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4501. 
Wow missed hitting the hundy again!
Whats wrong with me?! LOL
soniat-d (153 
) 10:57
pm, 8 Jul
4502. Wherebouts in oz?
I lived in Queensland for a year but travelled the east side of oz after we left PNG.I took the boys there last year and they loved it. We did the theme parks and think I had as much fun as they did.
janetmk1 (38 
) 10:59
pm, 8 Jul
4503. 
I'm from Seeedney ;o)
Came over here in a carrycot, so really consider myself an NZ'r - my cousins laugh at my accent, and I at theirs LOL
soniat-d (153 ) 11:02
pm, 8 Jul
4504. Yikes look at the time!
Time to turn into a pumpkin - nightie night ;o)
soniat-d (153 ) 11:02
pm, 8 Jul
4505. they eat feeesh and cheeeps LOL
makes a change for ozies to come this way :))) Nite Sonia and anyone else still up, I have a stack of washing to fold before bed so I better get off here as I have done nothing since about 4pm, wassss so nice to have dinner cooked for me and dishes done.... could get used to this:)))
janetmk1 (38 ) 11:10
pm, 8 Jul
4506. hi sonia never picked you for an aussie. Whose
side were you on tonight? I don't like that haka either liked the old one. You girls are up late tonight.
4507. morning all
we are off to the hospital, ryan is barking (dont need a dog now) and his throat is killing him..
4508. 
Oh Bogeyi :o/
Thats no good - poor Ryan (((((hugs))))) Are you feeling any better today after your vege soup?
soniat-d (153 ) 8:11
am, 9 Jul
4509.
Hi Boop and Janet
I always back the kiwi's of course ;o) My parents do too ;o) For my first 18 years or so we considered ourselves Aussies and thought we were going to return when a job opened back there for Dad but when one finally did, it was too late and they decided not to return (we were very settled with our home and friends here etc). Then we became true blue Kiwis (he had been all along really!), I even changed to an NZ passport :o) Can't change my birth certificate though LOL! You'll all still talk to me, right?!
soniat-d (153 ) 8:16
am, 9 Jul
4510. Whoops
That should have read "WE had been..." ;o) Morning all :o)
soniat-d (153 ) 8:17
am, 9 Jul
4511. Morning
Hi Sonia, hope you had a nice night.Hows the family? Bogey I am gutted for you! There are some nasty coughs going around. Let us know how you go at the hospital. Joystik, I am so hoping you dont get anything cos we may be the ones that gave it to you if so.... really hope not!!!!!
4512. we are home, not alot they can do
no fevers, not neutrophenic just got to ride it out.Hes feeling better but has that cough like me when you start hard to stop, and then he throws up.Can see mornings will be bad for him, touch wood no spiking temps..
4513. come on in and give me your homemade
remedies to get this gone..
4514. Hi ladies, no I'm fine Paula, nothing going on
here yet anyway. Quite a nice morning here, seems to be warm so far but a bit cloudy. Laurens coming home after lunch so I'm looking forward to that. Watched the Rugby, which I quite enjoyed and then slept like a log all night, so feel great today too. I would feel quite nauseated if I wasn't taking the odd Maxolon, and apart from having a itchy head...life is great!! You all have a great day too. Sorry about Ryans cough Bogeyi...no good...I'll be thinking of you ....
joystik (282 
) 10:56
am, 9 Jul
4515. Good morning All
Beautiful day here again,so I am going to potter in the garden after I tidy up, boys are all in computer land so good chance for me to get some peace. Bogeyi I am so sorry to hear Ryan is battling with that nasty cough.I would try manuka honey and lemon drinks all day, even if he can suck on a teaspoon of manuka honey it should give him some relief from the cough..worth a try it works for some people.
janetmk1 (38 ) 11:14
am, 9 Jul
4516. janetmk1 will go and give him some
now, worth a try
4517. bogeyi
Sounds like what Joshis got, sure hes had this long because of his asthma. At night and mornings are the worst. I am sure elevating his bed did help. The other thing is sucking something to releive that nagging tickly, and feeling like wanting to cough. Throat lozengers are good if he doesnt mind the taste. Otherwise even a hard boiled lolly - helped Josh. Lucky I just happened to have a supply of them lol. Anyway vicks on the chest etc???? Inhalations, steam with vicks in. Just some thoughts. Hope he is better soon. I have rung the hospital asking for Joshs bloods - just waiting for them to return my call :o/
4518. you mean you had some lollies
left..thanks paula
4519. 
lol
You guys know me so well.....
4520. 
Man
Hospital doesnt have Josh's blood results wont know till next week. Taken in gore have to be sent to Dunedin now, nurse said if they were taken in Gore we wont get them.The request came from you in Kew and results were being sent to you. Oh? Sorry I am just a little frustrated as his counts had gone down again!!! OK Vent over!
4521.
That is frustrating Paula :o/
I really feel for you - it's like riding a bike along a tightrope in the dark... aaaarrrrgh! Vent away! ((((((hugs))))))
soniat-d (153 ) 12:24
pm, 9 Jul
4522. Hi everyone
I kinda feel guilty saying this but everyone is well again now - even Brent!?! Weathers cr@p though. Brent and I are off to the movies this afternoon (3.15 session LOL) to see the new Superman movie - we hear its good like the Batman one - that WAS good, so going with fingers crossed. Will be nice to go to something with Brent - we haven't done this in too long. Hope everyone's health improves. (((((hugs))))) to all you lovely people and your families xoxoxo
soniat-d (153 ) 12:27
pm, 9 Jul
4523. Sonia
Thats great. You two enjoy your time out. (((((HUGS))))) to you and your beautiful family. Thanks for understanding xo
4524. Sonia
There are probably heaps more Aussies living in N.Z. than you know. I am one too. Came here when I was 23 to marry a Kiwi, and I am now 64, so have lived here longer than there. I have 3 daughters and 3 grandchildren. Love going back for holidays, but would never live there again (Queensland). We are retired now and I just love the life style here. I still have an Aussie passport and will never give that up. (Great at the airports in Aussie when there is a shorter queue at Customs for 'Australians and their families' lol).
4525. I hear you dize5 ;o)
Actually it was Brent who made me become an NZ'r - he got sick of the extra section I had to complete applying for residency every time we returned to NZ! I actually argued your point about going the other way ;o) I waited till I didn't have to relinquish my Australian citizenship, just in case things go to custard in the future LOL! I'm not normally one to sit on the fence however ;o) I've been here for 37 years, and I'm only 38 so how more Kiwi could I be?! I have cousins in Queensland - Yepoon/Rockhampton to be exact, and my late Grandad lived in Toowoomba, so know those areas quite well ;o)
soniat-d (153 ) 2:41
pm, 9 Jul
4526. It's a sad disease
It took my mums boyfriends mom recently, she couldnt eat or drink. My dad recently had prostate cancer removed, however he has decided not to take the kemo:(
4527. Thats a shame Lea
Well if its any consolation, chemo din't work on my cancer anyway. I wonder if rather than doing that, I'd just upped the quality diet, exercised etc etc I may have been better off!
soniat-d (153 ) 7:31
pm, 9 Jul
4528. 
Hi All :o)
Superman Returns is COOL! We loved it! Though one nutty lady started screaming and crying (when Superman was being attacked and wounded) and was ferried out of the theatre shrieking "I can't take it any more, its too much!" :o/!!! What the??? Its just a movie lady LOL Lots of young kids in there, I thought they should have been the ones shrieking #shrugs#. Anyway, we LOVED it, we'll definately be buying that one on DVD ;o) Evening all xoxoxo Its quiet, hope you are all OK?! (((((hugs)))))
soniat-d (153 ) 7:35
pm, 9 Jul
4529. Sonia
Glad you enjoyed the movie, sounds like you got more excitement than you bargained on. Classic! Hope everyones is having a good evening. Off to watch T.V now. Nanite xo
4530.
Before I go
Just wanted to say Bogey I hope you get a good nites sleep and Ryan is better. Hugs to you guys xoxo
4531. thanks paula
i am going to hit the sack early, my joints are aching. Sonia will take the ticket with me if you want to pick it up. my kids saw superman at imax and they didnt scream....what a weirdo
4532.
Yep - I'll see you tomorrow morning bogeyi ;o)
Thanks so much for that :o) Yep a weirdo allright, glad they ferried her out LOL. Hi Paula :o) Hope you both feel MUCH better in the morning xoxoxox
soniat-d (153 ) 7:59
pm, 9 Jul
4533. sonia dont worry about finding parking
if you txt me i will come down and meet you. Where you come in off the main rd and you go under Ak hosp walkway carry on straight ahead and there is a park and drop off thingy outside starship I can meet you there, save getting lost..lol.What sort of time are you aiming for??
