful. She was told by doctors in the UK to get her affairs into order and prepare for death. But she discovered that cutting out milk from her diet started slowly shrinking her tumours; and so she survived. Breast cancer is well known to be affected by hormones.
parahergest (0 ) 12:04 pm, 23 Jun
3324. Hi people
Best of luck to you all. I am just sitting stil at present. No more chemo or operations. Just on the waiting list for kidney stones. They zap them apparently. Sorry about the bizarre posting last week. I really am losing it. It doesn't make much sense. Cold here today just staying in the house where it is warm. Looking forward to a nice sunny day. Don't care about the frost but would like to see the sun. I think we get depressed in the winter with all this cold etc. It is better than the alternative though. Sonia I will email you interested in your natural healing stuff. I have saeveral book and am looking on the internet all the time to see what is happening overseas. Hugs to you all. Cheers.
icarus1989 (468 ) 12:07 pm, 23 Jun
3325. awwwww shucks guys thanks for the nice words
He got a certificate for topic, he was so cute walking up to get it, i love jnr awards they are so cute especially when they do the singing and dancing nothings in time..just gorgeous.
bogeyi (482 ) 12:51 pm, 23 Jun
3326. Thats great bogeyi, They are so cute alright...
I have a video of Lauren in her very first end of year concert. All the little year 1 and 2's were on stage singing "you are my sunshine", and they were holding lovely big painted suns. They were supposed to be hiding behind them singing so all the audience could see was the 'suns'. But my whole video is puncuated by my Lauren peeking out from behind hers, waving and calling out "Hello Mummy and Daddy"!! I do remind her of it quite often actually!! She's quite embarassed now days especially when I tell her friends too......
joystik (281 ) 1:17 pm, 23 Jun
3327. Hi icarus...nice to see you again....Pleased to
see you are keeping warm by f your fire. Its that time of year again isn't it. To be honest, the winter doesn't bother me a jot! I wouldn't care if it rained every day so long as I dont have to be in it! Sitting inside doing stuff is ok. Howlong are you expecting to be waiting for a kidney stones OP? I suppose its like everything else in the health system, you will be prioritised as to how urgent they think you are. Good luck anyway....I hope you're not in pain while you wait. I have just had my first chemo and I am very well...and hope it continues. Take care....hugs for you....
joystik (281 ) 1:22 pm, 23 Jun
3328. Hi parahergest...thanks for posting...indeed there
are so many alternative treatments available, but sometimes when your life is in the balance you are scared to try these things in case of failure. My cancer was a grade 3 (out of 4) by the time I found it and had surgery, and it has already moved from the original site. Although I am taking supplements and alternative treatments now, some of them can take up to 4 months before they begin to have much effect on the body, and I clearly didn't have 4 months up my sleeve. I am now undergoing chemotherapy as well, but have found almost nil side effects from this and I believe it is because of the alternative stuff I am using. Cant think what else it could be?? There is such a lot of interesting information available regarding other treatments though, and it interests me greatly now!!
joystik (281 ) 1:29 pm, 23 Jun
3329. Hi all
Back again. Just cruised to Invercargill for the drive it would seem. As soon as we left here his coughing stopped and he could breathe easier. Lucky we are one of the popular patients at hospital. Our dr is lovely and was more worried about me having to drive for an hour, than us wasting his time. He said Im glad we made the trip.His asthma has come back with avengence. The consultant popped in and said this is typical when you get to this stage of treatment.So its more puffers etc. Ok gotta dash but love to you all and thanks xoxo
paulaxx (76 ) 2:35 pm, 23 Jun
3330. hi paula, i know what thats like im sure they like
to make a liar of us sometimes...lol.Had tylers allergy test done (terrible blocked sinuses from an allergy)and guess what the top 2 allergys are dustmites 1 and dustmites 2, what are you meant to do...lol
bogeyi (482 ) 3:00 pm, 23 Jun
3331. Hi parahergest
Thanks for posting ;o) I got all excited starting to read your thread till you said cows milk was the big one LOL I don't eat dairy products at all! #sigh# oh well, hopefully some other supplements can help me ;o)
soniat-d (153 ) 3:33 pm, 23 Jun
3332. Hey Bogey
Allergies Suck too. I am a very allergic person. Am thinking Josh is allergic to either me lol or this place. Or the coal dust. Man, if its not one thing its another eh? He started coughing the minute we drove back into this road, I said thats right now your gonna cough again we were both laughing our heads off. I actually enjoyed the time out with him today so much. Singing away and laughing heaps. So the day to the hospital was fun for once. Even forgot to put an emla patch on his port - thank goodness they didnt do bloods. PHEW. Ive never done that before!! So do you have to do anything about the dustmites? What can you do??
paulaxx (76 ) 3:34 pm, 23 Jun
How was the meeting at 1.30 today. Any juicy stuff to share.
paulaxx (76 ) 3:34 pm, 23 Jun
I didnt notice any thing different with the young dr's striking. Our Dr is wonderful. You have a busy week ahead of you. Hope it all falls into place sweetly for you. Is it day surgery for your port?