4534. Realistically around 10ish
is that OK? Or I can do it on the way back - about 1pm. Whichever you prefer. Thanks for the "don't worry parking" thing - yay for you! I drive a big silver 4WD - licence plate 4SONIA ;o) I'll text you on the way there :o)
soniat-d (153 ) 8:07
pm, 9 Jul
4535. well thats made easy spotting..lol
10am sounds cool as we have big meeting at 1pm with docs signing consent forms etc...is that ok
4536.
Thats fine!
See you then (10ish) - this'll be fun! Finally meeting, if only briefly. Hope all goes well at starship tomorrow Bogeyi.
soniat-d (153 ) 8:12
pm, 9 Jul
4537. cant wait
well the boys and I are heading to bed to watch the rest of harry potter, see if the electric blanket will help the aches. Good night all.
4538. Hi everyone, I wish you were all feeling as great
as I am, and like Sonia, I almost feel guilty saying how good I feel. Sorry you are not feeling on top of the world tonight Bogeyi. Hope you're better tomorrow, and the boys too. Sounds like a big week for you with appointments and stuff. I'll be thinking of you all....I've been out roaming with my friend helping her with her Open Homes today. Had a blast too actually, and quite a few people out looking too which is more fun. Getting a bit of practice ready for when I am qualified and ready to go. Such a gorgeous warm sunny day here too which is good for getting people out and about...
4539. Paula, thats really dopey about Josh's blood tests
does that mean if you have them done in Gore, they will be processed in Dunedin?? Thats not really satisfactory is it? What if its marked URGENT!! They can be thru in about 15 minutes, but not if they go to Dunedin I don't suppose. Hope Josh is feeling better today and the cough is lots better. Did you have a beautiful day too?? I was thinking about you lots today...hugs to you all.....
4540. Hi Sonia, sounds like your day has been lots of...
fun all round, especially the bit where the screaming lady was escorted from the Movie theatre!! Thats a Classic!! I have been to Toowoomba, when I went over to Brisbane for my brothers wedding. My sister in law is from Kingaroy in Queensland, where the Late Premier Joh came from. Pleased to hear you are all back to good health again....was short lived wasn't it?? Must be the Vitamin C, I sure it would be helping not only that but lots of other things as well. Lovely to hear you are feeling better, and sounding better too. Hope you have a happy day tomorrow - last week of the holidays.....Hugs to you all too.....
4541. Hi janetmk, glad you had a lovely day too....
sunshine certainly makes a difference to the way you feel doesn't it. Did you manage to get gardening done? I have 20 roses to prune but I am trying to wait another month or so, til the hard frosts are past, because once they are pruned, they shoot away quite quickly, and then if you get really frosty stuff again, you can lose all you first flowers. There are plenty of weeds lurking, but thats for another day. Lots of daffodils are up now with big buds, so spring cant be far away, hopefully!! See you again tomorrow....hugs to you and family too...
4542. Hows you day been Dize? Hope its been kind
to you. I didn't realise that we were in the company of so many Australians?? I quite like them anyway, I have one for a SIL and she is lovely. And its not far to go for a holiday is it? There have to be benefits both ways. See you tomorrow....sweet dreams and hugs....
4543. Did you enjoy the rugby Maewest and Boop?
Quite an entertaining game I thought, and as for Jerry Collins little episode on the sideline....well....how disgusting. I actually couldn't believe that was what he was doing. Obviously his mum wasn't like my mum!! She always said when we went anywhere,"have you been to the toilet, and have you got a hanky"? Hope you have both had a good day. Its been fab here and so lovely and warm too. You didn't get snow did you Maewest?? Some coming later in the week. Thanks for the emails Boop....so funny...and I love mail as you have probably guessed by now!! Take care, sleep well, and hugs to you both. Hows your hubby Maewest?? Get the supplements into him - who knows what could happen!!!
4544. Landylass, where are you?? You seem to have been
gone for ages. Hope all is going well with your treatment. I've been thinking about you and wondering how its all going. I would guess you are super busy when you get home after being away all week. All is well in my camp, and I havent experienced any unpleasant side effects following the chemo on wednesday, so I am very thankful for that. Do take care driving back tomorrow, and I'll be thinking of you . Sweet dreams and hugs to you too.....
4545. Hi Joystik ;o)
Yes a good day, good weekend actually ;o) I was talking to a friend on the phone tonight that I havene't spoken with in about 3 weeks, and of course she was asking where I was with everying and such. While I was filling her in it hit me how, when talking like that, it seems like its all I think about and am doing, but its not!?! Life's so normal in a lot of ways right now. But everyone around me things its not! If only I could convey that to others. Oh well, it was nice having a chat :o)
soniat-d (153 ) 10:06
pm, 9 Jul
4546. Yep, missing Landylass
Hopefully shes having fun with her kids and catching up on things. Remember to SLATHER on the acqueous cream Landylass, like icing on a cake ;o)
soniat-d (153 ) 10:07
pm, 9 Jul
4547. Sonia,is that acqueous cream white or a lemon
colour?? I remember when my mum had her first episode with breast cancer when I was 5, and she came home after about 8 or 10 weeks away in hospital, and had this massive big burn from her shoulder to her waist, right through front and back, and had to smear thick layers of this creamy coloured stuff over it. I can still remember the smell of it actually. It went on for ages, and the district nurse came 2 or 3 times a week and changed the big bandages, and then mum would have to wash them all readyfor the next time she visited. It was dreadfull and a very lasting memory unfortunately!
joystik (282 ) 10:15
pm, 9 Jul
4548. You really do sound so much better, and you
are always so positive on here especially. It certainly is the best way to be, and you feel so much better if you can just see some good in whats happening. Sometimes its such a small little thing, but if its a positive then its well worth accentuating i believe. Positivity is so good for people fighting this monster....Cos they end up winning....
joystik (282 ) 10:18
pm, 9 Jul
4549. Twinkies and Briyanna....are you ok???
Haven't seen you for a few days either and I'm hoping all is OK and you're just busy out doors playing and doing fun things Take care and keep smiling all of you. Hugs for you all too......
joystik (282 ) 10:19
pm, 9 Jul
4550. Is the show you are going too on tomorrow??
You really make the holidays lots of fun for your little girls Sonia. They are both beautiful and take such lovely photo's. I have a few prints of them now.....it like a wee gallery in here..
joystik (282 ) 10:21
pm, 9 Jul
4551. Hi joystik
Thank you for the kind words. If I had a dollar for every time someone says to me "I won't hold that against you" when they hear I am an Aussie, I would be very rich!!!! I really enjoy your postings and to hear of your positive progress. I didn't have chemo, just radiotherapy and now drugs, so am following your journey with great interest.
4552. Oh well, bed time for me...see you all tomorrow
after a nice restful sleep....
joystik (282 ) 10:33
pm, 9 Jul
4553. Its a non-smelly white cream
Very light and watery. After being slathered on and a dressing over it for a few hours when it was raw it stank so I was changing like 6 times a day. But it was the gooey discharge causing the smell, not the cream! The girls are happy with everything going on - they'll probably hate going back to school LOL because it was such fun, but I feel so great now I just want to go everywhere and do fun things :o) We're meeting bogeyi to collect the tickets tomorrow (Monday) and the show is Tuesday morning :o) The only trouble with school hols and no family around is not being able to go for long walks (girls aren't into long walks unfortunately) so looking forawrd to getting into that once school etc returns ;o) "Nite all, gotta go do the dishes (was hoping Brent'd do it for once but noooooo) then beddy byes. Sweet dreams all, hope the boys get a decent night's rest ((((((hugs)))))
soniat-d (153 ) 10:43
pm, 9 Jul
4554. Home for a 4 day weekend
and been flat out & never got a chance to have a catch up read on what everyone is up to. Had a miserable week with sore muscles this last week. Been to Dr on Friday and I have been taken off Lipex for 2 weeks. I take this for high chlorestral as it goes with the diabetes. My muscles have been getting weaker and weaker and I can't walk properly. My feet kinda plop! Then the soreness kicked in. I think this is why I fell down the stairs and sprained my ankle. So we will see what this week brings now I am off it.
landylass (48 ) 11:03
pm, 9 Jul
4555. cont.
Hope all the kiddies are on the improve and Maewest enjoyed her days off! Was thinking of you all. Joystik Sonia was away home on Friday. Will miss her this week. Hope all is going well for you. Might have to go visit big sis during the week and have my catchup read on her computer. Have a good week everyone. Hope everything is going ok for you too Sonia. Fiji is getting closer!!!! I am sick of ice and slippery roads and getting gravel throw at my windscreen travelling and looks like we are in for another frost tonight and more snow later in the week.
landylass (48 ) 11:04
pm, 9 Jul
4556. Hi there Landylass
It's good to see you back on here. Sorry to hear your muscles are giving you such trouble. Let's hope that coming off the Lipex does it for you. How many treatments do you have left? I'm just in from a 12 hour shift at work. Will be hitting the hay shortly. Would love to catch up with you again one of these days.
4557. And hello and goodnight
to all the rest of you lovely ladies on here. Haven't read back through all the posts yet. Will try and do that in the morning. Hope all the coughs are on the improve. I'm still managing to keep the bugs at bay. Yay for Vit C!! Wishing you all a happy week. Nite nite XXX
4558.
wow soniat-d
You are one amazing woman, with a lot of courage and unfailing optimism. I read through a fair bit of this...over the last couple of hours, and from what i've read things are looking good for you! That is really good to hear. I know that radiation and chemo is rather brutal on the body, and it requires a lot of strength and determination let alone learning to handle the pain and side effects. It must be hard with young children also, having to be brave, when at times all you'd want to do is fall apart emotionally when going through the ups and downs of your recovery path. All the VERY best to you and your family.
sundown (666 
) 11:16
pm, 9 Jul
4559. Yikes Joy I pruned the roses!!
Guess I won't be getting many flowers this summer LOL...They looked so bad and the kids kept complaining that when they get out the car the roses attacked them so really i had to give them the chop a bit. I had a nice peaceful day.I am hoping the kids stay well this week so I can get them out to the movies etc. bogeyi I hope Ryan got some relief from coughing today,poor boy its horrible when it hurts to cough. I hope you all have a good nights sleep .. nite :)))
janetmk1 (38 ) 11:26
pm, 9 Jul
4560. Good morning ladies
Where are you all today? Must be because school holidays are over, lol. Hope you all have a good day.
4561. Hi dize 5
Nope another week to go of school holidays - I'm getting all booked up this week which is nice :o)
soniat-d (153 ) 8:58
am, 10 Jul
4562. Hey thanks Sundown :o)
I appreciate you taking the time to post and saying such lovely things! This thread is sooooo massive I'm impressed at anyone who takes the time to read through it! Cheers to you :o)
soniat-d (153 ) 8:59
am, 10 Jul
4563.
Awwwwww Landylass
Oh you poor thing - not what you need with radiation as well?! I hope they can get the Lipex dosage right for you. What a nightmare!? ((((((hugs))))))
soniat-d (153 ) 9:01
am, 10 Jul
4564.
OK bye for now everyone
Gotta get the family sorted and in the car - meeting Bogeyi at 10 :o) Only wish it was in better circumstances (with Ryan in at Starship etc). (((((hugs)))))) to you all, we hope you have a great day :o)
soniat-d (153 ) 9:04
am, 10 Jul
4565. hi landylass
sorry you are feeling like crap there must be a light at the end of the tunnel for you. Hope you get better soon.
4566. Hi aussies
I like you too if aus.is playing another country I always go for them it is only when NZ is playing them that aussies get outed by me. Love the country especially Sydney.
4567. Hi bogeyi and paula
how nice for you to get together but a bugger for Ryan. I hope you all have a nice time everyone is getting to meet someone else face to face except for me- BOO HOO. As Janet said try the manuka honey it helps.Hugs to you all
4568. Hi maewest
pleased you are having better weather over there. Are you feeling better? hugs to you.
4569. Ooops
I did really know it was school holidays, as my grandchildren are home. Just had a senior moment, as my sister is a school teacher in Queensland and I got an e-mail from her this morning saying she is back to school today.
4570. Hi Bettyboop
I'm good thanks, just tired. Nearing the end of my working week, but I'm working til 10pm tonight, then covering for someone at 8am in the morning. That will be a challenge! Have 3 days off after that though (hopefully!). Lovely day here...cool but clear. Think I'll take a quick walk before I head off into town. When are you coming over here again? You never know, I may just head over to the coast one of these days.
maewest (76 
) 10:00
am, 10 Jul
4571. Just a thought
When I had radiation I got quite badly burnt under my breast, and acres of aqueous cream couldn't cope, so the hospital gave me manuka honey. Very messy, but oh, so wonderful, and it did the trick. I see it has been mentioned on a thread, but I can vouch for it too.
4572. Hi joystick
I missed what jerry Collins was doing what was it? Was he peeing?I have heaps more mail to send you when I get back from the op shop. I have to go out country today and work, just love it.I am just so wrapped that you are feeling so well that is a real bonus for you. Did you watch the spelling bee on last night ? I thought i wasn't too bad till I saw that they were good.The sun is coming out now. I can text on my phone it took me awhile my son was having hysterics cause I was sending all sorts of funny messages. I am not as young as they are takes awhile for the lift to get to the top at times. Have a nice day.
4573. Good morning Dize
How is it up your way today? Yip manuka honey..good for all sorts of things. Hey Boop, yes he was peeing. The only problem I had with that is that they didn't get a bit closer!!!Did I say that??? Hehe.
maewest (76 ) 10:06
am, 10 Jul
4574. And Good Morning to
everyone else. Sonia will be meeting up with Bogey about now. It is a shame it is under such circumstances. Joystik, you amazing lady...are you still feeling great? Hope so. You will have to post a pic of you with your wig. I have been in touch with the lady down the road who had a mastectomy a couple of weeks ago. She starts chemo this Wednesday. Going to visit her on Friday..have a heap of scarves etc to lend her. Wish I had known someone else last year who was going through the same. Must be reassuring to talk to someone who has been there.
maewest (76 ) 10:11
am, 10 Jul
4575. Paula I hope you
get Joshi's results back soon. How frustrating for you. Is his cough getting any better? And your shoulder too? Bogey, you didn't sound very well either. Hope you are feeling better today. Big ((Hugs)) to Josh and Ryan. And to you two as well of course XXX
maewest (76 ) 10:17
am, 10 Jul
4576. Hi meridian, thank you so much for your lovely
card and gift in this mornings mail. You're a wee sweetie aren't you. I have found that once you are in this position yourself, as I now am, it is really not difficult to offer fellow fighters a kind word of encouragement and positiveness. It seems to come much easier than negativity actually. In the earlier stages, I had a fair amount of awful negative thoughts going on, but now I see every day as the Big step onwards and upwards, and one day closer to when I will be completely rid of this MONSTER. Love and hugs to you for your kindness too...
joystik (282 ) 11:04
am, 10 Jul
4577. no problem soniat-d
It's like my husband said to me once, if you have a problem that can be fixed by money, then you haven't a problem.....the underlining factor means that serious health issues, like cancer are a problem....can be a devastating problem.....money really isn't. And this was reiiterated the other day when I saw a woman, that i'd known from working at a service station that we go to and more recently at the bakery.
sundown (666 ) 11:06
am, 10 Jul
4578. ....continued
I hadn't seen her for over three months as we've been on holiday in the states for that long....her and i started talking...and i asked her how she was....not thinking for one minute i was going to get the answer I did! In April she got pain in her leg...and then in her back, went into hospital for a whole lotta tests...she has lymphomic (not sure if this is the right word) or hodgekinsons disease. SHe's gone from a size 12 to a size 8, and undergoing chemo at the moment. It's shrunk the lumps.....and she's keeping positive...she's only early 40's. Also her husbands off work for a couple of months with serious back problems.... So it reiiterated....our position...we worry about nothing, if all we are doing is worrying about money. So when i saw your post i just had to have a read
sundown (666 ) 11:11
am, 10 Jul
4579. Hi Paula, hows your day going? Have you got
the results for the bloods back yet? Were you to go for more today?? Hope all is ticking over nicely in your camp. All is well here except for NO HOT WATER!! Just had the electrician and its a short in the wiring, so the cost will be on the installer seeing as it was new last year. That still doesnt give you hot water though for at least a few hours. Taking Lauren to the Dr with her Hip problem later today. Her hips semi dis locate, and we weretold a few years ago it is an alignment problem, which I think it is, but it needs sorted.. See you again soon
joystik (282 ) 11:51
am, 10 Jul
4580.