paulaxx (76 ) 3:38 pm, 23 Jun
3335. Hi went well
She's a Usana distributor so I was sceptical. But by end of meeting found out she was giving it to me at distributor price so not much in for her at all. She recommended a list of things which I will now sit down and work out and compare with what others have said. Lot of familiar things though like selenium etc. She works for the specialist I've been wanting to see for ages (but she was booked out for months which is why I saw that other guy) so Karen said she'll get me slipped in to see her ;o) Its funny how she found me - she had just joined skype and was flipping through all the names (of which there are thousands!)and my one jumped out for some reason, she clicked on my profile, saw my web address, went in, saw my BC diary and got engrossed.
soniat-d (153 ) 3:47 pm, 23 Jun
Funny thing is, she then emailed me almost (or maybe) the exact same time I was driving in my car thinking "I really have to get sorted on these supplements and make some decisions". What was holding me back was boing worried I was being fleeced for $$$$ by distributors. Now it seems I have a good answer to that ;o) I don't always believe in signs these days, but wow, what a coincidence the way this played out?! That's the way she sees it and is all fired up to help me. Very cool :o)
soniat-d (153 ) 3:47 pm, 23 Jun
3337. DUST thats all really....bugger
will get into his room this weekend and will take his mattress out more and bash the hell out of it (could be good therapy) and do his duvet a couple times a week, not alot really but notice the wood fiores put out alot of dust as well.
bogeyi (482 ) 3:49 pm, 23 Jun
3338. Well Sonia
you will have to give us the list, so we can all compare too!.
sunbeamnz (72 ) 3:53 pm, 23 Jun
I reckon thats really cool. Sounds like a fruitful afternoon then. Im glad she is going to sort the other appointment for you too. xo
paulaxx (76 ) 3:55 pm, 23 Jun
MMMM, you should see the dust from the Coal here. Thats gotta be a factor too. Man you cant win, we've got to be warm!!! Fiji is looking really nice about now...
paulaxx (76 ) 3:57 pm, 23 Jun
3341. we love fiji.......ryan keeps on asking when we
can go back.
bogeyi (482 ) 4:05 pm, 23 Jun
3342. Bumping for all you
lovely people, thoughts are always not far from you guys.. and page 2 is not place for ya! :)
chill_nz (4) 5:02 pm, 23 Jun
were thinking after all the treatment is over, but sometimes I just wonder if we should wait. When we finish dairying next May, well I dunno. Wait and see. Things can chnge with these little ones in a heart beat. Thanks for helping to sow the seed Bogeyi. Maybe we should meet up over there!!!
paulaxx (76 ) 5:07 pm, 23 Jun
3344. now thats an idea paula
we are off to weber bros circus tonight the premier charity event.
bogeyi (482 ) 5:25 pm, 23 Jun
I wanna go too. You guys all have fun. You deserve it!!!
paulaxx (76 ) 5:29 pm, 23 Jun
3346. Hi everyone
Have been flat out here, have just caught up on the thread. Lots of loving thoughts and hugs to you all. Christine
gregp3 (5 ) 6:18 pm, 23 Jun
trishm (34 ) 9:01 pm, 23 Jun
3348. Wow Bogeyi
I didn't realise the weber Bros were back in Auckland?! #rushes off to check their website# Hope you had fun!
soniat-d (153 ) 9:18 pm, 23 Jun
3349. Big Fiji fan here too
Thats where we were supposed to be about now actually (with plans a few months back). When I realised I'd still have no decent head of hair now, I asked for postponement till next year - now not sure what - if news on Monday is no surgery, I may request we go ASAP - could be just the ticket ;o)
soniat-d (153 ) 9:20 pm, 23 Jun
3350. I've been out and with the girls all afternoon and
evening - Brents out again tonight - most unusual, so no complaints from me ;o) His work seems to be on this big bonding drive LOL. OK I'm off now to plow into the research - if this stuff takes 4 months to start working, better get onto them like yesteday!?!
soniat-d (153 ) 9:23 pm, 23 Jun
Have fun with the research. MMM Fiji, its sounding better all the time. Thinking of you. Nanite
paulaxx (76 ) 9:48 pm, 23 Jun
3352. Hi Paula, so glad you didnt have to stay in there,
not that its bad, but it is hospital after all. I would think coal dust would be terrible for an asthmatic. Kevin used to get bronchitis every winter when we lived in both CHCH and Nelson as soon as everyone would light up their coal fires. There are obviously heaps of col fire here , too but way more clen air in between the smoke bits and pieces. Another reason we have a heat pump too. I am so plesed for Josh. I felt sad for him that he was off back in there again. I'm in there 3 days next week and 2 the following week. Yes the port operation is day surgery. Have a good sleep tonight Paula, and Josh too. Love and hugs to you all.
joystik (281 ) 10:20 pm, 23 Jun
3353. Sonia I will be looking forward to hearing all
about the supplements once you have it digested. In Percy Westons book he reckoned it was 4 months before there was a noticeable difference. My Ocology Nurse reckons its the supplements that have given me an almost nil reaction to the chemo. I'm happy with that and long may it last. Hope all is well and happy in your home tonight and you have a good restful sleep tonight....Love and hugs to you all too...