Well firstly what a great morning :o)
Got to meet bogeyi and her awesome family :o) What lovely people, the boys were full of beans, even Ryan with like, no blood cells - what a champ :o) I'm just in awe of that lovely boy - he would have gone off for his blood after we left - hope that went well Bogeyi. He's O- Everyone who can donate blood - I sure hope you're doing so, for the sake of special children like Ryan :o) It was great meeting you Janine, hope we can together again soon ;o)
soniat-d (153 ) 1:10
pm, 10 Jul
4581. hello
My friends. What a lovley lot of people I have met on here. Whether its personally or not I still feel like we have met. you are all so special. I went to the Dr's with Josh for more bloods - Invercargill hosp havent still got the results. Gore did though and his haemoglobin is 105. Neutraphils 1.0. So it will be interesting to see what todays ones are like. Wont know them until Wednesday now. :o/ It is a tad frustrating! Josh is under the effects of Dexamethasone. When he takes it even if for only 5 days he just gets so shirty. Best we just let him be. ;o) Maewest, landylass lovely to hear from you both as always xo
4582. Joystik
B***** no hot water is a pain. Hope its sorted quick for you. its quite a nice day here today and yesterday was too. Not really that cold. only got 4 layers on today lol. Hope that head of yours is not so itcy. Bet you look gorgeous in that beautiful wig!!! Still smile about me not holding it when Kevin passed it to me. ;o)
4583.
Hi Sundown
Sorry to hear about that lady, but take heart, our cousin's wife had Hodgekins Disease when she was in her late teens/very early twenties and she recovered fully, no recurrence (touchwood) she's my age now (38) with 3 stunning kids (she was told back then she couldn't have any!). I like to think that any cancer is beatable with the right attitude (and treatments). Please send her my best wishes for a full recovery ;o)
soniat-d (153 ) 1:14
pm, 10 Jul
4584. Hi Sonia
Well my friend a bit to tell you too.... The lady at Make A Wish thinks (Like me) you are an angel!!! Was so excited for us. She phoned me today to say change in plans - we arent going to Waiheke any more, Graeme Sinclair is picking the boys up on Thursday and taking them out for the day, got pressies for Josh and he is doing his darndest to make this a memorable a day as poss for our boy. MAN this is so cool. I cant wait to meet you. Ryan sounds like such a little trouper, arent they incredible these kids? Oh and by the way will be getting my mammogram appointment in the mail soon... ;o)
4585. Joystik
Is there a Southland Radiology place as thats where I will be going for my mammogram. She said you will have to pay $130 though. I dont care! Money well spent me thinks. xo
4586.
Hi Paula :o)
Sorry to hear about all the holdups with the blood tests - why don't they treat them as urgent? I don't get it!? ((((((hugs)))))) Also sad to hear how much the dex affects him - oh the poor man - words fail me really - ((((((hugs)))))) xoxoxox
soniat-d (153 ) 1:20
pm, 10 Jul
4587. Hi everyone.
I just wanted to let you all know that I always feel so stink when it comes to donating for Cancer as being on an Invalids bene doesn't allow for doing this. But today I posted 100 grams of 18cm length of hair, that I cut off my head yesterday, to the wig place in Auckland for child cancer patients or whoever needed it who had lost thier hair through having cancer. I've still got plenty left on my head though it is quite short and stylish. I will now set about growing it again for next year. Should get about the same again then. I grow such lovely strong hair, pretty colour too and it grows fast. So those who need it are welcome. it is the colour of old gold sort of brown with golden lights.
tis_me_chrissy (98 ) 1:20
pm, 10 Jul
4588.
Sonia
My sweet - thanks hun. Its ok, he is used to it. Last one today so he will be happier with life again soon. I still manage to make him laugh heaps. How are you feeling in yourself after the Vit C?
4589.
tis me chrissy
What a lovely gesture. Thats very nice of you :O)
4590.
Hi Meridian1
RU there??? Awwww thanks so much for the pressies - how sweet of you! They're gorgeous! And most appreciated! (Lydia's wearing her gorgeous necklace all around already, Emily wrapped her parcel up (as she does) and will unwrap it later LOL! And I love wine and throwing parties so my gift will certainly come in handy - Thank you!) Your message in the card was so sweet and well said - you're so special! Thanks again for that surprise act of kindness, and best wishes for the future xoxoxox
soniat-d (153 ) 1:25
pm, 10 Jul
4591. Sonia
I forgot to answer your comment on Josh bloods. That is an urgetn request. The Gore lab is no longer operating so the blood has to go to Dunedin now, maybe was so slow because of the weekend. I know not - it does annoy me as if we lived closer to the main ammenities this wouldnt happen? Oh well you cant have everything. I do beleive that if there was something really major going on with him the lab would phone and they would get onto it? (((((hugs))))) to you too. 14 Sleeps to go ;o)
4592. Thats good its his last one Paula ;o)
So how will he be when he comes to Auckland? And how is Cassies nose bleeds? Have they stopped?
soniat-d (153 ) 1:28
pm, 10 Jul
4593. 
WOW tis me chrissy
What a great thing to do! Acts of thoughtfullness like that mean so much more than money ;o) Thats so sweet :o) Lucky you having such great hair to share xoxoxox
soniat-d (153 ) 1:30
pm, 10 Jul
4594. Hi Sonia...its pressie day all round....thank you
so much for the loads of things you sent down. I have been having a wee play already. Very trendy some of that stuff isnt it. You are so very kind. Thanks also for the BC wristbands, Lauren thought that was a very kool thing to have and is wearing hers too, and says thanks to you as well. She just took a couple of pics of me in the wig so I will see if I cn get them on here. Not the most photogenic person going thats for sure, but its ME!! Love to you Sonia, you're so sweet....
joystik (282 ) 1:31
pm, 10 Jul
4595. thank you...... but if all of us folk
with lovely strong hair did this how much easier people with cancer would be. Just one small thing That I've often thought about. But you know in the past I've always gone to a hairdresser to get it cut. They make so many snips and clips that I doubt any of it would be useful. This way I knew exaclty what I was doing. I will get a pic of my hair later so you can all see my new hair cut.
tis_me_chrissy (98 ) 1:34
pm, 10 Jul
4596. Hi Paula and Josh....more bloods! Hope they have
come up since the last ones. Why are thy going to Dunedin?? Is Invercargill not closer? And thats where his treatment is anyway?? Strange thing bueracracy!! Got the hot water going again. Had a new cylinder fitted about 9 months ago and the plumber whowired it in left a spade connecter loose which has been shorting and had eventually melted the plastic cover into the works and stopped it working! I asked him if it could have burned the house down, but he said no. I was very hankful for that. That Graeme Sinclair, is he the one off that programme on tv thats in the wheelchair?? He's great anyway. It will be so much fun for you all, and you will get to meet all our friends too....LUCKY!!
joystik (282 ) 1:36
pm, 10 Jul
4597. Thanks chrissy...what a lovely thing you have done
for some lucky person. I'm going to post a pic of my wig soon but mine is not real hair, but look good I think.....Hugs to you
joystik (282 ) 1:37
pm, 10 Jul
4598. Lucky you Sonia, meeting bogeyi and the kids.....
how exciting for you all. I'm O- blood too and wish I could give him some of mine, but right now definately woulnd't be a good time!! Can you ever donate again after having cancer???
joystik (282 ) 1:39
pm, 10 Jul
4599.
Joystik
Yes he is the one with MS. Gonna be a very special time thats for sure.
4600. Who will get it?????........
.....willit be me???
joystik (282 ) 1:40
pm, 10 Jul
4601. YAY!!! Sonia another hundy for a great cause!!!
Look at what you started here.....it takes a very long time to read now doesnt it?? YOU ROCK!!
joystik (282 ) 1:41
pm, 10 Jul
4602. Sonia
We will go back for more bloods on Wednesday - not a complete blood count though. Just study bloods for the research Josh is helping with. I am hoping like anything he will be fine when we are in Auckland. Cant see anything stopping us from coming. Its all happening now - so we are right in two weeks time ;o) love to you
4603. Bogey
just thinking of you and hoping its all going ok for you all today. Hope Ryan and your coughs getting better! (((((hugs)))))
4604. Oh ok Paula, he was down Stewart Island a while
and did a programme from down there which was relly good. Cloudy hee today too but not cold. Going to walk up the village soon....post more letters and take Lauren to Dr at 3.30...I still feel great. Tried to post on Josh's web site last night but couldnt...managed to get one on there this morning so dont know what was happening...
joystik (282 ) 1:43
pm, 10 Jul
4605. Joystik
Thanks, wonder why? Hope Lauren is ok? Oh and I wonder too about the Invercargil being closer??? Oh well. Refresh my memory did you go to Dunedin for your Mammogram?