joystik (281 ) 10:22 pm, 23 Jun
3354. Boeyi, I will come to the circus and too Fiji if
thats ok !! You need to get amaid in if you have to be dusting all that often. What a pain. I hate dusting and I think that why I am such a promoter of Heat pumps that filter the dust out at the same time as they do the circulating and heating. Better still, get the maid to do it WHILE you are in Fiji. See you tomorrow.Sweet dreams and love to you all....
joystik (281 ) 10:25 pm, 23 Jun
3355. Didn't get very far with my research tonight grrr
This whole Usana thing really clouds things - are they the real deal??? Hmmmm.... They have CoQuinone instead of CoQ10 and reckon it absorbs infinately better that CoQ10. But then they would?! Have been searching the net trying to find independent advice... no luck so far!?! Must go pop my Melatonin and turn the lights off ;o) Night all :o)
soniat-d (153 ) 10:46 pm, 23 Jun
3356. the circus was great
omg those guys......yummmmmmmmmm..wanted to pack them up and bring them home, we had front ringside seats at some stages i could of pinched there bums and oh i was so tempted..
bogeyi (482 ) 11:25 pm, 23 Jun
LOL. Whose bums tell me. Did you go to the circus or a ladies show??? ;o)
paulaxx (76 ) 9:42 am, 24 Jun
3358. Hey bogeyi
Do you know where else they are performing in Auckland by any chance??? Their website isn't working...
soniat-d (153 ) 9:59 am, 24 Jun
If you go and end up in the front row, ask them to come down here and Joystik and I will go too. Tee hee, sounds like a show that men should be the babysitters that night!!! Tee hee
paulaxx (76 ) 10:30 am, 24 Jun
3360. Hee hee Paula ;o)
Sounds like some delicious men gyrating around poles and dangling from the roof could be just what the doctor ordered LOL! So how did joshi sleep last night? Morning all :o)
soniat-d (153 ) 10:37 am, 24 Jun
Goodmorning, how are you? Josh finally got to sleep @10.30ish. Bit better today thanks hun. I've never been into those kinda shows but hey I can always say ITS JUST THE CIRCUS and live life a little ha ha ha. EH Bogeyi??
paulaxx (76 ) 10:40 am, 24 Jun
3362. hi ladies
sorry havent been here for a little while as i have been entertaining the children and myself with my new karaoke program lol had to go out and buy a subwoofer for puter for it to sound ok, am offf to the showgrounds (auck) today to have a nosey at the big sale, has anyone been yet?? hope you are all well and happy and able to do exactly it is you want to do hugs to all hugs hugs hugs xx
pomegal (91 ) 10:42 am, 24 Jun
3363. Me neither Paula ;o)
We do love circuses though - girls loved the last weber bros one - must be one soon...
soniat-d (153 ) 10:43 am, 24 Jun
I feel like a real country bumpkin. used to be such a townie. Havent been to a circus with the kids. Isnt that sad! I will go this year though, there is one that usually comes down in the early stages of the year. Josh was too sick this year. Mum took me when I was tiny she said I had chicken pox and they started breakingout while there. Imagine the looks we would of got!
paulaxx (76 ) 10:49 am, 24 Jun
3365. LOL Paula!
You certainly don't LOOK like a country bumpkin LOL! Guess thats the difference between the city vs country opportunities... Our girls have never seen aninals being born etc etc. We were looking at pet rabbits yesterday (mini lops - sooooo cute) and I said we can't really have one Lydia because we don't have any grass for their hutch to sit on! How sad is that? No grass... only trees...
soniat-d (153 ) 12:06 pm, 24 Jun
3366. Awwww Heather :o)
Your parcel arrived in the mail today - Thanks so much What a sweetie you are :o) Made my day!
soniat-d (153 ) 12:36 pm, 24 Jun
3367. oh paula if they come down there you must
see them, and sonia you are so right cute, muscley men swinging from bars in there tights.The story line is medieval theme they do wonderful job.Sonia i am guessing they will be there for a few weeks maybe even in the holidays????they are normally around for a while.
bogeyi (482 ) 12:53 pm, 24 Jun
Cool :o) How did you book?
soniat-d (153 ) 1:21 pm, 24 Jun
3369. sonia it was the premier charity night
was the first performance of the new theme.Saw your other thread any luck with info, pros and cons from other traders.
bogeyi (482 ) 2:58 pm, 24 Jun
3370. Not really much help in that thread bogeyi
They mean well though ;o) Next plan is to visit some health food shops and see what I can get outside Usana, and maybe go from there...
soniat-d (153 ) 3:26 pm, 24 Jun
3371. Hello Ladies, hope you've all had a great day...
Paula, the cirsuc was down here in January /Feb this year. That was the old guy with the elephant, I think thate Webber brothers isnt it?? We didn't go here but was going to see it in Oamaru when we were there, but they had to cancel because a wire rope broke that help the Big Top up. We were able to wander roud the animals and have a look. But we did go, also in Oamaru to the Other circus without the animals and saw what Bogeyi saw, well almost!! We weren't close enough to pinch any bums - lucky thing bogeyi!! It was absolutely brilliant. That year it was something to do with a turtle but it was well worth going too. Sounds like you loved it Bogeyi. You would all love it I'm sure. We all went and Kevin really thought it was good entertainment value.
joystik (281 ) 5:31 pm, 24 Jun
3372. Sonia, i'm pleased your day was made a little
sweeter. You deserve a lifetime of treats big and small for just being you. You are a very special lady. Hope your day has been fun. Shame you cant have a rabbit or too. They can be lovely pets. Lauren had all that when we lived in town, and it was also when I was caregiving for Barnardos so those kids got to enjoy our pets too. We also had an avairy full of all sorts of birds, ofter with babies, and tropical fish too. But when the novelty wears off, as it does, its just another job for Mum to do. Now we only have 1 beautiful cat. Actually last night about 8.45pm, the neighbour, 3 houses down, their baby abyssinian kitten came strolling in our cat door in to the kitchen, and then to the lounge and jumped up on the couch beside our cat. He thought all his christmas's had come at once. She was just beautiful, and we could have kept her easy. Irang the people and they said 'kick her up the bum and send her home'. How awful - shes a baby. They eventually came up and got her. What a treat..
joystik (281 ) 5:38 pm, 24 Jun
3373. Must get my dinner now...but will be back after...
see you then.....
joystik (281 ) 5:39 pm, 24 Jun
3374. Hi all
Been a nice day here. Went out with the family. Sonia those bunnies are gorgeous. If animals survived on love alone we would have a house full!!!!! Bogey sounds like a really great show. Hope you had a good day too. Joystik, oh the wee cutie coming in to your house like that. Hope you had a nice day where you are as we did here. Better dash and sort the kidlets love to you all xo
paulaxx (76 ) 6:17 pm, 24 Jun
3375. So true Paula ;o)
I still love the idea of one of those cute bunnies - its one of the first times I've been truly tempted to take one home ;o)
soniat-d (153 ) 7:33 pm, 24 Jun
3376. Ok so getting pretty sore in lumpy area dammit
They grow fast! Has upset me a bit today, but not too much. Researching away, got more leads which is good. Have decided I will do the Vitamin C injections - what the hell.... also going to ask about brachytherapy on Monday if they say, as I suspect, that surgery is no longer an option. Have found a place in Auckland that does it and guess who's name is there - Dr Benjamin's LOL
soniat-d (153 ) 7:36 pm, 24 Jun
3377. hey sonia just wanted to send hugs to you
can i ask what is brachytherapy is.We had rabbits at one stage they are lovely but boy they can poop, we now have a tropical tank very relaxing, 2 cats and a dog to come. Paula, joystik did you guys have beautiful weather down there, it was gorgeous here so good i did 4 loads of washing.
bogeyi (482 ) 7:51 pm, 24 Jun
3378. Oooooh I would sooo love another tropical tank!
Thats the only pets I've had til now LOL. Bit of work maintaining the tank though... Yes I was worried about all that rabbit poop! Seems no pet is truly easy (except maybe a cat - damn shame Brent's hates cats LOL).
soniat-d (153 ) 7:58 pm, 24 Jun
3379. See this link for what Brachytherapy is
http://www.americanbrachytherapy.org/aboutBrachytherapy/brachy.cfm Bracing myself for Benji to say "Well if the radiation didn't work neither will Brachytherapy" but hey, gotta ask eh?!
soniat-d (153 ) 8:01 pm, 24 Jun
3380. i love our tropical tank bought it from
pet shop by bird barn and we hardly have to do a thing the new tanks are great and easy to run, will see if i can take a pic.
bogeyi (482 ) 8:10 pm, 24 Jun
3381. Wow really? Easy to run? How so?
If there was some way to automatically change 1/3 of tank water each week, I'd sign up!
soniat-d (153 ) 8:19 pm, 24 Jun
3382. sonia our one years ago was changed every week
this one i havent done for about 4 weeks and its crystal clear we have tetras,angel fish,pleco and other small fish.We bought a tank on a stand cost $280 they have a system at the back where the water runs through sponges,charcol and then these white ceramic thigs its great.
bogeyi (482 ) 8:30 pm, 24 Jun
3383. Wow - cool :o)
I had problems with my angel fish when the females started laying eggs - tried fencing her off with her eggs / from her eggs, all ended in warfare! My faves were my clown loaches, what awesome personalities they have, and my bristle-nosed catfish, and who doesn't love the neon tetras? Thanks for telling me that, what'll Brent think of this new development? LOL
soniat-d (153 ) 8:39 pm, 24 Jun
Your catching up to us 4 dogs, 2 cats, 6 chooks and oh 500 odd cows. Had a bunny, didnt think it would like the cold down here so gave it to the wee girl next door. She loved it. We had turtles too, got them for Josh when Cass was in my tummy, so he had something living to look at, feed etc. OMG - dont get turtles, the poo they do. MAN, so gave them to a Aquatic centre in Hokitika. Apparantley they are cleaner if you feed them out of the tank then let them poo and put them back. MMM hindsight is a wonderful thing. I love fish - they are so tranquil and healing to watch.