4606. No Paula, I went to the Mammography Cottage at
Kew. Its that white building right out the window when you're sitting in the Cafe. Why do you have to go to Southland Radiology?? I went to Kew and had to pay the $104 or whatever it was. Ironically, as I left that day last July, the office lady smiled at me and said, "If you come after you birthday in August next year, you wont have to pay cos you will be 45"!! How handy!!(Am I being sarcastic??)
joystik (282 ) 1:51
pm, 10 Jul
4607. Paula, Lauren has a problem with her hips, knees,
and ankles. We were told by a Dr in Oamaru that it was to do with alignment, but it stops her doin so much, and her hips seem to almost partially dislocate at times, which is very painful. It used to be her ankles and she had a lot of physio to strengthen them, and now they seem pretty good but almost, it would seem at the deterement of her hips. I'll let you know what the Dr Fonz says!
joystik (282 ) 1:55
pm, 10 Jul
4608. Well,here's the pics of me sporting the new
hair do..... http://images.trademe.co.nz/photoserver/64/24012364_full.jpg and http://images.trademe.co.nz/photoserver/64/24012305_full.jpg Hope thats them.
joystik (282 ) 2:09
pm, 10 Jul
4609. Hi Bogeyi, glad you were lucky enough to meet
up with the lovely Sonia today. Sounds like your Ryan was full of beans bouncing around the place. Thats so good to hear. I guess you have a busy couple of weeks now coming up to the transplant. Thanks for the info about that side of it too....Most interesting but rather harrowing what you all have to endure i think. Hugs to you all there too....
joystik (282 ) 2:11
pm, 10 Jul
4610. Nice to see you have popped in Landylass in
your very busy schedule. Sorry things arent going so well for you with the other problems cropping up. You have enough to contend with one thing, let alone half a dozen other majors as well. I am really doing so well on all this treatment so far, without any real side effects at all. It has been so kind to me, but like I have siad before, It has to be the supplements as much as anything. Hope you have a good week, and watch those jolly icy roads. Love to you too....
joystik (282 ) 2:16
pm, 10 Jul
4611. Hi Boop, good to see you too. Yes I did watch
that spelling Bee last night but didn't enjoy it as much as Dancing with the stars! I always thought my spelling was pretty up to scratch, but now I'm not so sure about it. Some of those words I have never even heard, have you?? Hope you are having a nice day up in tropical Buller. Its not quite a tropical down here today but is still quite warm. I'm just off for a walk....see you later...
joystik (282 ) 2:21
pm, 10 Jul
4612. Hi Maewest, pleased you are keeping the bugs at
bay. They would never catch you anyway, you arealways so busy buzzing about and working such long hours and days. Hope you have a few quiet days off when you get to them soon. All is going well with me here and I'm keeping up those supplements!! Take care and love to you too....
joystik (282 ) 2:25
pm, 10 Jul
4613.
Hey joystik your wig looks great :o)
(Could only get you first pic to work) It is a different colour to mine - much lighter ;o) Looks fab!
soniat-d (153 ) 3:09
pm, 10 Jul
4614.
Hi Paula :o)
Happy to hear the mammograms happening ;o) So how is Cassielle?
soniat-d (153 ) 3:09
pm, 10 Jul
4615.
It was cool meeting Ryan :o)
I felt like I was meeting a celebrity LOL I'd seen his handsome face in pics for so long, heard so much about him and then, there he was in 3D ;o) I felt like asking him for his autograph LOL It was soooo nice meeting Janine of course *waves to bogeyi* Hope I get to meet you other lovely ladies too ;o) Glad we've found each other on this thread - has helped me through all this and given me fresh perspective ((((((hugs to you all)))))) xoxox
soniat-d (153 ) 3:15
pm, 10 Jul
4616.
Sonia
You are such a darling!!! Cassielle is alright thanks, sorry forgot to answer you before when you asked about the wee cherub. She does get these blood noses and just to be sure we will get her checked out when our dr comes back from o/seas. Whe I saw the referral for my mammogram it cracked me up, there was no history of anything just had reference to son having leukaemia. Maybe they are letting me do this just to appease me? Still I dont mind at least I am getting what I wanted. ;o)
4617.
OMG
So Hospital just phoned and Josh has to stop all treatment!!!! He is Neutrapenic and platelets gone up to 552. At least we know and will now have to go for bloods next week to see if the counts have recovered some.
4618. Joystik
Hope the appointment with Lauren went ok, poor girl!!!!! It is so horrible when kids are in pain. i hope they can help her! Thinking of you hun xo Beautiful photo. It looks amazing!!!!!! Yea you do look at the most 31 ;o)
4619. Oh Paula :o(
Poor Josh! Not what is needed eh?! Hope his bloods can recover somehow ASAP - do they give you any tips on what he should eat or do to help? I was told during chemo that nothing could be done to help it, but have since heard certain recommendations I wish I'd heard at the time!?! Anyway, sending positive vibes and ((((hugs)))) in Josh's direction. #sigh# Wish we could help him more... xoxoxox
soniat-d (153 ) 3:51
pm, 10 Jul
4620.
Hugs and prayers to all you brave souls
I am glad you have found each other and I wish you all, and your families, every positive thought in the world. xoxo
julesdn (827 ) 3:56
pm, 10 Jul
4621.
Sonia
thank you hun. I only have the neutrapenic diet to follow ie fresh food etc, well cooked and no chicken etc. Any tips would be greatly received. xxxx
4622. Oh and Sonia
You are helping him everyday. Cos you help me. Also he has our visit with you to look forward to - and that helps. xoxo
4623.
That diet sounds good ;o)
I think it was Joystik who told us once? hmmmm.... can't remember sorry! Glad he's looking forward to his fab trip it all sounds cool :o) Just what he needs - The Make A Wish Foundation ROCKS :o)
soniat-d (153 ) 4:53
pm, 10 Jul
4624.
Yowsa! Just had an attempted blood test
Tried once in usual spot, then once off hand - nada :o/!!! I said flag it till Wednesday - realised I've have very little water today (unusual 4 me) so upping that as of now! Silly me... *slaps wrist* OK off to cook din dins now. Nanna's back in town -yay- so had the girls for the afternoon :o)
soniat-d (153 ) 4:56
pm, 10 Jul
4625.
Awwww... Thanks julesdn
:o)
soniat-d (153 ) 4:57
pm, 10 Jul
4626. Paula ...
What does being neutrapenic imply? His immune system is comprimised??? Oh, I hope he will be okay for your trip. Heaps of positive vibes going out to you!!!
meridian1 (294 ) 5:46
pm, 10 Jul
4627. Joystick ...
glad you liked the wee gift. I hope the Drs get Lauren's hips sorted. If you get no luck from them, have you thought of trying an osteopath or acupuncture? I am not speaking with any knowledge of what Lauren's problem, just the knowledge of how good osteo and accup can be for many different ailments. Poor Lauren :-(
meridian1 (294 ) 5:50
pm, 10 Jul
4628. Sonia ...
I'm glad you and the girls liked your wee gifts as well. How nice for you to meet bogeyi, Ryan etc. It's lovely to hear that he was bouncing around (like boys do!).
meridian1 (294 ) 6:01
pm, 10 Jul
4629. Meridian
Thanks for your thoughts. Yes Neutrapenia is a condition you get when your Neutraphils (White Blood Cells) get too low. Which means you have no ablility to fight infections etc. Thks again
4630. your wig looks great joystik
it's amazing what they can do these days! THe lady i was talking about earlier with hodgesons....is wearing a wig also...and you just wouldn't pick that it's not her real hair. Looking good....the colours and styles are great now....not like 30 years ago huh? thanks for your kind wishes soniat-d regarding our friend....i'll check up on her soon and keep you informed. How much more treatment do you have soniat-d?
sundown (666 ) 6:03
pm, 10 Jul
4631. OH Joystick ....
I forgot to tell you .... your new do looks totally awesome!!! No wonder you had that bit of 'excitement' the other day (hehe).
meridian1 (294 ) 6:06
pm, 10 Jul
4632. BIG BIG HUGS
to Joshi... and of course to you Paula xxxx Your big trip sounds so exciting!!!!
meridian1 (294 ) 6:17
pm, 10 Jul
4633.
Hi sundown
I've finished the first round of treatments (6 months chemotherapy - AC followed by Taxotere) and several months of radiation. Still have the new lumps but they've shrunk. Two new suspicious lumps (one in liver, one on ovary) to be determined in 6 weeks. Till then, taking daily pile of supplements and having vitamin C infusions twice a week. Don't know whats next till we know what those new lumps are. So major crossing fingers required in 6 weeks ;o)
soniat-d (153 ) 6:42
pm, 10 Jul
4634. I spent the day with my sister
today .... we had to work our outing around her appointment to give blood. She and her hubby do it regularly - yay! I wanted to give blood last year, but was gutted when they wouldn't take mine. I asked them how long it would take before I could, and was told that they will never take my blood (because of the BC) Boo hoo! My sister told the person taking her blood today that she had to give for both of us - sweet aye!
meridian1 (294 ) 6:42
pm, 10 Jul
4635. Bogeyi
I just checked with my sister - her blood type is O+ and her hubby's is A- (very rare apparently) Neither are helping Ryan out directly - but as I reminded her, they ARE helping someone. Both of them have encouraged many others to donate as well!
meridian1 (294 ) 7:01
pm, 10 Jul
4636. we are home what a long day
Sonia thanks so much for calling in today, your girls are gorgeous, hope your car was fine..lol Ryan said to me in the lift, I didn't know Sonia wore a wig, that is cool maybe i should get one like that. Hopefully we can catch up for coffee soon, have fun tomorrow.