paulaxx (76 ) 8:39 pm, 24 Jun
3385. We had an absolutely gorgeous day here today....
so I did washing for africa too, pegged it all out and then decided to go out for lunch. Lauren has her friend Laura staying for the weekend, so we got sorted and went to Colac Bay and had a lovely lunch at the Pavillion. It was really lovely and the food superb. Have you been there Paula?? Its worth a visit. I had seafood chowder as usual, and an Open Chicken sandwich. Only thing was, it was cloudy there so the sea wasn't nice and blue like it is usually. After lunch about 3pm,we drove on round the coastal scenis route and went to Monkey Island, and then on to Orepuki and had a look for gemstones on the beach there. Didnt find any actual gemstones but lots of very pretty coloured stones. Went on thru Tuatapere, and home to Otautau thru Orawia. It had been clear and sunny all day here and the washing was dry too. Actually when I checked the max temp outdoors, it had got to 19.1deg! It is very sheltered here though.... A great day and I feel great too...
joystik (281 ) 8:40 pm, 24 Jun
3386. Sorry you
were feeling sore Sonia. I hope you are feeling better now?? Must be so hard for you! You are so incredible. Big Hugs to you xoxoxo
paulaxx (76 ) 8:41 pm, 24 Jun
3387. sonia interesting reading have never heard
of it, do they use it in breast cancer cases as well or is that something you are asking.
bogeyi (482 ) 8:41 pm, 24 Jun
3388. Yep they mention breast briefly lower down
on that one don't they? Yes I've seen it used for breast cancer (instead of mastectomies etc?!). Nah, if I were to do over, I'd still have done the mastectomy. but this brachytherapy seems a good option for now...
soniat-d (153 ) 8:43 pm, 24 Jun
3389. How funny
Joystik, Chris loves seafood chowder and we were just talking about it today. A friend mentioned she was making some for tea and Chris just about invited himself. I will have to go and have a look at the atlas and see where that is. We went for a drive to Riversdale where there is a farm for sale. Glad you had a lovely day and your feeling good
paulaxx (76 ) 8:45 pm, 24 Jun
3390. Sonia, our tropical tank was set up like Bogeyi's
and they require very little cleaning actually. We loved it and I agree Paula, they are very restful to watch. The cold water goldfish tank was much more of a pain that the other one was. We gav all the fish away when we moved last time and didnt set it up again yet. The cats always drank out of the fish tanks which was a right pain, and I cant think why the water in there was so much better than the fresh water in their bowl. And I'm happy to report, they never ever got a fish out of the tank. Rabbits poo all the time and the more food they have the more they poo. And if you bring them in side, they eat wiring!!! Get an abyssinian kitten Sonia - Brent would love it!!
joystik (281 ) 8:46 pm, 24 Jun
Just curious did you get my email??? if not I havent got your right email address :o/
paulaxx (76 ) 8:47 pm, 24 Jun
3392. I just had a read about the brachytherapy...sounds
interesting and is an option of course. Sorry you aren't feeling good right now Sonia. The lumps certainly grow fast alright. Mine did too. I was so blown away at the size mine got too, after the size it was when I found it. How soon do you get the CT results back?? And then they decide what to do next? I know you though Sonia, you will have researched plenty of options by then.. Special hugs to you...
joystik (281 ) 8:50 pm, 24 Jun
3393. Thanks Paula, I did. That was a lovely surprise..
I thought about you all day that day and wondered what you would be doing in there. Funny thing Paula, every time I go in those big front entrance doors, I start looking all around to see if you guys just happen to be around anywhere. One day you will be and I will give Josh a hug in person...Are you up Waikaia Valley somewhere now?? Do you think you will buy a wee farm for when you finish next season??
joystik (281 ) 8:53 pm, 24 Jun
3394. Oh Joystik
I'm so glad you got it. We do the same thing throught those big doors I look around just in case.Like you say one day it'l be like a huge reunion in the hospital corridors lol. Joystik, we are half way between Gore and Tapanui. Joshuá and Cass's school is called Willowbank and that is kind of Maitland, Waikaka. Waikoikoi is just past where we are. We are looking to buy a farm @50 hectares. So from now on we are keeping our eyes out for something like that, either with or without a house.
paulaxx (76 ) 9:01 pm, 24 Jun
3395. Hey Bogeyi, hows Ryan today?? Hope he's doin ok.
Bet he loved the circus. I would still go to any circus that came near here, if I was home and not roaming around somewhere else. I dont think you ever really grow out of some things. We have to renew our passports again. I think its $150 each now. Didnt it used to be $80?? At the moment we are converting a bus to a mobile home as well!! Long way from finished yet....we always have so much on round here....far too much for me to get Cancer in the middle of it thats for sure!! One day it will be finished..its 10.5 metres so quite a large one...I guess its good to have projects on the go so you don't get bored with life!!