4637. ok update for today
as Sonia said Ryan received some blood today, hes now a nice peachy colour and has energy to burn. We had our meeting today and went as expected we know whats happening hes having same meds but double dose chemo and radiation, so have been told he will get very sick :( was given a percentage of success and that I didnt want to hear.When he has his hickman in next week they will also put in a nasal tube as they said he wont want to eat, with nausea,muscitis etc, hes not to happy about that but happy they will put it in when hes asleep. Then we decided to do Tylers bloods today, he needed the line in his arm (was not looking forward to telling him) had a couple of tears but did it like a champ, im so proud of him and this was one of his worries. So now our journey begins and am ready to take it head on and get it over and done with. I am so glad I have you guys for support and ride this wave with me. Thanks
4638. Paula what a bummer about Josh's counts
hope they are up soon so he can carry on, you are going to love Sonia and the girls just gorgeous.
4639. meridian thanks for thinking of Ryan
may not help him but it is helping someone somewhere, hello joystik love the pics very stylish, Boop how are you going, hello landylass and twinkies. I feel like I am getting a migraine (i hope not) so have taken nurofen...gosh i must have some stress in my life....hmmmmmmm
4640. Bogey
(Wipes away tears) for you and what you all have ahead of you. I wish I could do more but just know that there isnt a day that I dont think of you guys and send you all the positive vibes to get through this! Sorry to be emotional I just feel for you. I look forward to meeting you and hopefully Ryan. What a brave family you have! You are all amazing! Huge hugs xoxoxox
4641. Hi bogeyi ;o)
Car was still there LOL It was a shame there was that pressure to leave would've stayed much longer ;o) Yep call me if you have a window of free time - would love to catch up again without the ticking time limit ;o) Hate those % success statements - we're not numbers, we're people! Try to brush that aside if you can. Awww poor Tyler, what a champ he is, doing all this for his brother. They'll have an amazing bond when they're older I'm sure (as I'm sure they have already ;o) Hope it isn't a migraine sweets - they suck too, bigtime :o/ !!!
soniat-d (153 ) 8:02
pm, 10 Jul
4642. yeah am brushing that aside just dont
like hearing it, its a shame they mention this early on in the talk cause afterwards its like everything else is a blur...lol Paula that is so cool about the fishing..
4643. Bogey
Yea it will so cool. Two fishing trips was such a surprise. Thanks to Sonia and now Graeme. Pretty spoilt. Hope you are ok Janine, its been a huge day for you! Thinking of you my friend. xo
4644. hey sonia Ryan wants to know
if the wigs come in mohawks, and must be red,blue or pink..
4645. bogey1
Loving thoughts to you all.
4646. sonia
Thank goodness you started this thread, it has become such a big part of my life. I click on every morning as soon as I can to see what "my friends" are doing. If ever they remove this thread (God forbid!) just start a new one and we will all be back!! Loving thoughts to you all.
4647. 
LOL bogeyi
Awww he's a classic, and I loved the wanting an earring ;o) I'm sure they can make them whatever he wants LOL Tell him I think he'd look cool in some trendy caps ;o)
soniat-d (153 ) 8:34
pm, 10 Jul
4648. Oh yes diz5
Would be a truly thoutless person who would remove this - yep would start a new one instantly, can't miss my daily fix either ;o) Hey guys I did an hours worth of cycling today ;o) Getting back into it now, every day gotta do something - can't have Joystik showing me up ;o)
soniat-d (153 ) 8:36
pm, 10 Jul
4649.
when i read out what you said Sonia
Ryan had his finger in the air saying, I have a good idea while im in hospital i should get a wig ear that has a ear ring in it... Can you imagine rocking on up and asking for a wig ear..ha ha ha I love b ike riding to sonia, wish we had better places to ride around here, road can be dangerous with those westies..
4650.
Ooh the wig ear! What a classic!
What an awesome imagination he has ;o) Hey don't fret too much about westie drivers - they're mad here in Northcote too!
soniat-d (153 ) 9:28
pm, 10 Jul
4651. Hi all
Just finally caught up on Josh's journal. Going to head off to bed now. So hope you all have a good night sleep. Bogey hows the head?
4652. Just want to say I think all you ladies are
amazing. I read this thread every day - not because I have cancer, or any family members with cancer, but because you are such an inspiration to all of us. When my kids are "annoying the hell" out of me, I think of paulaxx and bogeyi whose kids are going through so much, and give thanks that my kids are so well. I hope one of you has actually saved this thread somewhere/somehow, as it truly would be a disaster if it disappeared.
4653. oh dear what a busy day, and then on the phone
all night I didnt get back to post and thank you for all your lovely comments about my new hair do. Glad you like it. I think it pretty darn good and looks way better than whats underneath anyway. The second link was wrong and should be http://images.trademe.co.nz/photoserver/5/24012305_full.jpg That should show you another pic of the wig side on. Sad about your boys Bogeyi and Paula, but will send loving vibes and hugs your way and will say a prayer for them too. Nite nite to you all, sweet dreams and hugs to you all too....
joystik (282 ) 10:39
pm, 10 Jul
4654. Just popping in to say
goodnight. Home from work but have to be back at 8am in the morning. Joystik your wig looks great. You would never know.Hope all goes well for Lauren. Bogeyi what a hard road you have ahead of you. Ryan has an awesome sense of humour...a mohawk sounds great!!As for the ears...hehe! So pleased that you, Sonia and families managed to meet up. How lovely. Paula, I do hope Josh picks up quickly now you have stopped the meds. My love and thoughts with you all. Off to bed. Nitey nite XXX
maewest (76 ) 11:17
pm, 10 Jul
4655. Hi maewest you are as bad as me
still up at this hour. Don't over do it and work so hard you girls with cancer or recovering seem to have a never ending supply of energy. Sonia works all the time too. Poor wee joshi I am praying he will get up north and have the time of his life. Hi joystick nice to have lauren back. Hey I would like a wig like that too hide all of the greys and to look like a young chic again. Bogey, I am thinking of you and young Ryan just hope it all goes well for you and Tyler as well. God bless. Sonia what has em been up to this week has she knocked anymore c d racks over?
4656. Morning all :o)
Yep Boop knows me well LOL I was up a bit late last night tidying up (well overdue!) etc. I'm suddenly finding it hard dropping off to sleep - just don't feel tired. Hopefully that'll pass?! Emily's being a good girl again (= no more public displays of chaos, touchwood!). She ended up in our bed last night (OK I brought her down when she started whimpering ;o) and cuddled her all night - she's soooo lovely to sleep with. I was naughty bringing her down but... :o) Morning all hope you have a good morning - we're off soon to the Cinderella show, the girls are going to wear their fancy fairy dresses. Should be fun - thanks again Bogeyi for giving us the tickets :o) :o) :o) :o)
soniat-d (153 ) 8:08
am, 11 Jul
4657.
Thanks Mimi1 for posting
:o)
soniat-d (153 ) 8:09
am, 11 Jul
4658. morning Sonia
have fun you girls....
4659. Morning all
Thanks Mimi for thinking of us. Joystik lovely photo. Sonia - hope you have a great day. The girls will look gorgeous. Have fun. Bogey - how was your night? Hope you managed to get enough sleep. How are your coughs? Morning to everyone else. Hope you all have a wonderful day xo
4660. morning Paula
fell to sleep on the couch last night with Tyler when woke up most of the migraine gone, rest of the night pretty good, coughs getting better thanks.No sign of Ryan yet..Hows Josh today..
4661. Bogeyi
You poor thing, must of looked like a picture though you two curled up together. Glad your heads a bit better!!! Josh is not looking great. His cough is sooooo chesty now, but I have to say it was nice to not have to worry about all the meds etc.
4662. Maewest
Hope work was ok last night. Have a nice day today and thanks for your lovely thoughts xo
4663. Hi Paula, glad things are a little better for you
all today there. Yeah a night off from giving the drugs would have been good. Hope the cough soon disappears completely and he is as fit as a fiddle to go up north. Not even two weeks to go nowso time will just fly by. Dr Fonz is sending Lauren for an X-ray to make sure the hips are properly in the sockets before he does anything else. He is inclined to think that all this has come about because she has grown so big, so quickly through the 11-14 years. She has probably increased in height 30 cm and weight probably 15-20kg, and he just thinks that the muscles haven't had time to catch up. The Dr himself is very tall at about 6'6" and said he experienced the same things as a teenager because of excessive growth. He moved the ankle, knee and hip joints about, and said that Lauren is also extremely flexible, which would also add to the problem if the tendons and muscles aren't strong enough to hold the joints. So, we will see bu it will possibly take 2 months to get the xray!
joystik (282 ) 9:15
am, 11 Jul
4664. Sonia, you have a happy day at the Cinderella
show today and we will look forward to more pics of the little ladies in their fairy dress's. So are you not sleeping well even with the increased melatonin?? The only time I dont sleep is when I'm on those blimmin steroids for 2 days, and I dont like it either! The rest of the time I am asleep within 10 minutes of turning the light out, and wake after 10+ hours! I think there's an animal that sleeps much like that isn't there?? What is it?? It certainly isn't because you aren't tired,because you never stop during the day. Must have been so exciting meeting Ryan and his family yesterdy, you lucky thing. One day we're gong to come up and meet you all too..
joystik (282 ) 9:19
am, 11 Jul
4665. Hi Bogeyi, hope things are better at your house
today. Glad the migraine has left, nasty things that they are, not that I have ever had one but both Lauren and Kevin used to get them wickedly. Must be the supplements, haven't had one for ages, either of them. You little boys really are great little guys for each other aren't they? You must be so proud of them. Is Kirst'y bone marrow a match as well or just Tylers? What about you and your husband? Do you get the match like you do with the blood types? Hope Ryan is well enough to meet up with Josh in a couple of weeks....wouldn't tha be just awesome. Have a good day bogeyi - I think about you all the time and send good thoughts your way to hopefully help you through this rough stuff.....
joystik (282 ) 9:24
am, 11 Jul
4666. paula just to let you know
cant remember on here who suggested the manuka honey (but whoever it was thanks) that sunday I took Ryan to hospital I was sure we were going to be back in, he was sounding terrible but I was giving him a teaspoon of the honey (he just sucks it off the spoon) and the next day no sore throat and cough heaps better????the only thing different i was doing was giving him the honey... We bought this when he went into transplant for the ulcers which he never got, but have been told that he will get them this time so will have it on hand and hopefully will give him some relief.
4667. Gee maewest, I was still lying in my bed half
asleep and you were off to work! What a trouper you are too. No doubt you will be looking forward to your days off and a bit of time to relax and do some stuff for your self. Thanks for your comments about the wig. I think it looks ok, and similiar, but in other ways quite different.. I have always had my hair quite short and layered through the top, whereas this is very long through that part. But its good as! I'm going to study today and try writing up some Sale and purchase agreements. Not hard actually, just requires some thinking and application. Enjoy your day....
joystik (282 ) 9:29
am, 11 Jul
4668. Manuka honey is so good for so many things.....
my elderly Auntie had a leg ulcer and was told to bath it in sea water and then cover it with manuka honey, which she did and the improvement was amazing. So much for the drug companies and all their wonder drugs.........
joystik (282 ) 9:31
am, 11 Jul
4669. Good morning Boop, Have you a supre day in
the Buller regin today? It is still very warm here, obviously nor west, but overcast. I dont mind though, its quite pleasant not having the frosts at the moment. Yes, it is lovely having Lauren back. Shes a nice girl and lovely to have around most of the time! Its like having a friend in the house as well, but then its like that with Kevin too. He's my best friend as well as my husband! Lauren is wanting her friend Laura to come and stay, so we'll have to see what we can arrange. They can sing and play X-BOX and I will study. How do you plan to fill in the day? More work at the Op Shop? My frind in Perth manages an Op Shop and just loves it. I think its on a fairly grand scale compared to what we have here though. Talk again soon....
joystik (282 ) 9:36
am, 11 Jul
4670. Good morning mimi, jules, sundown and dize....
thanks so much for taking the time to pop in and post such lovely messages. It so heart warming to know that there is supposrt from so many people out there. This Cancer thing reaches out and touches so many in both good ways and not so good. Interesting about the blood Meridian. So that will mean then that I wont beable to donate any more of my good O - blood either I suppose. Dont know how many donations I did give, but would have been over 20 I suppose. I so much enjoyed doing that, Another thing that always impressed my was, how pleased the College boys were to all line up and give their 475mls each time the Blood service came. The Local boys College would bring a whole bus load in, at a time, and it was just great to see all these young fellas helping out and being so positive. Have a great day ladies wont you....
joystik (282 ) 9:44
am, 11 Jul
4671. Bogey
I am going to give Josh a spoonful of the manuka honey now. Cant believe I have dont it till now, his tastes are so out of whack he wont try different things. Gone right off food again - so wish me luck - might have to get a bit stroppy and insist. xo glad it helped Ryan
paulaxx (77 ) 11:00
am, 11 Jul
4672.
Oh that is so cute
he opened his mouth looking really suss at me. You should have seen his face - not pretty. I went away and washed the spoon etc (had a bit myself) then came back and he looked at me smuggly and said can I have some more lol. I said later. Thanks so much for reminding me about that Bogeyi!
paulaxx (77 ) 11:03
am, 11 Jul
4673.
Hi Joystik
The Dr's explanation certainly makes sense, so now I guess you just wait for the xray. Poor Lauren she must be in pain though thats not great! Hope you are all good. Ive just caught up on all teh book work here, done the GST and PAYE and all the fun stuff. Love to you all xo
paulaxx (77 ) 11:06
am, 11 Jul
4674. good afternoon all :))
I hope your all having a good day especially Ryan and Josh.I still swear by manuka honey and vit c.for any burns manuka honey is excellent but messy!! Joy that wig really suits you, looks very natural. Did the Dr give lauren any strengthening exercises, it really helps.My son Ryan has a very similar problem and it was made worse on his left side by the encephalitus. Paula I would imagine you would see similar in Josh where one side is weaker and its very noticeable when they are tired? For years Ryan walked with a lean to the left but as they grow and strengthen the muscles it does improve to the point where its only you can pick it occassionally. The only thing thats still obvious to me me is Ryans left foot points outwards when he walks and I think some of that is coz hes flat footed. The Brain heals very well in children :))
janetmk1 (38 ) 12:24
pm, 11 Jul
4675. bookwork :))
I am doing the same today Paula:) DO you work from home too?
janetmk1 (38 ) 12:26
pm, 11 Jul
4676. Hi Janet, this Dr was preferring to see if there
was aproblem with the positioning of the hips first before he would start any sort of strengthening or manipulation. He was rather appalled that anyone had put gher too and extensive physio programme without first ascertaining if there was a structural problem. She had a lot of physio on her ankles and knees, and although they are generally better, it seems to have made the hips much worse. Glad to here you had success with yur Ryan. I'm off out now for a walk, the day is so sunny and warm.....
joystik (282 ) 1:05
pm, 11 Jul
4677. Good on you Josh for trying out the Manuka honey..
wonder what Malt is like for giving extra boost?? We as kids, were always sent off to school in the morning, in winter, with a spoonful of Maltexo in our mouths. I quite like it actually, but dont know how good it is for you. You,ll be feeling much better real soon anyway Josh.
joystik (282 ) 1:07
pm, 11 Jul
4678. Heres a pic of my Lauren......
http://images.trademe.co.nz/photoserver/99/24064199_full.jpg Not a very good photo but shes a bit like you bogeyi, and pulls a face or sticks her tongue out when you want her to be serious about a pic. Shes taller than both Kevin and I and built very solidly!!, but just a super young lady really.....says the proud mummy!!
joystik (282 ) 1:13
pm, 11 Jul
4679. thanks for the pic joystik
she sounds like my type of girl pulling funny faces and all. Sonia how was the show, good i hope.Paula glad he liked it, i to forgot i had mine in the fridge.
4680.