joystik (281 ) 9:05 pm, 24 Jun
3396. Cool Paula, I know exactly where that is. We....
all around in Southland befor we bought at Otautau. Went to Tapanui quite a few times and looked at numerous properties and also Heriot, Riversdale, Mataura, Gore,Clinton, Owaka, Wyndam, Edendale and then came out here and thought this looked pretty good. Houses were so much cheaper even 12 months ago werent they.So is 50 ha about 120-130 acres??
joystik (281 ) 9:11 pm, 24 Jun
3397. Im going
to have an early night. So sleep tight everyone have a good nights sleep. xo
paulaxx (76 ) 9:11 pm, 24 Jun
3398. joystik how cool the kids and i love seeing
the converted buses on the road, we would love to have one but they want one like on meet the parents, oh i wish.Ryans good he started to have a slight blood nose last night at the circus so i thought we would be going to the hospital afterwards with platelets of 13, but it didnt get worse and then stopped so looks like he will hold out till mon.
bogeyi (482 ) 9:12 pm, 24 Jun
3399. I havent snuck off yet
Joystik, yes you are right.About 100 - 120 acres. So if you hear of anything let me know. Prices of land and houses are still considerably cheaper down here for what you can get. That is one of the reasons why we really are looking to stay, Josh being our first priority with hosp etc.
paulaxx (76 ) 9:15 pm, 24 Jun
Does Ryan get blood noses a bit. Josh and Cass both do. Oh and Chris just handed me a newspaper article about cold damp houses and dustmites relating to asthma. LOL
paulaxx (76 ) 9:16 pm, 24 Jun
3401. no he dosent get them normally
quite surprised it turned out to be nothing.
bogeyi (482 ) 9:19 pm, 24 Jun
3402. Thats good
glad it didnt last long.
paulaxx (76 ) 9:22 pm, 24 Jun
3403. Paula, I will keep my eye out for a wee farm for..
you. In a few weeks time I will hopefully be doing it for real for a job. Three of my 5 brothers were really prone to bleeding noses when they were kids and growing up. I only ever had them when we lived in Canterbury. Dont know what it was all about. The neighbour took me to have my blood pressure checked, but it was fine.. Sweet dreams Paula, have a good restful sleep. Hows Josh tonight? Cough a bit better? Hope so. See you tomorrow.....Hugs all round guys...Keep warm too....brrrr...its frosty out there tonight....actually -0.4deg. It got down to -2.9 last night.
joystik (281 ) 9:26 pm, 24 Jun
3404. Doesnt take long to get to another hundred on
here does it?? Sonia you are a legend. Must be the longest thread on here isnt it??
joystik (281 ) 9:27 pm, 24 Jun
3405. Holey moley thats cold!!!! ;o)
Yep Joystik, I can't believe how great this thread is - simply awesome! I occasionally tell Brent what number its up to and he almost doesn't believe me!?. You're all wonderful and amazing and I thank you all, so so much for sharing these journeys together. ((((hugs)))) to all my MB friends xoxoxox PS Feeling Ok now thanks, not so sore ;o) (or am I just used to it?!) 'night all from me too!
soniat-d (153 ) 9:41 pm, 24 Jun
3406. Sonia, my thoughts have been with you for days
a couple of the cords off my com. were at the other house . I was really starting to get agitated cause I couldn't check on you.Your positive attitude must succeed in the end. I wish you all the very best and send you the biggest hugs I have. God bless you and keep on fighting this monster.All my love our beautiful friend.
boop2 (106 ) 9:45 pm, 24 Jun
3407. Lovely and warm in side here though......
Got the whole house at 24deg so we think we're somewhere else when theres a frost like that. It is just beautiful in the morning and looks like snow hanging in the trees. If I beat the sun up I will take a pic and post it tomorrow. Cant really trust the brain to remember. I have foud this thread such a great support to me as well. I can never thank you all enough. Have a good sleep Sonia and we'll see you in the morning. Love and Hugs, Heather xxxxxooooo
joystik (281 ) 9:47 pm, 24 Jun
3408. Thanks boop2 ;o)
Cheers 2 you :o) Yep, its amazing how the mind can bounce back, no matter how many knocks it gets. Well, I always said I love rollercoasters - didn't mean the emotional kind LOL. Riding it though, it certainly gives me a "can do!" attitude like never before. Am I deluded? LOL
soniat-d (153 ) 9:49 pm, 24 Jun
3409. Boop, you're back?? I was starting to worry....
as to where you might have got too. Actually I even asked Sherri if she had seen you.How have you been? Very busy I guess with the shifting. I missed you on here. You've had happy, sunny weather like us.