Thanks for showing us your lovely Lauren Joystik
I can see the family resemblance :o) So she's cheeky eh? Just like Emily ;o) Hope she's feeling better today :o)
soniat-d (153 ) 2:15
pm, 11 Jul
4681. Ok, so a big fun day today :o)
Took the girls to Cinderalla - they loved it - it was a great small show with 4 actors (2 men 2 women) doing about 10 roles. Lots of good humour and fun! Thanks so much Bogeyi :o) Took them to a local pet shop after then to McD's for lunch - major treat morning! LOL Been busy now finalising our Fiji holiday - yay its all booked now and IS happening :o) Woohoo! OK off soon for my vitamin C infusion.
soniat-d (153 ) 2:21
pm, 11 Jul
4682. Yes Sonia,she's cheeky alright! Always has been
right from a wee tot. shes grown up so quickly though, its a bit sad in lots of ways. How was the Cinderella show Sonia?? Bet it was wonderful. Well I must go and ride my bike for 1/2 hour, then come home and get the washing in. Its so lovely and sunny here and 16.6deg. Just phoned Paula, but shes not in, sotaked to Chris for 30minutes. He's lovely just like Paula too....Josh is on the X_-Box and seems happy too so thats great.
joystik (282 ) 2:24
pm, 11 Jul
4683. Hi Joystik ;o)
Yes I'll be asking them questions today about the effect on my sleep. Check how much melatonin I should be having etc. The melatonin worked so well at first - have I become used to it already (bit fast!) or is the Vit C rush overriding it? Will be interesting to see what he says. Wierdest thing is... I'm not tired, even after only 6 hours sleep!?! That's not right!
soniat-d (153 ) 2:24
pm, 11 Jul
4684. Kool, when do you go Sonia?? Did you say mid
August?? That will go really fast. Its less than 2 weeks before Josh and family are up to seee you all, and boy they are so excited...
joystik (282 ) 2:26
pm, 11 Jul
4685. Thats good Sonia about not being tired, but a good
sleep is very good for you. If I take a magazine or book to bed to read, I would bee asleep within 5 minutes, not the usual 10! Anyway,I must go now and ride the bike and see where the fire engine has gone.....the siren went for ages....
joystik (282 ) 2:28
pm, 11 Jul
4686. Yep we're going for 10days
13 - 23 :o) Staying at the Sofitel which is apparently awesome. The trouble was finding suitable rooms for families like ours where kids sleep a lot more than the parents ;o) Got a family room with queen bed and bunks seperated by a pull-across partition.
soniat-d (153 ) 2:30
pm, 11 Jul
4687. how cool can I come I love Fiji
Glad you had a fun day Sonia, did they girls like the humour in it (or did they think this is not cinderella).No bunny in the car??
4688. Sonia
I wanna come to Fiji tooooooo... Its a great place to have a warm relaxing holiday. I went there for 3 weeks on leave from PNG when my oldest was 1 and lazed on the beach all day with him, its so lovely. Its worth hiring a car and going to Suva for a day and Lautoka is quite nice too. I know you will have an awesome time :))
janetmk1 (38 ) 3:07
pm, 11 Jul
4689.
hello ladies
just popped in for a quick hug for you all, been busy with two extra teens this hols so they get the puter over me lol hope you are all doing well and having happy times this holidays take care all and hugs to all xx lesley
4690. Phew, I'm home
and hopefully will be here for the next 3 days!!! Here's hoping. Bit of a struggle getting up at 6.30 this morning. Your daughter looks lovely Joystik. Must be nice having her home. Paula hope the manuka honey does the trick and so pleased you had success with it Bogey. Hiya Boop (hell I love that username! Even love typing it!!) Bit cool and overcast here today. Looks a bit threatening actually. More snow on the way??!! Sonia, glad you all had a lovely day. Bet your girls looked really cute in their costumes. My sleep patterns are all over the place too. Lucky you Joystik, being able to drop straight off to sleep. Where's Twinkies?? She hasn't been on here for ages. Do hope everything is okay with her and Briyanna.
4691. Ooh Sonia Lucky you
After all you have been through in the last year you deserve it-My sister & BIL are in Fiji at the moment doing a 6 night/7 day Blue Lagoon Cruise. Oh I wish it was me.
persioux (198 ) 4:17
pm, 11 Jul
4692. HI...
Joystik, Chris just loved talking to you too. Sorry I missed you though. Sonia yay - about Fiji. You deserve it. But you know you really shouldnt be carrying any heavy bags and you and Brent deserve some time out on your own so I will be happy to carry teh bags and babysit on those odd occasions.LOL. Anyway that is so cool, something to look forward to. Hi Boop and Maewest. Hows your days been? Lots a love to you all xoxoxo
4693. janetmk1
Hi, yes I do all the business's stuff from home. We are in a partnership so all the bookwork etc I do - yay. Its ok, keeps me out of trouble. ;o)
4694.
janetmk1
forgot to add, yes you can really notice Josh is tired his right side droops and his eye does too. He limps and also the Vincristine chemo affects their legs and feet. So he is supposed to do daily exercises to strengthen them up. :o)
4695. Joystik
Lauren is gorgous just like her mum. I hope they can sort things for her soon, not fair if she is in pain. :o( xo
4696. bumping cause if one of you nice ladies
talks to me then I wont have to go and prepare dinner..
4697.
I'll talk to you Bogeyi ;o)
Just got in ;o)
soniat-d (153 ) 5:25
pm, 11 Jul
4698. oh goody
was about to move....have you been for your vit C injection??
4699.
Hi all
Yowsa - Vit C not so fun today - infusion was verrrrry slow (from vein on top of my hand) and then they took a blood test from another vein nearby. Waaaaaa I don't want to go back there! ;o)
soniat-d (153 ) 5:27
pm, 11 Jul
4700. hundy
yahoo
4701. The humour in Cinderella was great :o)
The kids were laughing away all through it, as was I ;o) We were in the centre one row from the front ;o) It was great :o) Thanks again xoxoxo I'll see in a bit if the pics I took came out (couldn't use flash)
soniat-d (153 ) 5:28
pm, 11 Jul
4702. ow Sonia
does arnica take bruising away for you..
4703.
Wow the hundys roll over every few days LOL
Cool :o)
soniat-d (153 ) 5:29
pm, 11 Jul
4704. 
Hadn't thought of Arnica actually
Silly me! Thanks will try that ;o) They suggested I find out why they can't infuse through my other hand, as the veins are awesome there (I'll never be a hand model LOL!) So am ringing oncologist soon too, as we think its be great to have it going directly through the affected side ;o)
soniat-d (153 ) 5:31
pm, 11 Jul
4705. Hi Sonia
They will probably say no! I think it is all to do with the risk of lymphoedema in your arm. Awww...Fiji sounds wonderful. Something to look forward to.
4706.
Yeah I know Maewest
Actually I saw a lady with lymphodema there today - wow! Looks terrible!?! And I know it can kill...
soniat-d (153 ) 5:35
pm, 11 Jul
4707. The worst part of it is Sonia
that once you have, you have it for life. I don't think it is worth the risk having needles in your other arm. I got a rose thorn in my 'bad' hand last summer and within 24 hours my whole hand was up like a balloon. Straight to the dr for antibiotics!
4708.
I understand Maewest
It just, right at the mo, my veins are pretty shot on the left side, lots of bruising, few prominent veins. #Shrugs#
soniat-d (153 ) 5:42
pm, 11 Jul
4709. 
Poor Sonia
Not fair - hugs coming to you and your poor hand and bruises (((((HUGS)))))
4710. I understand
I know when I have to have blood tests now it takes them an age to find a vein. It's just something we have to put up with I guess.
4711. we are all off to the movies to see
pirates of the carribean soon, cant remember the last time 5 of us went altogether..
4712. Bogeyi
I took the boys yesterday I hope you enjoy it :)
janetmk1 (38 ) 7:27
pm, 11 Jul
4713. Bogeyi
Cool, hope you have the best time.
4714. Sonia, do you want to borrow my Port??? I think
that is going to prove invaluable for me, cos my veins aren't that good on a good day.
joystik (283 ) 7:47
pm, 11 Jul
4715. Sonia
Not sure if you have already said if so sorry, but did they say the Vit C is keeping you awake?
4716.
Hi Joystik
Chris really did love chatting to you today ;o)
4717. We haven't been to the movies for ages.....
bit far to go from here, and I would probably go to sleep or 'play up' and embarass Lauren!!
joystik (283 ) 7:49
pm, 11 Jul
4718. Paula,sorry I missed you too. It was nice to have
a chat to Chris. I think we discussed lots of worthwhile topics. Tell Chris the fire engine went out Nightcaps direction, so it wasn't me buring the tea again!! Hows the hair do tonight?? Any pics coming on stream??
joystik (283 ) 7:51
pm, 11 Jul
4719. Joystik
You sound like fun to go to the movies with... No, no pics tonight. My hairdresser has lightened my hair ready for the next competition in Invercargill on 23 July. So it was a session with some technicians from Wella today to get it back to a more natural colour. (Bit too dark before - I thought) She also trimmed it so its looking like a bob now.
4720. Vitamin C does keep you awake!! I had a bad
&n