joystik (281 ) 9:50 pm, 24 Jun
3410. Hugs to you too Heather
I'm off now for my lie down with tyhose delicious choccies of yours - sweet dreams to you too ;o) And to you too Pauala, and all my other lovely friends. Thinking of you Landylass... hope radiation happily underway xoxoxox
soniat-d (153 ) 9:51 pm, 24 Jun
3411. Hi paula and Joshi
Hope that cough is gone by now we have a lot of coal dust here too as we are a mining town the roads and river look quite black at times. How's it going paula good luck with your farm come to the Buller, great dairy farms here and no matter what you here we have one of the best climates in NZ. It has taken me over an hour to catch up here but at last I know how you all are. Hugs to joshi. I read in our paper that they were doing research into childhood cancer treatments now. What the long term effects are what symptoms the kids are left with and altogether a wide range of things.
boop2 (106 ) 9:52 pm, 24 Jun
3412. Hi joystick
I felt like I had lost part of me when I couldn't get on here. I still have heaps to do but I am not worried at least we are CLEAN.Good to hear you are feeling so great. I have never been down your way we hope tp go up to Kerikeri at sometime have my lovely sister up there and I miss her so much. I didn't realise you had lived in Diamond Harbour we had two good friends that lived there. Mavis and Jim F. they used to come over here whitebaiting for years. Lauren sounds a lovely kid she is younger than my grandaughter who is coming up 18.Haven't heard from Sheri I took some bulbs over to her house today and still have to dig her out some alstameria(spelling) the lady that bought our house said I could take what I wanted. We have had lovely days. Our house is warm too my other half has been running around with a thermometer for nights to see how this fire works about 22Deg. Hugs and nite, nite.
boop2 (106 ) 10:03 pm, 24 Jun
3413. Hi bogey and Ryan
you sound a bit of a hard case bogey like your sense of humour.I don't really understand ryans illness when does he have another transplant? Warm hugs to you all
boop2 (106 ) 10:05 pm, 24 Jun
3414. Maewest I believe it has been freezing
over your way. My friend was there and didn't take her thermals off all week!. How you doing not working so hard I hope. Hugs
boop2 (106 ) 10:07 pm, 24 Jun
3415. Where is landylass?
I don't think I read anything from her. Thinking of you,
boop2 (106 ) 10:09 pm, 24 Jun
3416. Sonia,you are not deluded
you are so precious and will win. If love could do it you will fly in with all the warmth and caring that comes through here.Hugs to Lydia and Emily they are so blessed with there mum.
boop2 (106 ) 10:12 pm, 24 Jun
3417. Landylass is in Dunedin having her Radiotherapy...
for a few weeks. She is probably home for the weekend maybe. You better have an early night and not do too much over the weekend. Have tomorrow off and sit in the sun. Hugs to you Boop...
joystik (281 ) 10:13 pm, 24 Jun
3418. hiya boop i dont really understand it as well
(just kidding) there is so much to know and we have really only scratched the surface of it, we head back in end of July.
bogeyi (482 ) 10:17 pm, 24 Jun
3419. Hi maewest, where have you got too?? Been busy
with your days off. I suppose you will be back at work again by now. Its freezing cold out side here tonight already -2.9deg! There will be a ripper frost in the morning, but if the day is like today, it will be brilliant. Hope all is well with you, and you have beenrelaxing. Sweet dreams and see you tomorrow.....
joystik (281 ) 10:22 pm, 24 Jun
3420. Boop, we actually lived at Charteris Bay right
opposite the Golf Course on the main road to Diamond Harbour. Lauren started School at Diamond Harbour, and was there a year or so before we went to Nelson. I loved it there and the neighbours were fantastic, and actually all still keep in touch.
joystik (281 ) 10:24 pm, 24 Jun
3421. Hi landylass, Just in case you come home and ....
happen to venture in here for an update. Hope you have had a good week in Dunedin and have managed to keep warm and out of all that bad weather and black Ice. It looked terrible for a few days. Are you in a motel or with friends up there? I will be after hot tips on quiet motels for when I get up there. I have stayed very well and pushed the side effects off and they didn't come back. Got a bit of a head could a few days ago but that hant amounted to anyhing either. Get the port put in probably next friday, so 3 trips to hospital this week and 2 next week. Better get to bed now or I wont want to get up in the morning... its still only -2.9 deg so hasnt got any colder in the last hour. I missed you this week landylass, and thought about you lots. See you tomorrow. Hugs to you and I hope your leg is better....
joystik (281 ) 10:44 pm, 24 Jun
3422. Hi Joystik
Landylass's big sis here she is still having puter problems.She has had 2 treatments and is doing well i spent some time with her on friday before she went home. She may be able to get on here today maybe not, and is coming back down tomorrow. I to am a B/C survivor of 10 years so hang in there all you wonderful ladies you are all doing so well coping with all this and you will win!!!Positive thoughts always help keep this ghastly monster away..God Bless.
fifie (136 ) 8:51 am, 25 Jun
3423. Thanks for the update fifie :o)
Glad Landylass is doing well. Great to hear of your own successful fight ;o) Thanks for posting :o)
soniat-d (153 ) 9:13 am, 25 Jun
3424. Goodmorning everyone
Glad to hear Landylass is doing ok. OOOHh its a ripper of a frost here!!! is minus 2 and the sun is shining in all its glory. Boop yes Joshi was in the papers in the first few weeks we were in Christchuch as he has agreed to be part of a study where they use all the information they collect from Josh every fortnight, ie extra blood is taken and sent straight to the researchers in Christchurch who are documenting his growth patterns, proteins produced from his heart etc and see what long term side effects etc this treatment is having for future children. We think its pretty cool to be part of. Helping others is somehow a plus when you are faced with such a life changing situation. Something good comes from everything!!! Like all you lovely people I can now call our friends.
paulaxx (76 ) 9:57 am, 25 Jun
3425. Thanks fifie for letting us know about Landylass..
glad to know all is going ok with her radiotherapy. Sorry the computer is still giving a bit of grief...they can be real good at that. When you see her, tell Her I send my love to her. Shes been so good to me like many others have too.
joystik (281 ) 11:10 am, 25 Jun
3426. Hi Paula and Josh....good frost here too,....
it was -1.4 when I got up at 8.45, but its lovely and warm now and is 10.2deg. It only went down to -3.9 over night but was -7. in town so thats cold aye. Just going to hang washing out and then go for a walk before lunch. How did Josh sleep last night?? Not too much coughing I hope. You all have a good day and I will see you again later.
joystik (281 ) 11:13 am, 25 Jun
3427. Hi Sonia, how are you today?? Hope its sunny at
your place too. Have a nice relaxing day wont you and dont do too much, just a bit of fun with the girlies. I'm fighting fit and off for a walk in a minute. Hugs, and see you later.....
joystik (281 ) 11:14 am, 25 Jun
3428. Hi Bogeyi, Ryan, Maewest and Boop, hope the day
has started out good for you all too. Stunning here too. Bet the 50,000 extra people in Queenstown for the Winter Festival are having a ball. Most snow they have had for years. Make the most of the sunshine wont you. Take care and I will see you all later.....HUGS and bye for now.....
joystik (281 ) 11:17 am, 25 Jun
Sorry to hijack this thread but just wanted to say that I have posted on your USANA thread. Take care all you wonderful Ladies :-)
kjl (64 ) 12:03 pm, 25 Jun
just popping in quickly to say hope everyone is feeling ok today. Just been out doing the gardening Cass was such a good help taking the bits that I pruned away for me.
paulaxx (76 ) 1:45 pm, 25 Jun
I think we are on top of it now yay. Joshi slept better last night than he has for weeks. I only heard him coughing when he woke up this morning around 7.45 ish. The puffers are sure helping. Hope your cold has done a runner!!! on Joshi's website you asked about Teddie and I wanted to fill you in. He thinks he can go outside like the big dogs but being a white duster he really collects the dirt. He's had 3 baths in 3 days lol. He sleeps in a basket in the lounge. He hasnt learnt to jump onto Joshis or Cassies bed yet, can manage the couch now so the beds wont be too far away. Had a look at the map last night and saw where you had been. Your bus sounds like fun. Chris's dad and his wife came down in March in their BiG house bus. So comfortable inside you could live in it happily. A great way to get around!!! Take care, catch up soon
paulaxx (76 ) 1:51 pm, 25 Jun
3432. lovely sunny day in the buller
but really frosty in here not used to it. I love the frosts though they kill all the bugs in the garden. How are you all today? I am doing things in stages joystick, sat down and watched the rugby not much of a game the ref. was a shocker.I will cook a decent meal tonight we miss vegeies if we don't have them. Catch you all later.
boop2 (106 ) 1:55 pm, 25 Jun
3433. Hi Boop
How are you, been thinking about you with the shift. We are just the same as you, miss having veges if we go without. Have a nice afternoon
paulaxx (76 ) 2:04 pm, 25 Jun
3434. hi guys, we had a lovely day took a picnic
to long bay and then went on to browns bay, gorgeous weather.
bogeyi (482 ) 4:10 pm, 25 Jun
3435. Hi Guys
Had a nice but busy day today - Our whole family went to Butterfly Creek this morning, were there for ages and had fun holding the rabbit bunnies ;o) and this afternoon had friends visiting so did a quick tidy up and supermarket shop before they arrived. Phew! Alicias over playing with the girls now while I cook dinner. Almost forgot about the ticking timebombs planted inside my chest I was so busy LOL. Man it was nice having friends invite themselves over - its been a while! You'd think I have the plague not the big C?! Was great to see them and their gorgeous baby girl #3. The kids all had a ball. Have a nice evening all :o)
soniat-d (153 ) 5:49 pm, 25 Jun
3436. Hey everyone
Sounds like everyone has been having some fun, family time. have a great evening xoxo
paulaxx (76 ) 5:51 pm, 25 Jun
3437. Holey moley Paula
Gardening in those temperatures?! Wow! Glad Joshi is sleeping better now - yay for inhalers eh!?! Hope thing continue to improve for him ;o)
soniat-d (153 ) 5:51 pm, 25 Jun
3438. Hi Joystik ;o)
Umm, sorry wasn't a relaxing day LOL but it was enjoyable, and thats most important!